Treatment for LPR?

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msro
New Member


Date Joined Apr 2011
Total Posts : 3
   Posted 4/21/2011 12:58 PM (GMT -6)   
Hi Everyone, I lost my voice completely for 4 weeks last year due to LPR and had burning mouth syndrome as well. The LPR has now come back and my larynx hurts very much, along with being extremely hoarse to the point people have a hard time hearing me. My history is in music and singing is very important to me, and of course it would be so wonderful to feel ok again. I'm taking 40 mg of Prilosec 2x a day, 150 mg Rantitine 2x a day, alpha-lipoic acid (for the burning mouth syndrome), and DGL (deglycyrrhizenated licorce), along with trying to eat less food and eating foods with lower amounts of acid. I'm also trying to sleep with my head elevated on pillows. I am an educator by profession and a single mother to a 4 year old child and I have to talk a lot. I am worried and I feel awful every day. I also feel strange, heavy, and a little depressed. Is this due to the meds, or just the LPR? And, has anyone had treatment that works? I am desperate. I have health insurance, but it has a $5000 deductible and I already make less than living wages with my job (I have to pull from my small and shrinking savings account every month for basic living expenses). But if best treatments are with docs, I'll go for it and do it quickly, before I lose my insurance. I'd love a list of all the treatments that people have tried that worked for them, whether lifestyle, medicine, alternative, diet, whatever related. Anything.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 4/21/2011 2:41 PM (GMT -6)   
You need to raise the bed head instead of using pillows. With pillows you get a bending at the waist which causes more reflux.

It sounds like you're already taking the maximum amount of medication allowed.

I understand the need for your voice because I'm a first grade teacher.

Have you had any testing to see if you need to go the surgery route? I had LPR and I had the surgery, which fixed my problems.

If you have an open LES trying to treat LPR with medication only is like trying to put a bandaid on an amputation. Nothing's going to help that but surgery.
Joy

mock turtle
Regular Member


Date Joined Mar 2011
Total Posts : 467
   Posted 4/21/2011 10:11 PM (GMT -6)   
"I'd love a list of all the treatments that people have tried that worked for them, whether lifestyle, medicine, alternative, diet, whatever related. Anything."

---

small small meals...4 or 5 each day because stomach distention is a major factor in reflux

eat less loose weight

no smoking, quit drinking

eat small meals

cut out carbonated beverages, they propel stomach contents up onto the esophagus

never lay down within two or three hours of eating a meal

elevate your bed six to eight inches minimum at the head or my favorite, sleep in an upholstered chair that will not recline beyond 45 degrees

sip aloe vera juice to sooth burnt esophagus

eat small meals

dgl, slippery elm and or carafate aid in rescuing damaged mucous epithelium

avoid like the plague eating any fatty food

sorry to say chocolate weakens the "les" (lower esophageal sphincter) so give it up

nsaid drugs weaken the les also ( so what doesent?

ginger in small amounts ( a slice) brewed in hot water as a tea may strengthen the les

a tablespoon of liquid calcium supplement may strengthen the les, take at end of meal

oh yes did i mention eat small small meals?

try to stay calm cause anxiety makes the vagus nerve flutter and then the les may linger open

go for a walk an hour after eating, increases motility

the british brand of gaviscon makes a barrier thats stronger than domestic us products and can sometimes stop reflux as it has more alginate that forms a better "raft"

dont forget , eat very small meals

keep a diary of trigger foods, what induces reflux for you may be different than what triggers reflux in another person, likewise keep a record of foods you can eat that are relatively "safe"...do this by eating just one or two things at a meal so you can be sure what causes what

eat whole foods, fresh foods avoid packages with long lists of ingredients and especially avoid acid and chemicals in your food

keep believing you can get better, psychology is important

did i mention , eat small meals idea idea

best of good luck to you...hang in there

mock turtle

msro
New Member


Date Joined Apr 2011
Total Posts : 3
   Posted 4/25/2011 11:25 PM (GMT -6)   
Thank you! I am trying all of the above, and will look into the surgery possibility if the medications and dietary changes do not work after a couple of months. So much appreciation for your answers.

Neptunian808
Regular Member


Date Joined Dec 2010
Total Posts : 86
   Posted 4/26/2011 9:48 PM (GMT -6)   
hi5 msro i lost my voice thanks to LPR aswell i was a singer before that, now all i have left is a weak breathy voice, ppi's don't work, sucralfate doesn't work, prokinetics don't work, impedance showed abnormal weakly acidic reflux but manometry was normal so i can't even have a nissen

msro
New Member


Date Joined Apr 2011
Total Posts : 3
   Posted 4/26/2011 10:11 PM (GMT -6)   
What?!? Neptunian808, you mean they won't help you with surgery because the tests don't show a strong enough pathology? But what about your voice? Isn't that enough evidence? Something has got to be done.

Neptunian808
Regular Member


Date Joined Dec 2010
Total Posts : 86
   Posted 4/26/2011 10:37 PM (GMT -6)   
Doctors dont care, at least not the ones i've seen, my larynx is swollen but they dont care, ENT's recognize it's reflux what's causing it but Gi doctors say it's impossible i have reflux in my throat because my les is normal (low normal that is, 12.7mmHg) in the morning i spit something im pretty possitive it's bile, it looks exactly like vomit, but if i can't prove it i'm "crazy" or "stressed" to GI's, i already ruled out post nasal drip with an xray of my nasal cavities the ent who made me do it said if it doesn't come from your nasal cavities its coming from the stomach, but GI's don't believe me despite the fact my Impedance test was abnormal.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 4/27/2011 4:50 PM (GMT -6)   
Neptunian, See another doctor for a second opinion.
Joy

mock turtle
Regular Member


Date Joined Mar 2011
Total Posts : 467
   Posted 4/27/2011 9:19 PM (GMT -6)   
neptunian

good advice from couchtater if i may say so

and let me add, there are recent findings about lpr that indicate acid may have less to do with lpr than other elements of refluxate

heres the first window of an ent web site i quickly pulled from a search and this site lays out some of the big differences between lpr , gerd and what constellation of symptoms indicates lpr

http://www.fauquierent.net/lpr.htm

you may want to go armed with persuasive information like this with the next doc you see.

my first 4 visits to my health care provider...they thought i had 4 other illnesses other than lpr or even gerd, and wanted to put me on psychotropic meds right off the bat (yeah i did present as a very stressed out person but thats cause i suffered a long time thinking it would just get better by itself

dont give up advocating for yourself. just dont get angry with the docs it never works, stay very rational and be persistent as a door to door vaccuum cleaner salesman turn
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