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lozzy42
Regular Member


Date Joined Jul 2011
Total Posts : 106
   Posted Yesterday 7:56 PM (GMT -6)   
Hi all I have been suffering with reflux, heartburn, almost feels like I'm being strangled at times, pains in my chest for about 4 months ( I've had 3 ECG I'm fit as a fiddle in that department) also breathing difficulties ( I am Asthmatic) It's very different to asthma though. I'm also having burning almost daily between or just below my breast bones, I can't lie down or acid will hit the back of my throat and the insomnia is dreadful . I'm glad I stumbled across you guys as my partner doesn't understand the pain that goes with this it can be extreme sometimes. Okay, so far had an gasto endoscopy nearly 2 weeks ago and since then the pain has got worse, I was wondering if any of you guys suffered the same when you had yours, and for how long?

I know I have oesophagitis caused by reflux grade 2 as that was told to me I have had biopsies for reflux and h pylori but haven't got the results back yet.

Too be honest I feel very much alone and that no one understands what I am going through


Some comforting words would be most welcome

Lozzy
yeah

P.s I forgot to say I'm on 40mg of Pantaprazole daily but have upped it to 80mg for 2 weeks advised by my GP. ( they don't seem to be working very well)

Many thanks in advance

Post Edited (lozzy42) : 7/17/2011 6:59:36 PM (GMT-6)


dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted Yesterday 8:11 PM (GMT -6)   
Hi Lozzy,

Welcome to Healing Well! yeah yeah yeah You're definitely in the right place, and among friends who understand what you're going through.

Have you tried raising the head of your bed? If you put blocks, boards, or bed raisers (sometimes the bed raisers aren't quite tall enough so you'll want to put a board under, too) and raise your bed 7-8 inches, it can make a big difference.

If you have esophagitis, the endoscopy probably irritated you further, so it'll take several weeks to get back to feeling better. While you're healing, be sure to stick to smooth foods that won't scratch on their way down. Also, steer clear of spicy and acidic foods.

Two things come to mind. I have found that Carafate Suspension helps healing when your stomach or esophagus is irritated. It's a prescription drug and fairly expensive, so it would help to have insurance.

Also, you might ask your GI if you could add Zantac at bedtime. You could take 150mg (some take 300mg) right at bedtime, so it will last the night.

I also have asthma, which is why I ended up with the surgery. My reflux wasn't all that bad, but what I got made my asthma uncontrollable. Even a little reflux is very hard on the lungs. Have you talked to your asthma doctor about this? Mine is a real stickler regarding reflux. He says that GI docs have no idea how little reflux can cause lung trouble. They're more keyed in on how it affects the esophagus, and it takes a lot of reflux to irritate the esophagus in comparison to lungs.

With asthma you may need the 40mg twice a day (before breakfast and dinner) for the duration. Many asthmatics have "silent GERD" and when things heal you won't realize that you're still getting reflux. If you've got as much as you say, you're definitely hurting your lungs.

Be sure to see a good asthma doctor, or a Primary Care doc who can help you with this. GI docs don't really care much about lungs. They're focused on the GI tract and that's all.

Hang in there...you can heal and get better. It'll just take time and patience.

Did your GI doc say anything about how your lower esophageal sphincter looked? Is it open or closed?

Good luck! Stick around...I'm sure others will be by to share their experiences and thoughts.
Take care,
Denise

mock turtle
Regular Member


Date Joined Mar 2011
Total Posts : 467
   Posted Today 12:04 AM (GMT -6)   
Lozzy

psychology is a big part of handling reflux

getting tense and upset seems to magnify the physical problems for many of us

for many the stress and pain of the injury causes a mountain of worry especially when the pain is bad or we feel an obstruction or feel more burning...

i remember a year ago putting a flashlight and a dentists mirror to the back of my throat and seeing damage and swelling and discoloration and wondering if i would be alive in a month

i want to second the suggestion that you elevate the head of your bed...or...for me even better was to sleep in an upholstered reclining chair with my back never reclined more than 45 degrees

i usually switch from the chair to the bed when i do my usual wake up at 1am . this gives my back and hips a break

may i suggest you only eat whole foods...avoid stuff thats prepared and in cans and bottles or frozen entrees etc, those preservatives, food colors and long ingredient lists are a mine field of problems... (shop the outer perimeter of the grocery store...the veggies, fruits, meats fish grains and breads (go for the natural organic etc when you can)

reflux is weird and seems to me that a person is wise to keep a list, learned from trial and error, of the foods they can and can not eat

a meal that works for me is chicken white meat (no skin), broccoli, brown rice, limiting the total meal to a volume to about 8 to 12 ounces

remember liquids count towards total volume, so if you eat the meal above and then soon after, chug an 8 ounce glass of water...yikes that would push me way over the edge

takes me two hours to digest the chicken rice and broccoli meal above and then after two hours or a little more, i drink a big glass of water and a little later im back for another small meal

very important....dont let yourself get dehydrated

hang in there , the odds are very likely you will find improvement but it is going to take some time...dont give up hope

and as you get insights from your experience tell us how you are doing , we all share wisdom and experience here (and even mistakes!)

