If you have LPR you ABSOLUTELY NEED to Read this

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Angela75
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Date Joined Jul 2012
Total Posts : 29
   Posted 7/26/2012 7:00 PM (GMT -7)   
mztx07 - I am new here as well and was diagnosed with LPR at the end of last year. I have good days and bad days. Most of them lately though have been bad and I am baffled because I have started following Dr. Koufman's low acid diet. Like you, i have virtually no symptoms in the morning but as the day goes on the post nasal drip, excess mucus, weakened voice and lump in my throat feeling gradually start to come on and by bedtime I am miserable :( What kind of gum do you chew throughout the day? I know that mint is bad for reflux sufferers so I'm curious. Regular bubble gum? Is it sugar free?

mztx07
New Member


Date Joined Jul 2012
Total Posts : 4
   Posted 7/26/2012 8:26 PM (GMT -7)   
Angela 75 -I try to chew sugar free gum with Xylitol rather than other artificial sweetners because I try to avoid aspartame at all costs and it is difficult to find things that are not made with Aspartame. I found some gum at Whole Foods called Spry in a Green Tea Flavor. They also have a gum called Eco-Dent Between. I actually like the Eco-Dent Between better because it has a softer gum base than the Spry gum which tends to get very hard rather quickly after chewing for awhile. As I mentioned, I don't like to chew gum much because I also have some jaw issues based on being diagnosed with Juvenile Rheumatoid Arthritis as a kid, so I chew very gently and often don't even chew at all but just let the gum rest on the side of my mouth. (I don't want to develop another problem from chewing too much.) That in itself still seems to work by increasing my saliva production just enough to keep the symptoms at bay. I will be interested to hear if this works for you to help improve symptoms.

By the way, how long have you been following the low acid diet? I am really wondering if there is a neutralizing effect with the saliva that prevents irritation for most people but if the body is slightly on the acidic side, perhaps the saliva is not neutralizing the few droplets of acid that seem to be getting into the throat. (If the LPR theory is correct as far as it being related to acid.) It is such a puzzling condition. I will be interested to hear if the low acid diet makes a difference for you. Are you taking a PPI? Just wondering if that helped. I read so much about different medications and side affects that it freaks me out as well. I can't help but think that a medication that would take six months to make a difference is probably not working and the reason people are getting better is just based on their own body's healing capacity rather than the PPI. I don't know, but it just seems very suspicious to me. Just wondering if anybody else finds that a little strange.

Angela75
Regular Member


Date Joined Jul 2012
Total Posts : 29
   Posted 7/27/2012 3:02 PM (GMT -7)   
That is good to know about the gum and Xylitol. Most artificial sweeteners give me migraines so I will look in Whole Foods the next time I'm there.

When i was first diagnosed in October, my doctor gave me 40mg of Omeprazole. I tried that for 4 months and it didn't do anything so she upped me to 80mg of it in February. So, this is my 6th month of taking it twice a day and honestly I'm not really sure if it is helping.

This all started last year after some stressful family drama. I had absolutely no symptoms before then. Then all of a sudden I felt like I was carrying a tennis ball around in my throat. It scared me, so i went to an ENT, she did the scope down my throat said my vocal chords and voice box were red and inflamed, then she wrote an RX, handed me a pamphlet on LPR and sent me on my way. That was it. I read the pamphlet and didn't like what it said (no spicy foods, coffee, chocolate, etc.) all of the stuff that I was eating and loved were forbidden so I didn't pay any attention to it figuring the meds would help.... when they didn't help, I started searching other options. I found Dr. Koufman's book online and ordered it right away. I'm Italian, so all of the restrictions are particularly hard - no tomatoes, no garlic, no red meat, nothing spicy. So, needless to say, I didn't do anything with the book at first but I was getting really sick of feeling sick all the time so a few weeks ago I decided to go at it full force. I haven't had anything over ph 5 in three weeks. But, I've noticed that some things that are 5 and higher are still bothering me like bell peppers, melon and sometimes cucumbers. I also ordered some DGL licorice and have been eating those (begrudgingly) before meals. It coats your throat so it does make it feel better for a bit. I've also been trying to take one before bed as well.

You are only supposed to do ph 5 and higher for 2 weeks and then you can add in foods that are 4 and higher. I want my throat to feel better the majority of the time before I start adding in foods with a lower PH. So, I am planning to do this for about 5 weeks and then gradually start adding in more allowed foods. I'm hoping my throat will be healed in 6 months so I can get off the PPI's.

You said you were on PPI's in the beginning. Did you get rebound acid when you quit taking them? I've been hearing a lot about that lately and it scares me. But I don't want to be on the meds any longer than I have to be on them.

