Welcome to Healing Well! GERD isn't sewfun, is it? You're definitely in the right place...you are among friends who suffer or have suffered the same way you are.
I'm glad to hear you have found Carafate. It's a wonderful help. I'm assuming that you are taking the liquid form, as that is the best for healing the esophagus as well as the stomach.
Are you being careful to keep your meds 2 hours before or after the Carafate? If not, the Carafate can interfere with the absorption.
I have never heard of taking PPI's more than twice a day. The added H2Blocker is common, though.
I've taken 40mg Protonix (PPI) twice a day along with 300mg Zantac just before bedtime. At one time I took the Zantac in the morning as well.(just 150mg)
That is a common combination. You could take the OTC Zantac until you see your doc.
I have also suffered from gastritis and esophagitis, and found they are very difficult to recover from. It's very common to lose weight, and it takes time for the healing to occur. I always lost about
20 pounds for each episode, and well remember not being able to eat much. Actually, I lived on (homemade) egg custard during those times. It seemed to be the only thing I could tolerate. I remember one Thanksgiving when I tried a spoonful of mashed potatoes with a little gravy and immediately had severe stomach pain.
I asked my GI doc when I could start eating normally after having such a flare-up, and he told me to wait 2 weeks after I felt perfect, then try to introduce a normal diet.
No alcohol, no acidic foods, no rough foods that will scrape going down or when being mashed in the stomach.
I'm so sorry that you're suffering so. Is the head of your bed elevated? It needs to be raised under the legs of the bed, not with pillows. That will help keep acid in your stomach so it doesn't continue to travel into your esophagus and cause further damage.
Good luck, and hang in there. I had many such bouts, and in addition always suffered with increased asthma during those times as well.
You will get better. Be patient...I know it's hard, but you can do it!
Stick around here. We'll answer whatever questions we can and provide you with a cheering squad of support!