Linx system surgery Part 3 of 3

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stkitt
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   Posted 10/23/2010 9:45 AM (GMT -6)   
Here is the link to Part 1 and  2/Linx system surgery.


http://www.healingwell.com/community/?f=45&m=1574960&g=1574960#m1574960
 
http://www.healingwell.com/community/default.aspx?f=45&m=1646140



Please post all new posts into this thread. Thank you.


~~Kitt~~
Moderator: Anxiety/Panic, Osteoarthritis, GERD/Heartburn and Heart/Cardiovascular Disease.
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"If you can't change the world, change your world"

stkitt
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Date Joined Apr 2007
Total Posts : 32602
   Posted 10/23/2010 9:47 AM (GMT -6)   
Posted 10/20/2010 12:47 PM (GMT -6)  by Shooz
 
Hi everyone,
Sorry that I haven't been more active here, I have been doing some extensive traveling for my job including a trip to Singapore. Had to endure the 20+ flight in COACH!! what a trip, a beautiful place once you get there. A quick update on my Linx, I'm going to the Dr.'s tomorrow for a follow up scope. It has been 3 months since my last visit and he put me back on Protonix. He will get a look to see if the ulcer has cleared up and then we will talk about the next step, reposition, remove and possibly traditional surgery. I'm optimistic that we might be able to reposition the Linx instead of pulling it out and the Nissen. Wish me luck and I'll let you know what happens. Shooz

stkitt
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Date Joined Apr 2007
Total Posts : 32602
   Posted 10/23/2010 9:48 AM (GMT -6)   
Posted Yesterday 11:55 PM (GMT -6)   by dencha
 
Best wishes for a great outcome, Schooz! We're rooting for you! yeah yeah yeah yeah Let us know what they decide. Thanks for sharing. That was some amazing travel! I'll bet it was very educational.
Again, good luck, and keep in touch!
Denise

Shooz
Regular Member


Date Joined Aug 2009
Total Posts : 92
   Posted 11/4/2010 12:28 PM (GMT -6)   
Hi Everyone,
I had my Dr. visit last week and the good news is the ulcer at the LES is gone. He said that there is still a little redness in my esophagus but mostly gone. The Linx study is showing about a 75% success rate. We discussed that the Linx will be primarily for those with mild to moderate GERD. He wants to see me in a year and if all continues to progress positively we may move to a different med and get off the Protonix for good. I'm still symptom free from my old GERD issues. NO reflux to date (surgery 9/4/09) so I still feel that this works. All of the biopsies that he did were negative and I'm feeling pretty good about all of this. He did mention that I may still have a Nissen in my future. For now we are staying the course. I'm extremely happy with my surgeon and as he told me as he was leaving our appointment, if I have ANY questions or concerns to call him immediately. I can't tell you how lucky I have been to find this Dr. So for now I will keep in touch and update everyone from time to time. Thanks to all for your support and kind words. Shooz smilewinkgrin smilewinkgrin smilewinkgrin

dencha
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Date Joined Feb 2009
Total Posts : 7180
   Posted 11/4/2010 7:56 PM (GMT -6)   
Hi Shooz,
How good it is to hear that you got a positive report from your doctor! It sounds like a very sensible approach. You are lucky to have a doctor that you can trust. open communication is critical, and it sounds like you've got a great relationship with him.
Again, glad to hear your good news!
Denise

Gilad
Regular Member


Date Joined Jul 2009
Total Posts : 37
   Posted 11/5/2010 10:48 PM (GMT -6)   
Thanks shooz for your posts.
I am very happy to read that you are feeling better. I think you set a fine example of attitude and courage. I hope you will find a satisfactory solution to this problem.

