Role Call....How is Everyone Doing? March 2010

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stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/14/2010 9:51 AM (GMT -6)   
Good Morning to each of you,

I would love to hear from you how your doing. I know the members would like to read updates too. Post a note or two so we can keep track of you.

My GERD has been doing well and I am still on the Prilosec daily. I avoid the dairy products that were causing regurge as well as I do not eat after 8:00 PM in the evening.

I look forward to reading updates from all of our great members.

Gentle Hugs,

Kitt

zeldagoblin
Regular Member


Date Joined Mar 2010
Total Posts : 204
   Posted 3/14/2010 10:55 AM (GMT -6)   
I know I am new here and just posted these, but I thought it would be good to add them in here too.

Here is a list of my current symptoms, and something of a timeline.


Last 13 years - heartburn, indigestion, constipation, over eating when full, urgent hunger pangs.
Last 3 years - hoarse, singing voice went slowly from very good to useless.
Septemder 2008 - felt like epiglottis was swollen lasting for 2 weeks.
April 2009 - itchy prickly skin
July 2009 - epiglottis feeling returned. no relief, voice hoarse, register dropped.
August 2009 - lump in throat well established, although not there in the mornings. Sleep apnea.

Sept 2009 - as above
Oct-Nov 2009 - as above, sleep apnea worse, snoring, itchy skin subsided. Lump now present mornings from 10am. Sore right ear. Locum prescribed rabeprazole, bloods done, normal results, albeit borderline anaemic.

Dec 2009- lump seems harder, right ear painful. Cant lie on front, feels like airway is blocked this way. Snoring and apnea when sleeping on back.
New Year Eve 2009 - ENT, bowed vocal chords detected, rabeprazole doubled, gaviscon added.
Feb 2010 - symptoms intensified, lump present from waking, throat feels like concrete, palpatations. Ears sore. Voice unreliable. All symptoms much worse in evenings. Discomfort has spread to upper chest, painful belching occurring with the rock in the throat feeling, and unable to yawn properly when throat is bad. I have also developed restless legs syndrome.
March 2010 – more bad days than good, throat symptoms worsening, feels like a rock in there all the time, tight, painful, and ears hurt. Restless legs every night, palpitations. ENT review, no real advice, throat examination cursory, no mirror, chords not examined. Meds not changed even though my symptoms are worsening. Sent for barium swallow.

Food/drink makes no difference to anything, with the exception of alcohol, which, immediately upon drinking causes throat to feel closed, and voice to disappear. Quit drinking alcohol in November. Quit tea/coffee/chocolate/sugary stuff/tomatoes/spices in Feb.

These symptoms are very alarming and the lump feeling hurts a great deal. "globus sensation." It is much more than a sensation, it is crippling. Once it kicks in I just shut down, I can’t read with the kids, cant stand up, feel exhausted from straining against the pain.

I have yet to receive a solid diagnosis. I have yet to receive any advice with regard to lifestyle/diet/strategies for sleep. I feel very strongly that my treatment is not effective and that my recent review was not adequate. Surely if my meds are not helping then they need to be changed. I feel that 8 weeks is too long to wait while symptoms are steadily worsening. Awaiting barium swallow results.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/14/2010 1:55 PM (GMT -6)   
Joy here...
I'm three months post-op from the modified Hill procedure. I'm eating well (too well) and feeling no pain. I've been sick for the last month with bronchitis, double ear infections, and sinustitis which rolled over into walking pneumonia. :( I've now got another sinus infection trying to grab me. I'm hoping to master this and stop coughing from the congestion.
I'm looking to feel well in a few days and start feeling the good of the surgery.

Joy

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5029
   Posted 3/14/2010 4:39 PM (GMT -6)   
Alcie here -
I'm 4 1/2 months out from Toupet fundoplication (partial wrap like Nissen). I'm able to burp right after eating, no pain from op anymore. I still can't eat vegetables that produce gas, so make a big effort to eat salad to get adequate vitamin K.

I found out I am seriously low on vitamin D despite taking 3 supplements that contain it. I found an article that explained to raise vitamin D level 1 ng/mL in the blood you need an additional 100 units of supplement. My level was 18, should be 32 in old scale or 50 new. So I need 2000 units more to raise to 38 or 3000 units to raise to 48. Taking this just one day improved my pain level (mainly fibromyalgia and side effect of cancer meds) by about half. Yay!

