(LPR)What do you do when...

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Neptunian808
Regular Member


Date Joined Dec 2010
Total Posts : 86
   Posted 6/5/2011 5:20 PM (GMT -6)   
all these things fail

-nexium (40mg x2)
-prilosec (double dose)
-carafate
-gaviscon advance
-vinegar
-baking soda
-lifting the bed
-diet
-not eating before bed
-prokinetics
-you are not a nissen candidate

i've seen 6 gi doctors and 5 ent doctors none of them gave me a cure, i really dont know what to do.

Jacket923
Regular Member


Date Joined Jun 2011
Total Posts : 27
   Posted 6/5/2011 7:56 PM (GMT -6)   
Why aren't you a nissen candidate? Just curious as I may go down that path in the next few months and I have LPR as well.

Neptunian808
Regular Member


Date Joined Dec 2010
Total Posts : 86
   Posted 6/5/2011 8:30 PM (GMT -6)   
i have a 12.7 mmhg LES pressure, have ppi's worked for you?

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/5/2011 8:38 PM (GMT -6)   
I'm not familar with the average pressure readings... is that normal?
Joy

Jacket923
Regular Member


Date Joined Jun 2011
Total Posts : 27
   Posted 6/5/2011 9:30 PM (GMT -6)   
Yes, PPI's have worked quite well in spurts. But I am only 19, so I am not trying to take them for the rest of my life when God knows what happens when you take them for 10+ years. I am on my fourth PPI and it doesn't work that well anymore. It seems that all of the drugs I have tried stop working after 4 or 5 months. Also, I guess your LES pressure is normal? Did the GI doc do that test or the surgeon?

Neptunian808
Regular Member


Date Joined Dec 2010
Total Posts : 86
   Posted 6/6/2011 9:09 AM (GMT -6)   
doctor/surgeon did it, normal was 12mmhg to 25 mmhg on my test, the surgeon obviously didnt want to operate

miketx
Regular Member


Date Joined Feb 2011
Total Posts : 46
   Posted 6/6/2011 11:49 AM (GMT -6)   
What are your symptoms? Are you confident that you have LPR?

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/6/2011 2:12 PM (GMT -6)   
So your pressure is a low normal....
I'd check with a different doctor he may have different rules about the pressure.
Joy

Neptunian808
Regular Member


Date Joined Dec 2010
Total Posts : 86
   Posted 6/6/2011 8:21 PM (GMT -6)   
@miketx yeah i have an abnormal Impedance test (weakly acidic reflux)

mock turtle
Regular Member


Date Joined Mar 2011
Total Posts : 467
   Posted 6/6/2011 9:47 PM (GMT -6)   
over a period of two hours , if you eat one half apple and one egg white.... nothing else.... do you experience reflux?

btw if inclining your bed 10 inches at the head isnt enough then...do as i do...sleep in an upholstered reclining chair set at about 45 degrees!

Post Edited (mock turtle) : 6/6/2011 9:52:29 PM (GMT-6)


Neptunian808
Regular Member


Date Joined Dec 2010
Total Posts : 86
   Posted 6/7/2011 11:38 AM (GMT -6)   
i've tried sleeping sittting up actually, i was able to sleep but still would spit bile in the morning and wake up with a sore throat

Chuck T
Regular Member


Date Joined May 2011
Total Posts : 143
   Posted 6/7/2011 6:59 PM (GMT -6)   
Have your doctors ruled our nerve damage? I have heard many are getting relief from drugs used to treat nerve damage. In the meantime, try slippery elm lozenges. They seem to slow down the burn for me.

Recoveryme2day
Regular Member


Date Joined Jul 2012
Total Posts : 335
   Posted 1/16/2013 2:26 AM (GMT -6)   
I know this is an older post but I just wanted to give a helpful suggestion as a fellow sufferer. I found out that in addition to the GERD, I have Gluten/Wheat/Dairy Allergies which cause the same type of symptoms along with vomiting, headaches and fatigue. Just something to consider asking a Dr. about. Be Well.
Crainiotomy Lg. Meningioma Dec.02, Bi-Polar 2004, SMI 06, Gluten/Wheat/Dairy Intolerance, IBS 06, Migraines w/pseudo-seizures 07, Dev. Septum Sur. Sept.07, 2nd Men./Tumor Gamma Knife Rad. Dec.08, Radical Hysterectomy Sept.09 w/instant Menopause, Fibromyalgia 09, Disability since 09, EBV/CFS 11,Vomiting/Multiple Ulcers, Vertigo 12, Chronic Fatigue Moderator 2013.No meds list I ran out of space.

chryssy
New Member


Date Joined Jan 2013
Total Posts : 4
   Posted 1/17/2013 10:05 AM (GMT -6)   
I had LPR ( which is really a vitamin D deficiency) for two years. My doctor checked my vitamin D levels and what do you know, I was very low, (19) long story short, I started on 3000 D3 last Friday, not even a week ago, and my symptoms are almost completely gone!!! One thing I never did was take any PPI'S, those pills are seriously harmful to your health. I was on a pretty strict diet, so if you have been taking PPI'S long term, it may take longer for the D3 to work. I have read that optimal levels of vitamin D should read anywhere between 50-80, anything for people who suffer LPR. Good luck!!! Life is good again.

CurbYourEnthusiasm
Regular Member


Date Joined May 2012
Total Posts : 31
   Posted 1/21/2013 3:41 PM (GMT -6)   
Neptunian,

Hopefully you still check out these boards. I experienced everything you did. I saw a surgeon and he basically told me 'its surgery or nothing' if you want to get better. I was on the most rigorous PPI plan (40 mg of Nexium 2x a day, 2 zantac a day, and about 8-10 tums a day) and NOTHING worked for me. I thought I was going insane.

My first GI told me he didn't recommend the surgery for me. I sought a second opinion from a well respected surgeon (has done over 1000 nissens), he looked at all my test results and said he thought I was an excellent candidate for the surgery. I went with his advice and have never felt better.

shrtcak81
Regular Member


Date Joined Jan 2013
Total Posts : 165
   Posted 1/21/2013 4:08 PM (GMT -6)   
CurbYourEnthusiasm, what were your primary symptoms? I may need surgery very soon:( On a double dose of PPIs, zantac and tums and still have burning in my throat all day long :( Did your throat burn? I have this warm sensation by the adams apple and have reflux after everything I eat. I'm looking into the Linx procedure first, but won't rule out Nissan if I really need it. Any acid reflux after your surgery?

CurbYourEnthusiasm
Regular Member


Date Joined May 2012
Total Posts : 31
   Posted 1/21/2013 9:26 PM (GMT -6)   
shrtcak,

That was my worst symptom; the throat burning. I would go to eat sometimes and I physically couldn't swallow. It was just awful and I couldn't figure out what was wrong with me for the longest time. Every minute of everyday I had a lump in my throat. It was unbearable.

Burning sensation, excess mucus/saliva, dry cough, chest pain, heartburn, and nausea were all my symptoms. I tried changing my diet for weeks, but nothing worked for me. Finally I had a battery of tests done and my doctor told me surgery was pretty much my only option given all the medication I was on.

I feel fantastic 8 months post surgery. Haven't touched a PPI/tums since I weened myself off of it.

I'm not familiar with the linx procedure, but the Nissen was a godsend and I have no regrets. Best of luck with everything and let me know if you have any questions/concerns moving forward.
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