Linx or Toupet Fundo??????????????????????

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slicer
New Member


Date Joined Jul 2010
Total Posts : 18
   Posted 1/6/2011 9:15 AM (GMT -6)   
Hey people,
Been really struggling with gord this year and need to make a surgery choice ASAP as PPI's just don't cutt it with me.
 
I am on list for NHS Toupet Fundoplication and I have also been offered the new LINX procedure at a cost of £5k.
 
The Linx is reversable, which is the most appealing thing for me.
But then if it doesn't work then that means another surgery to take it out and then a 3rd surgery for the nissen or toupet fundoplication. Oh and the fact that I'd be £5k+ out of pocket (not that you can put a price on your health)
I am an otherwise fit and healthy 28 year old man.
 
I would really love if you guys and gals could give your opinions.
 
Cheers,
 
Lewis.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5004
   Posted 1/6/2011 3:46 PM (GMT -6)   
I would not have the Linx. My surgeons have told me they spend a lot of time repairing them, and my guys are some who had done a lot of initial research on them. I asked a lot about that because I thought it would be preferable too. Also, you can't have it if you have a decent size hiatal hernia. They can't repair that going through your mouth!

As for Toupet, this is the one I had. But it's a partial wrap suitable mainly for those like me who have poor swallowing. I had polio! A full wrap is the usual procedure.

Do plenty of research, not just on forums. You'll be happier with your choice if you are well informed.
Alcie
 
 

slicer
New Member


Date Joined Jul 2010
Total Posts : 18
   Posted 1/6/2011 4:13 PM (GMT -6)   
Hey thanks for the reply, I didn't realise you'd already had the toupet. This seems to be the way many surgeons are going now, even for patients with good swallow results. Sorry you're not having the results from this, how long ago did you have this?
 
The linx device is put in keyhole not down the throat, are you thinking about esophyx procedure?
 

LdyJane
Veteran Member


Date Joined Jun 2008
Total Posts : 903
   Posted 1/6/2011 4:49 PM (GMT -6)   
I can't give you an opinion on the type of surgery you're looking at; but I can tell you that the younger you are when you have it, the better the outcomes.
Good luck!
Janice

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/6/2011 6:25 PM (GMT -6)   
I had the toupet. Mine is a 270 degree wrap.
My doctor did mine this way because I have an extra movement in my esophagus.
I've been very happy with it.
Joy

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5004
   Posted 1/7/2011 12:08 PM (GMT -6)   
Slicer, yes I was thinking as you suggested. Still, Linx was not even considered by my surgeons who have done many thousands in the large university center, and they've done research on different methods since the early '90s. I've read some of their research papers. My surgeons have in the neighborhood of 98% good results with Nissen and Toupet.

Do you have a hernia needing repair?

I actually had quite good results from my Toupet. I was able to stop PPIs immediately. No reflux. I had to have the procedure because I was in a bad wreck that pushed my stomach into my chest. I did mess it up when I had a vomiting episode brought on by a medication I didn't tolerate. I think I tore some stitches. Now my wrap is floating around a little and some part is above the diaphragm, causing pain when I eat.

If my problem gets worse I'll get a re-do, but it's not critical now. I keep a bottle of paregoric handy now. It's really nasty tasting stuff, but it will stop vomiting instantly if you can even swallow a tablespoonful. My PCP, an older doc, prescribed it. My surgeons are younger, mostly didn't know about it.
Alcie
 
 

slicer
New Member


Date Joined Jul 2010
Total Posts : 18
   Posted 1/9/2011 7:53 AM (GMT -6)   
Thanks for the comments everyone.
 
Alcie - As of last endoscopy I did not have a hiatal hernia, but around 8 years ago I had one that showed a small hernia.
Linx guys are saying that surgeon Prof Favretti will fix small hernia at the time of placement of device.
 
I am thinking Linx is the way to try and if not they can remove and convert to nissen ot toupet fundo, but then would end up having 2 or 3 surgerys which is not a great thought.
 
I have only seen 4 people on the net talking about there own experience with the Linx, two had ok results 2 did not really work. I wish more people could post on here who have had the linx, as there is around 150-200 that have been implanted in the last 2-3 years. Could it be that the rest are doing well with it? The latest stats seem to show this.
 
The issue you have had with disturbing the wrap, is something I am worried about also, along with the weight loss as I struggle to maintain my weight as it is. The results your centre show are exellent and I have never heard of such a high success rate anywhere.
 
Decisions decisions huh
 
Lewis.

Jeronimo
Regular Member


Date Joined Apr 2011
Total Posts : 76
   Posted 4/19/2011 8:32 PM (GMT -6)   
Ive read that Linx has a 85-90% of good results. I hope that the percentage of people that are succesful with the procedure are too busy enjoying life and they are just not bothered with posting their success on forums. Its just normal to start posting and asking for help, advice or opinions when something goes wrong.

I greatly encourage people to post their results and experiences, bad or good! It helps a lot to decide what procedure to choose!wink

Sailer
New Member


Date Joined May 2011
Total Posts : 5
   Posted 5/23/2011 10:39 AM (GMT -6)   
Slicer,

How are things going? Please keep us informed.

Economist

AntZag
New Member


Date Joined May 2011
Total Posts : 11
   Posted 5/30/2011 8:30 AM (GMT -6)   
Yes please let us know how you are getting on slicer - thinking of getting the Linx next month but still very unsure...
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