Such a long journey .....

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badreflux
Regular Member


Date Joined Aug 2010
Total Posts : 74
   Posted 8/3/2010 4:03 PM (GMT -6)   
Hello
I have had acid reflux for oh about at least 15 years and slowly went from tums to zantac to prilosec and now delinex ...I just found out about a month ago that I have BE and had to be dilated for strictures as I was having trouble swallowing ...
last year in July I started having shortness of breath and am now on advair and klonipin because they can't figure out what giving me the shortness of breath and think it may be anxiety ... I also was diagnosed with severe sleep apnea in November and now sleep with CPAP...

For the past 2 or 3 years I would occasionally wake up choking after inhaling vomit from my reflux and other times I would wake up with a small puddle of vomit on my pillow ... the reason I went to the gastro this time was because I was having a hard time swallowing ..I had been to one about 4 years ago to make sure it was ok that I stay on prilosec daily...

I had radio frequency ablation done for my BE 3 weeks ago at that time my gastro also found I have a sliding hernia...I will be going in Thursday to have my esophagus stretched again because my swallowing has gotten worse in the past 3 weeks, so bad in fact yesterday after I tried eating a ham sandwich, that would not go down.. I stood on my porch having to regurgitate my food from my throat feeling like I was going to pass out, I was hoping if I did pass out a neighbor would see me and call 911, I also have a 4 year old so that makes it even worse to know what he do if I did pass out..... I tried to teach him how to call 911 but I have a blackberry phone and its not so easy...so now I am totally eating only soft food and not taking a chance with that happening again ...I was also been diagnosed with lupus and fibromyalgia in May ..

So anyways my doctor has said that its likely that I will need the Nissan surgery and I am unsure that its something I want to have done locally and am thinking of Oregon Health Sciences University..I wanted to go to Swedish in Seattle but they are not a preferred provider for our insurance... I keep reading how important a good surgeon is and I am not quite sure how to find the best one ... I see others have traveled to other states to get there procedures done ..
Do they just pay out of pocket or have awesome insurance ? what about after surgery do you go back to your local gastro and follow up with them ..

I will have to be scoped every year or other year for my BE........ so I don't want my gastro to get upset that I am going somewhere else to get surgery because I do like him, its not like he is going to do the surgery anyways....he said he would recommend our local guy even after I expressed that I would like to have it done in Portland.. I just don't know what to do .

I have been sick with so many things for so long I am tired of dealing with all of it and wish I knew what was best for me....... anyways I wanted to introduce myself I have been reading this board for about a month so I already know alot of your stories and just want to speak up with issues, concerns and questions in case anybody else has been through what is happening to me......

Post Edited (badreflux) : 8/3/2010 4:45:26 PM (GMT-6)


stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 8/3/2010 5:11 PM (GMT -6)   
Hello and welcome.
 
You might research John G. Hunter, M.D. at OHSC and talk with others who may have had the Nissen surgery. I am sure you will be hearing from other members that live in your area as I know how important it is to have the right surgeon, one that you have confidence in and one that has a good track record with this type of surgery.
 
I have not had the surgery so I cannot guide you as well as others.  I do empathized with you.
 
 
 
 
~~Kitt~~
Moderator: Anxiety/Panic, Osteoarthritis, GERD/Heartburn and Heart/Cardiovascular Disease.
www.healingwell.com

"If you can't change the world, change your world"

Post Edited (stkitt) : 8/4/2010 7:40:12 AM (GMT-6)


couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/3/2010 5:52 PM (GMT -6)   
Wow! it sounds like everything came on you at once. ((((((hugs))))

Have you elevated your bed? It can help with the backflow.

As you may have read I had the surgery back in Dec.
It is important to find a good doctor. I found mine in my state, but it was a five hour drive away. I do have a very good insurance, providing I go with their doctors. :(
Joy

Problems too numerous to name. :)

badreflux
Regular Member


Date Joined Aug 2010
Total Posts : 74
   Posted 8/3/2010 6:32 PM (GMT -6)   
Thanks-you Stkitt yes I have seen his name..... I have even called up there to find out how to go about getting a appointment with the digestive center...my next step they said is to have my records faxed to them (OHSU) so I think that's what I will be doing :-) Just want to try and get the best doc they have ...

Joy Thanks for the Hug :-) yes everything did kind of come at once.... I knew I wasn't feeling good for a few years but tried to write it off as just being tired from having my youngest it just got to the point that I told my husband that something felt very wrong with me me and I honestly felt like I was not going to live for very long some days I still feel that way.... anyways I started going to the doctors and getting referrals to every kind of specialists that I thought might have a answer for me....and yep I do have my bed elevated and yes it has made a difference at least now I don't wake up with vomit on my pillow although I do occasionally feel it trying to come up we did have the bed higher but it was to high , I think if I would of done it a few years ago I may not of found myself in this situation :-(

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/3/2010 6:40 PM (GMT -6)   
I had everything start falling apart on me when I hit 35. I had a hard time getting solutions, too.
Stick around, read old post, and ask questions.
We have big hearts, wide shoulders, and big ears here.
Joy

Problems too numerous to name. :)

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 8/4/2010 8:48 AM (GMT -6)   
I am glad to hear you are advocating for yourself as that is so important and learning all you can about a procedure is very wise.
 
My oldest son has lived in Oregon for 24 years so I am rather fond of your state :-)  
 
Please keep on talking with us as it helps to get your thoughts and feelings out there for others, who know where your coming from and what you going through, to support you.
 
Gentle Hugs,
Kitt
~~Kitt~~
Moderator: Anxiety/Panic, Osteoarthritis, GERD/Heartburn and Heart/Cardiovascular Disease.
www.healingwell.com

"If you can't change the world, change your world"
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