I'm so sorry you're having lung issues.
I can certainly identify with your symptoms, as they are similar to the ones I get. Do you get a lot of mucous being produced as well? I hope you are straightened around by now. Do you have a good lung doc that you can see when you get into trouble? As I ask that question, I realize that there is little that a lung doc can do when the cause is likely to be reflux.
I'm glad you have great surgeons. According to my DIL, the procedure you're having is the very best one. A neighbor of mine who had my DIL's surgeon said that she is very happy she had the reconstruction. With it she's not constantly reminded of her health challenge.
I know hospitals can vary regarding care. My DIL and her surgeon used to work for the biggest hospital in the area. When he went into private practice, they opted to do their work at a smaller hospital that is still part of the system. She loves that hospital, and thinks the nursing care is much better there.
I have no doubt that you can be your own advocate in most situations while you're hospitalized. During the times when your down and out, be sure to assign that job to your husband!
Hang in there, my friend. Here's hoping the New Year will lead you to some answers and relief!