You've had it on and off for 10 years? How long have you gone without any symptoms?

drtinsac
Regular Member


Date Joined Apr 2012
Total Posts : 458
   Posted 7/27/2012 6:32 PM (GMT -7)   
Dr. Kaufman recently wrote a paper showing that high PH (alkaline) water helped with LPR. I think the PH was 8. something. It is supposed to instantly deactivate pepsin which is believed to be a major cause of the throat irritation.

I tried drinking water with a bit (1/2 tsp or so) of baking soda in it this morning, it was not unpleasant, and as far as I know has no real negatives so I will probably continue to do that between meals. It seems it could only help.

As for gum chewing, it increases saliva production which has a PH higher than acid, so it makes sense that it offers relief. For me, where my main symptom off of PPIs was a tight throat and having to swallow, it did not seem to help much, it did cause more saliva but that just made me want to swallow more. Maybe I didn't give it long enough.

Angela75
Regular Member


Date Joined Jul 2012
Total Posts : 29
   Posted 7/27/2012 8:13 PM (GMT -7)   
drtinsac - do you have a link to that paper? I tried googling it, but am coming up short :(

drtinsac
Regular Member


Date Joined Apr 2012
Total Posts : 458
   Posted 7/27/2012 8:47 PM (GMT -7)   

drtinsac
Regular Member


Date Joined Apr 2012
Total Posts : 458
   Posted 7/27/2012 8:49 PM (GMT -7)   
Hah well after seeing it again, it did not actually suggest it helped with LPR but suggested it could. I have read so many papers recently I must have been confused. But it did show that the ph 8.8 water instantly deactivated pepsin.

Angela75
Regular Member


Date Joined Jul 2012
Total Posts : 29
   Posted 7/28/2012 6:41 AM (GMT -7)   
Thank you! It sounds promising and at this point, I will try anything!

mztx07
New Member


Date Joined Jul 2012
Total Posts : 4
   Posted 7/28/2012 9:18 AM (GMT -7)   
Angela 75 - I have taken PPIs for two fairly lengthy periods of time while having LPR. I did not notice a rebound effect when stopping but I know that a lot of people do mention it. Also, I mentioned that I have been dealing with this for 10 years. In that time period, I have only had two severe episodes that dragged on for months. The rest of the time I have felt fine except for a few days here and there where I will notice my voice to become fatigued if I talk to much or too loud. Once in awhile, I will notice that one side of my throat feels irritated more than the other side, and this even switches back and forth from side to side throughout the day, but these symptoms seem to come and go and have not drug on for months as was the case with more more severe episodes. I do believe stress has something to do with it. Also, stress raises the acidity level in your body from what I have read, so it makes sense that it could produce these types of symptoms. Do you do yoga or meditation? I have really tried to incorporate some type of calming pracitice into my daily routine and I think I feel better overall when I do that. I am into running, lifting weights and biking as well, but the yoga seems to be a much more calming even though I feel like I should do the other things for cardio and strength building.

mp24
New Member


Date Joined Oct 2012
Total Posts : 1
   Posted 10/2/2012 7:30 PM (GMT -7)   
Hello, new to this board, but not LPR. I have lived with LPR for almost 2 years now. It started as some minor to moderate chest pains and lots of excess gas; no issues with the throat at the time. Went to family doctor who subscribed me Dexilant. After a month I felt much better, so the doctor took me off the Dexilant and put me on Ranitidine (not as strong as Dexilant).

On the second day is when the pressure on my throat was so intense, I had a hard time breathing. The acid in my stomach had been suppressed for a month, and was now released. The doctor put me back on Dexilant and sent me to a Gastroenterologist, who did an upper GI scope and found some irritation of the stomach lining, but nothing else. The Gastroenterologist put me on carafate liquid for three months, but I only lasted 2 months; it caused too much gas. So I was subscribed Dexilant again.

At this point my main symptoms were pressure on the throat, excessive mucus, and gas. The Dexilant was not treating these issues, so I started hitting the internet for relief. I tried ACV, which did help a little, many other PPIs, and even parasite cleanse, but not much relief. I had a hard time figuring out what foods and drinks made the issues worse, it really did not seem to matter much.

Like many of the posts I have seen on LPR, I had my good days and bad days; more bad then good. I had anxiety issues and depression thinking I would have to live with this forever. Then I came across a post on this website about two months ago that has made a big difference in my lpr.

The post talked about a doctor named Chris Kresser and his theory on GERD/Heartburn, and how it had really helped with his LPR. His website is chriskresser.com. I will not go into detail about his theory, go to his site and check it out; it is worth the read. Since he believes the issue is too little acid in the stomach, he believes years of PPIs can cause damage. This is what I believe caused my issues; reducing the acid in my stomach for over a year. He has four recommendations to get our stomachs working properly again.

