persistant pain and intermittant regurgitation of all food/fluids (even saliva) for 2-3 days

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iwanarad
New Member


Date Joined Oct 2010
Total Posts : 1
   Posted 10/11/2010 9:56 PM (GMT -6)   
Our 17 year old daughter has had severe heartburn like pain for the past six months, combined with about 5 bouts of 2-3 days of being unable to hold down any food or water (even saliva).  Her ped gastro doc originally thought this was gastritis connected to use of NSAIDs and prescribed Nexium 40 mg.  However, over the next few months, she continued having problems, even though she was no longer taking any NSAIDs.  The regurgitation comes in bouts, and sometimes will last so long she requires IV fluids to rehydrate.  Also, she will have bouts of burbing, "bubbling," and severe pain that will precede a flare of the regurgitation, but sometimes these will subside without going into the regurgitation flare.  The regurgitation is completely unresponsive to Phrengren and Zofran.  An endoscopy done at the beginning of all this showed some eosinophills in her stomach, but an endoscopy done a few weeks ago didn't show any eosinophills.  No barium study or other tests (other than the two endoscopies) have been done.  This is extremely frustrating - the doctor just seems content to wait around and see what happens.  We have also tried increasing the Nexium to twice a day and adding 150 mg of Zantac, but nothing helps.  There also don't seem to be any foods that trigger the problem, nor is the problem aggrevated by stress.  Our daughter describes the regurgitation as being mechanical - food/fluid just comes back up 3-4 minutes after she swallows without nausea or warning.  The severe pain is bad enough and interferes with her sleep and activities, but the regurgitation keeps her from being able to concentrate in school.  If the regurgitation is "slower," she is able to swallow it again after it comes to her mouth.  But in a flare, it comes up too fast and even small amounts will just come right back again after she re-swallows them.  Any help/suggestions you can offer will be helpful. 

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/12/2010 5:00 PM (GMT -6)   
She sounds like she needs a motility study, barium swallow, and a stomach emptying test.
If the doctor she is seeing won't do these find a new doctor. He's supposed to be working fo you.
Joy

Footymad
Regular Member


Date Joined Jun 2010
Total Posts : 28
   Posted 10/13/2010 5:36 AM (GMT -6)   
This sounds exactly like my story, i'm 18 now but my symptons started when i was about 14/15 and the doctors just didnt have a clue what to do.. i found that eventually the flare ups calm down and in a way you kind of get used to it and eventually become better at controlling it so that pretty much most of the time it can all be swallowed..
i had a nissen fundo to try and stop the symptoms i had about 3 months ago.. and the surgeons were weary because of my age but if your persistant and if nothing else works then they will do it as a last resort and it did help with my problems...
Try not to worry, she is not alone!!

kittsy love
New Member


Date Joined Nov 2010
Total Posts : 2
   Posted 11/13/2010 7:17 PM (GMT -6)   
I have gastroparesis and it sounds like the symptons I had that drove me to the doctor. Gastroparesis is called "lazy stomach", for it can take 2,3, 4, or even 5 times longer for a meal to empty out of the stomach into the small intestines. and high fiber can lay on the stomach and form a bezoar, so high fiber is a no-no for this stomach problem. A bezoar is similar to a cats hairball, except that it is made up of bits and pieces of medications not fully digested, and fibrous foods, so one must eat very low fiber foods, and liquid medications. Earthromycin or Reglan is the chosen medications for this stomach ailment, although reglan can have some dire side effects. Your daughter should have a motility test to determine how rapid or slow her stomach empties. Also if she would have this, she would see a dietician to show what foods can be/or not be eaten. During bad bouts one is advised to use ensure liquid diet for a few days. There is a lot more information about this desease, but first things first, ask her Doctor to run this test. VIEW IMAGE
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