Consult tomorrow with Surgeon for possible Nissen procedure

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dolfan13
New Member


Date Joined Oct 2010
Total Posts : 5
   Posted 10/14/2010 12:38 AM (GMT 0)   
Help! Reflux leaves me with no sleep and a raspy voice each morning.  My GI doc is sending me to see a surgeon tomorrow to discuss doing the Nissen procedure.  I would like to consider the EsophyX as well but do not know a surgeon in NC who performs that surgery.  Really, I do not want either but I must find some relief from the sliding hiatal hernia that I find is now controling my life.  I would like to hear from anyone who has gone through this so I can make a difficult decision from my limited options.

mitsie
Regular Member


Date Joined Apr 2010
Total Posts : 129
   Posted 10/13/2010 6:57 PM (GMT -6)   
Dolfan13
 
I had the Esophyx on april 9, my surgery failed.   There have been some people have the TIF surgery and has had success, but also lots have failed.
 
I have Lap nissen fundoplication scheduled for October 20, my surgeon has told me he is not doing the Esophyx surgery any more because of problems happening like mine.
 
I can only say that with my TIF failure I would have the Lap Nissen fundoplication.
 
 

dolfan13
New Member


Date Joined Oct 2010
Total Posts : 5
   Posted 10/13/2010 7:10 PM (GMT -6)   
mitsie,
 
Is the procedure for a sliding hiatal hernia?  I have tried about everything including sleeping in a recliner without relief.  I know however that to do nothing and allow the constant irritation has its own risks...the C word.  So I am trying to figure out what to do.  I spoke to someone a few weeks ago who had the Nissen Fundoplication 2 years ago.  She said if she had to do it all over again, she would have not had the procedure.  The choices seem to be so limited.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/13/2010 7:12 PM (GMT -6)   
The nissen is not that bad. I was scared of it because I was afraid of undergoing surgery. However I was surprise at the results of it. I'm very pleased with my outcome.

Yes, you do have the 2 weeks of wounds healing (5 little bandaid size cuts), but you will have the same recovery time as the TIF inside (about two months for hardest 90% part and 10 months for the 10% left).

The nissen has been around for 50+ years and doctors are very familiar with it. The TIF has been around 4 years in the USA. Many doctors don't even know it exist.
Which do you want? Old faithful or new kid on the block?
Joy

mitsie
Regular Member


Date Joined Apr 2010
Total Posts : 129
   Posted 10/14/2010 8:40 AM (GMT -6)   
Dolfan13
 
After the results of my TIF surgery I would never choose to have the surgery done this way.   Too many failures.    The surgeon I chose to go to is an expert in this field.    He has studied both procedures the TIF surgery and the Lap Nissen Fundoplication.
 
The TIf surgery will not repair large Hiatal Hernias.   I dont know the size of hernias it does repair, but I know I would not do it this way again.
 
Joy is right there are some doctors that dont even know what the TIF surgery is they will look at you like HUH what are you talking about and then you need to explain to them.
 
Joy   my surgery is scheduled for the 20th I am really getting nervous, but reading things that everyone has written had been making it better.   Especially the ones that have good news.   I am still concerned about what to eat LOL.   I am sure I will be fine.   I have a paper with diet listed for me.   I need to go pick up some GasX or something like that.    Was there any thing special that really worked for you.    Something that you think I should really have wink
 

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 10/14/2010 8:51 AM (GMT -6)   
Hi dolfan13,
You're definitely in the right place. This forum literally saved my life when I was looking into whether or not to proceed with the surgery. My problem was uncontrollable asthma, due to (not that much) reflux, irritating my lungs.

My family and asthma docs were certain the reflux was causing my problem. I was even hospitalized at one time for GERD caused asthma.

I researched the surgery procedure extensively on the internet (as most of us do) and found lots of people like your friend. "Don't do it! It ruined my life!", etc. It scared me to death.

When I found this website, I finally met people who had a more balanced view of the surgery. They'd been there and done that, and had lots of advice as to how to make the recovery easier.

They presented a realistic view of the surgery and its "aftermath". There were even people here who'd had the surgery and were planning a redo--still with a positive attitude. The surgery is not something to take lightly, but neither are the physical problems that bring us to it.

I wish I'd found the website four years earlier. I suffered with significant lung damage, but wasn't getting much support from my GI docs, as my problem was not clear-cut. The amount of reflux I was experiencing was small in comparison to many who have had the surgery. However, as my asthma doctor has said, it takes very little to affect the lungs adversely.

