The Road of Life - Part 5 of 5

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stkitt
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   Posted 3/11/2011 10:03 AM (GMT -6)   
Time to start a new thread. Here is the link to Part 4 of 5:

http://www.healingwell.com/community/default.aspx?f=45&m=1992850

“The road of life twists and turns and no two directions are ever the same. Yet our lessons come from the journey, not the destination.”

This thread is open to all members.

Kindly,

Kitt]

stkitt
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   Posted 3/11/2011 10:09 AM (GMT -6)   
Posted 3/9/2011 by opnwhl4
 
Hi all-
Well I got the first bit of good news in almost 2 weeks. As of right now.......no surgery! My surgeon was out of town Mon and Tues, so he just got to see the swallow test films this morning. Went to have the stent removed and he walked in and told the GI to just advance the stent into the stomach some to allow everything to go in there and hold better. They re checked it at 4pm and it is SEALED!!!!!!!!!!!!!!!!!!
So now I got 1 of the chest tubes removed and can start drinking sips of water. They also put in a nasal feeding tube and are the process of switching from tpn to that, being fed by both right now. They will slowly increase the nasal feeding and I may have to go home with it and 1 chest tube, but I will take that to the surgery. Not sure when I get to go home, all depends on how I do and pain control. He said possibly this weekend. I also will have to keep the stent for a month and then re check the leak. He is all for letting it heal on it's own.

Michelle and I went into this morning facing my worst surgery to date and ended the day taking sips of water, one less chest tube, and possibly going home soon.

Kitt- I got my first good news, now it's your turn Fri. I can rah rah better now than flat on my back in a super tough recovery.

Joy- Hope you get some help quickly with that allergy.

I appreciate all you alls support....more than you know.

Take care,
Bill devil
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09

stkitt
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Total Posts : 32602
   Posted 3/11/2011 10:10 AM (GMT -6)   
 Posted 3/9/2011 by dencha
Hi Bill,
That's the best news ever! yeah yeah yeah yeah yeah yeah I've been thinking about you and worrying all day! I'm so glad that they're taking that route. You've been through too much already.
Rest up, and follow the doctor's orders to the letter, my friend!
Get that esophagus all healed up and healthy again.
I hope you get to go home soon. I've been in the hospital for a long stay, and know that there's no place like home!
Yay!!!! yeah yeah yeah yeah
Denise
 

stkitt
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Date Joined Apr 2007
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   Posted 3/11/2011 10:12 AM (GMT -6)   
Posted Yesterday 9:13 AM by stkitt

Bill - yehaaaaaaaaaaaa - no surgery! If you go home with tube feeding and a chest tube will you be able to have a visiting nurse to check in on you to make sure all is ok ?
 
I am thrilled for you and for your awesome devoted wife. 
 
Denise, Janice, Bill and Joy,
 
My spelling seems to be better this morning but I am going slowly and far below my average of 65-70 wpm ( without spelling errors - most of the time)  I am down to approximately 35 wpm due to all the errors I make. 
 
Here is a giggle I had this morning - I was watching TV when a giant turtle was swimming in the water and I said to my hubby "  Look at that huge poodle " 
 
To neurologist tommorow.
 
I will try to restart a new thread here sometime today as this one is rather lenghty.
 
Joy - how is the rash. Janice let us know how you are doing ? Denise,  Thank you for all the cheer leading.  Bill,  Happy Trails on your road to healing.
 
Love to all,
 
Kitt

~~Kitt~~
Moderator: Anxiety/Panic, Osteoarthritis, GERD/Heartburn and Heart/Cardiovascular Disease.
www.healingwell.com

"If you can't change the world, change your world"

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/11/2011 10:13 AM (GMT -6)   
Posted Yesterday 2:50 PM by couchtater
 
Bill, yeah yeah yeah yeah yeah yeah   Wonderful news!
 
Kitt, rash still there. smhair   My scalp and ears keep getting in the itching game now. smhair smhair   I had a horrible rash on my chest last night. It didn't itch but it sure was red like a sunburn. scool I see the allergist tomorrow at noon.
 
As for calling something the wrong name I do that all the time! turn  
The other day I was heading to bed and I said, "I've got to get to bath because I've got to get up early tomorrow!" tongue
I think we all have attacks of aphasia.

stkitt
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Date Joined Apr 2007
Total Posts : 32602
   Posted 3/11/2011 10:15 AM (GMT -6)   
 Posted Yesterday 3:04 PM by dencha
 
Hi Kitt (and Joy),

I was going to say the same thing! I'm always calling things the wrong name, and have many word-finding problems! Forget names. And I really love it when I'm in the middle of a conversation, and I totally lose my train of thought. Although what you're going through is though, Kitt...you're not that far off from those of us who (presumably) haven't had a stroke. smhair

Joy, I'm sorry to hear you're having so many problems with your allergies. What a pain.

