severe gerd and delayed stomach emptying and nothing works! advice please!!

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gerdruinslife
New Member


Date Joined Jun 2011
Total Posts : 2
   Posted 6/20/2011 6:48 PM (GMT -6)   
Hi this is my first post! I am 14 and I've had severe acid reflux since I was born. I also have severe delayed stomach emptying. I've tried basically every ppi and acid reducer and nothing has worked for me. I was also put on regulan and after 6 weeks I did a stomach emptying test again, no change :/ my acid reflux causes me to regurgated food and have heartburn and I throw up after every single thing I eat and drink :/ I've been hospitalized for it before because I get dehyrated and loose a lot of weight (I'm only 104 pounds so loosing wait is terrible) I've even thrown up blood because my eushpogus is ruined. I've had endoscopies before which showed my LES doesn't work at all and I'm getting close to barrets eusphogus :/ I really want thr nissen wrap but my gastronologist is trying everything. I really don't want eusphogus cancer or ulcers and I'm tired of puking :( suggestions pleaaassee!!

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/20/2011 8:41 PM (GMT -6)   
If you have the nissen before getting the emptying issue solved you'll be more miserable.
Be patient with your doctor he's trying to help.

meanwhile you need to avoid all spicy and acidic foods. Raise the head of your bed on bed risers. And eat small but frequent meals so your stomach doesn't get too full. Drink protein drinks gain weight.
Joy

gerdruinslife
New Member


Date Joined Jun 2011
Total Posts : 2
   Posted 6/20/2011 9:22 PM (GMT -6)   
Im on a strict diet and I've slept sitting up my whole life and I drink protein shakes but no medicine works and no diet or method works. I can't even eat a small meal without throwing up :/ what could get rod of delayed stomach emptying?
thanks for the advice :)

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/21/2011 9:13 AM (GMT -6)   
That's what your doctor is trying to find out for you. It sounds like he's working very hard for you.
I hope he will be able to find something to help you out soon.
I know you want it fixed right now, but try to be patient. You are in good hands.

Stick around and let us know how things work out for you. You are welcomed to vent as much as you like (just don't cuss) ;-)
Joy

bdpal575
Regular Member


Date Joined Jun 2011
Total Posts : 25
   Posted Yesterday 2:45 AM (GMT -6)   
You sound a lot like me. I was born with severe GERD and I had severe delay in stomach emptying. Like you, I was throwing up everything, and my food would even spoil in my stomach before it could even be digested. Naturally, the only option for me was the Nissan, especially since the meds wouldn't work. Since I was 10 at the time, it took awhile for my doctor to become comfortable with the idea of surgery. Finally they decided to actually agree to doing it and they decided that at the same time when they would do the nissan they would do a pyloroplasty too, which fixes the stomach emptying problem.
This is NOT common at all but I do want to give you a heads up about how my body reacted to the surgery. After surgery, my body was basically shutting down on itself and doctors didn't know why. My body was rejecting all food or drink, even from the feeding tube they put in when they did surgery. I had a really hard time recovering, and I was really sick for over a year and it took me a couple years before I could eat almost normal again. Everyone reacts differently to surgery, and I don't want to scare you about it because I was not a typical patient whatsoever. Now, I am thankful that I had it done and have not experienced problems related to GERD since surgery. I have still contineued to have other GI problems though, such as having my gallbladder removed, and now the doctors are thinking I might have Crohn's disease. Throwing up everyday is not fun and I can relate completely to your situation. Keep your head up, your doctor knows what they are doing and if you feel differently then you can always get a second opinion. Trust me, you don't want surgery if you don't have to have it, and if there is a medication out there that will help you feel better, then it is worth exhausting all of your options before you resort to having major surgery and getting a major scar since most surgeons don't feel comfortable doing a nissan laprooscopically on children. Just have faith that this will eventually get better one way or another :)
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