New here....advice please!

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bruner21
Regular Member


Date Joined Mar 2011
Total Posts : 24
   Posted 3/3/2011 2:21 PM (GMT -6)   
Hello!  I am so thankful to have found this forum....I am not alone!  I have never met anyone who has GERD as bad as I do.
 
I am only 26, female, 110lbs, and I have had GERD for about 4 years, each year seems to get worse.
 
My worst symptoms are burping and regurgiation and difficulty taking deep breaths.  I have my good weeks and my bad weeks. This is a bad week.
 
I take 40mg of nexium a day.  My doc had me on metaclopramide, but that made me want to sleep all day long (and its for short term use).  So now I am on motilium. I havent seen anyone post about motitlium in what I have read so far. Is anyone else on this?  I would be MISERABLE everyday without it. It's not FDA approved and I have to order it from New Zealand, and although it does NOT make me symptom free, it helps tremendously.  I used to feel nauseous all the time, which I do not anymore.
 
I am very frustrated during my bad weeks though.  I am really unsure of surgery.  I am going to get a second opinion in a few days from another GI, my GI did not recomend surgery.
 
I have started eating smaller portions throughout the day more often, and shoping mostly organic and preservative free foods.  Overeating is a HUGE trigger for me....i have to eat very small portions. If I eat past my full mark , I am doomed!
 
Very frustrated with my symptoms today, they are at a peak, and I have to go to the restroom every 2 hours or so to regurgitate what foam and bile I can to get relief.
 
Thoughts????

Usagihime
Regular Member


Date Joined Feb 2011
Total Posts : 24
   Posted 3/3/2011 4:47 PM (GMT -6)   
Wow I am the same as you pretty much!!! I am also on 40mg Nexium and motilium 3x daily before meals, which does help a lot if I don't get too full but still get some symptoms from time to time. I still burp a lot and get a lump in throat feeling at times, but at least the acid is in check...I tried to reduce my motilium intake but only had acid coming up to the mouth which is not good. I just turned 27. Have you been on PPIs the whole time you had GERD?

panther fern
Regular Member


Date Joined Feb 2011
Total Posts : 163
   Posted 3/3/2011 4:51 PM (GMT -6)   
bruner 21: Hi I am so sorry for your pain. I have a ton of problems with Gerd. here are some helpful tips. put bricks under your headboard so you are slightly elevated. natural gravity. The brat diet. bananas, rice, applesauce, plain toast. when i am really bad. Those because they are more easily digestible. Have you had your gall bladder checked? Idk why but it seems alot of people that have gerd have had their gall bladder flare or a stone or it removed.. big triggers... Soda pop, carbonated stuff, caffeine, chocolate, fried food, (my family dr. told my husband once basically if it tastes good spit it out...lol) very very small portions for me is key. eat often like every two hours but small portions...do not eat past like 7 pm sometimes water can even upset my tummy. Sometimes it can be triggered by food allergies. this is not the case for me. Unfortunately you may have to start with a really plain simple small diet and slowly add things back in. allergy testing might not be a bad idea . i don't eat anything wth more than 4 ingredients, and i have to understand wht the ingredient is. Today it seems many people are very sensitive to Gluten. These are just some thoughts. i do know the more nexium and a few drugs like that shut down the acid pumps which is helpful but really educate yourself on that, because you want to use the right amount and definitely not more it is a drug that the least you can use and get away with the better. I am not a dr. I have just educated myself well because of many illnesses and have a background education wise with a bit of pharmacology and stuff like that. not close to a dr. at all. The other drug, I do not know much of... research it. I would personally look for Why am i having so many tummy issues, and then if it doesn't have a clear etiology then go rogue. : ) I have all of the same symptoms ... it really sucks. For your really bad weeks have they tried any type of steroid to stop the constant inflammation in the stomach... like a medrol pack. not typical for gerd, i just know when i am on it for other health reasons it does help with my gerd. (lupus, RA,gerd,ibs, gulf war illness, chronic fatigue, night terrors, the list goes on..) ive asked i am not a hypochondriac although i feel like one. The breathing is something my pulmonary dr. said can be from childhood trauma or any ptsd, and common with gerd. I will keep you in my thoughts and prayers ... i hope you are able to take time to really dive deeper into what is causing the gerd. i know anorexia and bulimia are also at high risk for terrible problems with gerd. I hope that i have given you some helpful ideas.

Every morning i spend 15-20 coughing and spitting bile, foam and grossness... we could have some fun times... my husband is really grossed out by this. what are you gonna do? lol We have been married 19 years... For better or What?

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/3/2011 8:15 PM (GMT -6)   
I'd find a new GI and get a second opinion. It sounds like you're a good canidate for the surgery.
Joy

fashionista
Regular Member


Date Joined Jan 2009
Total Posts : 24
   Posted 3/6/2011 2:39 PM (GMT -6)   
I was 23 when I had my nissen. It saved my life. I had GERD since I was a child and as I got older it got worse. It got to the point I was vomitting everything I ate. If your GERD symptoms are controlling your life, I recommend the surgery. It will only get worse as you get older.

spike1010
Regular Member


Date Joined Dec 2010
Total Posts : 113
   Posted 3/7/2011 1:27 AM (GMT -6)   
Hi bruner21,

Listen to your own body, it does sound like you need surgery and from my own experience, surgery has been the best decision I have made. I too was taking motilium along with other PPI's etc.

bruner21
Regular Member


Date Joined Mar 2011
Total Posts : 24
   Posted 3/8/2011 12:38 PM (GMT -6)   
Thank you all for you input!  I went and saw a new GI yesterday and he is having me go through the mononmetry and PH testing to see if I should get surgery, he thinks I should.
 
I am mortified of having a tube ran down my nose while I am wide awake...and not being able to take meds 5 dasy prior to the testing is going to be really hard, I know i can do it put, yikes!
 
Is it super uncomforatble having the tube inserted through your nose? I am having both tests done in one day. I am nervous. I go in in 2 weeks.
 
I really hope surgery can do for me what it did for you guys. I have heard that some people's symptoms actually get worse??? I could not tolerate that!
 
What are your experiences with surgery??
 
Thanks again everyone!

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/8/2011 4:43 PM (GMT -6)   
The tube is uncomfortable. I have a deviated septum so it was harder for it to go down. The numbing gel helps alot.

Surgery did good for me. I only had pain meds one time on the day of the surgery. When I got home I only took it to sleep for the first four days. I was back at work in two weeks (I'm a teacher).
You do have increased gas for a few months. The diet is a little tricky, but very do-able.
Joy
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