Well, back to doing our taxes! I'll stop in a bit later...
Denise

Hi Bill!

Barb??? Where are you??? confused

stkitt
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Date Joined Apr 2007
Total Posts : 32602
   Posted 3/11/2011 10:17 AM (GMT -6)   
Posted by dencha yesterday,
 
See that? Case in point...
"Although what you're going through is though..."

I can't even type the words I'm thinking! Oops!

We're done with our taxes...yay!
Have a great night, all.
Denise

stkitt
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Date Joined Apr 2007
Total Posts : 32602
   Posted 3/11/2011 10:18 AM (GMT -6)   
Kitt- Yes I will have a traveling nurse to check in on me while I have the 2 tubes. Actually we got lucky and the one company can do both the home med equipment and the nurse. How our insurance let that happen is beyond me. Hope all goes well with the Neuro today. that is quite a giggle....sounds like something i'd do too.

well today is supposed to be the day of going home. Don't know what time, but today is it!

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/11/2011 10:19 AM (GMT -6)   
Posted today by dencha
 
Good luck Bill!
Hope they send you on your way. It's so much better to recover at home.
Sending you good wishes!
Denise

stkitt
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Date Joined Apr 2007
Total Posts : 32602
   Posted 3/11/2011 10:32 AM (GMT -6)   
Dear friends,
 
I am going to type this without correcting errors.  Joy I hope your rahs has gottne better and that you are not in itchille any longer .. I hav emy enurologist appointment todya at w PM.  I will admit I am carerd but truomg tp rmemeber that his will soon be henaid me.
 
Dense,   I really hate tis as I read it back and i mkr d mr vtu -  wju os wrng with me ?? O a, [tuug fr all of you to keep me in your thoughts.
 
This morning I could not think g m granddaughters name.  I was talking to me dausther and she gave me a hint - it starts with an M.  Mandy.we are dpme wotj pir taxes amd get a wjp[[omg $28.00 refimd frp, state/////////pj my what to spenc id on.   I bought my MIL a nrs  vagh room scale.
 
Well you ge yhr jidy og yhind og msynbr noy...............I judy esn yto vty.
 
Some one please hlep me.
 
Love ,
 
Kigg

dencha
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Date Joined Feb 2009
Total Posts : 7180
   Posted 3/11/2011 1:09 PM (GMT -6)   
Hi Kitt,
(((((Hugs))))
I'm glad you posted without corrections, so we have a better idea of the struggle you're faced with. You know that the brain is a wonderful thing, and although the part that controls your typing skills (and other important functions you're struggling with), the good news is that with therapy, you can train another part of your brain to take over those functions.

The most important thing is for you to get good care regarding the prevention of future events, so you aren't constantly battling those things.

Wow! A whole $28 tax refund! I can see why you're having trouble deciding where to spend all that money!

Relax and let that neurologist do his thing. I'm certain that you can be the best of patients, and it's time for your family to start supporting you and your recovery.

You know you have our love and support. We'll work hard to keep things going on the forums. Do you need me to (try) cover the heart forum for you? I know nothing, but I'll certainly do my best if you'd like support there. Just let me know.

We'll be waiting to hear what your neurologist has to say.
Until then, take good care of yourself and know you're ((((loved)))).
Denise

opnwhl4
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Date Joined Dec 2008
Total Posts : 4961
   Posted 3/11/2011 2:26 PM (GMT -6)   
Kitt-
I am with Denise, thanks for not correcting and letting us know what you are struggling with. I too am waiting to hear how the appt. went.

Well guess things were going too well for me. As usual I have to do things the hard way. Not going home now and surgery is back on for Monday sometime. Leak came back while they were doing the tube feeding. It was coming out of the chest tube. Doc says I should be out of here about this time next week if all goes well.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/11/2011 5:30 PM (GMT -6)   
Oh, Kitt! I feel for you! I understand more about what you're going through.
I'm here to help. Point me to an area and I'll help out there. Now that I've got my computer I can be here more.

