Surgury that went wrong

New Topic Post Reply Printable Version
36 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

GREYGHOST
Regular Member


Date Joined Sep 2010
Total Posts : 79
   Posted 2/2/2011 7:03 PM (GMT -6)   
mad  It has been now over 5 months since i had a hitial hernia repair along with a 270 degree stomach wrap. My doctors say that i might be a slow healer and i say otherwise. There are many foods that i want to eat and use to be able to eat, that still want to come back up on me and the pain associated with this in the middle part of my chest is very sore to say the least. My new doctor has told me that was has been done, can not be corrected from this past surgury and that she can do no more for me. I love going out to eat or should i say i use to.  Now when i go into a restaurant, i try to order a meal that i can eat and sometimes, that does not work out at all.  Sometimes just after just a few bites of a meal, i have to cover my mouth with a napkin and go runing into the bathroom trying to vomit up what i have just eaten. I have been in the bathroom on one instance of 35 minutes for this to pass. In another case, i was found laying on the bathroom floor passed out by a customer who called for help. Needless to say, I am very mad at the outcome of this surgury do to the fact lack of communication between doctors and a lack of testing BEFORE the surgury, was not done and now to be told i might have to live with this for the rest of my life, is very up-setting to me and i have no respect at all for the first two doctors that did this to me. If anyone knows of a excellent malpractice attorney in the state of North Carolina, please let me know, as i could really use one now. Not knowing doctors in this state before hand, was an error on my part, and geting sick and leting another set up the appointments to see these doctors, i went by his choice and made a huge mistake. Just dont make the same error as i made, really know your doctors and have trust and faith in them, before they do any type of surgury on you. Thanks Greyghost

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/2/2011 7:25 PM (GMT -6)   
So sorry, Greyghost.
What does the doctor say is exactly wrong with the surgery?
Joy

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 2/2/2011 8:08 PM (GMT -6)   
Hi Greyghost,
It's critical that you go to a center like Johns Hopkins, Cleveland Clinic, or Mayo Clinic as soon as possible. You can not live like that, and there is no way that something can't be done for you. Bill, a longtime member here, had a wrap that didn't allow him to eat, and he went to Loyola Medical Center, and they were able to fix it so he can now eat fine.

I'm so sorry to hear that you are still having so many problems. If sounds as if you may have a very good malpractice suit. In the meantime, though, you need to start looking into getting help for your problems. Do not accept the fact that the second doctor "can't do anything more". There is no doubt in my mind that you can find another doctor who will be able to help you. At this point, however, you probably need to visit someone at a big center.

Good luck finding an answer quickly.
Take care,
Denise

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5011
   Posted 2/2/2011 8:24 PM (GMT -6)   
I only started to be able to eat anywhere normally at 5 months. I'm older and don't heal as fast anymore, but I didn't get upset about taking so long to be able to eat.

You shouldn't be letting the vomiting go on! Ask a doc, even your PCP for an antinausea med. Vomiting caused my wrap to come partly undone and reherniate through my diaphragm. This was seen on barium swallow.
I use Zofran when I barely begin to feel nausea coming on. To stop vomiting I sometimes resort to paregoric. This is another med you could keep on hand. I even keep one small dose in a little bottle in my purse.

University of Pittsburgh does a lot of "re-dos."
Alcie
 
 

GREYGHOST
Regular Member


Date Joined Sep 2010
Total Posts : 79
   Posted 2/3/2011 8:45 AM (GMT -6)   
Denise and Alcie Thanks for your kind replys and support. The information is always helpful and appreciated. Whatever is still wrong with me, its on the inside of my stomach - according to the new doctor, its not from the wrap. Its really not clear as to what is causing me to have rejection of some foods. Now that the surgury has been done, the one doctor wants to do more tests NOW to see if he can find out what is wrong. This is the same doctor that ordered NO test at all BEFORE the surgury. I shall never go back to him and all i know is that my new doctor is still saying that what has been done, can not be repaired and i shall have to live with it. Have thought about duke here in north carolina or mayo in gainsville, fl. for another look see. Problem is expense and transportation to and from. I also am a senior on a fixed income and have to depend on friends to help out. Thanks again Greyghost or bob

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 2/3/2011 9:41 AM (GMT -6)   
Hi Bob!
Yay! That's a step in the right direction. Greyghost is a great handle, but Bob is much more cheerful, and if cheerful was ever needed it's right now.

