GERD and Burning throat

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daig
New Member


Date Joined May 2011
Total Posts : 3
   Posted 5/23/2011 12:29 PM (GMT -6)   
I was diagnosed with GERD 3 years ago and have taken Nexium since and up until about three weeks ago it seemed to keep things in check.  I am having the same burning sensation in my esophagus that I had when I was first diagnosed-anyone else experience this?  It is almost as if the Nexium is not working any longer...I'd appreciate any comments.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 5/23/2011 1:52 PM (GMT -6)   
Sometimes you need to up the dosage. I got up to 80mg of nexium and 300 mg of zantec before my gerd surgery.
Joy

daig
New Member


Date Joined May 2011
Total Posts : 3
   Posted 5/24/2011 3:52 AM (GMT -6)   
Thank you Joy.  How long were you on meds before you needed to have surgery?  Would you give me some background on the type of surgery you had, problems afterwards and how it is working for you today?  I feel like surgery is probably in the cards for me sooner rather than later.  Thanks. 

joe1619
Regular Member


Date Joined Dec 2009
Total Posts : 293
   Posted 6/2/2011 4:57 PM (GMT -6)   
i had fundo last August for lpr. Very modest improvement. my throat never healed and i now have all the same symptoms as before. I would say a 10-20 percent improvement, but now less than a year later i am back where i started from. only occasionally i would have food get suck on wrap and that hurt briefly. now nothing gets stuck, i could swallow a biscuit whole. for me it was worth a chance but i still take 2 ppis a day and zantac at night. other than food getting stuck no side effects, pretty easy. its too bad it never helped. I think for me the drs. let it go so far my throat is severely burned. when i stick my tongue on the back of mouth its like i have 7 layers of skin since the burn is so thick. constant throat clearing. try everything else first and even then for atypical symptoms i have only talked to a select few who feel the surgery was the right decision. Couchtater is a veteran member and has had good results and i think its because she had a good surgeon. mine was talented so i chose him, but he is a general surgeon with little understanding of the disease and is of no help to me. I was merely practice. proceed with caution. i am wondering if a feeding tube would be a better option for lpr patients so we can bypass the stomach and stop burning, then once healed do fundo if necessary and meds. this could give us a fresh start. my gi drs. thinks its crazy but i think for lpr it may be the best solution. get throat healed then go from there. just my opinion

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/2/2011 6:57 PM (GMT -6)   
I took the super doses of ppis for about 4 yrs.
I had a 270 degree wrap done. The surgeon was a bariatric surgeon with a long history of doing fundos. He even created his own version of the Hill.
It's worked very well for me, no swallowing issues and can eat what I want (except too many BBQ chips). I know it's still intacted after being ill three times this last year and throwing up, everytime I swallow a pill I do a little burp as it passes through the wrap. :)
IMHO, if you can't get relief from medication and you have a HH and a weak LES surgery is your only option.
Joy

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 6/2/2011 8:15 PM (GMT -6)   
Hi daig,
Welcome to Healing Well! So sorry to hear you're having so many problems. I think it is quite common that one PPI starts being less effective. You might get your doc to prescribe a different one, and see if that does the trick.

I started on Prilosec, went to Nexium, and lastly, Protonix. I also had the surgery for GERD (Nissen Fundoplication) and it has improved my health tremendously. While there is no guarantee that you will never need another PPI after surgery, many do not, while some need much less than they took before the surgery.

Here is a link with some information:
www.mayoclinic.org/gerd/treatment.html

I had severe asthma caused by GERD for about four years before I finally had the courage to have the surgery. I am so glad I did. Is it a perfect fix? No. Is it 100% better than before? Yes. I still have asthma caused by allergy, but now it is not made worse by GERD, and I am free of asthma in the winter months when the pollen is quiet.

It sounds as if you have typical GERD symptoms, so the surgery would work great for you. I would caution you (as Joe so wisely did) that you need to find a highly skilled (in this particular surgery) surgeon who has done 300+ to 1000+ of these procedures and is extremely skilled. It's not enough to find a good surgeon. You need to find a great NISSEN surgeon. There's a big difference. In my city (where we recently moved) there is one surgeon that all the docs send people to. He's the one who (as they say) "does all the Nissens". That's the type of doc you need.

Also...some people are successful combining PPIs and H2blockers (Zantac). You can use OTC Zantac, or ask your doc to consider trying you on some. Many people take 40mg PPI plus 300mg Ranitidine (Zantac) at bedtime.

At times people can have GERD flare-ups when they get into some gastritis. Perhaps your stomach is irritated, and thus producing more acid than usual.
Just a thought.