The allergist is looking into other areas for my odd rash. He drew four vials full of blood today. He's running a full mediobolic panel, ANA with tiff (?), and and IGA. He thinks I could have a new autoimmune disease like Lupus or allergic to myself. (odd..)
Joy

opnwhl4
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Date Joined Dec 2008
Total Posts : 4961
   Posted 3/11/2011 5:40 PM (GMT -6)   
Joy- I had a Lab that was allergic to his own dander. He was a yellow lab (more white than yellow) and his nose would turn red. Hope they find out what's going on. I sure know itchy sucks.

Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09

LdyJane
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Date Joined Jun 2008
Total Posts : 903
   Posted 3/11/2011 8:19 PM (GMT -6)   
Dear kigg..(I kinda like that name!!)
I'm going to pull a kigg and not fix my slepping either!..seriously! First, I would say that you're up to 35 words a minute..great going!! kewep it up!! Let the dr.'s do their work; you're the toughest cookie Iknow and no one deserves to be restored to greatness than you (and Billand joyu and denise and all of us...BUTTTTT!!!!) youknow what I mean!

Bill, omg! you have been through the wringer, haven't you pal??? I've called my church; Immaculate Heart of Mary (Catholic through and through) and your name has been added to Mass on Sunday.

Joy, seriously, I hope you're not allergic to you; with all that you've gone through, it would not surprise me if your body isn't over-reacting to stress and boom, no matter what you do, rash city.

Denise..you're jsut loved....

I'm goinng through my normal complications after surgery and working through them one by one; still exhausted; had my first migraine in two months today; a killer; had to inject, hit a nerve; so add leg pain to the list of crap!!! So, I'm trying here, but I am not in the present all the time.

love you.
Janice

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/11/2011 9:34 PM (GMT -6)   
Ouch, Janice!
I've been over in the lupus forum lerking. Those women sure do have it rough. I've done some research on it. Wow! What an illness. I hope I don't have it, but many of the symptoms read like me. :(
Joy

opnwhl4
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Date Joined Dec 2008
Total Posts : 4961
   Posted 3/11/2011 11:32 PM (GMT -6)   
Janice-
I was just wondering how you have been this morning. Good to hear from you. Nerves, injections, pain, ouch! Sorry you hit a nerve, I do know how that feels. You keep healing and we will take what we can get as for posts. Realizing how hard pain control is after being on pain meds so long for that rib of mine. Now I am hoping the other side doesnt do the same.

Joy- My niece has Lupus and took a long time for her to get diagnosed, but you are right that's a rough disease.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09

stkitt
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Date Joined Apr 2007
Total Posts : 32602
   Posted 3/12/2011 10:01 AM (GMT -6)   
Janice,
 
Wow,  you understood my new language...............I am vewy impressed.
tongue   turn tongue
 
To all,  I saw the neurogolist and now I can say I have run accross the MD with the biggest ego in the Twin Cities area.  His first question was "Who Told You You Had a Stroke ?"  I want to tell him God said so. 
 
He poo pooed all of my sx and suggested I see a neuropsychologicat for a 6 hour evaluation to see if I can put a square peg in a square hole and do puzzles?  A skilled technicancian would then work with me on a variety of tasks designed to measure different abilities, such as concentration, learning and memory and language skills.
 
I am all through with specialist and will stick with my PCP and the dx of a minor/mild stroke.  I have been working on my own and my typing is improved greatly since I typed that example I posted.
 
So enough about me - Janice, How are you ? Talk about all of you feeling worse then I do.........I am so sorry that I blabbed on re myself.
I hate to hear of you being in so much pain and know I am here for you.   I will try to answer all my emails today.
 
Denise, My typing is better today - seems all your prayers and support have done there job.  How is that adorable baby and what a great grandma you are.  I feel that is one of my strong points.
 
Joy, Ouch and itch and ouch. The ANA (antinuclear antibody) test which can be performed on a patient's blood sample as part of the diagnostic process to detect certain autoimmune diseases.
 
Bill,  You prayers worked, all of you and thank you so much for remembering me while you were going through so much.  I read through what each of you go through and I realize I can surely handle the little things thrown at me.
 
I am here always for each of you.
 
With love and kindness,
Kitt
 
Gentle hugs, and prayers.
 
Kitt
 
 
 
 
 

dencha
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Date Joined Feb 2009
Total Posts : 7180
   Posted 3/12/2011 1:57 PM (GMT -6)   
Hi Kitt,
I don't think there's anything more maddening than a doctor who is full of himself. Seriously. Aren't they supposed to be in that line of work to take care of people, not stroke their own ego? Of course...he's the only one who could possibly diagnose a stroke. What an #@$&*%!

I agree with you that you should go back to your PCP and work through him/her. Can't you get into PT/OT through him/her? If your PCP thinks you've benefit from some therapy, it would be time better spent than doing those hours and hours of testing!

