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nofun
Regular Member


Date Joined Apr 2009
Total Posts : 51
   Posted 3/28/2010 7:09 PM (GMT -6)   
Hi all,
 
I have been a lurker on this forum for months and I must say there is a wealth of information here. I have suffered with heartburn for about 30 years.  I had my first scope about four years ago and I have been on protonix 40mg twice a day.  Last January 09 I was having alot of problems and the GI doctor did another scope and there was alot of inflamation he said I had gastritis and he wanted to do surgery.  That scared the heck out of me.  He insisted I have it and finally he said if he does another scope in six weeks and it comes back perfect he will work with me.  Well the scope results were alot better like 90% better  and he still wanted me to have surgery,  but said to come back in six more weeks and he would re scope me.  In the meantime I went and got another opinion from a thoratric surgeon that does alot of gerd surgery and he is also recieved the reconizion of being one of the best doctors in America.  He did his own tests and he didn't think my esoghagus looked that bad and his recommedation was to keep a eye on it every six to 12 months. When I went back to my GI doctor  he got mad that I went for a second opinion.  He was very pushy and his nurses came to my defense and walked me out.  Since then I have made alot of changes and what a difference it has made, things I have heard a million times but just didn't do.  I have been chewing my food more thourghly.  I use to gulp my food because I am always in a hurry.  I don't over eat.  I do my best to stay away from trigger foods.  Don't eat three hours before I go to bed.  I quit smoking and now I am trying to lose weight.  I have a moderate size hiatal hernia,  but I don't get chest pain and I don't get out of breath.  I have been taking my medicine religiously,  used to be if I started feeling better I just wouldn't take it and that is why I believe I had most of the problems.  Now I'm trying to lose weight.  I believe that also will help.
 
Judy
 
 

Mike C
Regular Member


Date Joined Mar 2010
Total Posts : 45
   Posted 3/28/2010 9:07 PM (GMT -6)   
Welcome to the forum! I am glad you're felling better ...I got a question for you, do you still drink coffee? Thats about the only thing I can't seem to stop...I did switch to organic decaf..and I have about 3 cups a day.

I don't know if we can take indefinitely such high dosages gerd medicines....

nofun
Regular Member


Date Joined Apr 2009
Total Posts : 51
   Posted 3/29/2010 5:03 AM (GMT -6)   
Thanks for the welcome. I have been drinking Folgers Simply Smooth and haven't had any problem with it. Two cups a day is my limit.

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/29/2010 8:19 AM (GMT -6)   
Welcome to HealingWell and the GERD/Heartburn Forum.

I am glad you are being your own best advocate and that you did seek out that second opinion.

Sounds like you have worked out a plan that is helping you, congratulations to you. Thank you so much for your inspiring story.

Again a warm welcome,
~~Kitt~~
Moderator: Anxiety/Panic, Osteoarthritis, GERD/Heartburn and Heart/Cardiovascular Disease.
www.healingwell.com

"If you can't change the world, change your world"

Post Edited (stkitt) : 9/10/2010 7:48:13 AM (GMT-6)


nofun
Regular Member


Date Joined Apr 2009
Total Posts : 51
   Posted 3/29/2010 7:51 PM (GMT -6)   
Thanks for the welcome Kitt. I'm planning on finding a different GI doctor. I'm so glad I got a second opinion.

nofun

nofun
Regular Member


Date Joined Apr 2009
Total Posts : 51
   Posted 9/9/2010 8:22 PM (GMT -6)   
I found a new GI doctor and have a appointment for a consultation and I hope it all goes well. Its scheduled for Sept 23rd I'm a little nervous about the appointment. I had such a bad experience with my last GI doctor. Everytime he would see me he would tell me I am such a wonderful candidate for surgery and the last time I saw him he was yelling at me about surgery and telling my husband to tell me I should have it done. This guy scared me to death. Come to find out every one that I know of that has gone to him he wanted to do surgery.
I hope this new guy is nice and has a good bedside manner. He has great reviews and good credentials. Wish me luck.

nofun

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 9/9/2010 8:53 PM (GMT -6)   
Hi Nofun,
Glad you found a new GI doc, and I hope he/she does a better job of communicating with you. You have the opposite problem from the one I had. I couldn't get a GI doc to recommend surgery, when I badly needed it. I had no esophageal irritation, and my 24hr PH monitor results were very unimpressive. That said, my asthma and regular doctors were struggling with my uncontrolled asthma, and knew that reflux was the culprit. Finally, after years of very sick lungs, my GI doc finally decided that perhaps it didn't take very much reflux to inflame my lungs, and recommended that I either continue to treat my reflux with meds (come on...they weren't working, and I'd been on them for years), or visit the surgeon he recommended, which I did.

Long story short, surgery was just what I needed, and after my lungs healed post-op, they because healthy again. If you do end up needing the surgery, you shouldn't worry about it. Just be sure you find an excellent surgeon who is experienced in doing Nissens. The recovery is much, much easier than i'd ever imagined, and any inconveniences that the surgery creates in your upper GI tract are well worth it for the improvement in your quality of life.

