halloweenbaby - new member

New Topic Locked Topic Printable Version
36 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

somedaysarediamonds
Regular Member


Date Joined Jul 2011
Total Posts : 363
   Posted Today 6:35 PM (GMT -6)   

Hello everyone. I've been lurking around this forum for some weeks now as I await the results of testing to see that I "qualify" for an NF. I keep coming back and reading old threads and wondering how things worked out for those folks who posted back in 2005.

I'm in a lot of pain. Can't eat much at all. Not sleeping unless I'm sitting up and it hurts now to sit up and sleep. I have HH, gastritis, esophagitis with 3 strictures so far, diverticulosis, and according to the nurse who did the testing on me last week a "wide open" LES. I've lost 20 lbs in 3 weeks and have no appetite.

I have no gall bladder and my problems with reflux got exponentially worse after GB removal 16 years ago. They became acute about 10 years ago and in the last two years have become unbearable following three rounds of steroids and numerous antibiotics.

I am approved by my own GI doc for NF surgery as long as the tests done last week indicate it as well. The surgeon is local and likable and experienced so I understand.

Everyone seems to talk as if I need to go to Mayo or USC or White Plains to get a good and proper procedure done but I met a local lady who had it done in my hometown about 8 years ago and she has encouraged me to have it done locally so any follow-ups can be managed without a lot of travel etc. She has done super since her surgery and says she wished she'd had it done 20 years ago.

I guess I'm scared as well as all the others who come here. I've had a hysterectomy, GB removal and my tonsils out so I'm not really experienced with multiple surgeries etc. I just want to be able to eat without pain, sleep through the night and not dread waking up in the morning with acid running out of my nose and mouth. I'm sick of coughing and wheezing and breathing shallow and running to the ER and being given meds for panic.

After a zillion dollars worth of heart tests I'm told I'm as healthy as a horse but it's hard to swallow when you awaken in the morning with your heart pounding out of you and feeling as if you're in a state of panic.

I do know it is GERD and HH and I want the surgery and I want it over and I want to hear from the reports.
Waiting is killing me.

By the way, it's nice to meet you! smilewinkgrin

Post Edited By Moderator (stkitt) : 7/20/2011 9:18:09 AM (GMT-6)


Baldwin2011
Regular Member


Date Joined Jul 2011
Total Posts : 23
   Posted Today 7:22 PM (GMT -6)   
Sounds like a rough go man. 
 
 quote. I'm told I'm as healthy as a horse but it's hard to swallow when you awaken in the morning with your heart pounding out of you and feeling as if you're in a state of panic.
 
That happens to me now. Happened two night ago and I was sleeping and woke up , couldnt breathe, panic attacks too. Im so feed up. I wake up mouth dry as hell and cant shallow but if I go out to work or have a shower etc.. I tedn to feel better.  Im tired of this.

Post Edited (Baldwin2011) : 7/19/2011 6:30:36 PM (GMT-6)


dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted Today 7:39 PM (GMT -6)   
Hi Halloweenbaby,

Welcome to Healing Well! You are definitely in the right place...glad you've come out from the shadows and joined our forum! It sounds as if you'll soon be a member of our Wrapped Club!

I had the Nissen surgery in February 2009, and am so glad I did. Like you, I found this forum before my surgery, and was helped greatly by the caring and experienced members. I didn't have a wide-open LES like you do, but did have enough reflux to affect my lungs very badly.

I had my surgery in a small city (145,000 city population and 450,000 county population), and didn't make the trip to a big center for the same reason your friend mentioned. Even in a small city, you'll likely be able to find an experienced Nissen surgeon, although the experience won't match that of a large city surgeon. Around here we recommend you try to find someone who had done at least 300 procedures.

My surgeon was recommended by my GI doctor, and when I asked around, I found he was an experienced and well-recommended Nissen surgeon. He had done over 300 surgeries, and according to all, most competent.

The problem is that this surgery is kind of an art form, and it takes lots of practice to get it right. You don't want to be the one who is getting practiced on, but rather someone getting surgery done by a pro.

I would definitely recommend researching your surgeon thoroughly, asking lots of questions, and finding out who is the most experienced Nissen doc in your area.

