just got knocked down

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mock turtle
Regular Member


Date Joined Mar 2011
Total Posts : 467
   Posted 5/16/2011 4:09 PM (GMT -6)   
just when ya think things cant get worse.

on a recent routine urine analysis, blood was found (hematuria) often a sign of cancer

one ct scan later, ugh, growths found at the top end of one ureter inside the renal pelvis (inside kidney)

im pretty scared, will be going in for endoscopic "surgery" on thursday

makes me very very sad cause after a long hard road loosing 50 lbs, walking hundreds of miles and lifesyle changes, ...i had actually made real progress battling back from "out of control" gerd - lpr, but now this

feeling real beat down

for those who believe, as i do, a very brief prayer would be appreciated

your kind words are also very good too

sadly
mock turtle

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 5/16/2011 4:29 PM (GMT -6)   
(((((((((((((((((((gentle hug))))))))))))))))))))))

I hope they are able to remove all of the growths and you are pronounced cured very quickly.
Joy

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 5/16/2011 4:34 PM (GMT -6)   
Hi Mock Turtle,
I'm sorry to hear about this new development. Try not to think the worst! Take it one day at a time, and let your doctors take care of you. Keep us posted, so we can provide you with lots of support and encouragement!
Here's hoping that your results on Thursday are great.
I will be thinking of you and praying for your doctor's skills and your good health.
Take care,
Denise

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 5/16/2011 4:46 PM (GMT -6)   
Prayers I can definitely do, and big hug too. Am sorry to hear you've got something else to deal with. Hopefully it's just a local issue with that kidney, and DO pat yourself on the back for your hard work and weight loss, as that puts you in a much better position to fight this new problem, unwelcome though it may be.

Fingers crossed you're soon sorted. Let us know how it goes. TTFN

mock turtle
Regular Member


Date Joined Mar 2011
Total Posts : 467
   Posted 5/16/2011 7:30 PM (GMT -6)   
thank you all for your kind words and good council

i will stay in touch

mt

Chuck T
Regular Member


Date Joined May 2011
Total Posts : 143
   Posted 5/17/2011 7:47 AM (GMT -6)   
I am very sorry to hear this. You are in my thoughts and prayers. My only advice (its common sence) is to make sure that you are getting the best care available. I have had several friends fly out to MD Anderson and other hospitals in situations like yours, and the results have been very positive. Good luck!

mock turtle
Regular Member


Date Joined Mar 2011
Total Posts : 467
   Posted 5/20/2011 12:06 PM (GMT -6)   
dencha
couchtater
mudmagnetum
chuck t

good news.... what they found in the calyx of my right kidney was not cancer thank God

i have a small cyst ...and... a place where two vessels have fused together in what my doctor describes as a genetic anomaly which caused the images on the CT scan to reveal what appeared to be a "filling error" as the dye flowed thru my system... and giving the appearance of a potential, likely adenocarcinoma.

i feel like an elephant has just gotten off of my chest
still nobody can explain why i have occult blood in my urine, but i will embrace good news as it comes

since all the blood tests, urine tests, cystoscopies, 2 CT scans, and yesterday uretoscopy with laser (yes they stated at the penis and worked their way thru the bladder up the ureter and all the way up to the kidney...i hurt) it has been more than 3 weeks of terror

now i can breath

thanks again for all your good wishes


still sluggish for the anesthesia.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 5/20/2011 2:33 PM (GMT -6)   
Congratulation on it not being cancer! :)
I hope you're feeling better soon.
Joy

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 5/21/2011 4:09 AM (GMT -6)   
Ouch, ouch and eye wateringly... ouch.

I had 2 cystoscopies last year, though fortunately whilst unconscious. Couple of days of peeing glass sensation and then you can put that bit behind you. So glad to hear their "fishing trip" didn't yield anything other than a minor plumbing error.

How did your tummy cope with the pre op fasting etc? Hope all the extra stress and fasting hasn't aggravated things further.

Take it easy,

TTFN


PS: Any chance the microscopic haematuria is a drug side effect?
New stuff: GERD. Interstitial Cystitis
Lifelong stuff: Food allergies, eczema, asthma

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 5/21/2011 9:47 AM (GMT -6)   
Hi mockturtle,
Hooray! I'm so glad to hear the good news. I've had a cystoscopy, but I'm female, and I know it's tougher for males. I'm happy for your relief, and wish you the best of health! It's amazing how something like that can put everything else in perspective.
Take care,
Denise

mock turtle
Regular Member


Date Joined Mar 2011
Total Posts : 467
   Posted 5/21/2011 10:30 AM (GMT -6)   
mudmagnetum

the fasting wasnt difficult because when i have anxiety .... fear, im not hungry...ive been known to go a few days without much food as i am approaching a ct scan or battery of tests, or scoping.

yeah pee-ing the next day felt like glass shards passing thru the urethra...yikes! shocked

ps , yes you have a good idea , pcp and i are going to check to see if medications, diet or supplements could be involved, but recent UAs where i was scrupulous about diets and meds etc indicate this is not likely , so im still a bit worried

Post Edited (mock turtle) : 5/21/2011 9:34:56 AM (GMT-6)


mock turtle
Regular Member


Date Joined Mar 2011
Total Posts : 467
   Posted 5/21/2011 10:31 AM (GMT -6)   
Denise

yes it is amazing how something like this can put everything else into perspective.

because the hematuria had been going on for quite some time (the pcp missed it in a test almost a year ago and i found it on going back over my records) so i was very scared that the potential cancer had a big head start on me

i was thinking a lot about the end of my life...i was "putting my life in order" in the event i was given very little time and i spent evenings in prayer and reflection trying to keep myself from being backed up against a wall of worry

thank you so very much for you kind thoughts and words

i have learned of ...and found... a new well of empathy for others who are in pain and facing seemingly insurmountable challenges

we draw on each others strength

best wishes
mock turtle

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 5/21/2011 2:47 PM (GMT -6)   
Ah you've been worrying quite a while then. Can but hope your tummy responds to the good news! Glad the fasting wasn't too bad.

I think it is possible to have benign haematuria, but they'll try hard to find a cause! Hopefully it'll be nothing and you'll be left in peace - with just your tummy to worry about!

Take care
New stuff: GERD. Interstitial Cystitis
Lifelong stuff: Food allergies, eczema, asthma
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