First, start a very low carb diet. This actually made the most difference for me, I could tell a big difference after two days. Next take HCL with pepsin. Actually, I did this for about two weeks and stated getting a sore throat; I stopped the HCL and now the throat feels better, I guess I have enough acid in my stomach now. Also, take probiotics, he suggests kefir. I drink kefir I buy at store and yogurt. Lastly, take DGL sugarless tablets.

After about 2 months on this program, I am 90 to 95% better. I wish I could say I was 100% better, but I still notice some throat pressure and mucus several times a day, but not nearly as bad as before. I feel like it does not totally run my life now and I am not always thinking about it. Hopefully,
I will continue to improve and can report that at a later date.

kevinla
Regular Member


Date Joined Dec 2005
Total Posts : 151
   Posted 10/10/2012 7:34 AM (GMT -7)   
jacket923:

Did you ever have a metallic funny taste in your mouth.

That can be from PND as well as reflux.

Yolee
Regular Member


Date Joined Sep 2012
Total Posts : 127
   Posted 10/10/2012 12:14 PM (GMT -7)   
Hi jack,
I wanted to ask if you ever had a lot of throat clearing after you ate, or chest pain. My reflux doesn't seem bad at night and feel pretty good in the mornings as well but as soon as I eat the symptoms come on sore throat, mucus in the throat causing me to clear it a lot and my voice breaks a lot. Just curious if those symptoms you felt before you figured this out
Thanks
Take care always!
Yolee

solarboxfish
New Member


Date Joined Oct 2012
Total Posts : 2
   Posted 10/11/2012 1:11 AM (GMT -7)   
I haven't been reading these posts for a few months and am impressed with all the new information available on LPR. I'd like to add my story to the mix.

Two months ago I was about ready to undergo testing ahead of the LINX procedure. Nothing else I tried, including high dose PPIs, had helped me. I'd experienced chronic and distracting throat soreness over two years despite altering my diet in various ways, loosing weight rapidly and following the advice of my ENT, GI and then a naturopath and acupuncturist. I called two of the LINX implant centers and asked about the success rate for LPR sufferers. The responses seemed vague and somewhat uninformed about what LPR means/is. So, before committing to surgery I decided to pursue one more "natural" approach to healing.

My choice was a "gallbladder/liver cleanse" at the Annapurna Inn in Port Townsend, WA. This was a real commitment and leap of faith. I felt so alone and in pain at this point - I had become seriously depressed.

I can't speak to the science of my healing. All I can say is that I feel SO SO much better. It took a couple of weeks after I had left the Inn and continued with the alkalizing diet before the benefits completely materialized - but my throat is very much happier now. At a recent check up, my ENT reexamined my larynx and saw only a very minor amount of swelling.

Many people will be reluctant to commit to a vegan diet but it - and the cleanse itself - have been absolutely worth it to me. At last it seems my body knows what to do - to heal whatever it was - a nerve, a nutritional deficit, who knows. In the past I couldn't imagine life without meat and dairy, but I'm discovering that there's an equally rich and satisfying world of delicious "alkalizing" food out there. My health has tipped in such a positive direction that I'm able to eat complex carbohydrates again without discomfort. Low sugar citrus is no longer a problem either. I'm not willing to indulge in a glass of beer or wine - the memory of discomfort related to those is still too fresh to chance it.

I hope each of us finds the answer that is right for us!

dany1982
Regular Member


Date Joined Jan 2012
Total Posts : 158
   Posted 10/11/2012 8:03 AM (GMT -7)   
so, what do you eat? can you please give us an example of a daily menu. I'm desperate as I've tried everything.

solarboxfish
New Member


Date Joined Oct 2012
Total Posts : 2
   Posted 10/11/2012 10:30 PM (GMT -7)   
Dany, I hope my response is useful. Working through LPR seems to take a lot of effort for most of us!

I'm reluctant to suggest you take up my diet abruptly - it includes foods that are acidic going down and may cause discomfort or even exacerbate problems if you're not ready for them. I consume things like lemons, grapefruit, avocados and tomatoes regularly because, as a result of metabolism, they're actually alkalizing (healing) to the body. It would be important to find out whether any meds you are taking would interfere with this process or vice versa.

My basic meal plan is lots of water and lots of SATISFYING salads.

I try to drink a gallon water a day - with any chlorine filtered out. I add a little baking soda to the portion I drink between meals and apple cider vinegar or lemons to the water I drink near mealtime, or add those things to the meal itself.

