Another sore throat...

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MayOK
Regular Member


Date Joined May 2010
Total Posts : 111
   Posted 6/15/2011 9:10 AM (GMT -6)   
Hi, Everyone,

Background info - Last year after going some time with untreated lower digestive problems, I got referred to a GI, got scoped top to bottom after a weird blood test suggested the possibility of Crohns Disease. That wasn't found, thank goodness, but mild esophagitis (grade A) and gastritis were seen on the EGD. My GI put me on 40 mg of Omeprazole daily. At my post EGD follow-up appt, he shrugged off the gastritis, saying that everyone's stomach is in a state of mild inflammation b/c of what goes on down there, but asked me if I ever had any heartburn b/c of seeing the damage to the esophagus. I do not regularly suffer with hearburn. I have had heartburn twice in my life, and one of those times was when I was pregnant with my second child. So he took me off the omeprazole. That was a year ago, almost exactly.

I was talking to my PCP at my physical in April, and she mentioned that since I don't present typically, I should probably have another scope within the next 9 years to make sure things haven't gotten significantly worse, as untreated it can lead to cancer. She concurred with his taking me off the PPI as she said that taking those long-term also isn't advisable.

So the last two months or so, I periodically have had this feeling in my throat - the feeling that I get before I get an upper respiratory something-rather. I don't know if other people know what I'm talking about, but my throat usually warns me when those types of things are coming on. Anyway, I haven't gotten sick. It'll go away, and then come back at some point. But the last 2-3 weeks, I've noticed it more and more regularly, and now it's at the point where it gets progressively worse through the day, and then last night and the night before I actually noticed my voice was affected, albeit slightly. It's not like my throat is severely sore, but it's persistently uncomfortable. Doesn't hurt to swallow or anything, so it's not affecting me to an extreme degree but it is noticeable. I plan on discussing with my PCP soon, as it's becoming annoying and if it's indicative that something is getting worse then I feel it should be addressed. Or should I just go back to my GI? I didn't love him tbh, and I wouldn't mind getting referred to someone else. There is one female GI in the area who is new; maybe I can try her out.

Any tips on things I can do in the mean time to minimize discomfort? I saw someone with LPR talking about gargling with Tums water or something.

Thanks!

Neptunian808
Regular Member


Date Joined Dec 2010
Total Posts : 86
   Posted 6/15/2011 10:28 AM (GMT -6)   
Have you seen an ENT doctor? id get a laryngoscopy done to see if there's any reflux related damage

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 6/15/2011 10:51 AM (GMT -6)   
Hi MayOK,,

Neptunian has a good point. If you can find a great ENT, he/she may be more in tune to the LPR (or atypical) symptoms you seem to be experiencing.

Your PCP was correct in saying that you should get another endoscopy, since silent GERD can be happening without you being aware of it--hence the name "silent"!

You should NOT go back to a GI you didn't particularly like. I had one GI doc that did nothing for me, and didn't believe I was experiencing what I was experiencing.

My second GI was much better.

In my city there's an ENT that is also a Head/Neck surgeon. If you live in a bigger city, and you can find an ENT/surgeon, he/she will have a stroboscope (I really don't know if that's the name), but it can look at your vocal chords more clearly, as it can take pictures even when they're moving.

A doc with that type of equipment is likely to be more well-versed in LPR.

That said, if you're just starting to get some hoarseness, an ENT might not see anything, and an endoscopy would be more revealing.

When I wanted a new GI I talked about it with my PCP and shared what I needed (someone who would REALLY listen to me, and was a good communicator). Hopefully your PCP can guide you to a great GI and a great ENT.

Good luck!
Denise

MayOK
Regular Member


Date Joined May 2010
Total Posts : 111
   Posted 6/15/2011 12:30 PM (GMT -6)   
So then you all recommend an ENT vs a GI? Yeah, I will talk to my PCP. She's really great. I like her a lot. She seems more on-the-ball with the stuff my GI tests came up with than my GI was. For instance, he said nothing to me about needing another EGD later. It was like, as soon as I didn't have Crohn's, it was just an IBS sort of thing, and I wasn't as big a fish to fry. Lol. I'm sure he had sicker people to worry about, it isn't that I wanted a lot of attention or anything, but I'm not sure I'd go back to him for this. I hate doctor shopping. I usually luck out. But oh well. Plus, I really didn't like his nurse. She was quite ignorant. She confused my duodenum with my esophagus, and when I called her on it, she told me I was wrong, and that the duodenum was the junction of the stomach and esophagus. ?!??

So if it is acid causing my throat/voice problems, why don't I get that "vomit in your mouth" feeling?

Things to avoid diet-wise in the meantime: citrus, caffeine, tomatoes, etc...right? Anything else to avoid? Thanks everyone.
 