I would guess you're definitely headed for a Nissen. Don't worry...I was prepared for a terrible recovery, and it's just not that bad. If you can relax and accept your recovery without fighting it, you will do just fine. In comparison to what you're going through now, the recovery will be a piece of cake.

Again, glad you've joined us!
Best wishes,
Denise

somedaysarediamonds
Regular Member


Date Joined Jul 2011
Total Posts : 363
   Posted 7/20/2011 7:12 AM (GMT -6)   
I wondered if anyone would even reply to my post so thanks for doing so. I'm talking 'small' city when I refer to my own hometown but it is the center for all things medical in the corner of the state where I live. Our city is a bit unusual in that even though it is small we are the HQ for a major oil company's research and development and computing and this is the town where the company was founded. My town draws many very qualified medical people due to having the 2nd highest per capita inco e in the state and more PhDs per capita than any town in the state. I think you get my drift as to the quality of health care/medicine we have.

That being said, I don't know that I really trust this procedure itself. It sounds pretty flaky from the git-go and as if the procedure just has a mind of its own no matter who the surgeon is. I know I read one too many horror stories while waiting first to see my own GI, to have a new EGD, for the appt with the local surgeon, waiting to get the 'tube tests' (manomety etc) in a very large ajacent city and now waiting to hear the results from those tests. It's very hard for me to wait and especially now that I can't do anything because of the pain and reflux.

I have pain straight through to my back and it doesn't let up now. It hurts and I feel weak all through my abdomen and chest and there is nothing else wrong with me at all but the stuff I said in my first post. I'm totally worn down from pain, no sleep, headache, bleeding gums, sore teeth, burnt tongue and throat, sore ears, diarrhea, blurred vision, nausea, no appetite, being weak and anxious and just feeling lousy in general. I've almost forgotten what a real life is like.

My husband is very good to me or I'd have given up a long time ago. I've pushed myself in the last two years till I have no push left. I've resorted to daytime television and the net and this isn't me. I quit my part-time job and had no choice but I hated quitting because of my health. I just couldn't take the pressure and something had to give. We do very little else but tend to my stomach problems and wait on test results.

One day being pretty much like the next day makes me feel as if I were the main character in the movie "Groundhog Day". I've heard other people say the same thing - Oh dear god. Not another day like this.

I hope to hear from the tests today. I called and left a message with the clinic but I'm sure I'm one message in a whole stack of messages.

Thanks again for replying and to clarify I am female.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 7/20/2011 9:29 AM (GMT -6)   
Hi Halloween Baby,

First, stop reading all those crazy, negative posts by people whose surgeons were either incompetent, or did surgeries on people who weren't ideal candidates. If you have all the testing, and it indicates that you are a good candidate, you will do just fine. There is no doubt that you will have good care in the city you describe.

The Nissen surgery has been done for over 50 years. It was started as an open procedure, but now it's mostly done laproscopically. Some have said that it is a good thing, as it has further focused the number of surgeons who are doing it, thus providing even more experience to a limited few.

That said, there are many fine, fine surgeons who have not had enough experience to ensure that you will have a good result. My daughter-in-law is a surgical PA, who has contact with lots of docs, and she was recommending a brilliant young surgeon to me. She couldn't say enough about his skill. Yet, when she asked a more experienced surgeon, he steered her in the direction of "the guy who does all the Nisssens". As I said, experience is key.

You can not go on the way you are. I did the same thing. My doctors (family and asthma) were pushing hard for me to consider the surgery, and I balked--especially after reading all the horrible, scary posts online. Finally, after four years of torture, high doses of steroids and their deleterious effect on my health (I developed adrenal insufficiency, bloating, skin thinning and bruising) I decided I had no choice but to give the surgery a try. If it worked, great, and if not it would rule out GERD as the cause of my problem. Some of us do not have the luxury of turning our nose up to this admittedly imperfect solution. The Nissen fundoplication surgery is considered the "gold standard" for treating the type of GERD you're suffering with.

Keep this in mind. Most people who have this surgery never post a single message online. If you look at research papers,etc., you'll see a very high success rate. That said, many patients continue taking some lower amount of PPI or H2blocker after surgery, but even those people are happy with the results.

