Barium Swallow results came back normal!

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zeldagoblin
Regular Member


Date Joined Mar 2010
Total Posts : 204
   Posted 4/1/2010 10:02 AM (GMT -6)   
I am shocked considering how bad I feel, and very upset. I cannot believe that the results show nothing wrong, when something is clearly VERY wrong, for me to have this rock hard lump in my throat day in day out, that seems to be worsening. I feel no one believes me because my results show nothing, so they are in no rush to treat me. They don't even have any proof that GERD is causing the lump and throat problems, and I now have to wait til the 22nd to see anyone. I don't know what else to do now, I feel hopeless. The last guy I saw said the next option is rigid endoscopy under general anaesthetic, but I know there must be other things before they do something so invasive. I have as yet only had one scope only to my larynx and a barium. What about ultrasound, or flexi scope down to the oesophagus? I am in pain every single day with this, my neck hurts and sometimes it makes my head hurt.

I am so unhappy I want to cry. I don't know how to cope anymore, I need this to end.

Joan M
Veteran Member


Date Joined Jan 2006
Total Posts : 2052
   Posted 4/1/2010 11:02 AM (GMT -6)   
I had a scope where they put some tiny chip in you. You have to wear a machine and record your food. It turned out mine was borderline. I take one "omeprazole" a day and usually my mess is ok.

You should be happy that your "barium swallow" was ok.

Have you thought to see ENT (a ear, nose and throat doctor).

Keeping raising a fuss and somebody should help you. I sure hope so.

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 4/1/2010 11:25 AM (GMT -6)   
Hey there,


Don't give up! There are many tests that can be done.



Passing a flexible tube down your throat. Endoscopy is a way to examine the inside of your esophagus. During endoscopy, your doctor inserts a thin, flexible tube equipped with a light and camera (endoscope) down your throat. The endoscope allows your doctor to examine your esophagus and stomach. Your doctor may also use endoscopy to collect a sample of tissue (biopsy) for further testing.



A test to monitor the amount of acid in your esophagus. Ambulatory acid (pH) probe tests use an acid-measuring device to identify when, and for how long, stomach acid regurgitates into your esophagus. The acid monitor can be a thin, flexible tube (catheter) that's threaded through your nose into your esophagus. During the test, the tube stays in place and connects to a small computer that you wear around your waist or with a strap over your shoulder. Or the acid monitor can be a clip that's placed in your esophagus during endoscopy. The probe transmits a signal to a small computer that you wear around your waist for about two days, and then the probe falls off to be passed in your stool. Your doctor may ask that you stop taking GERD medications to prepare for this test.



A test to measure the movement of the esophagus. Esophageal impedance measures movement and pressure in the esophagus. The test involves placing a catheter through your nose and into your esophagus.



Perhaps you need to find a new GI specialist.



Seeing an ENT is a good idea too but I would go with a GI Physician first if your looking for GERD.



Take care,



Kitt

zeldagoblin
Regular Member


Date Joined Mar 2010
Total Posts : 204
   Posted 4/3/2010 3:04 AM (GMT -6)   
Hi guys,

Yeah I am happy there was nothing serious with the barium results, honestly. But it just opens up the mystery all over again, I thought we were on the edge of finding out what this problem is and sorting it out, now all I can foresee is a load more waiting, pain, and tests.

I already see the ENT, but they are not taking me very seriously, and I feel they need to be more concerned with ruling out serious conditions than playing the waiting game, which is what they are doing. I have been waiting now for a year, and I have declined terribly. I am no longer allowed to see my GP and am currently on the waiting list for another, because I am so upset with her for saying that to me. Trouble is, it is very hard to get on the books at a good GP in my area, they are in great demand. Meantime I am at the mercy of my body and whatever mood it is in on a particular day. There seems to be no rhyme or reason to my symptoms, food/drink/rest/activity or anything else seem to have no effect on whether or not it will be a bad day.

The bad days are now taking over and the good days are becoming a rarity.

I have a review on 22nd APril, til then I am at the mercy of my symptoms, whether they worsen or not I am still on my own. I will be asking about a GI when I go.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 4/3/2010 9:19 AM (GMT -6)   
((((((((((((((hugs)))))))))))))))

There is an answer out there. It's coming... be patence. I know you are in misery, but basically your hands are tied until you see the doctor and worrying is not going to help you. It will only make you feel worse.
I know the scope worries you so, but it's not that bad. I knew nothing about it after the knock out shot and I went through it three times (twice in one day). There was no pain, just a little dry throat afterwards.

Joy

zeldagoblin
Regular Member


Date Joined Mar 2010
Total Posts : 204
   Posted 4/22/2010 3:14 PM (GMT -6)   
Well today I saw the ENT and he said the written report show hiatus hernia. Why do they say it is normal if there is HH? This isn't the first time I have heard this about barium results. HH is normal??

He said it's not usual for HH to cause reflux and all my other problems, but it does happen. He has messaged my GP to refer me to a GI (yay finally!), and put me back on 40mg PPI.