**************
MayOK
Regular lower GI issues since 2007
Currently Un-Dxed
IBD Serology Test Positive for Crohns
Normal C-Scope & Capsule
EGD findings:  Esophagitis and Gastritis
"Proceeding as if it's IBS..."
Currently on 2-week course of Xifaxan
Align Probiotics Daily

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/15/2011 2:49 PM (GMT -6)   
May, you can google "gerd diet" and find several good ideas.
I had LPR and all I did was cough, get bronchitis, pneumonia, sinusitis, ear infections, and lose my voice for weeks at a time. I never felt like I was going to vomit. One time I woke up during the night thinking I was having a heart attack. As soon as I had some tums the pain went away.
Joy

MayOK
Regular Member


Date Joined May 2010
Total Posts : 111
   Posted 6/15/2011 4:00 PM (GMT -6)   
Wow, I'll have to get some tums to keep around. Are you better now? It's ridiculous the stuff that reflux can cause/contribute to. Who would have thought?
MayOK
*********

Lower GI issues since 2007
March, 2010- Prometheus IBD 7 Serology Positive for Crohn's
March 2010 - C-Scope w/biopsies - normal; May 2010 - Capsule Endoscopy - normal; June 2010 -EGD w/biopsies- Gastritis, Esophagitis, both mild
Two rounds of Xifaxan August 2010 and December 2010 - Things have been quiet lately...

I take Librax, Hyomax, and Immodium as needed.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/15/2011 5:39 PM (GMT -6)   
I had the surgery to correct my LPR. No problems now. :)
Joy

MayOK
Regular Member


Date Joined May 2010
Total Posts : 111
   Posted 6/15/2011 6:37 PM (GMT -6)   
Hmmm...I guess that's the only true "fix." Is that the Nissen thing? Or something else...
MayOK
*********

Lower GI issues since 2007
March, 2010- Prometheus IBD 7 Serology Positive for Crohn's
March 2010 - C-Scope w/biopsies - normal; May 2010 - Capsule Endoscopy - normal; June 2010 -EGD w/biopsies- Gastritis, Esophagitis, both mild
Two rounds of Xifaxan August 2010 and December 2010 - Things have been quiet lately...

I take Librax, Hyomax, and Immodium as needed.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/15/2011 8:43 PM (GMT -6)   
Yes, the Nissen Fundoplication is what's it called.
You can read all of the post here from others who have had the surgery and other procedures done.
Surgery is the last resort for many.
Joy

Neptunian808
Regular Member


Date Joined Dec 2010
Total Posts : 86
   Posted 6/15/2011 10:03 PM (GMT -6)   
"She confused my duodenum with my esophagus, and when I called her on it, she told me I was wrong, and that the duodenum was the junction of the stomach and esophagus. ?!??"

doctors say some really crazy things at times maybe it's stress or they just don't know, once a GI doctor told me that the only thing the stomach produces is acid, i didn't remember at the moment that the correct answer was pepsin plus acid so i just said "what about digestive enzymes?" and he said "NO, just acid and Nexium should've taken care of your laryngitis if it was reflux related" after that i was ready to ask for my money back

MayOK
Regular Member


Date Joined May 2010
Total Posts : 111
   Posted 6/16/2011 9:04 AM (GMT -6)   
here is the whole story: the pill cam showed narrowing of the duodenum. that was the GI doc's finding, and that it needed to be evaluated with EGD. so she calls me and tells me that my pill cam showed "no crohns" and that my esophagus needed to be stretched if i start having issues swallowing stuff. so i requested a copy of the results for myself (highly recommended), and discovered it was the duodenum thought to be narrow, not the esophagus. i called back and had the duodenum vs esophagus conversation, and then insisted on a follow-up with my doctor, who when i saw him said that was what was supposed to have happened. he wanted the EGD done to evaluate supposed narrowing. my problem is that her ignorance almost resulted in my not having a vital test done. turns out the narrowing was actually really sharp angulation of my small intestine, but that was only able to be evaluated by the EGD. that's what my problem is. she took it upon herself to interpret the results as not a big deal, and while it ended up not being a big deal, i could also have had crohns of the small intestine for all she knew. you know?

if that had been my actual doctor, that wouldn't have been forgivable. stress or not. a GI doc should know basic GI tract anatomy, and i really don't excuse the nurse, b/c just in my minimal research i had CORRECTLY learned the names of various parts of the GI tract. and I am a mere layperson medically. ;) has anyone ever asked for their money back? i guess that is what malpractice suits are.

so today i am having what feels like snotty junk in my throat. i'm going to start using tums i guess to see if that helps. grrrr...it hurts today worse than before.
MayOK
*********

Lower GI issues since 2007
March, 2010- Prometheus IBD 7 Serology Positive for Crohn's
March 2010 - C-Scope w/biopsies - normal; May 2010 - Capsule Endoscopy - normal; June 2010 -EGD w/biopsies- Gastritis, Esophagitis, both mild
Two rounds of Xifaxan August 2010 and December 2010 - Things have been quiet lately...

I take Librax, Hyomax, and Immodium as needed.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/16/2011 12:20 PM (GMT -6)   
Don't take more than the bottle says to do. If it's not enough to help then you need to move on to gaviscon or prilocet OTC.
Joy

MayOK
Regular Member


Date Joined May 2010
Total Posts : 111
   Posted 6/16/2011 12:28 PM (GMT -6)   
Thanks for the tips. I will be making an appointment next week.
MayOK
*********

Lower GI issues since 2007
March, 2010- Prometheus IBD 7 Serology Positive for Crohn's
March 2010 - C-Scope w/biopsies - normal; May 2010 - Capsule Endoscopy - normal; June 2010 -EGD w/biopsies- Gastritis, Esophagitis, both mild
Two rounds of Xifaxan August 2010 and December 2010 - Things have been quiet lately...

I take Librax, Hyomax, and Immodium as needed.
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