I had atypical symptoms--my LES was not wide open, my reflux numbers were within or on the border of normal--yet the reflux that was being allowed into my esophagus were creating a dangerous condition in my lungs. I just wish I'd had the surgery earlier. If I ever need a redo surgery, I'll embrace it, as I can't go back to the way I was.

The recovery is much easier than I expected it would be. It is important to surrender to the course it takes, and relax. People who struggle against it have a lot more trouble coping with its progression. I can tell you that it will be far superior to the pain you're in now.

I'm glad you've found this forum. People here are experienced and realistic about the surgery and its recovery. They helped me before and after my surgery, and that's why I stuck around to help others.

Good luck with your decision. Try to look at it more positively if you can. Believe me, I went through the same process and stayed away far too long. After I made the plunge and had the surgery I kicked myself for not doing is sooner. In my case there were other factors--like the GI doc who did not understand that a small amount of reflux can affect the lungs, and therefore didn't recommend that I go forward with the surgery. Bless my family doctor, who kept gently pushing, and finally made me an appointment with a surgeon.

Things will get better. You don't have to live like that.
Best wishes!
Denise

somedaysarediamonds
Regular Member


Date Joined Jul 2011
Total Posts : 363
   Posted 7/20/2011 10:40 AM (GMT -6)   
Yesterday, the day I joined, was one of the worst days I have ever experienced. I slept better last night - only woke up twice - and didn't throw up when I finally got up. That's the start of a GOOD day. LOL

I don't know how old everyone is and don't need to know. I can only tell you that I've lived with GERD under a doctor's supervision for over 30 years now. When you've done everything they tell you to do from an ergonomic bed to 80 mg of Nexium causing colon polyps and weak bones to dietary changes and anxiety pills, you finally figure out that maybe there is a better way.

I've lost all quality of life in the last year. And I was told that by the surgical nurse who did my pre-wrap testing. She told me about seeing people in the testing room with acid literally shooting out of their ears, people whose sinuses were infected from acid reflux and about people who lost so much weight they couldn't get around anymore.

I listened to her talk last week as she was putting a tube down my nose into my stomach the size of a vacuum hose and I realized on that table that I'm not making this stuff up. I didn't worry my way into a diseased gall bladder

The very anxiety med my well-intentioned family doctor prescribed years ago actually contributed to the weakening of my LES. The steroids I was given for Purpura made me deathly ill and they were given to me because of milk refluxing into my esophagus causing an allergic inflammatory reaction and this the Purpura as well. I learned the hard way. Purpura is when small blood vessels spontaneously rupture and mine did just that all over my body. I resembled a person wearing a red Santa Claus suit and had to stop all milk products due to the reflux.

It's been a very long haul. I'm getting close to an answer since my GI doc has suggested the surgery. I'm close to deciding on a surgeon. My new family doc is a fairly young one at age 42. The surgeon is about the same age and has 17 years experience out of med school.

I'll do the best I can to check him out further but I can't go home with him or live in his head or keep him from exaggerating his credentials. He seems to be a caring, concerned and busy physician and I like him a lot. He wouldn't proceed with the surgery until these other tests I'm waiting for now were done and he had the results and the opinion of the testing physician.

I'm getting by now by not eating much except for rice and applesauce.
It's almost time to eat the rice.

Thanks everyone.

Carpe Diem

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 7/20/2011 1:45 PM (GMT -6)   
Hi Halloweenbaby,

Of course you can't be sure that he's not exaggerating his credentials, but I do believe he will tell you how many he has done. You can also call around other GI docs in the area and see who they recommend. Is it the same doc who did a find job on your friend who had it done locally? How has her result been?

You can never know with complete certainty, but you can find out how much experience with Nissens your surgeon or others have. That's all you can do. See if you can get other nurses/docs, etc. to research it with you. Perhaps they can get a bead on who is best in your area.

I hope you continue to have a better day today.
Hang in there. You're headed in the right direction.
Denise

PS--as far as other procedures out there...they may be fine, but from what I've heard here and other places they aren't a panacea. My GI doc felt that they were hopeful, but did not have a long enough track record.

Good luck! turn

somedaysarediamonds
Regular Member


Date Joined Jul 2011
Total Posts : 363
   Posted 7/20/2011 2:09 PM (GMT -6)   
Just got a call from the GI tests and the results were as bad as expected. LES was wide open and the senior GI doc with the biggest GI clinic in the city said I was a very good candidate for the wrap.