My favorite (and admittedly a little unusual) breakfast is 3 applies cored and sliced into a blender with some cold water and a few ice cubes, a half lemon and about 3-4 T of coconut oil, some stevia and a sprinkle each of cinnamon and sea salt. I work full time and have 2 teenagers, so this goes into a juice jar and I take it with me. The combination probably sounds crazy but I've grown to love it. I have one of the more powerful blenders but any blender would probably work if you made the batches small enough.

Lunch and, in the first month, often dinner: A big salad. It's satisfying because I nearly always include a large half or more of avocado, lots of seeds (Hemp Hearts are super delicious in a salad and extremely healthy - available through Amazon) or chia, pumpkin, tamari sunflower, brewer's yeast and tomatoes - whatever non-starchy veggies that are available and fun. I use pre-washed greens and packaged sprouts (all kinds) so these salads take about five minutes to make. I excuse the expense since I no longer purchase alcohol, lattes, ice cream or other acidifying indulgences. Sometimes I add cucumber or raw grated beets. There are no rules except to consume lots of fresh, healing veggies plus seeds or soaked nuts. Make whatever combo you like - concoct and consume a delicious, colorful work of art. Your body deserves nothing less! I also eat a reasonable amount of non-GMO soybean products (tofu especially) too because they're alkalizing.

As a first step, I would search an online bookstore for "alkaline" and raw food diets and read the reviews to help select some references. At the beginning a lot of raw veggies is really important. I'm cautiously increasing the amount of cooked food these days. I also think that focusing on gallbladder/liver health helps maximize the benefits of an alkalizing/mostly vegan diet - for example colon hydrotherapy and a gallbladder/liver cleanse. Most naturopathic doctors can speak to these and how gallbladder/liver health and reflux are part of a continuum. The more effort you can devote to the transition phase the better - ideally find a naturopath, raw food chef, healing center like the Annapurna or other coach to help take care of you for a week or two and guide you through cleansing and transitioning to unfamiliar vegan foods and recipes.

If you are in a major urban area, there is probably a network of local people who can help you. In any case, let me know if you would like more specific book and recipe recommendations etc.

Yolee
Regular Member


Date Joined Sep 2012
Total Posts : 127
   Posted 10/16/2012 7:48 AM (GMT -7)   
Hi solorboxfish! Thanks for sharing you story I think a lot if us are willing to try anything. What were your symptoms before the diet was it just the sore throat, and did it get worse with some foods?
Thanks
Take care always!
Yolee

dany1982
Regular Member


Date Joined Jan 2012
Total Posts : 158
   Posted 10/16/2012 12:57 PM (GMT -7)   
wow I would never be able to tolerate fresh fruits and veggies. Did you have any stomach problems? I'm also having a lot of stomach burning, nausea and fullness.

biancamcc
New Member


Date Joined Oct 2012
Total Posts : 12
   Posted 11/30/2012 5:46 PM (GMT -7)   
Jaquet . I think I have a nerve damage just like u too. I would like to talk to you about this. I have an app with doctor Jamie koufman next week , she suspect I have LPR caused by a nerve damage. how you are now?

kevinla
Regular Member


Date Joined Dec 2005
Total Posts : 151
   Posted 12/1/2012 12:44 AM (GMT -7)   
biancamcc said...
Jaquet . I think I have a nerve damage just like u too. I would like to talk to you about this. I have an app with doctor Jamie koufman next week , she suspect I have LPR caused by a nerve damage. how you are now?


I might have nerve damage.

Did the doctor stick the tube camera up your nose and down your throat?

What did she see?

Was there ant damage to the vocal cords?

belljar1995
Regular Member


Date Joined Dec 2011
Total Posts : 93
   Posted 12/1/2012 7:14 AM (GMT -7)   
This is very interesting. I too tend to feel MUCH better in the am with little throat pain or chest pressure. These symptoms worsen during the day. However, it is also my understanding that many LPR sufferers and some normal GERD sufferers are upright refluxers vs supine refluxers. Apparently upright reflux tends to cause the more atypical symptoms, whereas supine causes your more typical burning heartburn.

If one is an upright reflux person, then it would make sense that 8 hours of limited reflux lying down, would be very healing. I know that when I begin to get chest and throat gurgles, if I immediately lie down flat--they disapear immediately.

That said, I do think that this is interesting and it would not surprise me if nerve issues were implicated. Jamie Koufman told me at an appt. that the vagus nerve is very much involved in many cases of GERD and can really wreck havoc with additional and often frightening symptoms that impact the respiratory, GI and cardiac areas.

