Intro - potentially worsening GERD

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mbw1103
Regular Member


Date Joined Apr 2009
Total Posts : 71
   Posted 7/26/2010 8:40 PM (GMT -6)   

I’m normally on the Crohn’s section on HW, but the GERD section seems more appropriate right now.  I’m a 34 year old female.  In addition to the Crohn’s and GERD, I have gastroparesis, celiac and IBS, plus some other non-stomach (mostly autoimmune stuff).  I was diagnosed with GERD about five years ago, but my GERD typically doesn’t bother me thanks to 20mg of aciphex 2x day.  My gastroparesis usually doesn’t act up unless there’s something else going on, but I take 10mg of domperidone 2x a day when I’m feeling well (more when I’m not).

 

My stomach had been behaving for the most part for the last 6 to 9 months.  about 2 weeks, I started having a mix of vomiting and regurgitation (the regurgitation is common when my gastroparesis acts up) along with nausea and pain.  I had a few of my own theories at first which didn’t pan out (e.g., food poisoning, a new food allergy).  I called my GI who saw me the next day.  In talking with her I realized I stopped my antihistamines the morning that I started getting sick (I had been on them for about 1 year for chronic hives and had finally finished tapering off).  My GI’s initial two theories were either an ulcer or an allergic reaction that the antihistamines had been suppressing.  She told me to restart zyrtec and zantac and to up my dose of domperidone.  She did some blood work, which was pretty much normal and scheduled me for an endoscopy a few days later (other than a little inflammation everything looked normal via both visual inspection and biopsies).  I re-upped the dose of domperidone, as well as zyrtec and zantac post-endoscopy.  After getting the biopsy results today and reporting back to my doc that i'm still throwing up, my GI told me to up the dose of domperidone one more time (now up to 30 mg 4x/day) and gave me a script for zofran.  I'll follow up with her in a month and if I'm still not doing better then, she talking about repeating the gastric emptying study while I'm on domperidone. 

 

She said she thinks it's all being caused by GERD.  It seemed a little odd to me since I had no symptoms prior to my first episode of throwing up and I didn't think I had typical GERD symptoms.  I was also in a remarkably low stress point in my life, so no precipitating factors that I can think of.  I just looked online and while I don't have most of the symptoms listed, I see that there is some overlap with my symptoms.  Any thoughts are appreciated, as well as suggestions for other things I can try if it is GERD getting worse.

 

Thanks in advance,

Melissa


34 - Diagnosed with Crohn's in Nov. '05
Current Meds: Apriso, Canasa, Methotrexate, Pamine Forte, Aciphex, Domperidone, Folic Acid, Restasis, Zyrtec, Zantac, Align, Calcium, Vitamin D, Centrum, Digestive Enzymes, Thera-tears Omega 3 Supplement, Co-Enzyme Q10
Gluten free since Aug. '03


couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/26/2010 9:43 PM (GMT -6)   
I notice in your signature you're taking digestive enzymes. What kind are you taking? Some do not do well with crohn's. Try eliminating the Co-Q10 from your diet.

Gerd is weird. The least little thing sets it off and it has many different symptoms. I was dizzy, almost blacking out, coughing, wheezing, choking on mucus, but rarely burning.

Moo'sMum
Regular Member


Date Joined Apr 2010
Total Posts : 234
   Posted 7/27/2010 3:06 PM (GMT -6)   
As Couchtater once told me about my gerd be a squeaky wheel about this. Keep pushing your doctor for answers and tests. My gerd atatcks turned out to be gallstones and it remained undiagnosed until I got actue pancreatitis. I had to spend a week in hospital recovering from that and then had to go back and have my gallbladder removed. I now only experience slight twinges of indigestion at times and don't have to take any meds.
Good luck with this gerd sucks!

mbw1103
Regular Member


Date Joined Apr 2009
Total Posts : 71
   Posted 7/27/2010 8:15 PM (GMT -6)   
Thanks for the replies Couchtater and Moo'smum. 
 
Couchtater, the digestive enzymes are a plant based variety -- I used to take pioneer brand digestive enzymes but after I had a hard time finding them, I switched to the Whole Foods brand (Wholezyme) which was the closest formula I could find.  I had tried an papaya based one when I was looking for a replacement and those did nothing for me.  My GI suggested digestive enzymes when I was undergoing diagnosis for crohn's and gastroparesis -- when I got through my first flare I tried stopping them, but my gastroparesis kicked in, so they seem to be doing more harm than good.  I actually stopped the co-enzyme Q10 about a week and a half ago (need to update my sig) -- my dentist had recommended it, but I haven't noticed any significant improvement and given that it's relatively expensive I decided to try stopping it for a bit.  It sounds like I shouldn't bother restarting it.
 
Moo'smum -- that sounds rough -- i'm glad you're doing better now.  I'll definitely keep up my quest.  The one reason I like my GI so much is that she's usually pretty aggressive in finding a diagnosis.  It's not like her to say wait a month and then we'll look some more.  I've gone through these types of symptoms several times before for up to 8 months at a time, so I know that I can deal with it for another month if needed.  I also know that my GI is great at fitting me in, so if I take a turn for the worse, she'll call me back that day and will fit me in the next day usually.  The good news is that the increased domperidone and/or the zofran seem to be helping.  I only threw up twice today...I'll play around with the timing/dosing of the zofran and hopefully I can stop this episode.
 
Melissa 
34 - Diagnosed with Crohn's in Nov. '05
Current Meds: Apriso, Canasa, Methotrexate, Pamine Forte, Aciphex, Domperidone, Folic Acid, Restasis, Zyrtec, Zantac, Align, Calcium, Vitamin D, Centrum, Digestive Enzymes, Thera-tears Omega 3 Supplement, Co-Enzyme Q10
Gluten free since Aug. '03


Moo'sMum
Regular Member


Date Joined Apr 2010
Total Posts : 234
   Posted 7/28/2010 12:31 AM (GMT -6)   
Good luck Melissa will be thinking of you!
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