I have no reflux. Also have no cardiac reflex tachycardia as long as I avoid my food allergens/sensitivities. I tolerate more foods now that I have had the wrap!
Alcie
 
 


my7pinecones
Regular Member


Date Joined Feb 2010
Total Posts : 74
   Posted 3/14/2010 4:46 PM (GMT -6)   
Zelda...are you seeing a qualified (esophagus emphasis or specialty) GI doc? I ask because you mention an ENT which is a very different specialty and in my opinion not very useful if the problems are esophageal in origin. Problems with your esophagus can the the origin of wheezing, sinus, asthma, hoarseness, tight chest, chronic bronchitis, etc. It is important to find the source of these and other symptoms or you will spend a lot of time, sickness, money, etc. chasing and treating symptoms, rather than solving the core problem. I have all the ones you mention and my problem is an esophageal LES problem. I haven't had any or much voice continually for over 6 months. The ENT doc said it was no big deal, it would return in a couple of weeks (this after no voice for 3 months) and my GI surgeon said, months, years, or possibly not at all, following surgery. This is not common...I've been working with my LES/hernia, etc problems for over 25 years and having already had 3 major esophageal surgeries and in the decision making process of a 4th.

I hope you have and find the right doctor. Makes a huge difference! I am so sorry to hear of your suffering. I pray you find relief and permanent solutions!

zeldagoblin
Regular Member


Date Joined Mar 2010
Total Posts : 204
   Posted 3/14/2010 5:13 PM (GMT -6)   
my7pinecones, no I am not seeing a GI doc, I only heard of them since joining this forum! My trouble with that is, I am not properly diagnosed with GERD, they are just giving me GERD type treatment, but no one has named my sickness. I am going to mention this at my review, but that is 8 weeks away and I am rapidly deteriorating.

REDSAM
Regular Member


Date Joined Feb 2007
Total Posts : 98
   Posted 3/14/2010 9:37 PM (GMT -6)   
I am doing a bit better since my GI doc visit from ####. I have been holding my feelings in since Thursday.  I'm still a little depressed.  I hope I get some good sleep tonight without playing that visit over and over in my head. 
 
 I finally discussed the visit with my husband today. He made me feel somewhat better. He said, sure we could all stand to loose weight, including that doctor!  My hubby also said, he believes this doctor to be a one and done type.  Easy stuff, nothing complicated.  I agree it fits.  So we both agreed, I need to Fire him and start with a different doc who WILL be willing to help me.  My husband told me "You ARE barely eating".  He see's my suffering, as do my kids.  That helps.
 
I think I may be coming down with something.  GREAT.  So I am off to bed.
 
Maybe this week will be better!!!!
 
Hugs, Sue
Sue-Hypothyroid, hysterectomy,  Abdominal Adhesion Pain, No female parts, no gallbladder, sinus Surgery. Please put a fork in me I have to be well done!


my7pinecones
Regular Member


Date Joined Feb 2010
Total Posts : 74
   Posted 3/15/2010 12:39 AM (GMT -6)   
Alcie,
Glad you are getting results from your Vitamin D supplements. I was dx deficient and now take 50,000 IU D3 once a week and 5,000 IU D3 daily.

Mike C
Regular Member


Date Joined Mar 2010
Total Posts : 45
   Posted 3/15/2010 8:14 AM (GMT -6)   
I have been feeling lousy since a I drank heavily at a New Years even party... I should have known better... I have a lot of chest pains..but what scares the bejeesus outta of me is these attacks I get where it feels like you swallowed a golf ball..so far I have gotten them four times since the beginning of January....My recent ultrasound and x-rays just confirmed what I already know ... that I got a hiatus hernia and acid reflux....

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/15/2010 8:22 AM (GMT -6)   
Dear Friends,

It is so good to read your updates and some of you are up and some not feeling so up but it is good to hear from you.

Come on all, let us know how you are doing. Remember we are family and we need to keep in touch with each other.

Happy Monday !

