Hello friends. This is long, convoluted, circular references and frustration!!
You may know about these awful spasms that started 6 months after the nissen in 08 as well as the chronic diarrhea..ok, fast forward through many visits, tests, etc.
Last summer, my migraine guy put me on klonopin as a preventative and to help me sleep..not good for headache, but sleep has been wonderful. Side effect....the spasms got better...didn't go away, but got better.
Last Cleveland Clinic (CC) visit, new neuro wasn't crazy about the klonopin, addictive, will need more as time goes on, but the baclofen they suggested didn't work.
the spasms are back full force, painful, frequent and I have heartburn as badly as I did before the nissen...I mean, take a drink of water and boom, heartburn. The protonix is not helping. The manometry, last August showed massive, violent reactions when I had the spasms, most impressive they said, but they don't know what this is.
I am now scheduled for the big breast reconstruction on February 7th; an 8 hour surgery, lower abdominal tissue from side to side removed (with hundreds of stitches inside and hundreds outside) and placed and creates the new breast; microsurgery, tons of pain, 2 to 3 month recovery and I am spasming like crazy. Fear factor has increased ten fold...can you imagine these incredible spasms while recovering from that surgery :( seriously scared.
So, I called the GI at CC who tells me this:
I deal with the heartburn and the diarrhea (another story, my family dr. finally helped there). He says, you have a movement disorder and the new neuro wasn't to happy about the klonopin. He says to increase the protonix to twice a day for a few weeks and add in pepcid ac in between doses; when it settles down, go back to the protonix once a day. Now, remember this...he is the one who said (after the last round of testing...the spasms are causing the reflux!, not the other way around! So how is increasing this for a few weeks going to help?
So, Monday, I have to call the new neuro at CC to talk to him..but what do I say?, except for what I've said here??. oh yeah, I'm not scheduled to see him again until April 11th..2 months after the new breast surgery.
My thoughts, help me figure this out.. I see my wonderful family gp next week and will fill him in; I'm calling the neuro at CC and ask for help; and I'm wondering if I need a new GI or do I go to Mayo? I am combing the literature to determine what these spasms could be; I'm at a loss..the tests have ruled out nutcracker, achalasia, and what not, but they are quite perfect either.
So frustrated tonight!