They're faxing the results to the surgeon my own GI doc sent me to here in my hometown and I have an appointment on the 27th with him to discuss the results and probably surgery on Thursday or Friday of next week.

I think I will call the hospital where he practices and see what his rap sheet is on NF. I think they will be honest with me and I doubt that I'm the first one to call about this kind of thing.

So now I'm happy and I'm scared together. I only know that I can't live the rest of my life as I am and that I'm much stronger than I thought to have gone through what I have for so long - close to 30 years in bad shape from GERD.

At least my gall bladder already blew the joint and I won't have it to worry about. And I guess the best news is that I'm already in so much pain that the surgery might not be much worse. If the problems I have had in the last one to two years and especially the last six months were just gas, acid and burping, I could live with them.

I've gone so far past those problems with continual diarhea, headache, no appetite, weight loss, chest and back pain, and all the other stuff I detailed earlier that I'm going to be positive and look forward to some relief, some sleep, and the morning acid/panic/rapid heart rate getting better.

Thanks!

Carpe Diem

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/20/2011 3:15 PM (GMT -6)   
So glad you're getting fixed. :)
Yes it is scary, but just think how good you're going to feel once you're fixed. :)

Make sure you have liquid pain killer and liquid antinausea meds available before you go home. My surgeon gave me the perscription before surgery day so I had it available day one. The last thing you want is to be nauseous or hurting and having to wait to pick up your medicine.
Joy

somedaysarediamonds
Regular Member


Date Joined Jul 2011
Total Posts : 363
   Posted 7/20/2011 4:46 PM (GMT -6)   
I even went through a tonsillectomy, adenoidectomy, deviated septum repair and very involved sinus surgeries last August because of sinusitis caused by GERD which is now worse than it was before those surgeries. The ENT couldn't for the life of him figure out why I got worse. Now I know.

I can't take pain meds other than Ibuprofen due to really bad nausea. I went through the 4 surgeries above without Rx pain medication. If I can do that I can do anything. Also had a hysterectomy with no Rx pain meds.

I'm relieved that things are moving forward for me and what my friend who had the same surgery told me was to make sure I got the nausea meds i.e. liquid and suppository.

In case I didn't post it here, I see the surgeon on July 27th and possibly have the NF on Friday of that week.

Thanks!
Carpe Diem - Seize the Day!

If you would ask me what I came into this world to do, I would tell you I came to live out loud. - Emile Zola

elsiem
Regular Member


Date Joined Jul 2011
Total Posts : 131
   Posted 7/20/2011 6:23 PM (GMT -6)   
Hi halloweenbaby.
So pleased to hear things r moving forward for u.

After nearly 10 years of suffering from GERD/HH (the past 7 months have been hell) I underwent an open NF & now at 3 weeks post-op feel fantastic.
My symptoms were exactly as u have described but having the surgery has been totally worth it.

Good luck for your surgery. Stay positive & know that the nightmare you have been living so far is about to end.

Lynda

somedaysarediamonds
Regular Member


Date Joined Jul 2011
Total Posts : 363
   Posted 7/20/2011 6:28 PM (GMT -6)   
Hi Lynda,

Stay in touch if you would. I need all the encouragement I can find. My GERD has been a pretty much lifelong problem but the HH is new as of the last few years. GI Doc said it wasn't "real bad" - he wasn't living in my stomach. LOL

Why if I might ask, did you have an open NF? I need to lose weight but the doc said he thought he could do it okay with Laparascopy.

I think I"m gonna make a chocolate cake this weekend and eat the whole thing. Looks as if it might be a long time before I get another chance.

Of course I'm kidding but I'm just sick of watching out for every bite of food that goes into my stomach.

Take care and thanks for replying.
Carpe Diem - Seize the Day!

If you would ask me what I came into this world to do, I would tell you I came to live out loud. - Emile Zola

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 7/20/2011 6:41 PM (GMT -6)   
 
Welcome to HealingWell ! I love your user name by the way - it reminds me of the Christmas Song, Santa Baby.  Perhaps we could write a song just for you.  :-)
 
I am glad to  read you finally have the answer to your severe problems.  So off to get a warp you go and we will be here to cheer you on.  I am sure you have already discovered that the members here rock and are so knowledgable re answer questions. 
 
