gerd causing me breathing problems

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hurtandscared
Regular Member


Date Joined May 2011
Total Posts : 148
   Posted 6/12/2011 8:38 PM (GMT -6)   
Now my gerd is making it so hard for me to breathe, its scary. I cant do anything without being out of breath. Cant climb stairs, do anything 2 physical or even eat without breathing heavy. Idk what to do. My family thinks its all in my head cause i have bad anxiety and depression. Im not making it up, it really is a struggle everyday to do or eat anything. I only sleep maybe 4-5 hours a nite, cause i wake up all the time. And i dont like waking up just to know im going to be in pain the whole day. Thinking bout surgery, but idk if i can make it through the tests with my anxiety being as bad as it is. But this breathing issue is so scary. My aunt is the only person that believes me cause she has the same problems. HELP ME PLEASE:(

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/12/2011 9:06 PM (GMT -6)   
I was scared of the testings too. Fortunately, my doctor gave me valium before each test except the manometry. The only thing I can say is you can ask for it and explain your situation to the doctor, but I'm sure he won't sedate you for the test.
The only way I got through it was to hold on to the nurse's hand for dear life and try to focus my mind on something else to calm myself. It's hard, but you can do it.

Just gather up your courage and tell yourself "I've got to do this. I don't want to keep feeling this way. I want to get better and this is the only way I'm going to get better. "
Joy

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 6/13/2011 8:39 AM (GMT -6)   
Hi hurtandscared,

Sorry you're having so many problems. Joy and I know just what you're going through with your lungs, as GERD affected ours as well.

Joy has given you very good advice. Reach down inside yourself and find the courage to go forward with the tests. You need to know that your quality of life depends on your ability to make it through them. You CAN do it.

Do you have the head of your bed elevated about 8 inches? If you're waking up at night, it's likely that reflux is the culprit. Elevating the head of your bed will be very helpful.

Hope you're feeling better today.
Denise

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/13/2011 12:27 PM (GMT -6)   
The only test in my opinion that was hard was the manometry.
My first barium swallow test and EGD I was freaking out basically. The valium helped me get through it.
I did one more barium swallow and two EGDs without the valium. I was slightly nervous, but okay.
The stomach emptying was a piece of cake (or beef noodle soup). I ate it and stood in front of a special camera every few minutes.

The fear of the unknown has always loomed over me. So I understand your anxiety over the testing. It's very hard to bite that bullet.
Joy

Scrappy5
Regular Member


Date Joined Jun 2011
Total Posts : 20
   Posted 6/13/2011 4:36 PM (GMT -6)   
I'm going through the hard to breath stuff as well. I am a very active person run swim and lift weights until about a year ago I just had the surgery done and have been told it will get better ( thanks guys) I will let you know how I progress I am only 2weeks post op. The tests were a breeze nothing to stress about the manometer was uncomfortable but doable. I was a nervous wreck before surgery but once the get you prepped they will give you stuff in your iv and after that you won't care about anything.

hurtandscared
Regular Member


Date Joined May 2011
Total Posts : 148
   Posted 6/14/2011 4:24 PM (GMT -6)   
My breathing sucks so bad. I cant do anything. Cant sleep, eat or do anything. My life really sucks right now. These meds make me tired and dizzy but i cant sleep. Cant seem to ever catch my breath. Always takes forever to get to sleep and then im up with the sun. It really sucks. should i tell my doctor i think its the gerd? What tests should i ask 4? I gonna ask for a refurral to a g.i. My anxiety, gerd, depression and breathing problems are a all day everyday thing. UGH:( Feel like my life is over.
GENE anxiety attacks, severe acid reflux, breathing problems, depression.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/15/2011 11:37 AM (GMT -6)   
Yes, go to the doctor and tell him what's going on. You need to find a solution.
Joy

Digidawinwa
Regular Member


Date Joined Nov 2009
Total Posts : 23
   Posted 6/18/2011 12:58 AM (GMT -6)   
Hurtandscared... have your doc check your trachea... I started having shortness of breath in Jan. 2009... 5 or 6 docs... none could figure it out... til I saw an ENT... I have Idiopathic Subglottic Tracheal Stenosis... have had 2 laser dilations... stairs were torture... showering got me out of breath... anything strenuous... eating... making the bed... walking up any kind of incline... went from doc to doc... the ENT's that I saw say it MAY be from reflux.. I am now 17 days post op ...had the nissen fundo surgery. I am crossing my fingers that my shortness and breath and scarred trachea was from reflux... we shall see. they found my narrowed area in my trachea with a cat scan of my throat.
I hope they figure you out, i was going crazy !

