Help with symptoms please?

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zeldagoblin
Regular Member


Date Joined Mar 2010
Total Posts : 204
   Posted 3/12/2010 6:23 PM (GMT -6)   
Hi guys, bad day. I was thinking bout my symptoms today, and I think it would help a lot for me to take a list to my doc, so they can ascertain what is and isn't relevant. I was wondering how many of my symptoms are similar to anyone else here?

Here is a list of my current symptoms, and something of a timeline.

Last 13 years - heartburn, indigestion, constipation, over eating when full
Last 3 years - hoarse, singing voice went slowly from very good to useless.
18 months ago - felt like epiglottis was swollen. lasted 2 weeks.
last April - itchy prickly skin
last July - epiglottis feeling returned. no relief, voice hoarse, register dropped.
August - lump in throat well established, although not there in the mornings. Sleep apnea.
Sept - as above
Oct-Nov - as above, sleep apnea worse, snoring, itchy skin subsided. Lump now present mornings from 10am.Sore right ear. Locum prescribed rabeprazole, bloods done, normal results, albeit borderline anaemic.

Dec - lump seems harder, right ear painful. Cant lie on front, feels like airway is blocked this way. Snoring and apnea on back.
Jan - ENT, bowed vocal chords detected, rabeprazole doubled, gaviscon added.
Feb - symptoms intensified, lump present from waking, throat feels like concrete, palpatations. Ears sore. Voice unreliable. All symptoms much worse in evenings. Discomfort has spread to upper chest.

Food/drink makes no difference to anything, with the exception of alcohol, which, immediately upon drinking causes throat to feel closed, and voice to disappear. Quit drinking alcohol in Nov. Quit tea/coffee/chocolate/sugary stuff one month ago.

Do any of you guys relate to any of this? These symptoms are very alarming and the lump feeling hurts a great deal. It sort of offends me when professionals refer to it as a "globus sensation." It is much more than a sensation, it is crippling. Once it kicks in I just shut down, I cant read with the kids, cant stand up, feel exhausted from straining against the pain.

Anyone similar?

Liz x

Edited to add painful belching occurring with the rock in the throat, and unable to yawn properly when throat is bad.

Post Edited (zeldagoblin) : 3/13/2010 7:04:38 AM (GMT-7)


dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 3/12/2010 7:09 PM (GMT -6)   
Hi Zeldagoblin,
Welcome to Healing Well! You've definitely come to the right place. Everyone here has experienced at least some of the symptoms you've describes, and I would be surprised if there weren't some who have experienced all of them.

I've lived with the heartburn, indigestion, lump feeling--inability at times to eat any more than a tablespoon or two of food at a time. I've ranged from constipation to very loose stools...I have lost my voice--I'm a teacher and I need to be able to talk and sing with my second graders.

Some of your symptoms sound like allergies. Have you every been tested? I have allergies as well.
If you have a GI doctor who won't listen to you and doesn't take what you say seriously, I think it's time to find a new doctor. I had that experience, and I am very happy with my new GI doctor.

We're all here for you. You're not alone. Hang in there. Things WILL get better!
I'm sure others will be along to talk to you soon. This is a great forum, with many very caring members.
Take care,
Denise

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/12/2010 7:31 PM (GMT -6)   
I have sleep apnea. I use a CPAP.
Have you got a CPAP? The constant air pressure can help the sleep problems. It also keeps the airway open and the epiglotis (the opening to the esophagus) closed, which can help the acid stay out of your throat.

Joy

zeldagoblin
Regular Member


Date Joined Mar 2010
Total Posts : 204
   Posted 3/13/2010 10:37 AM (GMT -6)   
Hi couchtater, I have never heard of a CPAP. The apnea is not severe, I just want to keep it in mind as it all seems to add to the GERD diagnosis. The main problem I am having right now is that no one has actually give me a diagnosis, I am just left feeling like there isn't anything they consider worth naming, just that I have "crappy health". I am only 35 and I am so depressed, I feel like my normal life is over and I am left just trying to survive each day, (and sometimes each hour) without having a breakdown.

Dencha, I am also in the education field, I am a TA, but I used to sing recreationally too. I now cannot even sing one song without severe throat aches. In any case, I sound terrible. It's one of the things that has broken my heart more than anything, my singing was very important to me and now I have no ability to do it.
As for GI docs, well I don't even have one, I am currently being passed around an ENT team who treat this with flippant nonchalance. Yes I do have quite a few allergies, I did think the itch was scabies because my brother came back from a visit to Tel Aviv with scabies and we visited him before he became symptomatic and was diagnosed, but it could well have been an allergy to something else. Thing was, the scabies thing was so stressful, because we kept treating it and the itch stayed, and I wonder if the stress caused all my symptoms to come to a head as they have done. This has been the worst year of my life, I keep waiting for a respite from it all. If they could take away the throat lump I would be eaasily able to cope with the other symptoms.

elymaloa
New Member


Date Joined Mar 2010
Total Posts : 8
   Posted 3/13/2010 11:47 AM (GMT -6)   
oh I know how you feel I cry all the time praying that all this goes away I have been sick like that for 2 weeks now I usually have a flareup of symptoms for the past 3 yrs but this time it just seems I cant get it under control. I experiece it all but my thoat pain is not as bad as you describe. I do believe that sometimes we cause our own symptoms by worring so much and stressing about it I have started to use some meditation videos on you tube and it really helps me relax and not think about it as much, cause when i do i have a lot of anxiety which makes my symptoms worse.good luck hun find a good dr and just remember this to shall pass.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/13/2010 3:01 PM (GMT -6)   
I felt horrible from the lack of sleep from my sleep apnea. I walked around in a daze half of the time. I fell asleep if I got still. I was waking up all during the night. I never got a good solid night of sleep. I was exhausted.
A CPAP is a special computerized breathing machine called "Constant Pressurized Air Pressure" it pumps air into your lungs according to your breathing pattern to keep your airway from closing. My airway was closing every 2 minutes causing me to wake up and gasp for air. The doctor said it was very bad for my heart and body, it was equal to me jumping out of the bed and running two flights of stairs every two minutes.
I don't sleep without the machine. If I do, I feel horrible, it's like I've not slept for weeks.
A pulmologist put me with a sleep study and they did two overnight breathing studies.

Joy
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