He said that because I am young to have HH, if we can't get the acid under control I should consider surgery. We will wait 4 months and see how I am then. I feel like an experiment lol

They don't listen. He looked at what the last doc said about my previous review, and said, "Oh the voice has improved." No it hasn't. My voice comes and goes, I keep telling them that. The last doc saw me on a good day (always a good day when I see Doc, ironically lol) and sid "The voice sounds good!", to which I replied, "Yes, I am having a rare good day, but it is no better." Clearly he thought he knew my voice better than I did.

He has asked me to sign up with speech therapist again now that we know it's not a cyst or tumour etc.

*sighs* I feel like life has become a battle, I'm only 35 and things are so difficult.

Anyone have any thoughts on how to manage HH?

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 4/22/2010 3:28 PM (GMT -6)   
Mind your foods and tilt the bed... That's all I know.

Joy

zeldagoblin
Regular Member


Date Joined Mar 2010
Total Posts : 204
   Posted 4/22/2010 5:11 PM (GMT -6)   
Thanks for the reply Joy, I appreciate the response. :-)

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7185
   Posted 4/22/2010 9:47 PM (GMT -6)   
HI Zelda,
It's not at all uncommon for a HH to cause GERD, and for GERD to cause the feeling of a lump in your esophagus. I think a "rigid endoscopy" is a regular endoscopy. It's a pretty decent sized tube that is sent through your mouth into your espohagus. Most people are sedated for the procedure, some are put out completely, and some have it with no sedation at all. (I had one sedated mildly and one with no sedation. Others prefer to be put out. It will be your choice.)

I do agree that you should see a GI specialist. If you can ask around and find out the name of a specialist who also specializes in talking and listening to his/her patients, it would be best. There are GI doc, and there are GI doc. I had one who was unresponsive, but now I have one who's great.

Don't worry, you'll get to the bottom of what's going on. Hang in there, and stay with us. People here who have been through very similar experiences. We'll do what we can to support and guide you through the process.
Good luck!
Denise

lilitiger2
Regular Member


Date Joined Mar 2010
Total Posts : 89
   Posted 4/23/2010 9:53 AM (GMT -6)   
hi Zelda
I sure hope things work out and you get a doc who listens. I can totally relate to docs who do not listen, treat you like you have the IQ of wallpaper paste.

I just wanted to add that my mom, who has barretts, and had all these awful tests done, was told to do yoga, to work on relaxation, see a shrink ,in addition to the medical interventions. She did not consider herself "stressed out", and I never thought of her that way, but it really seems to have helped.

I am in the "waiting period" as well...and am trying to do all the "GERD recommendations" I can-elevated bed, no caffeine mad no soda, etc, and am trying to really work on breathing and relaxation, using visualization and imagry to slow my breath down, i have no idea if this will help in the long run but it feels good to be doing SOMETHING and sometimes I do feel better!

and this forum is great!!

I live in a rural area
so it really helps to have contact with other people in the same boat, more or less!!
hope you get some answers!
Lila

zeldagoblin
Regular Member


Date Joined Mar 2010
Total Posts : 204
   Posted 4/25/2010 7:40 AM (GMT -6)   
Thanks for the responses guys. I do think a big part of the healing process is feeling reassured. As they say, stress is a killer, and what could be more stressful than worrying daily about your health? It's lmost like even though you don't feel stressed, it's like background noise, always there.

ALL my docs so far have left me feeling lost and misunderstood. The trouble with the UK's free National Health Service is that you do not get a choice, so you can't shop around, so to speak. I am currently looking for a new GP, since my GP has been very insensitive and careless.

If this throat thing would bugger off, or at least improve slightly, I would find the whole thing much easier to deal with. As it stands, I feel like I am being strangled every minute of every day without relief.

I have to go to my GP next week to get a referral to the GI. That in itself will be a battle, she is a hard nut to crack. How do they expect us to get better when we are faced with battles like this with the people who are meant to be helping us??

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7185
   Posted 4/25/2010 1:13 PM (GMT -6)   
It does sound like you need to find a new GP. There's nothing more important than a primary care physician who really listens and takes you seriously. I recently had to find a new PCP, since I've moved. I'm keeping my doc that I've had for 30 years, but he'll now be an hour and a half away. Fortunately, through recommendations, I found a great one, and I'm sure we'll be very happy with him. Thank goodness. I was very worried that I wouldn't find one who was a good communicator. That's a prerequisite.

Hang in there, and do what you can to get a referral to someone who communicates well.
Best of luck in getting to the bottom of your problem. We're here to support you and help in any way we can!
Denise

martinm
Regular Member


Date Joined Dec 2009
Total Posts : 36
   Posted 4/25/2010 4:45 PM (GMT -6)   
HI zelda,
yes keep searching for an answer..
I had a barium swallow in january and they said everything was normal..

now just this march I had an Endoscopy and things definetly arent normal with my stomach, multiple ulcers etc..

It took a change of Doctors, to get the proper tests underway. It is frustrating..and like trying to find a lightswitch in the dark sometimes.
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