Kitt

PH Fan
Regular Member


Date Joined Dec 2009
Total Posts : 88
   Posted 3/15/2010 12:53 PM (GMT -6)   
My swallowing problem has goin away for now.I switched back to regular prevacid,I don't know if that was the reason or not so I'm just going to stick with it,as for my 12 year old son he's still on prevacid,he goes back to the allergist in mid april,I still don't think it's LPR thats causing his problems,I guess it's a wait and see situation.

StaceyA
Regular Member


Date Joined Feb 2010
Total Posts : 114
   Posted 3/17/2010 9:51 PM (GMT -6)   
I had the Nissen Wrap Jan 18, 2010. Have recovered pretty well. Still not enjoying eating very bready things, although I can. I just feel an unusual feeling in my throat. Still have some gassy feeling with carbonation and usually limit myself to one per day. That is much healthier anyway. All in all recovery went pretty well.
Now I just have this very uneasy feeling in my stomach, particularly upon waking. I really don't know what is causing it and am fairly sure that it is unrelated. Maybe some anxiety. It has been a problem for several weeks so I may be back to see my GI doc for a new reason.

Best to all!

Stacey

cowboy22
Regular Member


Date Joined Aug 2009
Total Posts : 172
   Posted 3/18/2010 1:55 PM (GMT -6)   
Hi All.Had anterior 180 wrap  august last year after poor testing. Basically no testing and surgeon mention cancer .My gp now is saying  I didnt need operation!The same one who sent me to surgeon!If that doesnt play with your mind and put you on all sorts of anxiety meds i dont know what will. Was doin ok for 2wks then too much physical activity.Major downhill from there.  Lots of food regurgitation now .Will be seeing a professor in this surgery (YAY) sometime this yr.Been told this is all in my head.BUT we only have today so make the most of it!!!...   Good idea skitt hope you are all well...

Good Days
Regular Member


Date Joined Oct 2008
Total Posts : 146
   Posted 3/18/2010 3:04 PM (GMT -6)   

Hi All,

Glad to hear all the updates.  Thanks Kitt.

I had my Nissen surgery in Oct 08.  It worked great.  No longer the coughing until I threw up or completly losing my breath.

My cough was still there, but different.  This fall it has been bad so I finally broke down and saw an allergist on Monday.  My lung function is fine, she tested it.  Found that I am allergic to dust mite, outside mold, cats (don't have one), weeds and ragweed.

She gave me load of samples and one of them was a new allergy tablet.  Took one Tuesday and could tell a world of difference.  When I cough it is just a natural cough, no mucus, no long hard coughing.

I will start allergy shots as soon as the serum comes in.  I choose that since insurance pays for it and they won't pay for the newer allergy tablets.  Or at least only for a few a month if at all.

I am so excited to feel normal again.  Hopefully with the shots and some otc allergy tablets I will be cough free.  The dr told me that Sam's has some allergy tablets, she said about 100+ and that they cost $20.00.  She said I could take one of them in the morning and one at night.  The tablet she gave me is a 24 hour one.

Hope everyone improves soon.      Jayne


bigecase
Regular Member


Date Joined Mar 2010
Total Posts : 384
   Posted 3/18/2010 8:41 PM (GMT -6)   
HI everyone!
 
I had Esophyx surgery Feb 16, 2010.  I had a rough go the first two weeks but doing much better now.  Still only eating soft foods.  I have lost close to thirty pounds in the 4 1/2 weeks since surgery.  Need to lose about 20 more (ha). 
 
My return visit is this Monday and I am hoping he says I can try some different foods.  Although I do not want much of anything to eat.
 
As far as the success of the surgery, I still have burning from throat all the way down.  I am not taking the Omprezole any longer though.  I am still hopeful that I will get better.
 
Prior to surgery had headaches daily-none since surgery.  I am thinking the meds were causing this. 
 
I will post after my visit on Monday.
 
Tracey

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 3/19/2010 12:26 AM (GMT -6)   
Hi all-
Things are really well since the redo and holes in the stomach have completely healed. Sure is nice to be able to eat steak again! Just wish they would have found out what was wrong about 2 1/2 years sooner.

Take care,
Bill

Good Days
Regular Member


Date Joined Oct 2008
Total Posts : 146
   Posted 3/19/2010 7:22 AM (GMT -6)   

Bill,

Ok, guess I have been gone for awhile.  What did they find out was wrong?  So very glad you are doing better.