Not ordering a barium swallow, endoscopy, manometry, and 24hr PH monitor IS malpractice. No serious and experienced Nissen surgeon would even consider doing this surgery without these tests. They are the tests that determine whether or not a Nissen is the answer to the problems that are being experienced. They inform the surgeon as to what he/she will be doing...a partial wrap, a full wrap, the extent of the hernia if there is one--it gives all the information that is required to make an informed decision regarding the surgery.

Perhaps a legal action is required to provide you with the funds you need to move forward in finding doctors who can help improve your quality of life. I don't have a clue how you'd go about finding a reputable attorney to take your case, but I do know that many firms will do the work without upfront payment...they just take a percentage of your settlement. Perhaps you can contact a legal aid office (they help people who can't afford representation), and see if they can point you in the right direction.

Hang in there, and do NOT give up. You must pursue whatever leads are out there in search of a solution.

Until then, stay with your friends here at Healing Well! We'll be your cheering squad yeah yeah yeah and provide whatever support we can.
Good luck, and take care of yourself.
Denise

LdyJane
Veteran Member


Date Joined Jun 2008
Total Posts : 903
   Posted 2/3/2011 5:24 PM (GMT -6)   
I agree with Denise 1000%; I mean, I really can't add anything else!
Janice

GREYGHOST
Regular Member


Date Joined Sep 2010
Total Posts : 79
   Posted 2/3/2011 5:29 PM (GMT -6)   
Denise - Thank you so much - your the FIRST person that has agreed with me so far on the TESTS that should have been done before the surgury. There was no barium swallow, manomety and no PH monitor study done at all. All he did on me was the upper endoscopy and then told the surgeon what to do. A barium swallow was ordered, AFTER the surgury. Now since i am having all of these problems in trying to keep down foods, Now he wants me to come back and do more tests on me and i shall not allow him to do so. Where we are located in asheville, NC, the clinic i went to, is the largest endoscopy center in western nc. All but 4 doctors that do this work, are at this clinic. They treat you like a herd of cattle at a processing plant. All you are to them, is a dollar sign and they make money - plenty of it, and the quality of care is very poor to say the least. The doctor never looked at my records from the last hospital i went to 3 years ago. One would think that after 3 years since my last visit and all types of stomach problems, all types of testing should have been done before any surgury. NOT NOW after the surgury. Thanks again denise for your kind words of understanding - they are really appreciated. BOB

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 2/3/2011 8:13 PM (GMT -6)   
Bob, you know we're with you. Don't go off and leave us! As you go through the process, keep us informed. You can vent here, and let off some steam. Try to keep your head up and be as positive as possible. It's not going to help things if you get depressed.

Take it just one day at a time, and begin to move forward. There is a way to get through this. Don't let the big picture overwhelm you, though. There is help out there. You've just got to figure out what your best route is to get there.

Hang in there. Things will get better.
Take care,
Denise

babygirl10150
Veteran Member


Date Joined Jul 2006
Total Posts : 639
   Posted 2/3/2011 9:38 PM (GMT -6)   
I know somewhat what you're going through. I only had the scope before surgery, all the other tests after the first nissen. I've now had 3 with minor improvement. I'm going to see my surgeon tomorrow but his ego is so high up his backside I'm sure he won't believe me about the symptoms.

Keep us updated!

GREYGHOST
Regular Member


Date Joined Sep 2010
Total Posts : 79
   Posted 2/4/2011 8:37 AM (GMT -6)   
Denise and baby girl - thanks again for your kind words of thoughts as they are appreciated. Babygirl, just what other tests have they done on you after your nissen that you have only minor improvement??? Just what type of symptoms are you having and how are you puting up with it??? I really believe what has me so mad, is that the surgeon who did my operation said that everything went well and that i shall not have any more problems after his surgury. WHAT A JOKE!!! All i can say in his defense, is that he did just what the gi doctor told him to do NOT knowing that NO tests were done before his surgury and this part, i am very mad about. Shall keep in touch with you all and thanks again for your loyal support. Baby girl, please reply thanks bob