Good luck finding an answer!
Take care,
Denise

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 6/2/2011 8:18 PM (GMT -6)   
Hi Joe,
Welcome back! I'm sorry to hear that your surgery hasn't worked out. Have you considered a second opinion? If your wrap has slipped, you could have a redo, and get things back in place. Would you consider going to a medical center like Mayo, Cleveland, Johns Hopkins, etc.--whatever is closest to you? Often when people have had failed wraps it works well to go to a center or big city where there are surgeons with more experience dealing with problems and redos.
Just a thought.
Again, sorry you're still suffering.
Take care,
Denise

joe1619
Regular Member


Date Joined Dec 2009
Total Posts : 293
   Posted 6/4/2011 9:26 AM (GMT -6)   
never got off meds and things slightly improved. for me i have trouble sleeping and eating at night helps. the surgeon said no restrictions and okd me to eat at night. last month has been horrid and i am waiting on our university hospitals for an opinion. need an appointment. i stayed on meds saying id get off once i healed. still on them. was going to go to mayo, but they dont seem that accomodating at rochester. what is so hard about scheduling and going there. they make you wait forever and then schedule you for up to a week, who does that. schedule a day see the surgeon, get scoped and get on with it. i was talked out of going there. anyone with ideas in midwest. i dont see the need for more tests. look at the wrap, its either ok or not. man i swear the docs want to create revenue for their hospital first, then patient is second. anyone with a contact or number, pleaSE EMAIL. ALSO FOR REDOS DO THEY open YOU UP OR CAN THEY DO LAP. I AM AFRAID I WILL LOSE JOB IF ITS open AS I WILL miss work. sorry for caps, hit caps locks i need some advice

kyheart
Veteran Member


Date Joined Apr 2011
Total Posts : 513
   Posted 6/4/2011 7:57 PM (GMT -6)   
Joe I am so sorry that you are having the problems you are. I had the Lap Nissen (I had a Hiatal Hernia also) 9 weeks ago and I have had a few small issues but, I am so happy with my surgery. I was on 80mg of Nexium a day and it was not helping. I was sick and vomiting every nite, I had reflux induced asthma and had to carry a rescue inhaler at all times.. and on and on.. since I had my surgery, I have not taken 1 Nexium. I have had no reflux, my dr took me off of my rescue inhaler and Life is Good!!!
I was in the hospital from Friday am and went home Sunday afternoon. I am 62 years old and I went back to work after 2 weeks. I do not know what they can do in the case of a re-do. Will say a prayer that all goes well for you. Let us know how you are and what you do... please, if you have a re-do, watch your diet for the first 6-8 weeks.. take advice from those you hear from on this site and listen to your body, if it says "I don't think so" then don't do it...
Take care
Sandi

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 6/4/2011 8:05 PM (GMT -6)   
Hi Joe,
Again, sorry that things haven't worked out for you. I'm glad to hear that you're going to get a second opinion. Have you considered Cleveland Clinic?

A member here, LadyJane, had an excellent experience there, and highly recommends Dr. Rice--the thoracic surgeon who did her procedure. (my.clevelandclinic.org/staff_directory/staff_display.aspx?doctorid=718)

She had nothing but positive things to say about her entire experience at CC.

Generally surgeons who are considering doing a redo likes to see his/her own testing--and does not like to go on previous testing. In this way they can see if the prospective patient is a good candidate for surgery.

Yes, redos are done laproscopically whenever possible. Sometimes scar tissue makes it necessary to convert to an open procedure, but it is generally not the first choice. That said, there are some surgeons who do ONLY open redos. It just depends on the patient, the surgeon, or both.

Again, I hope you find an answer and get feeling better soon.
Denise

joe1619
Regular Member


Date Joined Dec 2009
Total Posts : 293
   Posted 6/5/2011 11:23 AM (GMT -6)   
thank you both, i believe part is the wrap was not tight enough but it did just enough. when i ate fast or didnt chew man it was painful. now i dont get that. plus i eat 2 hours before bed as it helps me sleep. ent says bad surgeon said its fine. i can tell yo 3 months after i did eat chocolate and pizza and an occasional margarita. i was careful, but there were a few times i overdid it. i never got off the pills and have to take a laxative or suppository daily to empty. i was ok with that and a little swallowing pain..like once a week. all in all the side effects were essentially nothing. i only walked a treadmill for exercise and want to run or lift weights but i was too afraid. i let it limit me because im so afraid to damage it. it took 6 months before i would do heavy lifting, like drywall. i am afraid of a redo, but my symptoms are horrid. if your ent symptoms improved then i think mine can too. whats your diet like. a month ago i went a day without eating and had 4 pieces of pizza at supper. bad i know. thats when things got worse, but gi doc took me from dexilant to omeprazoale now to aciphex at same time. even when i was cautious improvement was minimal. im in iowa not sure i can go to cleveland, but if someone can stop the reflux id give my left arm.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 6/5/2011 6:51 PM (GMT -6)   
Hi Joe,

I believe Bill (one of the forum monitors) is from Iowa, and he went to Loyola University Hospital (Joy, is that right?) for his redo. Hopefully he will be by to clarify and share the name of his surgeon.

There are answers to what's going on with you. You shouldn't suffer through it without trying a second opinion. If you could get to a bigger center it would be better.

Good luck!
Denise

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/5/2011 8:49 PM (GMT -6)   
I can't remember where he had his surgery done.

Joe, I remember you having issues from day one. Please see a different doctor and don't leave him because of his staff. Sometimes you have to put up with the "god" complex to get the best surgeon.
Joy
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