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Jolisey
New Member


Date Joined Jun 2011
Total Posts : 8
   Posted 6/22/2011 5:16 PM (GMT -6)   
After taking Pariet for about 4 years, and not really being bothered with my GERD much at all, I suddenly had a horrible episode about 5 days ago, after taking some Naproxin for back pain. I woke up choking, and coughed for a hour and a half. Felt like I couldn't breathe or swallow properly (which totally FREAKS me out ... I also have anxiety disorder).

Since then, I've been bloated like a balloon, SO uncomfortable, with a constant acid taste in my mouth and the back of my throat. I even seem to have acidic "air" coming up and burning in the back of my throat and nose! I can't eat anything without bloatint up terribly, bleching and bleching, and that awful acid pain. Yesterday, I had a very small bowl of Rice Krispies and water, and THAT gave me heartburn and bloated me up!!! Last night I suddenly developed a sort of "metallic" taste in my mouth and on my tongue ... and it's still there to varying degrees today. Also have headache and am slightly dizzy today, but that's likely from lack of sleep.

I also have IBS, and the Dr. I saw last week says that I have a hiatus hernia, which he "diagnosed" from just feeling my belly (?? Info I've read on the internet says that you can't tell if there's a hernia or not by just feeling??). Besides that, I have IC, so can't take many medications or that will set me into a flare up. I had my gall bladder out several years ago, too. I'm only 47 years old!! I'm so tired of being sick. I need to lose a lot of weight (80lbs), and have joined Weight Watchers in the last couple of weeks, but I'm afraid it might be too little, too late.

I am just terrified that I'll need a scope and/or surgery. I'm ok with the barium swallow or blood tests, but I've had some scary experiences with surgery, and am absolutely terrified to be "put out". I had a scope scheduled several years ago, and had to back out just before we went in, because I freaked out! I felt/feel like an idiot, but I couldn't help it. Even thinking about it now is giving me the cold sweats. I'm almost hoping that it's h.pylori or something that they can treat with meds, rather than surgery.

I am so scared. My poor husband has listened to me worry about my health for years, and can't understand the anxiety issues. He tries to be understanding, but just doesn't get it. I have no one who I can really talk to about how scared I am. Going to the doctor in about an hour and a half, and I could really just use a hug, someone who understands or a prayer. Any advice or information to share?

Jolisey

Jolisey
New Member


Date Joined Jun 2011
Total Posts : 8
   Posted 6/22/2011 5:21 PM (GMT -6)   
Does anyone know what I'm talking about with the "acidic air" in the back of your throat and nose, or with the metallic taste in your mouth?? cry Can someone diagnose a hiatus hernia from just feeling your belly? Anyone else suffer from anxiety or panic disorder as well??

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 6/22/2011 5:46 PM (GMT -6)   
Hi Jolisey,

You've come to the right place! Welcome to Healing Well. You're in good company here...many have experienced symptoms very similar to yours.

It's very common to have NSAIDs (like Naproxen) create a gastritis condition that makes your reflux much worse. I've had it happen with both NSAIDs and some antibiotics. They've gotten my stomach going, and created terrible reflux which, in my case, caused severe asthma problems.

What you described happening in the night is definitely a problem that severe reflux can cause. It's called Paradoxical Vocal Fold Motion (Vocal Cord Dysfunction), and it can make it very difficult to catch your breath.

While I don't experience this, my asthma doc gave me the following information for dealing with it. Until you get this problem straightened out, it would be good to practice the breathing exercises.
_________________________________________________________________
Relaxed Throat Breathing Exercises

During practice:

1. Sip water before and after doing these exercises.
2. Exercises:

A. Shoulders Down
This is the cue for you to relax

B. Hand on abdomen
This helps you focus on easy abdominal breath support--the best and most relaxed way to breathe.

C. Gentle, quick "sip" of air IN (sip, sip, sip)
Breathe through your mouth
Relaxed lips
about 1 second inhale each sip

D. Gentle blow OUT (blow, blow, blow)
Through slightly tight lips
about 2-3 seconds for each blow out

3. Practice 5 reps, 20 times per day when you are NOT having symptoms.

4. Make it automatic, and use it at the first sense of throat tightness to prevent or suppress the VDC. You may start with the inhale or the exhale.

5. Use it to "pre-treat" yourself before known triggers for VCD.

6. This technique can also be a "stress buster" tool to use in other situations.

_________________________________________________________________
Do you have the head of your bed elevated? If at all possible, put bed risers/boards/blocks under the legs at the head of your bed and raise it 7 or 8 inches. That way, gravity will also help keep the acid in your stomach.

