Try to stay in the NOW as much as you can. When you project your thoughts into the future and worry about what might be, it will cause you pain. You can never handle some projected problem or consequence that hasn't happened yet. When it happens, I guarantee you'll find a way to manage whatever it is.
We make ourselves miserable by worrying about the "what if's". Let's just take things a day at a time and try to stay in the positive. Think of the things you have in your life that you are grateful for. Look out the window at the view...think of things that are good in your life, rather than those negative things that can take over your thoughts.
Your mind can't think of a happy/good thought and an unhappy/ bad thought at the same time. When you feel your "pain body" taking you over, push it away, and think of positive things. We can choose our thoughts, so it's important not to let the negative ones take over. Be aware of what's happening and push them out of your mind.
It's not going to make anything better if you worry about things. Just try to go day by day, and stay as positive as possible. We're all in the same boat. This is a great place to come and get support as we go on this journey towards health.
Hang in there and make that list of questions! Be sure to ask everything that's on your mind, and if you don't understand something as for clarification. You will be the one making the final decision, given the information you get from your doctor.
We're here for you!