Reflux without acid?

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zeldagoblin
Regular Member


Date Joined Mar 2010
Total Posts : 204
   Posted 11/14/2010 3:17 AM (GMT -6)   
Ok soooo I failed the PH tests, no acid present, even though I burn and lose my voice and have globus, belching, horrible burning stomach pains etc...

but I also get where I reflux food up into the back of my nose. It just squirts out of my throat! And at times I feel whatever I have drunk just floats around in the back of my throat for ages and doesn't want to go down.

SO since the motility test showed I have a weak lower valve, could this be what is causing it? And does it make sense that this is getting worse?

I have been refused a wrap, and they put me on domperidone (motilium) which is doing precisely nothing. Still on pariet.

Any insight would be great

Liz x

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/14/2010 9:39 AM (GMT -6)   
Yes, it does make sense it's getting worse.
Why are they refusing the wrap? Is it because your motility is poor?
Joy

Alcie
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Date Joined Oct 2009
Total Posts : 4984
   Posted 11/14/2010 9:48 AM (GMT -6)   
Have you had a barium swallow?  That would show reflux.
Motility should have shown if the little sips of water went down.
 
Yes, there is non-acid reflux.  I had it all the time when I was on PPIs.
 
However, there is a possibility that your reflux is only triggered by specific foods, as mine is.  You can find out if you have sensitivities/intolerances/allergies to specific foods by keeping a careful log/journal of time, what you eat and drink and your reactions an hour or 2 later.
 
If you find some meals or specific foods, then you have to do challenge testing of the ingredients.  For me it wasn't the waffle, it was the maple syrup.  It wasn't the hamburger, it was the condiments.  It wasn't wheat flour, it was commercially prepared bagels, some breads, frozen products - all of which contain preservatives.
 
When I collected my list I googled the names of the foods and food sensitivity or allergy.  I discovered al my foods were on lists of foods known to have sulfite.  Others find they don't tolerate MSG.  There are plenty of other allergies (as my allergist calls them).
 
I was able to control my reflux for a long time by simply reducing my intake of sulfited foods.  I only had to go through the operation after being in a wreck that pushed my stomach into my chest.  Of course the operation does not stop the food intolerances!  I only get tachycardia now from eating the wrong stuff.

zeldagoblin
Regular Member


Date Joined Mar 2010
Total Posts : 204
   Posted 11/14/2010 11:04 AM (GMT -6)   
Hi ladies, thanks for your comments. Joy I was refused the op because the PH test came back negative and they don't want to operate without that.

Alcie, yes I had a barium swallow, which showed the hernia but not reflux. The motility test came back that my swallows were very effective, more so than most people, but the weak valve showed up.

Food allergies makes sense to me, I am very sensitive and already have many allergies which usually effect the skin and respiratory system. However I spent about 3 months eating nothing but absolute basic foods like banana and vegetables, all organic. I didn't notice a big difference, but now that I have let my diet slip back into eating normally, I am in an awful state! So a food diary may give me some indicators.

I am getting very exhausted with the whole thing, and many people tell me I look drawn and stressed. I am 35 and am so grey, and my face looks ten years older. My hair is falling out and I am always tired. I sooo need this to improve soon!

Liz x

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/14/2010 3:52 PM (GMT -6)   
An open valve is an open valve. I think you need to talk to a different surgeon.
My ph wasn't that bad either, but my valve was open. Even a partial wrap would help you.
Are you in Canada or USA?
Joy

zeldagoblin
Regular Member


Date Joined Mar 2010
Total Posts : 204
   Posted 11/14/2010 5:01 PM (GMT -6)   
I am in the UK. There is only the one surgeon in my area that does the wrap. He has an excellent reputation, but my consultant says he won't entertain my case. We are limited for choice here, the NHS is wonderful for free healthcare, but it has its drawbacks, sadly.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/15/2010 8:35 PM (GMT -6)   
So sorry. I wish you could come to the US for it. If you can pay for it you can have it done.
Joy

maxevie
Regular Member


Date Joined Nov 2010
Total Posts : 31
   Posted 11/20/2010 3:09 PM (GMT -6)   
Zeldaglobin - I am based in the UK (London) and have just had fundo with a very experienced surgeon (my GI consultant and my ENT surgeon both said he is the best person in the UK to do this op).  Happy to give you his details if you like.  I am 4.5 weeks post fundo with some issues, which I hope will die down.  btw you don't have to have high acid readings to have acid reflux.  it all depends on the individual's sensitivity to acid exposure.  some people have high acid reflux with no problems, others have just a little and it makes their lives miserable. 

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4984
   Posted 11/20/2010 3:51 PM (GMT -6)   
Liz -
Some vegetables are reflux triggers for some people. Onions and garlic especially, since they have a lot of sulfur compounds, including sulfites. So keep a food log just in case you can find some food triggers. Maybe you'll find out what you CAN eat, or maybe timing is an issue. Medication timing is critical too, and some meds are reflux triggers.

Most PPIs take a half hour to an hour to work because that's how long it takes for them to be metabolized. I found that I had to take my PPI a half hour before breakfast for them to be effective.

Feankly, I think a weak lower valve that is allowing reflux is reason enough for the surgery.
Alcie
 
 

Cecelia
Regular Member


Date Joined Nov 2010
Total Posts : 60
   Posted 11/26/2010 8:06 AM (GMT -6)   
Hi Zeldagoblin,
Have spent days and days and days doing research on the internet on this subject, found lots of websites stating that the symptoms for low and high stomach acid just about the same.   Even if you have low stomach acid, you can still get heartburn!    This is one of the websites which I found interesting:
My doctor thought I had high stomach acid, gave me omeprazole which made me a hundred times worse, and since I dumped this medication and have started taking enzymes I have improved dramatically, but still occasionally get phlegm in my throat, usually my fault - mostly eating too large a meal.  I find I have to eat half of what I used to eat at one sitting, this difficult when I have cooked my favourite meal!  I will just have to knuckle down and live with the Gerd rules.
Good luck, Cecelia
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