Also be sure to write down the questions you have for you surgeon.  Get the pre-op and post op list going so you won't forget your questions.
 
Again a warm welcome to HW and know we are here to support you.
 
Gentle Hugs,
 
Kitt 
~~Kitt~~
Moderator: Anxiety/Panic, Osteoarthritis, GERD/Heartburn and Heart/Cardiovascular Disease.
www.healingwell.com

"If you can't change the world, change your world"

somedaysarediamonds
Regular Member


Date Joined Jul 2011
Total Posts : 363
   Posted 7/20/2011 7:28 PM (GMT -6)   
Thanks so much. I'm pleased at this point and glad to be connecting at the forum.

I really needed to hear from my tests today and just knowing the doc has the reports and I'll see him next week is good news to my ears and to my tummy.

I think I'll sleep better tonight - at least till the acid kicks in about 4 am. turn
Carpe Diem - Seize the Day!

If you would ask me what I came into this world to do, I would tell you I came to live out loud. - Emile Zola

elsiem
Regular Member


Date Joined Jul 2011
Total Posts : 131
   Posted 7/20/2011 9:46 PM (GMT -6)   
Hi halloweenbaby,

Ah.... chocolate cake. yum..... chocolate was something that made my reflux worse so have not had any in a long time. Looking forward to the day when I can eat some again. Enjoy. Chocolate chip cookies are my biggest downfall.

My GI doc said the same as yours. My HH was only small & sliding so he said it shouldn't be causing me any problems. Not the answer I wanted to hear.

My surgeon intended to do a LNF but when he put the first scope in he found extensive scar tissue & adhesions from a gall bladder removal I had done 26 years ago & the scope grazed my liver causing a large laceration. Thats when the decision was made to open me up which Im glad he did because they also found part of my bowel was twisted up under my spleen. All fixed now & I feel better now than I have in a number of years.

Sleep well & continue to focus on how much better your life is about to get once your surgery is behind you.

Lynda

somedaysarediamonds
Regular Member


Date Joined Jul 2011
Total Posts : 363
   Posted 7/21/2011 8:26 AM (GMT -6)   
I didn't make the chocolate cake and I'm so sick this morning even the thought of it makes me want to throw up. I did eat that one Hebrew National frank that I'd been dreaming of and it has nearly killed me. Guess hubby gets to eat the rest of them and it's back to soup for me.

I really need to hear the benefits of the NF this morning. I didn't sleep all night because of nausea, acid, headache, sinus drainage, heart palps, coughing and being hot all over.

I'm now scheduled to see the surgeon next Wednesday the 27th and I'm hoping I can hold out that long. It really is like the movie Groundhog Day when you get as far gone with GERD and HH as I am now. It's like being sentenced to slow torture with acid refluxing from your stomach that just never stops. My nostrils are literally scorched and my eyes hurt and burn as if I have fever which I do not.

I'm so glad I found two things recently: this forum and a new friend in my hometown who had NF about 8 years ago. She told me in our first phone conversation that she had actually been sent to a psychiatrist and she told him to just put her away somewhere with the "crazy people" like she was. I'm starting to understand what she meant.

I've read and read about NF. People from this forum have told me their stories and my GI doc and the surgeon who may do my surgery have explained it to me as did the GI doc who did the pre-op tests on me in Tulsa. They were all very helpful and detailed but it will be MY stomach that someone operates on and I'm very concerned.

I'm sitting here trying to type with so much acid having dried out my eyes that I have to hold one of them shut to even stand the pain. This is just the weirdest thing I've gone through in my whole life. Just so strange.

Thanks for your wise words and your input from you personal experience.
Carpe Diem - Seize the Day!