Glad to have you join the ranks of Healing Well. Stick around, and if you have any questions after your visit to the GI doc, we'll do our best to answer them. It'll be interesting to hear what your new doc has to say. Good luck! Be sure to take a list of questions, so you don't forget what to ask!
Take care,
Denise

nofun
Regular Member


Date Joined Apr 2009
Total Posts : 51
   Posted 9/9/2010 10:11 PM (GMT -6)   
Hi Denise,

Thanks for your reply. I just feel for me anyway surgery should be a last resort only to be done if nothing is helping. I don't feel I'm there yet.
I'll take a list of questions with me otherwise my mind will go blank when I'm in there.
Thanks for the idea. I'm sure he will suggest a endoscopy. The surgeon I went to for the second opinion said to have it checked within a year, so I'll tell him that when I go in. I have been keeping a food journal and writting down what gives me heartburn. I'm going to take that in, does that sound like a good idea??
Glad your surgery went well and your doctor finally listened. Sounds like you were a mess.
I don't want a doctor to tell me I don't need surgery when I do and I don't want a pushy doctor that insists I have it when I don't really need it. I just want someone that will tell me true the way it is. I'll be sure to give a update.

Thanks, Judy

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 9/10/2010 8:52 AM (GMT -6)   
Judy,
 
Good to hear from you and to know you have a new Dr.  September 23rd is not far off so I am sure you will be glad to get a new perspective on your problems.  I will be watching for your update when you have seen the new physcian.
 
Remember to be your own best advocate and don't let any physician yell at you or bully you into something you are not sure about.
 
Kindly,
Kitt

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 9/10/2010 9:06 AM (GMT -6)   
Hi Judy,
I second Kitt's motion. The Nissen surgery should always be a last resort. I'm with you there. It was for me, but as I said, it was a last resort I should have been led to about four years earlier!

Taking a food journal is a perfect idea. The more information you can present to your new doc, the better.

Good luck with your appointment. Keep us informed!
Take care,
Denise

Tinlou
Regular Member


Date Joined Jun 2010
Total Posts : 395
   Posted 9/12/2010 3:59 PM (GMT -6)   
nofun, I have also been diagnosed with gastritis. What were your symptoms and did the Protonix work for you? I tried it once and got a migraine and was scared to take it again.

nofun
Regular Member


Date Joined Apr 2009
Total Posts : 51
   Posted 9/12/2010 5:58 PM (GMT -6)   
Kitt and Denise,

Thanks for your support and encouragement. I will let you know how my appointment goes. Iwill take in my food journal and my pictures from the last three scopes.

Judy

nofun
Regular Member


Date Joined Apr 2009
Total Posts : 51
   Posted 9/12/2010 6:08 PM (GMT -6)   
Hi Tinlou,

My main symptom was the heartburn and a few times I had the acid come all the way up and it came out of my nose. It was horrible. I haven't vomited or haven't had trouble breathing or anything. Protonix works good for me. My problem is when I would start feeling better I would forget about taking them. When my GI doctor scoped me he said I had gastritis and didn't really say anything about it except I had alot of inflammation.
Did you talk to your doctor about your migraine from the protonix or are you taking something else?

Judy

Tinlou
Regular Member


Date Joined Jun 2010
Total Posts : 395
   Posted 9/12/2010 7:08 PM (GMT -6)   
Hey Judy, I just didn't take the Protonix and started Zantac on my own and it seems to help. I am like you though when I start to feel better I stop taking the meds and then I will eat something that I know I am not suppose to or I will have a stressful event and the gastritis will flare up big time.
I use to get the dry heaves and nausea along with a lot of burning and silent and not so silent reflux. Gastritis is horrible that is for sure.

nofun
Regular Member


Date Joined Apr 2009
Total Posts : 51
   Posted Today 12:04 PM (GMT -6)   
I met with my new GI doctor and everything went well. He had all of my records and he went over my food journal I had for him. I also brought pictures of my last two scopes so he could see those too. He told me to keep doing what I am doing. He said he would do a scope within a year to see how things are progressing. He did seem impressed that I kept a food journal.
He put me on a new medicine. The name of it is Dexilant 60. He said it was better than protonix, and so far I haven't even had to take a tum. Its once a day and time released. I was on protonix 40 twice a day.
Now if I could only lose weight it may help even more.

Judy

Ritchg
Regular Member


Date Joined Aug 2010
Total Posts : 43
   Posted Today 12:10 PM (GMT -6)   
Judy I have used dexilant formerly called Kapidex it does work but it is farely expensive and my insurance doesn't want to pay for it. If you go to there website you can get a card where they will pay up to 55.00 of it for you.
Ritch

Gerd
High Blood Pressure, High Choleterol
Chrons Disease

nofun
Regular Member


Date Joined Apr 2009
Total Posts : 51
   Posted Today 12:19 PM (GMT -6)   
Ritch,

The doctor gave me a month of samples and did give me a coupon card up to $55.00. I guess I just assumed my insurance would pay for it. The doctor did say if there was a problem he could give me something else.
Thanks for letting me know

Judy

Ritchg
Regular Member


Date Joined Aug 2010
Total Posts : 43
   Posted Today 12:42 PM (GMT -6)   
Judy

You are welcome also 60mg is normaly the initial dose for 4 to 6 weeks then they cut you down to 30mg. per day.
Ritch

Gerd
High Blood Pressure, High Choleterol
Chrons Disease
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