From what I have read I see two basic problems with the Linx. One is that it may move away from the optimal location where it is implanted. And the second is that although it helps the body keep the barrier closed, when it comes to opening, it requires the esophagus to exert some extra force, more than usual, in order to let food or air pass through. As we age our ability to exert force reduces. I myself have problems with the movement of the lower esophagus so I am not sure it will be for me. I hope that these movement problems of mine are due to my hiatus hernia so that if it will be corrected I will still be able to try this device but who knows.
75% success rate you mentioned is not very high. I think the Nissen is said to have more and so is the esophyx. The advantage of the Linx from my view point is that it is the least invasive of the three and the easiest to reverse. I wish they would publish the results of the experiment already.

best wishes
Gilad

speden
Regular Member


Date Joined Oct 2009
Total Posts : 175
   Posted 11/8/2010 2:13 PM (GMT -6)   
Hi Gilad,

I think I'm having the same feelings as you about the Linx. I was very interested in it when I first heard how it worked, but it seems like it needs some improvements. My esophagus is very weak, so I don't think I would be a good candidate for it.

They should be able to improve on the success rate once they analyze the results of the clinical study. They should be able to screen out people for which it just won't work that well, by setting lower limits on esophagus strength, hiatel hernia size, etc.

I'd like to see the Linx get FDA approval soon so it can see more widespread use, but there never seems to be any information about when that might happen.

speden

Shooz
Regular Member


Date Joined Aug 2009
Total Posts : 92
   Posted 11/29/2010 12:32 PM (GMT -6)   
Just when you think things can't get any worse.....

Hi everyone and hopefully you had a great thanksgiving.

I had quite the scare recently. When I came back from Singapore (early October) I developed a very sore stiff neck. Who wouldn't after a 15 hour non stop flight in coach. It wouldn't go away with drugs and PT so my Dr ordered a CT scan (remember with the Linx I can't have an MRI). The CT was negative for any neck problems but it did show a small growth near my epiglottis. What a wonderful way to spend Thanksgiving worrying about the big C!! I went to the ENT surgeon this am and I'm very happy to report that it is a benign cyst. It was a rough couple of weeks!!

On the Linx front it is pretty much status quo. It seems to be working fine and doing the job it was intended to do.

Guess that's all to report for now. Hope everyone is doing well. Keep smiling. Shooz

couchtater
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Date Joined Jul 2009
Total Posts : 14475
   Posted 11/29/2010 4:11 PM (GMT -6)   
Quite a scare! Good to here you're okay.
Joy

Gilad
Regular Member


Date Joined Jul 2009
Total Posts : 37
   Posted 12/12/2010 5:47 AM (GMT -6)   
I hope you are feeling better shooz.
my best wishes
Gilad

slicer
New Member


Date Joined Jul 2010
Total Posts : 18
   Posted 12/21/2010 8:28 AM (GMT -6)   
Hey Shooz,

I am currently being offered the chance to have the Linx here in the UK.

I have been reading your full story for a while now, and just wondered how you have been feeling for the last few weeks?

Did you have the ulcer/erosion in your esophogus before the surgery or did you just find out about it after the linx went in?

You're posts are a great source of info for many of us still, and I thank you for the many updates you give.

Regards,

Lewis.

Ps How's the chicken going down now?

refluksi
New Member


Date Joined Jan 2011
Total Posts : 4
   Posted 1/3/2011 11:52 AM (GMT -6)   
Hello
I am from Finland and I am also interested in Linx
the nearest place where the cuts are made is UK and I asked about the prices there.
I have a mild gerd and Linx can be a good option
I do not want Nissen surgery because it can not be done after the other
Slicer
where you are asked to surgery?

The text is written using google translator so there may be errors

Post Edited (refluksi) : 1/3/2011 11:56:02 AM (GMT-7)


slicer
New Member


Date Joined Jul 2010
Total Posts : 18
   Posted 1/10/2011 2:37 AM (GMT -6)   
Refluksi - Hey, they are doing the linx in Italy also I believe.
When you say mild gerd, how mild do you mean? What are your symptoms? What tests/medication have you tried?
How much research have you done on the linx, and haver you considered any other proceedures like the TIF.
 