Kudos on your typing improvement! yeah yeah yeah yeah
You know we're here for you always...
Denise

opnwhl4
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Date Joined Dec 2008
Total Posts : 4961
   Posted 3/12/2011 3:20 PM (GMT -6)   
Kitt-
I too am tired of doctors who are full of themselves. I've seen a couple neurologists and both seem to be really full of themselves. Must be a job requirement for them. LOL!

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/12/2011 4:19 PM (GMT -6)   
I've found many specialists who are like that and a few GPs. I guess they feel like since they were able to get that degree it gives them the right to look down their noses at you. Anytime I come across one like that I say good-bye!

I'm glad you're getting better. :)
Joy

dencha
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Date Joined Feb 2009
Total Posts : 7180
   Posted 3/12/2011 4:43 PM (GMT -6)   
Hi Bill,
No kidding...many of them definitely have God complexes. Many PCPs are the down to earth docs. I have a family doctor whom I can email, and he's likely to respond to my emails on the weekend or at night as during the week.

Actually, I just emailed him regarding the hype over taking calcium supplements and risk of heart attack. He said that at this point the "lay press" has overblown the risk, and he still recommends I continue to take it. If more research comes out and changes his mind, I'm sure I'll hear about it.

FYI he recommended 600mg twice a day, and 1000 IUs of Vitamin D. He wrote me back on a Saturday. How about that. He's not one who has a big head. Just very dedicated.

Janice,
I'm sorry you're still in pain. I hope your surgical healing is going well. Hey, my friend, I'm glad you working on staying in the "now". We all struggle with that when challenged with medical or emotional issues. Just catch that mind when it starts to wander into dark places and give it a good talking to. Set it back onto the right path. It ain't easy...I know that. You know you have us to lend an ear or provide a cheer!yeah Hang in there.

Joy,
I know you must be worried about what's going on with you right now. I hope you get the results quickly, and your problems are allergic in nature. Allergies are bad enough, but still beat the alternative. You know we're with you!

Take care everyone!
Love,
Denise

Post Edited (dencha) : 3/13/2011 8:47:29 AM (GMT-6)


opnwhl4
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Date Joined Dec 2008
Total Posts : 4961
   Posted 3/13/2011 8:35 AM (GMT -6)   
Hi all-
I am scheduled for surgery at 10am Monday. Once again I have done this one right, no googling this time! Just letting it happen with no fore thought out results, issues, etc. Just realized It's day 14 of this last ordeal. Will definitely tie the Loyola stay and NPO for sure at this point. I more week to go!

Take care,
Bill

Ps. For anyone who remembers me and Michelle's "inches of surgical scar" race? I am WAY out front now! LOL!
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7180
   Posted 3/13/2011 8:46 AM (GMT -6)   
Hi Bill,
Nobody in their right mind would think they had a chance in competing with you for that honor! I'll be thinking of you tomorrow, and wish you the very best outcome. You know your friends will be here saying prayers, sending healing thoughts, and getting ready to cheer on your recovery! yeah yeah yeah yeah We will await your first post-op post with great anticipation.
You know we care.
((((Hugs)))
Denise

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/13/2011 9:46 AM (GMT -6)   
Bill,
 
Dam, dam ,double dam. Nope I did not misspell that word -  I am so sorry to hear you are headed back to surgery tomorrow.  I will be keeping you in my prayers and wish I was a bit closer so I could stop by for a quick visit. 
 
I know how down my hubby was last year when he spent the 16 days in the hospital with complications so you have al ny support.  Let us know how it goes for you.
 
Joy,  I know you are waiting for your lab tests and I wish I could have been more of a help in knowing what all the tests were for. Thanks for sharing your experiences with the not so nice Drs. out there.  I do so hate being talked down to. 
 
Denise,
 
Thanks for your support and know I am here for you.  My typing is so much better.  Feeling pretty good and my family is happy.  Not worrying about the future - just face it one problem at a time and enjoying the good times. Let me know how you are doing ?
 
Janice,  What can I say to someone who has been through so much and remains so strong -  I care !I know  that brave is sometimes an overused word  when you have faced so much you don't always feel so brave.   Being brave is a very personal concept and people tackle difficulties in different ways. I hope we make life a bit better for you knowing how much you are loved and cared for by all of us here in this forum. 
 
I wish each of you a very happy Sunday !
 
Love and hugs,
Kitt 

Post Edited (stkitt) : 3/13/2011 10:20:24 AM (GMT-6)

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