TheSiXness
Veteran Member


Date Joined May 2012
Total Posts : 541
   Posted 12/1/2012 8:43 PM (GMT -7)   
Yeah, I've tried this, but I got worse reflux from the elavil. I suppose this wont help you if you have acid in your nostril/sinus constantly.

kraftpaper
New Member


Date Joined Jul 2011
Total Posts : 6
   Posted 12/16/2012 7:51 AM (GMT -7)   
I'd like to hear more about your situation, mp4. Did you stop taking the PPI when you went on the low-carb diet? And how are you feeling now? Thanks for sharing your experience.

LPRINNY
New Member


Date Joined Feb 2013
Total Posts : 2
   Posted 2/12/2013 3:19 PM (GMT -7)   
Hi this is a very interesting thread. I to Have been Diagnosed with LPR 5 days ago. I was hoarse for about 3 weeks and fatigue the first 3 days. I never ever had the heartburn no nasty taste when I wake up no burning throat, Etc. Just have the hoarseness and sometimes my throat feels cloudy like stuffy. I am so confused and don't know what to think.. And then a friend just reminded me I use to do alot of different lung excersises. and was going a little to hard with it. And He remembered me saying and i do to that i feel like i pulled something I am just trying to put everything together. So weird

luci55
New Member


Date Joined Feb 2013
Total Posts : 1
   Posted 2/25/2013 12:01 PM (GMT -7)   
I'm new here too and wow, really interesting thread. I've been suffering from LPR for about 4 months now (though when I look back I recall having mild symptoms on and off for a few years). My main symptom is a hoarse voice and a tight/dry/constricted feeling in my throat. No sign of heartburn and only very rare reflux. I can deal with the discomfort but the voice issues are really getting me down. It's getting to the point where I'm losing confidence talking in public, I just hate it. ENT endoscopy showed that I had acid-related inflammation around my vocal chords and inflamed adenoids causing a post nasal drip (for some reason I still have mine even though I'm 27)

There seems to be so much contradictory info on the web about LPR and acid reflux in general, so I've found this thread really helpful.

VERY interested in what Jacket said about his LPR being nerve related and taking anti-depressents to fix it. The reason I find it so interesting, is that I actually think my LPR symptoms are STRESS RELATED. I don't think stress necessarily caused my LPR, (I can see links in my life to acid-reflux causes) but stress certainly makes it a lot worse and also I find if I'm having a "bad voice day" doing something relaxing (going to a movie with friends, having a facial, whatever...) often results in my voice getting much better. When I told my ENT this she just sort of looked at me funny, like I might be imagining it... so I'm not too sure how to proceed. I feel as though if I could get my nerves/muscles in my throat to calm down a bit then I would be so much better.

The ENT gave me flonase for the post nasal drip and a 40mg PPI for the acid reflux, I havn't been taking them for long enough to notice too much difference, although I feel like the flonase may be making my voice worse. My doctor wasn't too fussed about me going on a low acid diet as she said the triggers are so variable from person to person it's better to just take note of what I last ate when it gets worse. But I'm going to go on the low acid diet anyway and gradually add in foods as tests - as many of you here are doing. Anything to get my voice back!

I'm really keen to learn if anyone here has tried and had success with any natural remedies for LPR (in addition to the bi-carb in water thing). I saw that slippery elm and licorice supplements as well marshmallow root tea can help, but I really don't know what to believe online anymore. I'm also thinking of trying acupuncture, which I read might help with acid-reflux but if anything it might help control stress levels (not that I'm super stressed, just day to day stress mostly). Has anyone tried any of these?

LPR seems to be one of those annoying, finicky conditions which is really hard to pin down causes and remedies for, and which seems to be so variable! Any experiences with stress and LPR or natural remedies for LPR would be much appreciated!

Tania1
New Member


Date Joined Feb 2013
Total Posts : 19
   Posted 2/25/2013 12:46 PM (GMT -7)   
Hi, luci, I am 47 years old woman and I have never had any serious health problems. There are too many complications and speculations about acid reflux. I was diagnosed with GERD two months ago (now I understand that I probably have a LPR (or silent reflux) - I don't have a heartburn AT ALL) ENT doctor checked my throat with a camera, said that I am healthy and send me back to my family doctor.
My family doctor put me on Ranitidine 4 weeks and now I am taking Pantoprazole (40 mg once a day). I'm third week now of Pantoprazole. I did some research and bought Dropping Acid: The Reflux Diet Cookbook & Cure. I am following dr. Kaufman's instructions and doing induction diet second week. I don't feel better.

I am desperate now and don't know who to listen to and what to do. I'm in the stress of all this treatment and also because I don't see any improvements from all my efforts.
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