If you would ask me what I came into this world to do, I would tell you I came to live out loud. - Emile Zola

CRABBYGAIL
Regular Member


Date Joined Apr 2011
Total Posts : 21
   Posted 7/21/2011 2:52 PM (GMT -6)   
Halloween Baby,
 Good luck with your appointment next week! I am 4 weeks post op and doing very well! NO REFLUX! I can sleep at night smilewinkgrin and am eating just about anything except bread and steak. I, too, read about the surgery forever and read every nightmare story on the net. I probably considered the surgery for about 2 years before I got my courage up! Now, I just wish I had done it  sooner. It has not been a walk in the park, though. Much tougher than the gall bladder or the hysterectomy. Of course, I was much younger when I had those too.  I am still very tired by 6pm and ready for bed by 8! Still, it is worth the few weeks of soreness and liquid diet to be able to eat and not feel sick.   My surgeon  is a thoracic surgeon in Gainesville, FL about 45 min. from my hometown. He has had me come back at 2wks, 4wks, and one more time next week and I should be released. I hope that you are able to have the NF and many of your problems will be solved! CrabbyGail

somedaysarediamonds
Regular Member


Date Joined Jul 2011
Total Posts : 363
   Posted 7/21/2011 7:49 PM (GMT -6)   
Thanks, Gail. I ran into my GI doc at the hospital this afternoon while there with a friend having surgery. He told me the surgeon I'm talking to has operated on both his father and his father in law. I also learned through Facebook of quite a few other people who had great things to say about the surgeon.

I think I'm going to let him do the surgery.
Carpe Diem - Seize the Day!

If you would ask me what I came into this world to do, I would tell you I came to live out loud. - Emile Zola

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 7/21/2011 9:17 PM (GMT -6)   
Hi halloweenbaby,

Hey, that's the best recommendation you could get. Your GI doc wouldn't have anyone but the best operate on his own father and father-in-law. Were they Nissen surgeries? Did you get a number of procedures he's done?

When my GI doc recommended my general surgeon to do the Nissen, he said that he would have him do his own Nissen if he needed it, or anyone in his family. An old friend who is a nurse anesthetist and works in ORs with many surgeons said he would have my surgeon do the Nissen on anyone in his family, and recommended him highly.

So...the more good recommendations you get the better. It sounds like you're on the right track!

Good luck your decision and surgery.
Denise

somedaysarediamonds
Regular Member


Date Joined Jul 2011
Total Posts : 363
   Posted 7/22/2011 8:07 AM (GMT -6)   
My GI doc didn't say what the surgeries were but he did say they were not Nissens. I got quite a few good comments on my Facebook wall about this surgeon and even one comment from someone who said her friend had a Nissen here last summer and it was this surgeon or his partner who did it and she is doing very well.

Just thinking out loud here today, I think what I'm the most exhausted from is the toll this whole thing has taken and is taking on my personal life/anxiety etc. I'm not the same person I was before this GERD thing got so bad in recent years, months, weeks and now days.

I'm worn out worrying about whether I can eat anything without pain or getting sick or running for a bathroom. I'm tired of waking up afraid to turn over because the acid is going to pour into my throat and head because the LES is wide open.

I get sick of the headaches, the burnt throat, eyes and tongue and I'm worn out from not being able to breathe deeply and listening to the sound of my own heart pounding. I've started to feel that this is the way life is going to be from now on and I don't think I can take it.

It literally takes me over half the day to get over "waking up with reflux" to get to a point where I'm not anxious/depressed and start to settle down even a little bit. I do this by not eating at all. Then when I do make myself eat something later in the day I live with the chest pain and the worst of the GERD symptoms till it's time to go to bed where I lay on my right side without moving all night. All this only to wake up to the very same routine the next morning and start all over again.

I can't imagine what it would be like to wake up without feeling panic from the acid invasion or being able to eat something without being afraid. It's hard to believe I'll ever want to leave the house again, or throw another dinner party or even walk around the block - all of which I've stopped doing due to GERD and all that goes with it.

I don't expect anyone to replay to these early morning ramblings. I just need to get it off my chest today.
I hope I can make it to next Wednesday and the appt with the surgeon without pulling my hair out.

And so it goes - another "Groundhog Day" in Oklahoma. . .
Carpe Diem - Seize the Day!

If you would ask me what I came into this world to do, I would tell you I came to live out loud. - Emile Zola

elsiem
Regular Member


Date Joined Jul 2011
Total Posts : 131
   Posted 7/23/2011 4:57 PM (GMT -6)   
No need to apologize for your early morning ramblings. This is the perfect forum to vent your frustrations because we all understand what you are going through & can feel your pain.