Cheers,
 
Lewis.

refluksi
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Date Joined Jan 2011
Total Posts : 4
   Posted 1/10/2011 11:39 AM (GMT -6)   
Slicer
Torax Medical Simon Freedman recommended that UK
My symptoms are felt every day
- stranglings feeling
- acids rises
- and more
nexium 40 three times a day, I quit when you do not agreed with the mentally
Feel that the symptoms will only get worse nexium
30 zolt good now, but otherwise does not take all the symptoms
I'm thinking of Nissen but it is final
Linx can be removed if notwork

http://www.healthierweight.co.uk/anti-reflux-surgery/nissen-or-linx-procedure/

Tommi

Post Edited (refluksi) : 1/10/2011 10:43:05 AM (GMT-7)


slicer
New Member


Date Joined Jul 2010
Total Posts : 18
   Posted 1/10/2011 12:46 PM (GMT -6)   
Tommi,
It sounds as if your gerd is just as bad as mine, and the nexium and other PPI's just make it worse with lower down stomach pain after a while. I think your gerd is quite severe and not just mild as you say.
I have done a lot of research on nissen and know a couple of people that have had because of large hiatal hernia and had some good results, BUT I have found many many people who have problems also. It just does not seem to work for a long period of time also 10 years is a very good result, and then a need for surgery again which is very complicated.
Healthierweight is the company I am talking to, but my surgeon through them is Prof Favoretti.
If you are taking 40mg of nexium 3 times a day thrn you are on a very very strong dosage and way above what my doctors would allow me to take.
Have you had any tests? manometry? ph test? endoscopy?

Gilad
Regular Member


Date Joined Jul 2009
Total Posts : 37
   Posted 1/10/2011 11:54 PM (GMT -6)   
Hi,
I am also hoping the Linx will work, but I have some doubts since the results of the large experiment (that shooz also participated in) were due at the end of the year 2010 and for some reason they are being delayed. So I wonder if it means that the results were not as good as expected.
I contacted the company and they told me that the results have not been published yet and that the FDA has not approved of the Linx yet.
Let us hope
Gilad

slicer
New Member


Date Joined Jul 2010
Total Posts : 18
   Posted 1/11/2011 12:58 PM (GMT -6)   
I have the 2010 results which look pretty good with 87% at year 1 and 86% at year 2 for patient satisfaction.
The medical director of healthyweight in uk gave me this when I had my appointment a few weeks ago. I'm sure I have seen it online also now.
How bad are your symptoms Gilad? I can't hold up much longer like this, so need to decide in the next few days.
I take it you are in the US, as I was not sure that the Linx was FDA approved over there yet, but it is here in the uk.
I am having trouble getting in contact with anyone who has had the linx. I have read about the 4 on here who have had it, but they don't seem to come on here much anymore (maybe that's a good sign)

Cheers,
Lewis.

Gilad
Regular Member


Date Joined Jul 2009
Total Posts : 37
   Posted 1/12/2011 12:22 PM (GMT -6)   
Hi Lewis,
I wonder what your doctor showed you. The Torax site does not mention any data about this latest study. I would assume it would be published there first. Maybe he showed you the results of the previous study before this one, where they are still keeping track of the subjects' health results.
You wrote about results as indicted by patient satisfaction. I do not think that is a good indice when given on its own. I know they also have objective measures that test levels of acid and such. I wonder what these came out to be.
I take Nexium 40 mg twice a day. I still have symptoms like excess mucus and sometimes some heartburn. I can live with the symptoms but hate taking such heavy dosage of pills that I know are not good for you. I also read that these pills are not appropriate to be taken for long periods of time.
I am not from the US. I am from Israel. It has not arrived here yet. The Esophyx has been tried here on a couple of patients. It was Tif1. (I know the company has a Tif2 now). An instructor from the company was present in the operation room, yet the results were not satisfactory so as far as I could find out they stopped offering it here for the time being.
I hope you find relief soon. If you do go through the Linx procedure please keep us posted.