hurtandscared
Regular Member


Date Joined May 2011
Total Posts : 148
   Posted 6/18/2011 8:36 PM (GMT -6)   
Going to see a gi doc in august. I think i will talk to my regular doc about seeing a ent doctor. Im not just going to wait around and get worse. Its hard explaining it 2 my family 2. I want to be done with the gerd, the anxiety, worrying about my breathing and the depression from it all. Only sleep 4 or 5 hours a nite if im lucky.
GENE anxiety attacks, severe acid reflux, breathing problems, depression.

hurtandscared
Regular Member


Date Joined May 2011
Total Posts : 148
   Posted 7/7/2011 3:57 PM (GMT -6)   
Im really getting tired of people telling me ill be fine if i take my medicine and that theres nothing wrong with me. Why would i make this up, im in pain and my breathing still sucks, still dizzy and lite headed all the time. And the family i live with is not very understanding and are telling me to hurry up and get a job. I cant stand that long on my feet. This is not good for me.
GENE anxiety attacks, severe acid reflux, breathing problems, depression.

hurtandscared
Regular Member


Date Joined May 2011
Total Posts : 148
   Posted 7/9/2011 12:44 PM (GMT -6)   
Gerd really sucks right now, its ruined every single part of my life. my health sucks, i feel like im going downhill with no brakes. Nobody will talk to me, my family thinks im making all this up, i dont have a job and it doesnt look like ill ever have one again. I really need some support right now, feel so alone. This a cruel disease with no cure except to either take meds for life or get surgery and pray that it works. i really hope something is found out about this disease real soon. I cant be social, go out places, or even relax enough when im not doing anything at all.
GENE anxiety attacks, severe acid reflux, breathing problems, depression.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/9/2011 3:53 PM (GMT -6)   
Hurtandscared, go back to the doctor and tell him you have to have some type of relief. And it is needed NOW!
This is the only way to get things going that I know.

"The squeaky wheel always gets the oil...."
Joy

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 7/9/2011 3:59 PM (GMT -6)   
Hi there,
 
I have left you answers to your posts in A & P and I hope you will work on the anxiety.  Chronic illness and anxiety go hand in hand.
 
Be your own best advocate and go back to the Dr's to further investigate your GERD and treatments.
 
Kindly,
Kitt
~~Kitt~~
Moderator: Anxiety/Panic, Osteoarthritis, GERD/Heartburn and Heart/Cardiovascular Disease.
www.healingwell.com

"If you can't change the world, change your world"

babsone
New Member


Date Joined Jul 2011
Total Posts : 1
   Posted 7/9/2011 4:05 PM (GMT -6)   
I have GERD. Just recently I have trouble swallowing and phlegm in my throat. I can't eat anything without it getting stuck. I recently had surgery and have been taking pain pills. When I swallowed them they would feel like they got stuck. I am really worried. Any comments.

Babsone sad

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/9/2011 5:53 PM (GMT -6)   
Babsone,
Did you have the GERD surgery? If so you can ask your doctor to give you liquid pain medicine to use until the swelling goes down.
Joy

Nickles
Regular Member


Date Joined May 2011
Total Posts : 296
   Posted 7/10/2011 1:44 AM (GMT -6)   
Couchtater,

I know you comment on many ppl post, just wondering even though you got your surgery you are still here helping people. That is awesome I think. Just out of curiosity what is it that you do again?

Thanks for the comments true class by helping people. I notice some ppl leave after a while but it seems you been around here for a while. THanks on behalf of me and others.

I am still managing my symptoms...