babygirl10150
Veteran Member


Date Joined Jul 2006
Total Posts : 639
   Posted 2/4/2011 9:13 AM (GMT -6)   
My symptoms before surgery was a lot of regurgitation, burning throat, severe nausea that I can remember off hand. I had the scope before the first surgery. After I complained of no change in symptoms I had the bravo, barium swallow, and the manometry. The bravo results came back normal eventhough I could feel acid coming up. It was the barium that showed the reflux was still there. Off for another nissen I go. My surgeon said he made the wrap loose so I wouldn't have swallowing problems but apparently it was too loose. He went in and tightened it. A few weeks later all my symptoms came back again. This time I just had a scope with my GI. He thought I had esophageal cancer because the tissue was so discolored from the erosion of the acid. That right there was proof the second nissen didn't work so off I go for the third. I went for my post op and my symptoms improved but not 100%, anything is better than nothing. That was almost 2 months ago. Now I've been burping acid, nausea is still in full force, and my lower esophagus has been burning. Anything I eat I feel so sick that I sit in the bathroom for hours. I just eat 2 or 3 bites at a time but it's still pretty bad. My meds haven't been touching it lately. I have an appt to see my surgeon in an hour to see what he says. Also I'm having a bacterial overgrowth test done on Monday.

It's frustrating when they think you are making up symptoms and all the tests come back normal. I had the biggest sigh of relief when my scope showed all the acid erosion. My surgeon said he's never had a wrap not work, much less 3 on one person but I guess I'm the lucky one. He also said I should have no problems after all of them. They can't guarantee no problems will happen and I think that's false hope...and when symptoms return it's a huge let down.
Michelle

~Nissen redo again 12/13/10~
~Nissen redo 05/10/10~
~Nissen 12/14/09~
~Colostomy 07/30/06~

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 2/4/2011 9:15 AM (GMT -6)   
Bob,
 
I have been following your thread and I am sorry you are going through this awful experience.  I agree, look for a new GI Doctor. 
 
I find most surgeons will tell you that everything went well with the surgeries and the complications are mostly due to your own healing process. 
 
In your case it does feel like your pre-surgery work up was not done according to the standards that the members post here day in and day out.
 
Barium swallow, Endoscopy, Ambulatory acid (pH) probe tests, and Esophageal impedance tests should be done before surgery. I would consider reporting your concerns re treatment and surgery to your state Medical Board.  Medical care providers should always have their patients' best interests at heart.
 
Kindly,
Kitt
~~Kitt~~
Moderator: Anxiety/Panic, Osteoarthritis, GERD/Heartburn and Heart/Cardiovascular Disease.
www.healingwell.com

"If you can't change the world, change your world"

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 2/4/2011 10:12 AM (GMT -6)   
Kitt is very wise, Bob...it sounds like a very good idea.

It doesn't matter that the GI doc told the surgeon what to do. The surgeon is responsible for ensuring that all testing is done before proceeding with the surgery. As Kitt said, that testing is standard with this surgery.

Hang in there!
Denise

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 2/4/2011 10:25 AM (GMT -6)   
Bob-
I can't add much, but have to agree 100% with what has been said. They shoud not have even considered surgery with out all the tests. No surgeon I talked to would even think about doing this without them. Not even the one who did my first one wrong. I do not believe this cannot be undone. My first one was completely done wrong and the second surgeon was able to redo it. he also gave me the option to just undo it. I realize it is a burden to go to the larger hospitals, but this is most likely your best course for getting relief. There are surgeons who specialize in fixing nissens gone wrong.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09

GREYGHOST
Regular Member


Date Joined Sep 2010
Total Posts : 79
   Posted 2/5/2011 9:03 AM (GMT -6)   
Denise,kitt, and Bill - Thanks once again for all of your help and input on my problem - its really appreciated as i am not happy at all from this outcome and the doctors that did this to me. My own problem of not having a private doctor, did not help at all. I had a cold and i went to sisters of mercy urgent care here in asheville, nc., and it was there doctor that set me up to see these other doctors since i really did not know of any at that time and many of the doctors here, wer not taking new patients at all. A huge mistake on my part of not knowing the doctors at both places and then having to put trust in them to do the right thing. YES, i am very mad at this outcome and this one doctor i shall never go back to - i might see the surgeon and ask him if i can get the truth out of him, if he knew that NO testing was done on me before the surgury. Its worth a try and as far as larger hospitals go for now, just dont have the necessary expense to be able to go to them now. We have DUKE here in nc and the MAYO clinic in fl. All i know, is that something is very wrong still and it does need to be taken care of. Thanks again for all of your support - your a great bunch of people !!! Take care bob

