Thanks for taking the time to listen to a newbie.
My journey started about a year and a half-ago. I had intermittent but fairly frequent heartburn that didn't resolve after pregnancy and the beginning of swallowing problems (feeling of food stuck in my chest). I had a normal barium swallow, then a few months later an endoscopy that showed a small hiatal hernia, some evidence of reflux and possible eosinophilic esophagitis.
I started on lansoprazole in January and after 2 months, switched to dexilant. My swallowing problems didn't go away, so doctor gave flovent to treat the eosinophilic esophagitis. I stayed on Dexilant the whole time. With the flovent, I improved a lot (not 100%, but doing well overall).
I finished the course of flovent and then, very slowly, over the summer, a feeling of very mild, but constant heartburn started to return. It would start with the first sip of water I took in the morning (sometimes even before) and usually last all day. (I still am on dexilant all through this.)
My doctor did another endoscopy 4 weeks ago and showed that my whole esophagus was inflamed with a very high eosinophil count. I went back on the flovent for the eosinophilic esophagitis and he wanted me to go off dexilant, so I did that and 2 days later, was miserable with horrible heartburn - worse than it ever was to begin with. He then told me to take pepcid instead before every meal and before bed - did that for a week. That seemed to help a lot. After that week, he told me to step down to 2 pepcids a day. I was ok with that for about a week and a half.
Then, my stomach revolted. For the last week or so, I have been dealing with a continuously angry, upset, miserable stomach. This basically came completely out of the blue. Also, I have intermittent feelings of fullness in my chest - like it is filled with gas and it feels like someone has their hands squeezing around my neck. All reflux symptoms (with the exception of actual heartburn) 24/7.
My doctor told me to go back on the dexilant for a week to see if that helps in case I am suffering from acid rebound. Today is day 5 of return to dexilant and I am still very sick to my stomach and am feeling that this is just never going to end.
I was wondering if anyone thought I might be experiencing acid rebound now? My doctor was quite dismissive of acid rebound until I called him up last week telling him how sick I felt. It seems like I was stepping down off the medications ok for a few weeks before everything hit the fan and I thought acid rebound would have showed up sooner.
I'm just confused and tired of feeling this way. I would appreciate any suggestions or thoughts from any of you more experienced with this than me.
Thanks so much!