Sammi67
Regular Member


Date Joined May 2011
Total Posts : 54
   Posted 7/10/2011 9:52 AM (GMT -6)   
HurtandScared,

It was my Allergist/Asthma doctor who said that my adult onset asthma was most likely caused by my GERD. It is disabling at times. I too have a family who says I complain all the time (and I do). But, since I had my Nissen Wrap surgery, I can already tell my breathing is getting much better. I was very active as well until about 6 years ago. My body seem to just go haywire, I was put on more and more medications and I HATE to take medicine. So, I really felt like a failure to myself and family. I am still in the healing cycle of my surgery, but am so glad I had it.

When I went to my primary care physician and mentioned that the Asthma doctor suggested I check into the Nissen surgery, he was very discouraging stating that most people end up having to have it redone or back on meds, but I told him I'd take my chances (Nexium was killing me). He went ahead and referred me to my Gastro doctor and when I went in to see him I told him, I was there to get referred for the Nissen surgery. Of course, we had to do the testing, but it turned out I have Barrett's Esophagus (which is scarey to me) and my LES was not working at all. Within a few weeks I met with my Surgeon and a couple of weeks later had the surgery.

Only you know what signs and signals your body is giving you. Don't give up you are your only true advocate. Not being able to breath is scary. I had ended up in the ER in February due to a major asthma attack, which lead me to seeing an Allergist/Asthma Specialist, if it wasn't for him I would still be suffering.

Keep your chin up.

*Sammi*

hurtandscared
Regular Member


Date Joined May 2011
Total Posts : 148
   Posted 7/10/2011 11:43 AM (GMT -6)   
i see my doctor on wednesday. im going to talk to her about seeing someone about my breathing problems, cause its really affecting me alot. i really have no one to talk about it except for on here. Im going to go in there and tell her how much pain im in and she needs to do something to help me out. i cant even relax enough to watch tv. its very scary.
GENE anxiety attacks, severe acid reflux, breathing problems, depression.

Digidawinwa
Regular Member


Date Joined Nov 2009
Total Posts : 23
   Posted 7/12/2011 11:39 AM (GMT -6)   
hurt and scared.... be sure and ask if this could be in your trachea!! I was given the runaround for almost a year because my old doc thought I was just getting out of breath cause I was out of shape and my weight is more than she thinks it should have been... I couldn't even get my point across to a pulmonolgist... he did all the breathing tests and I passed them all.... my prob is just past my vocal chords in my trachea... it's scarred and narrowing.. I've been laser dilated twice now... my primary doc finally sent me to an ENT and he diagnosed me by just walking in the room and listening to my breathe... I said.. HA take a walk with me up some stairs or up a hill!! the laryngologist I was sent to by the ENT said a pulmonologist should have 'got' this right off the bat.. they never check the trachea! good luck to you, I haope you get some relief soon and they figure out what is going on..

hurtandscared
Regular Member


Date Joined May 2011
Total Posts : 148
   Posted 7/12/2011 1:38 PM (GMT -6)   
Well im not going to let her say its my weight, cause ive lost 56 pounds since march. Im going to ask to see a pulmonologist and a ent. This is a serious problem and they will listen to me. Thanks, i really hope so 2.
GENE anxiety attacks, severe acid reflux, breathing problems, depression.

elsiem
Regular Member


Date Joined Jul 2011
Total Posts : 131
   Posted 7/18/2011 8:56 PM (GMT -6)   
hi hurtandscared. I too had breathing problems & chest pain for many years before I was diagnosed with GERD. My GP sent me to a cardiologist who could find nothing wrong. I was even given inhalers for adult onset asthma but they didnt do anything. I am now 20 days post nissen op & can breath freely & deeply with no problem. You need to be persistent with your doctor & get them to listen. Thats the only way I got any action. For years my GP treated me like hypocondriac as if it was all in my head but since the surgery I have felt like a new person.
Try to stay calm & relaxed while you have the tests done and know that the end result will be well worth the discomfort felt you at the time.
Hang in there
Lynda

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 7/19/2011 9:26 AM (GMT -6)   
Hi hurtandscared,
 
Just checking in with you - what did your Dr. have to say last Wednesday ?  I hope you were able to get some help for your breathing issues.
 
Kindly,
Kitt
~~Kitt~~
Moderator: Anxiety/Panic, Osteoarthritis, GERD/Heartburn and Heart/Cardiovascular Disease.
www.healingwell.com

"If you can't change the world, change your world"
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