Another thing I read that sounds promising is a new kind of mesh patch material that they use for correcting Haital Hernias. It is biological, and it dissolves and gets replaced by the body's own tissue over time. It is still experimental and I found a doctor on the net that seemed very experienced that stated that it is very risky, so the jury is still out on that as well.

Best wishes
Gilad

slicer
New Member


Date Joined Jul 2010
Total Posts : 18
   Posted 1/12/2011 1:52 PM (GMT -6)   
Hey Gilad, thanks for your post.
If you go to www.annalsofsurgery.com and search "Laparoscopic sphincter augmentation device eliminates reflux symptoms and normalizes esophageal acid exposure" It should show you the first page of the 2010 article One and Two year results and feasibility trial. I have the whole 6 page document, and If I manage to scan it I will post it.
I looked at the TIF, and have seen they have updated, but I'm atill more convinced by the Linx or failing that the fundo.
Have you considered the nissen or toupet fundo?
If you were offered the Linx in Israel would you take it?

Lewis.

Magaug
New Member


Date Joined Jan 2011
Total Posts : 4
   Posted 1/14/2011 11:20 AM (GMT -6)   
Hello Lewis and everyone else
I am going to meet with Dr Ashton in Manchester tomorrow to discuss the Linx system with a view to having the procedure at the end of this month. When are you thinking of having yours done Lewis?
Dev

slicer
New Member


Date Joined Jul 2010
Total Posts : 18
   Posted 1/14/2011 1:36 PM (GMT -6)   
Hey Dev! Wow I asked healthier weight a load of questions via email today, one of which was have you scheduled any proceedures yet. Mr Berrett came back and said we hope to implant at the end of the month, and has also offered 29th of jan as a date.
 
So many questions to ask you.
 
Do you live around manchester, or do you need to travel for the procedure?
 
Give me an overview of your gord problems and what you have tried and test you've had done?
 
Have you considered the nissen fundoplication?
 
I have already met with Dr Ashton (Really great guy).
 
My email is slicertyler@hotmail.com if you want to speak about anything away from this forum.
 
Great to here from someone who is having to make a decision about this procedure also.
 
Cheers,
 
Lewis.
 

refluksi
New Member


Date Joined Jan 2011
Total Posts : 4
   Posted 1/15/2011 11:50 AM (GMT -6)   
Hello
I've been to endoscopic and I made an appointment with a pH test and manometry
so I can put the results Healthierweigh doctor.

I have also talked with Martin Berrett surgery
Do you know how much to pay Linx, I did not even ask the price.

Tommi

Post Edited (refluksi) : 1/15/2011 11:40:04 AM (GMT-7)


Magaug
New Member


Date Joined Jan 2011
Total Posts : 4
   Posted 1/16/2011 5:20 AM (GMT -6)   
GERD 2 years getting worse despite meds.
Had all tests next step with NHS, Fundoplication.
Tried lots of different therapies, from TCM to
Hypnotherapy...
Torax and Healthier Weight seem right for me,
however,  do not have the finances available right now.
Dev.

slicer
New Member


Date Joined Jul 2010
Total Posts : 18
   Posted 1/16/2011 6:15 AM (GMT -6)   
Tommi - What did your endoscopy show? You're looking at around £5k for LINX.
 
Dev - Do you suffer from heartburn or are your symptoms more regurgitation/ throat pain/nausea ?
How did your esophagus look on endoscopy? Any hiatal hernia?
Do you think you may hold out and save for the LINX ?
 
Lewis.

refluksi
New Member


Date Joined Jan 2011
Total Posts : 4
   Posted 1/18/2011 7:26 AM (GMT -6)   
Slicer

Sphincter was clearly a loose endoscopic
Are you going to have surgery january 29 days?
I look forward experience with the surgery and getting better gerd ..

Tommy
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