My worst time of day was also early morning, 'waking up with reflux' feeling queasy & nauseaous. Feeling hungry but not able to eat anything & if I did eat would vomit it up mid morning. Most days I didn't start to feel human until late afternoon then it was bed time & the nightmare would start all over again. One thing I have noticed since my surgery is that I no longer wake up with that clogged up sinus feeling in my head & my teeth feel smooth again & not all rough & furry from acid corosion.

Be strong. Wednesday is not that far away & you can finally put an end to all this suffering & start your journey on the road to recovery.

Lynda

somedaysarediamonds
Regular Member


Date Joined Jul 2011
Total Posts : 363
   Posted 7/23/2011 8:26 PM (GMT -6)   
Thanks, Lynda.

I fell "tolerable" sometimes by the end of the day and then it's bedtime before I know it and the whole thing starts over. I'm so sick in the morning that it's like being pregnant and having morning sickness. I thought I'd forgotten all about that till it got so bad in the last couple of months.

I don't even get a baby out of the deal.

Bummer :)
We're not in Kansas anymore. - Dorothy

kyheart
Veteran Member


Date Joined Apr 2011
Total Posts : 513
   Posted 7/23/2011 9:27 PM (GMT -6)   
Halloweenbaby
I am so glad to hear that you are moving forward with your doctors, toward the NF. I suffered for about 12 years with GERD and HH. I had the NF and HH surgery 16 weeks ago. I have never felt better. It made me my heart hurt for you reading how you have suffered and then I realized that I was pretty bad too. Waking in the middle of the nite to run to the bathroom to throw up.. yeah, I remember now.. but I feel so good now that it is hard to remember when I didn't. Hopefully that is what you will have to look forward to. Forgetting about sitting up in the chair all night so you can sleep and all the other nightmarish things you are going through.

You are more than welcome to come in here and Whine, cry or scream... everyone will read it, reply and tell you they understand.. and they will mean it.. So stay with us and let us help you through it.. we have been there, done that and we care...

Have a good night.. and look forward to a bright tomorrow..
Sandi

somedaysarediamonds
Regular Member


Date Joined Jul 2011
Total Posts : 363
   Posted 7/24/2011 9:08 AM (GMT -6)   
Thanks, Sandi.

Someone in another thread on this forum just asked me if I were depressed and then used the word psychopath in their next statement.

I felt like pulling my hair out That was exactly what I DID NOT need to hear this morning after throwing up acid when I first got up and being trapped in my own home all week because it's too hot outside and I'm too nauseated to go anywhere.

I wish more people really understood just how bad this stuff can get and what it can do to your life after 20 years of fighting it.

I'm not young anymore. Reflux, strictures, the hernia and now the open LES have ruined my quality of life and I need relief. I'm waiting as patiently as possible for the end of next week and possible surgery. I won't know the date for sure till this Wednesday.

But I'm as ticked as I can be for someone to suggest depression to me in this setting where people should understand what this disease/condition can and does end up doing to you.

I guess it's the risk you run when you get online and lay all your cards on the table. I only know I would never suggest a mental diagnoses to someone I didn't know in a place like an internet forum.

I'm going to have to think really hard about continuing here.
I don't need to hear stuff like I heard this morning.
Toto, we're not in Kansas anymore. - Dorothy

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 7/24/2011 11:56 AM (GMT -6)   
halloweenbaby-
I'm so sorry you are again vomiting the nasty stuff. We are in similar situations .... You have to wait until Wednesday and I have to wait for tomorrows tests to see if and when we can have surgery.
I wish you would stay and become a "wrapped club" member who can help others wrestling with a decision about what treatment to choose. I'll pray you get good news Wednesday and can get this taken care of quickly.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
New Topic Locked Topic Printable Version
36 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Thursday, July 19, 2018 4:12 PM (GMT -6)
There are a total of 2,983,302 posts in 327,104 threads.
View Active Threads


Who's Online
This forum has 161907 registered members. Please welcome our newest member, LadyRebel.
478 Guest(s), 11 Registered Member(s) are currently online.  Details
73monte, Startech, 81GyGuy, Kent M., Worriedgirl3, Gemlin, browntrout, JoJoLA, fawad malik, bail1234, Going for brachy