Anyone with reflux problems similar to mine?

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bnand
New Member


Date Joined Mar 2005
Total Posts : 5
   Posted 3/6/2005 5:11 AM (GMT -6)   
I know that GERD is different yet similar for everyone. I have not yet found any stories that are exactly like mine although some are similar. The awareness of my GERD began one night while lying on the couch almost three years ago when suddenly I swallowed and felt this intense pain on the left side of my throat near my voicebox. Swallowing and talking were agonizing and the pain radiated through my jaw and up to my temple. This lasted for about 45 minutes until a mild hiccup released it. The muscles around the area were sore for several days after. About two weeks after this occurred a general soreness began on the left side of my throat. I went to an ENT and he said I had a spasm and I had a lot of "cobblestone" irritation in my throat indicative of acid reflux. This was a surprise because I never had any of the classic heartburn symptoms. However, I had been having a lot of trouble keeping my voice clear (constantly clearing my throat) for two years prior. There was never any pain-just the annoyance. I had the tests-upper endoscopy, barrium swallow, PH probe. Barrium swallow showed nothing other than limited motility in my lower esophagus. The PH probe did indicate elevated acid levels and the endoscopies showed some mild esophagitis and poor LES function. So I am confident the diagnosis is correct. I even had my gall bladder removed.
 
My chief complaint today is still the left side of my throat. I have not been able to talk without pain since the whole thing started. Sometimes it isn't too noticeable and other times it hurts enough the make me mispronounce words or refuse to talk. The tissue feels a bit stiff for lack of a better way to describe it. I don't have the burning sensation that a lot of people feel. It's more so a tight feeling in the muscle system. When it acts up, if I squeeze my throat just below the voice box, it will make me cough as the tissue is sensitive. The right side of my throat is always fine. I suspect that the damage caused by the spasm may not have ever had the chance to heal completely because the reflux is too consistent. So I wonder if other people have a similar issue. In case you're curious, the spasm happened when I was 29.
 
The PPI's do help keep my voice clear- I take 1 Prevacid a day now-but they have little effect on the pain. I have taken 1, 2 and 3 PPI's a day to see if it would help. I have a suspicion that, at least with me, the PPI's lose  a lot their effectiveness after taking them for about three weeks. I have found that it helps to go off of them for two weeks when I don't think they're helping anymore. Has anyone else suspected this?
 
Also, my reflux is worse when my stomach is empty. I seem to feel the best immediately after a meal. Sleeping with the head of my bed elevated never helped. I also used a wedge pillow to no avail. I don't seem to reflux while I sleep though on rare occasions I'll wake up with those painful esophageal spasms that feel like a heart attack. I know I am lucky that I can sleep well and I really feel bad for those of you that sleep poorly night after night. But my turn comes when I wake up knowing I will go to work and do a lot of talking and I never know how painful it will be, but I know it probably won't be pleasant.
 
I do intend to try Northern Joe's water remedy. Wouldn't it be cool if it worked? I always drink filtered water but if it doesn't take out the chlorine, there may be something to it. I don't drink coffee or alcohol nor do I smoke and soda is limited to once per week so there is not a lot of contributors from my diet that will cause reflux.
 
I do have an appointment with a doctor later this month to pursue a Hill Repair surgery. I have discussed this with him before. Not something I want to do but if it gives me a chance to enjoy talking again, I will take the risk. I have done a lot of reading on laryngopharengeal reflux (reflux the affects the throat) and studies show that those symptoms are difficult to erradicate and medicine rarely helps enough. Surgery, however has helped a lot of people.
 
I didn't expect to write this much so I congratulate you if you made it to the end. Thanks for reading and any feedback is welcome.
 
 
 
 

Searchin'
Regular Member


Date Joined Feb 2005
Total Posts : 70
   Posted 3/6/2005 10:25 AM (GMT -6)   

bnand-Most who come to this message board can certainly relate to your agony, pain, and frustration, even though many of us seem to have different and varying symptoms.

I have never had sore throat pain, but I do have laryngitis frequently and a need to 'clear my throat'.  I am trying to lose about 20 pounds and get more exercise.  I am also trying to reduce the stress in my life.  Also, I have totally cut out any kind of soda pop.  I love it, but the carbonated water and the caffeine

seem to make me worse.  Also, it is fun to eat french fries, cheeseburgers, and pizza with pop which are not good for losing weight.   I try to just stick to water.
 
If you are young and in your 30's, I would be sure to try every  other avenue before deciding on surgery.  Surgery of any kind always carries risks and you  need to be very sure that you are ready to have it.
 
Go to Google and do an advanced search of Hill Repair, both
open and laproscopic.  Research all you can to be sure you are confident and knowledgable about any procedure.  This way you can ask better questions of your doctor.
 
Best of luck as you try to find your solution.  Life is certainly not without many challenges.  I am still doing trial and error to find out what helps.
 
 
 
 

adjca
Regular Member


Date Joined Feb 2005
Total Posts : 50
   Posted 3/6/2005 1:12 PM (GMT -6)   
Yes bnand, I agree with Searchin-Do your research on the Hill repair first and then you'll be in a better position to decide if its for you. I also have the burning throat and am trying the spring water suggested by Northern Joe. So far it is not helping a whole lot but I am still determined to stay with it as I'm hoping it will help the longer I stick with it. Good luck to you. Carol

Osteoporosis
Hiatus Hernia

Gerd


idora98
New Member


Date Joined Aug 2003
Total Posts : 12
   Posted 3/12/2005 10:43 PM (GMT -6)   
I had taken everything for acid reflux disease which I had for about 10 years. For about 4 1/2 years now, though, I have not had any symptoms at all. I eat all of those things listed on the No-no list and nothing bothers me anymore. If you would like to know the changes I did make, I will be happy to share them with you, but please just know that you do not have to suffer or forego any of the great foods like Mexican, Chinese, or anything else we all love to eat. I am living proof of that. My e-mail is sb4850@bellsouth.net and I am medication free!

Sharon

Cammay
Regular Member


Date Joined Mar 2005
Total Posts : 20
   Posted 3/13/2005 1:52 AM (GMT -6)   

 

 

Hi Sharon

I hope you don't mind me butting in but I was very interested to see your post.  I have had acid reflux which has come and gone with and without meds for a few years now.  However the the last couple of months, especially this last week I have been in absolute agony. My chest and throat are the worst and the hoarseness is scary for me.  I would really like to get rid of this or certainly ease it.  Could you please let me know the changes you made.

Many thanks

Cammay

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