I had the surgery in February, 2009. After some time to allow my damaged lungs to heal, they were finally healthy again. I just wish I hadn't waited, because I now have lifelong damage caused by the steroids I was on to keep my lungs open.

I coughed so much after surgery that I did damage to my wrap, and about a year later (after a cold virus and continued severe coughing), I finished off the job, and there is something wrong with the wrap, allowing a little reflux to get through. Because of that, my lungs are reacting. Not nearly as bad as before the surgery, but I don't want to wait for it to get that bad again, and risk sabotaging my surgery.

I'm going through the motions now to figure out just what's going on, so I can get a redo if necessary, and I personally have no doubt that it's in my future.

That said, I am totally happy that I had the surgery. I will have a redo gladly. Do I wish I didn't need either? OF COURSE! But, it is as it is. I accept my situation, because if I don't, I will be miserable. I want to be happy, and acceptance allows that.

I don't know what your friend has experienced, but if your reflux is bad enough to warrant surgery, whatever issues you deal with are worth it.

Do not have this surgery if you're not willing to accept the quirks and changes that it will create in your GI tract. If you think you're going to come out of the surgery just like new...like you were before you struggled with GERD...like you were when you were young and everything was peachy, don't have the surgery.

You will always have differences after the surgery. Everyone is different and their quirks vary. However everyone has some GI quirks caused by the surgery.

Quirks can be handled. Quirks are all you'll get if you get your surgery done by a top-notch, experienced surgeon (the experience must be in THIS procedure). People who go to surgeons who are not qualified, or haven't had enough experience with doing Nissens, will have more than quirks. Those are the ones we hear about who are devastated by their result, and say "don't do it!".

The recovery wasn't nearly as difficult as I'd expected. You'll have swallowing problems in the beginning...what do you expect? You've had a major revision to your upper GI tract. There is a period of healing that will involve a variety of symptoms (again, varying from person to person)--so don't go in thinking you'll come out perfect. That's unrealistic.

In the end, though, you'll be relieved of the reflux you've been suffering with.

Educate yourself. Ask questions here. Choose an outstanding surgeon.
We're glad you've joined us! You'll find experienced people here who can help you from a patient's perspective.

If you're ready to go into the surgery with realistic expectations, go for it! With all the problems, I'm very glad I had the surgery, and will have a redo if I need it without hesitation. Is the surgery perfect? No. How could it be? They are gerryrigging a valve out of your stomach! But it's been around for over 50 years, so it is definitely helping people. It's considered the "gold standard" for treating reflux.

Good luck!
Denise

Ritchg
Regular Member


Date Joined Aug 2010
Total Posts : 43
   Posted 10/14/2010 3:20 PM (GMT -6)   
Dolfan13 I would highly recommend having the Nissen I had it done not quite two weeks ago and i am amazed at the diffrence no heartburn or reflux since the day before surgery. The side affects aren't that bad just a little sore for a few days the diet isn't much fun but you get used to it. If you are like me you won't have much of an appetite so whatever you eat will be filling. Just follow your doctor's advice and make sure you find one that has alot of experince doing this kind of surgery.
Ritch

Gerd
High Blood Pressure, High Choleterol
Chrons Disease

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/14/2010 4:32 PM (GMT -6)   
Gas-X helped my gas problems. Walking helped the gas problems from the air they pump into you. Ask your surgeon to get as much of the gas out of you as possible before closing you up.
Joy

dolfan13
New Member


Date Joined Oct 2010
Total Posts : 5
   Posted 10/14/2010 6:36 PM (GMT -6)   
I visited with the surgeon today to discuss the fundoplication procedure. After hearing the impact that the procedure will have on my life, I really have to think about it. Going on 4 to 6 hours sleep each night is a real pain...and then of course there is the real pain caused by a sore throat each morning. I feel confident the surgery will help the reflux, but what a change in lifestyle...and anatomy! Creating a valve where none exists. Wow... I need to take a vacation so I can think about this.

It is so good to hear from you all. Your thoughts and comments are very helpful...and appreciated.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 10/15/2010 6:34 PM (GMT -6)   
Good luck with your decision, dolfan. I had a similar dilemma when deciding whether or not to go forward with the surgery. I had so many problems with my lungs due to GERD, I decided I had to try it in hopes it would solve that problem. I just jumped in and hoped for the best.
You're the only one to make that decision for yourself. It is a big deal, and you shouldn't go into it lightly. You've done all the right things to this point, and it sounds like you've educated yourself, and know what to expect.

Now you have to decide if you want to live the way you're living, or take a chance on a better outcome.
Wishing you all the best!
Denise
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