GREYGHOST
Regular Member


Date Joined Sep 2010
Total Posts : 79
   Posted 2/5/2011 12:57 PM (GMT -6)   
Kitt - Thanks again for you information. I have contacted the NC state medical board to file a complaint against the 2 doctors involved and they are to send out the forms for me to fill out. Thanks bob

GREYGHOST
Regular Member


Date Joined Sep 2010
Total Posts : 79
   Posted 2/12/2011 3:45 PM (GMT -6)   
to all who have read these postings. Thanks very much for your support as it really helps. I have received from the NC state medical board to fill out complaints on the doctors that did this to me. It is a hard process to file these claims and once they are filed in the state of north Carolina, there is NO guarantee as to the outcome if they file against the doctors or not. One has to prove Malpractice existed on there part and that is what a good attorney is to do for you. But here in Asheville, NC trying to get an attorney to handle a case like this, is like pulling teeth out of a mako shark. So far, no luck at all on an attorney and for all of you that have been through this nissen stomach wraps and are still having problems - contact someone right away, as you should not have to live with these problems after your surgery. For me, i am very mad at my outcome of the doctors that did this to me. Thanks again BOB

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 2/13/2011 1:48 PM (GMT -6)   
Hi Bob,
I'm glad that you're following through with the medical board. I hope you can find a lawyer to consider your case.
We're all rooting for you! yeah yeah yeah yeah
Denise

GREYGHOST
Regular Member


Date Joined Sep 2010
Total Posts : 79
   Posted 2/14/2011 5:06 PM (GMT -6)   
Hello Denise: Still no luck on an attorney at all. The NC state medical board has sent out forms for me to file against these two doctors, but they also want me to wait until after 3/01/11, just in case i might be a slow healer after all. At this time, i am still having problems with keeping down foods i use to be able to eat. This is really costing me a lot of money in food waste at restaurants and at the grocery store as to what to eat and what to buy. Needless to say, its very up-setting and i do not like it one bit. For now, just trying to do the best i can to get by on a day to day basis. Its people like you that show you do care that gives people faith to continue in life. Thanks again bob

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 2/14/2011 6:12 PM (GMT -6)   
Hi Bob,
You'd have to be a seriously slow healer to take until March 1st! Seriously, if it was just a little problem, it could be chalked up to healing, but the kinds of things you're dealing with should have resolved by now.

I can't wait for you to have the opportunity to be seen at a big clinic where they deal with problem cases. I'm very confident that someone out there can help you get back to a better quality of life.

Hang in there, my friend. We're all here for you--to provide support and any information we can to help you through this. Try to keep yourself as positive as possible as you work through this. I know it is hard, but you will find a solution.

Take care,
Denise

GREYGHOST
Regular Member


Date Joined Sep 2010
Total Posts : 79
   Posted 2/16/2011 8:58 AM (GMT -6)   
Denise: Again thanks for your kind words of understanding as always, its appreciated. When one reads all the postings about the people that have had this type of surgery and the problems that they also are having, its very hard to be able to stay on a positive side. You read about there problems and how long its been since there surgery and all the problems that they are still having - and it really makes you wonder if these doctors that are doing this type of surgery - Really know what they are doing. Its very up-setting to say the least and trying to stay on the positive side, is even harder yet. The bigger clinics are a lot more expensive to go to and are not nearby and that easy to get to. One just can not drive back and forth for testing and hotel stay and cost is also expensive. Duke is a 5 hour drive from asheville and the mayo clinic in Gainsviile fl is a good 11 hours and this is one way. Thanks again Denise Shall keep you posted BOB

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 2/16/2011 9:09 AM (GMT -6)   
Hi Bob,
I understand your frustration completely. Unfortunately there are doctors who are not qualified to do this surgery, but go forward anyway. As we've discussed, the very fact that your surgeon went forward on the word of the GI doc and didn't insist on the proper testing in crazy.

You do need to keep one thing in mind as you do your research online. Many, many people have this surgery and go on with their lives without ever posting online. Actually, most do. The people who come online to post and chat are more likely to be the ones who have had failed surgeries.