ps...are you familiar with the standard list of bad foods? habits etc?

examples, avoid carbonated beverages, alcohol in general and wine in particular...cut back or quit coffee if you can, chocolate and the mint family is a problem for many etc...smoking very bad for reflux

best wishes
mock turtle

lozzy42
Regular Member


Date Joined Jul 2011
Total Posts : 106
   Posted Today 4:21 AM (GMT -6)   
Thank you both for replying so quickly. I have made an appointment to see my GP tomorrow and I'm going to ask for the carafate suspension, I'm actually in the UK so depending on whether the NHS will allow me to have this drug is another thing????? They are quite tight with what they'll let you have. I am also changing my ppi to Nexium ( esomeprazole) as I have heard that this can actually heal the oesophagus in 4 to 8 weeks, I'm not expecting miracles but I'll give anything a go at this point. I have also ordered myself a diet book specifically for reflux so that I can make sure I'm eating the right things. As we all know too well, eat something that upsets you and it can be painful for at least 3 days after. I'm pretty good all round anyway, I don't drink or smoke, I don't eat fatty foods, the chocolate thing is becoming less of problem as it reacts real bad and it's not worth the pain. And coffee I've cut out completely. What I was very interested in was an article I read about cabbage? Apparently it has been used for years for tummy problems and curing ulcers. It would be interesting to know if any of you guys have tried this and what the outcome was? Another thing I have found is if I eat salad it's quite bad on my reflux, more so than vegetables I cook. I don't know if that's just me, or if it's a problem alot of reflux sufferers experience? Thanks again for your support, great suggestion and ideas. I'm actually gonna have a hunt round the house for a board to elevate my bed now...Lol turn Lozzy x

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted Today 6:06 AM (GMT -6)   
Hi,
I am also in the uk. I asked for Carafate, which is Sucralfate here, but I was told it went out with the ark! The gps are loathe to prescribe any "add ons" as their guidelines indicate if the ppi is doing its job you shouldn't need them. They are more likely to use higher drug doses than add anything else in. I use Gaviscon sometimes. I think Gastrocote helped me, which you can also buy OTT but it did no more than Gaviscon does for me.

Have you been tested for Helicobacter? You need to be off ppis to be tested for that.

There is a supplement from a company called Biocare which contains licorice and the cabbage extract you mention. I had great success with it when first had GERD. Since it came back nothing really works, but the drugs sometimes make it more liveable.

Hope you get some relief soon.

MMM

PS: It's called Enteroplex. Maybe I should try it again - I was drug free on it once upon a time!
New stuff: GERD. Interstitial Cystitis
Lifelong stuff: Food allergies, eczema, asthma

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted Today 9:50 AM (GMT -6)   
lozzy,

Nice to meet, you and welcome.

If you haven't realized this yet, you will learn a lot here in the GERD/Heartburn  forum. Our members are wise and wonderful, caring and supportive. I am so happy you joined HealingWell.

I hope you get some answers from your GP today and that you will let us hear from you re what the Dr. had to say.

Kindly,

Kitt

 


 


~~Kitt~~
Moderator: Anxiety/Panic, Osteoarthritis, GERD/Heartburn and Heart/Cardiovascular Disease.
www.healingwell.com

"If you can't change the world, change your world"

lozzy42
Regular Member


Date Joined Jul 2011
Total Posts : 106
   Posted Today 12:04 PM (GMT -6)   
I forgot to say, I have been tested for h pylori but haven't yet got my results. Will keep you posted . Lozzy x

aeshleyrose
Veteran Member


Date Joined Jul 2011
Total Posts : 656
   Posted 7/26/2011 12:17 PM (GMT -6)   
Hey Lozzy! I just saw this post.

about the cabbage... I've never heard that before, but coincidentally my Finnish grandmother made a cabbage and beef casserole almost. I have had heartburn all day with no relief from anything - Nexium, Tums (Renny here in Finland, maybe for you too) and Gaviscon, but as soon as I ate the cabbage and beef casserole the heartburn has mysteriously disappeared! Wow!

My grandma was kind enough to make it without any spices for me (just a little salt). She puts in 400g beef, browns it, chops up 3 heads of cabbage, and adds about 5dl cooked white rice and lets it get hot. The cabbage is nice and smooth for your esophagus... not sure how the beef will be tolerated since you've been having problems in that department.

Sorry about the late reply! I hope this helps :)

Ashley
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