Depressed- dont want to die from esophagitis

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

hurtandscared
Regular Member


Date Joined May 2011
Total Posts : 148
   Posted 5/16/2011 9:39 AM (GMT -6)   
I heard that esophagitis is a lifelong disease, i hope not. Get really down whenever family or friends eat around me and say why cant u eat this, im so tired of explaining it to them. They just say say oh ur life must suck. Then i just end up breaking down and dont want to deal with this anymore. Dont know if im ever going to get better and thats hard to realize. I dont know how long my fiance is going to be there for me. I can see the hurt and frustration in her eyes. Any advice or personal stories are welcome. Gene

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 5/16/2011 10:09 AM (GMT -6)   
Hi there - it's hard, I agree it's hard. BUT rather than say oesophagitis is a lifelong disease, I would say that MANAGING it maybe a lifelong job! It should be a question of managing flare ups, rather than a daily impossible struggle. And if it's a daily impossible struggle you should be looking at different treatment or surgery.

On top of the many foods I exclude due to allergy, I now also have to excude food and drink which aggravate my GERD. It's not fun and it can be very antisocial, depending on whether it's in a good phase or a bad phase. But sometimes my stomach will tolerate things that I like - in moderation. We're all very individual in that respect. I am also coming to accept that symptoms can fluctuate regardless of what I've eaten; sometimes it's just outside of my control. What I would say is be absolutely sure that any dietary restrictions are definitely benefiting you and that you are not just assuming things are "not allowed" because of any particular diagnosis.

If your diet and lifestyle are so restricted that you are miserable to the point of not coping, then you need to pursue more treatment. Insist on having your medication reviewed and ask if you are eligible for other treatment or surgery, and if not, why not.

If, in addition to your physical symptoms, you are anxious, depressed (even if this is in response to your physical state) or not coping, then you need to address this too. Acid reflux does not take kindly to stress and anxiety - which is a bit unfair, I know, seeing as it's a great source of stress just in itself!

I really feel you need to speak to your GP/primary carer and say just how low you feel and that you need some other options or plan of action.

And I'm sure your fiance IS there for you - but you do need to tell her how you feel and that you need her support in taking some action to help you get better, both mentally and physically.

I do understand how weary you can feel repeatedly explaining why you have to have different food - that bit I have been doing for 25 years! Sometimes when I have people round for coffee I just sip hot water - they don't even notice and I get the social side without the heartburn!

hurtandscared
Regular Member


Date Joined May 2011
Total Posts : 148
   Posted 5/16/2011 2:07 PM (GMT -6)   
im going to talk to my doctor on wednesday about getting referred to a gi doctor, to help me with my issues and problems. im sure that she is i just want to give her more than i can right now, she understands. i just let out how i feel about this illness and she said stay strong, fight it dont let it beat you down. i dont do the social scene so much. i try to stay away from that, my friends are into the stuff i dont want to do anymore. so you have had it for 25 years, wow thats a long time. are you still on meds? have you ever considered surgery? i might. i dont know if i can habndle being on meds for the rest of my life.

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 5/16/2011 2:15 PM (GMT -6)   
Good, am glad you're going to pursue some treatment.

No I've not had GERD for 25 years, that's the food allergies! GERD I've had for about a year, still living in hope of it settling down!

Good luck for your appt this week. I'm sure there will be a way through this for you.

hurtandscared
Regular Member


Date Joined May 2011
Total Posts : 148
   Posted 5/16/2011 2:25 PM (GMT -6)   
OH OK. i dont know how long ive had for. i had acid reflux for 3 years and recently diagnosed with esophagitis. thanks i really appreciate the support. im not going to give up. hope you feel better too.

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 5/16/2011 2:53 PM (GMT -6)   
You're welcome. I had a shorter episode of GERD 3 years ago but also have oesophagitis this time round. Am trying aloe Vera for it at the moment.

Good luck, and do feed back after your appt!

hurtandscared
Regular Member


Date Joined May 2011
Total Posts : 148
   Posted 5/17/2011 12:07 PM (GMT -6)   
thanx, i will.
GENE
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, June 21, 2018 4:52 AM (GMT -6)
There are a total of 2,974,054 posts in 326,246 threads.
View Active Threads


Who's Online
This forum has 161226 registered members. Please welcome our newest member, echevarriacarisa.
308 Guest(s), 9 Registered Member(s) are currently online.  Details
SantaZia, alunke82, Kent M., micketlaa, Pratoman, Uncle Harley, neo_4789, Another UC Mum, Kathy77