Jayne


opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 3/19/2010 12:47 PM (GMT -6)   
Jayne-
sorry guess I should have put the date. LOL! I had the redo back on May 18th.

Take care,
Bill

Good Days
Regular Member


Date Joined Oct 2008
Total Posts : 146
   Posted 3/19/2010 12:50 PM (GMT -6)   

Bill,

I am just so glad you are doing good now.  Mine was a success and have not had any problems since the operation. 

Glad they finally found out what was wrong and fixed it.

Jaynesmilewinkgrin


martinm
Regular Member


Date Joined Dec 2009
Total Posts : 36
   Posted 3/19/2010 1:49 PM (GMT -6)   
My symptoms are slightly better :D
 
Going for Endoscopy on mar 30th
 
Happy to be finally getting more tests done after waiting 4 months.
 
Regards all,
Martin

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 3/19/2010 3:21 PM (GMT -6)   
Thanks Jayne! Good to hear yours went well.

Bill

MinnesotaMark
Regular Member


Date Joined Dec 2009
Total Posts : 53
   Posted 3/19/2010 8:17 PM (GMT -6)   
MinnesotaMark here...

After 15 yrs of GERD- on and off, finally went in for a Endo after a bad episode in Nov 09. That's when i joined HW. Was diagnosed with Barretts (non-DP) and a medium Hiatal Hernia. I had Barrx Halo 360 back at the end of Jan '10. Went very well- in a couple months I go back to see if the BE has all been successfully ablated. I take 40mg Prilosec a day staggered and have good days and bad days-but mostly good. On bad days, mostly a little pressure, and burping---no real painful burn. I have made drastic changes to my diet and have been exercising like a fiend since Nov and lost 30lbs (about another 15 to go). This seems to have helped quite a bit. However, I can't imagine taking these pills for the rest of my life (only 40) and also never being able to eat certain foods again...so I am researching surgeons for a Nissen (or whatever is recommended) for some time this summer. yea. I am very greatful for all the support and information that people share here. It is refreshing to see all the positives stories (and attitudes). Most of all, it is comforting to have peers who understand what you are going through!!! :-)

Post Edited (MinnesotaMark) : 3/19/2010 7:22:36 PM (GMT-6)


kimber9807
Regular Member


Date Joined Jan 2010
Total Posts : 492
   Posted 3/20/2010 10:15 AM (GMT -6)   
Hi Everyone,Been having severe heartburn with my gb attacks . I am taking prilosec otc with little relief. For my other symptoms stomach pain urq nasea and vomiting. I am having laproscopic gallbladder removal in 3 days. I had an abnormal hida scan . test showed my gb is functioning very low and inflammation of my gb. Surgeon said I will feel better within a week. Surgery Tuesday March 23. Surgeon says if surgery dont cure heart burn he will prescribe me something. I hope everyone has a great day.
im dxed with  herniated discs,fibromylagia , scolosis,ddd,athritis, spinal stenosis ,gerd,gastric ulcer,gastroparesis and aslo gallbladder disease aka biliary colic.
 
meds:bentyl,zofran aciphex ,ambien and  trazodone.


stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/20/2010 10:49 AM (GMT -6)   
Good Morning All,


Reading your updates is truly wonderful to see how each of you are doing.



I am glad to read some of you are doing very well and yet it saddens me to hear of others who are still battling. You know each of you are in my prayers daily and if your facing surgery or procedures know the members are all here to send you good vibes and hope that your issues will be resolved or identified by all the tests and procedures.



If you feeling really good, do enjoy every moment as you deserve it. You have come a long way.



Now let us hear from more members with updates..........once a member of this family, always a member. We care !



Gentle Hugs,



Kitt

Reneeren
Regular Member


Date Joined Jan 2009
Total Posts : 21
   Posted 3/20/2010 3:27 PM (GMT -6)   
Geez, I haven't been here in long time!! Renee here; I had my surgery in 2008!! and for the most part I have done very well. I have esophageal spasms which makes these loud squawking hiccup like sounds. I really wish I knew what they are all about!, every time I eat! squawk, squawk, squawk!!! oh, well, no more breathing problems, no more gut pain; it was good for me.

Hey, has anyone heard from Janice? It's been a long time since I seen anything from her (although I'm not on here much). I know she was undergoing treatment for cancer, but nothing since.
Renee
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