Welcome to Healing Well!
You're definitely in the right place, and among friends who understand what you're going through.
Have you tried raising the head of your bed? If you put blocks, boards, or bed raisers (sometimes the bed raisers aren't quite tall enough so you'll want to put a board under, too) and raise your bed 7-8 inches, it can make a big difference.
If you have esophagitis, the endoscopy probably irritated you further, so it'll take several weeks to get back to feeling better. While you're healing, be sure to stick to smooth foods that won't scratch on their way down. Also, steer clear of spicy and acidic foods.
Two things come to mind. I have found that Carafate Suspension helps healing when your stomach or esophagus is irritated. It's a prescript
ion drug and fairly expensive, so it would help to have insurance.
Also, you might ask your GI if you could add Zantac at bedtime. You could take 150mg (some take 300mg) right at bedtime, so it will last the night.
I also have asthma, which is why I ended up with the surgery. My reflux wasn't all that bad, but what I got made my asthma uncontrollable. Even a little reflux is very hard on the lungs. Have you talked to your asthma doctor about
this? Mine is a real stickler regarding reflux. He says that GI docs have no idea how little reflux can cause lung trouble. They're more keyed in on how it affects the esophagus, and it takes a lot of reflux to irritate the esophagus in comparison to lungs.
With asthma you may need the 40mg twice a day (before breakfast and dinner) for the duration. Many asthmatics have "silent GERD" and when things heal you won't realize that you're still getting reflux. If you've got as much as you say, you're definitely hurting your lungs.
Be sure to see a good asthma doctor, or a Primary Care doc who can help you with this. GI docs don't really care much about
lungs. They're focused on the GI tract and that's all.
Hang in there...you can heal and get better. It'll just take time and patience.
Did your GI doc say anything about
how your lower esophageal sphincter looked? Is it
open or closed?
Good luck! Stick around...I'm sure others will be by to share their experiences and thoughts.