I researched my surgery thoroughly online, and that's when I found this forum. I was very frightened by many of the scary posts I read online. You are right that there are lots of failures out there. Fortunately, there are many more successful surgeries.

Sure, there are always quirky changes that occur with the surgery, but most of us find the pros far outweigh the cons.

I am hopeful that you will be able to find a way to get to a center. I still think that legal action is your best bet.

Good luck, Bob!
Hang in there.
Denise

GREYGHOST
Regular Member


Date Joined Sep 2010
Total Posts : 79
   Posted 2/17/2011 8:55 AM (GMT -6)   
Denise - Thanks again for your posting. Just what type of surgery did you have done to you. ? How did it go and what type of problems did you experience after your surgery. ? This is also why i came into this forum to be able to express myself and let off my frustration as many others have done. Talking about it really helps, but can not repair or replace what has been done. Take care Denise HAGD bob

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 2/17/2011 8:48 PM (GMT -6)   
Hi Bob,
I totally understand why you need to vent your feelings and thoughts here. This is the perfect place for that.

I had a full Nissen wrap in February 2009. I didn't have severe reflux at all...all my tests came back quite normal. I did get a lot of painful heartburn, but whenever I had a test, it never had the kind of high scores many others who have had the surgery did. My reflux was considered within the normal range.

My asthma and family docs were certain that the reflux I had was causing my asthma to be uncontrollable. They kept sending me back to the GI doc, and encouraging me to pursue the surgical option.

I was taking very high doses of steroids (I still have thin skin that tears and bruises very easily as a result of that steroid treatment), but still my lungs were dangerously inflamed.

Finally, my GI doc took my other doctor's opinions to heart, and told me that I could "either continue to take the PPI's, or I could go discuss the possibility of surgery" with the surgeon he recommended. It was up to me.

At that point I didn't feel that I had a choice. I couldn't go on with the lung problems I was experiencing. If the surgery didn't work, at least I could rule out that cause. According to my family doc, my condition was "life threatening".

My lungs never got healthy, and they went forward with the surgery anyway. It was a "Catch 22"--they needed to get the surgery done so my lungs could improve.

It took about two and a half months for my lung infection to clear and my lungs to heal post surgery. I do have asthma and at times still have lung issues, but NOTHING like I did pre-surgery. It was the right thing to do, and I'm glad I did it.

After my surgery (not counting my lung issues), I believe my problems were pretty average. Once the post-surgical swelling of the wrap subsided, I made gradual progress, and by 4 months was eating very normally.

I always say that the surgery leaves us with some quirks...when a wrap is created to do what our natural LES won't do, things are not like they were when we were young. We're not made perfect again.

I can't take big pills without having problems.
Raw veggies and salads can irritate my wrap.
When I drink a lot of water at once, it backs up a bit, and takes time to drain through my wrap.
Sometimes I get dumping symptoms (seldom), which consists of a gurgling stomach, and diarrhea. It doesn't last long, and doesn't really bother me.
I always make sure I chew my food carefully.

I do take 40mg Protonix before dinnertime, and 300mg Ranitidine before bed. I have a reactive stomach, and because of my very sensitive lungs, I am trying to be very conservative with my treatment.

At about a year post op I started to be concerned that I was getting some reflux and thought I may have caused damage to my wrap during the healing period due to my sever coughing.

After seeing a great surgeon in the area, and having the complete battery of Nissen tests, I was told that my wrap was perfect and he wouldn't touch it.

That's a problem for someone with asthma. It takes only a tiny amount of reflux to cause a problem.

While it's not perfect, I'm very glad I had the surgery. Would I have liked it better if I'd never needed it? Of course! But that wasn't in the cards for me. After having the surgery my lungs are SO much better, and I no longer take unhealthy doses of steroids.

If I ever need a redo, I will gladly get one. I don't really have a choice...my lungs can't tolerate reflux!

I hope you find a good lawyer to take your case soon.
Very best wishes,
Denise
New Topic Post Reply Printable Version
36 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Sunday, July 15, 2018 11:45 PM (GMT -6)
There are a total of 2,981,882 posts in 326,939 threads.
View Active Threads


Who's Online
This forum has 161789 registered members. Please welcome our newest member, h3v8yefl.
330 Guest(s), 5 Registered Member(s) are currently online.  Details
ashleylynn, ppm guy, Toulouse, Girlie, borborygmi