If you can't do that, then go to a medical supply store and buy a wedge pillow to raise your body up. Some people sleep in a recliner until things get better. The problem with a wedge is that you can slide down on it, and it can put your stomach in a bad position, which may put more pressure on it. The elevated bed is the best bet if you can do it.

While you're healing eat only smooth and soothing types of foods...stay away from acidic, spicy, rough foods that can irritate your stomach lining and esophagus.

Liquid antacids like Maalox or Gaviscon will be your best bet, as they do a better job of coating. Hopefully, your doc will prescribe Carafate or (even better) Carafate Suspension...it coats your stomach and esophagus to protect it from acid for a longer time than liquid antacids can.

Your doc will hopefully adjust your PPI's while you're dealing with this. Somehow, you will need to overcome your fear of getting an endoscopy. Many here have had them done, and we can definitely help support you and get you ready. Really, I've had them lightly sedated, not sedated at all, and sedated enough that I didn't even know what was happening! It's really not that difficult. You can do it!

You may find (now don't worry about it until it happens) that you need a battery of tests to find out what is happening. You are sick of being sick (I totally get that and experienced the same feeling), and in order to get well, you need to let the doctors do what needs to be done.

Perhaps you could find a cognitive therapist who can help your work through your fear and prepare you for the necessary tests.

Whatever happens, you've got us as your cheerleaders yeah yeah yeahfor support and encouragement!

Again, welcome!
Relax...it'll be okay!
Denise

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/22/2011 6:00 PM (GMT -6)   
My first endoscopy freaked me out something terrible! I was fortunated to have an understanding doctor who gave me 20mg of valium and then did a deep sedation on me so I wouldn't fight it. The valium helped the jitters until I was totally knocked out.
Joy

Jolisey
New Member


Date Joined Jun 2011
Total Posts : 8
   Posted 6/22/2011 9:40 PM (GMT -6)   
Thank you for your responses ladies ... it was so nice to hear some understanding, knowledgeable information, that I just had to cry! The Dr. put me on a new type of med for my GERD, and also something to help my stomach empty better (I also have IBS). Tomorrow I go for testing for h.pylori, gastritis, and a few other things. If those come back negative, she is going to honor my fears by trying the barium swallow first, but it very well might come down to a scope and/or surgery.

A "cognitive therapist" sounds like a good idea, Denise ... I've never heard of that. Is there another name that they might go by? I live on Vancouver Island, BC, Canada, and although we have a lot of good specialists here, I'd probably have to go to Vancouver, on the mainland, for that. I think I will look into it; I'm sure I going to have to be sedated at some point in my life ... my head tells me to stop being such a big baby (it's embarrassing, really), but the rest of me doesn't seem to be on board just yet! ;) I've never tried Valium, Joy, but might suggest it to my doctor if I do have to have a scope done. I'll have to check if it's ok to take with my IC, first. I will also try the breathing exercises, and stick to "soft foods" for awhile (how long??) Yes, I sleep on a wedge, and have for several years now. Maalox and Gaviscon didn't seem to work for me (Pepto Bismal? maybe a bit), which is why I'm wondering if it might be an infection of h.pylori or such.

So, for now, I've taken my new meds and am praying that I might be actually able to get some sleep tonight. Thank you for your warm welcome and offer of support, Denise ... it means more to me than you know.

Jolisey

Post Edited (Jolisey) : 6/22/2011 8:47:29 PM (GMT-6)


dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 6/23/2011 12:24 AM (GMT -6)   
Hi Jolisey,

It's very late here, but I stopped by the forum before going to bed. If you search Vancouver, BC and Cognitive Behavioral Therapy, you should find many possibilities.

I'll write more tomorrow...
Sleep well.
Denise

lorina
New Member


Date Joined Jun 2011
Total Posts : 2
   Posted 6/23/2011 3:21 AM (GMT -6)   
jolisey,

i have had many surgeries since i was 3yrs old and now i am 30. i totally understand about your fear to this day i still fear. but to your problem with gred you really need to have an advansed gastrointeroligist doctor take a look at you and have a CT/EUS done. I work at a vancouver hospital in washington and also in my life my husband is going thru tought times. I don't wan't to scare you any so i will stop here. just get your esophaguse checked out. and always pray it works for me when i get scared and frustrated. if I can make it so can you. TRUST ME!! many angels are watching out for you.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/23/2011 11:47 AM (GMT -6)   
I wonder if carafte (sp?) might help? It's a thick white liquid you drink. It's a perscription medicine that coats your throat and stomach.

The barium swallow will be no big deal. Just drink and try not to burp during the fizzy drink. :)
Joy
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