Time Heals LPR

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sk55
Regular Member


Date Joined Jun 2011
Total Posts : 225
   Posted 8/12/2011 10:00 AM (GMT -6)   
Hi guys,

I wanted to do a positive status update. Almost 2 months on strong PPI and strict diet.
I feel I made a lot of progress even though it seems really slow.
I seem to have major flare ups in check. All I feel now is minor symptoms.

It still mentally hard to be sick so long, but i have faith.

Don’t need to clear my throat, no mucous issues, no difficulty swallowing foods, throat sticking, etc.

I figure another 2-4 months this could be completely healed? I am hopeful.

Here are some tips that might help some of you:

Food log is essential… no other way u can track progress… helps you walk the straight and narrow.

I try to never eat bad food even though I feel like I am fine, I won’t deviate from the bland diet till I am healed. Minimal fats and oils. (which is almost zero for me)

Eat like a bird, frequent and small (still working on this kind of of tough)

Always be positive and don’t get stressed. I think there is a strong mental component to curing LPR.

Always be careful with new foods, assume they can hurt you. Test small portions first.

Restaurants. I pre-eat before I hang out. That way I am not compelled to eat something that might harm me. I am also able to enjoy the company of my friends.

Fiji water—seems to be the most alkaline water PH 7.8 (normal Tap water PH 6.8)
I wish every one a good weekend and to get better soon!

Be aware that gastro issues can give u food allergies that you normally wouldn't have. Right now milk seems to bother me, so i am avoiding it.

I avoid all acidic foods for now (vinegar, tomato sauce, lemon juice., orange juice) PPI handle acid in your stomach. You need to handle acid intake from foods.

Sleep on your LEFT Side. Like on your left arm. Not slightly on your stomach. If you check where the stomach lies its on the left side of the body. Sleeping on the left side its harder for reflux to occur. I have located studies which seem to prove this. It seems to work for me. I brace myself on a wedge pillow and i don't seem to reflux at night anymore.



My main idea is too minimize all potential for LES irritation. If i can accomplish this the LES will heal. Less symptoms = more healing. More symptoms = more LES irritation thus leading to longer sickness.





I hope everyone has a good weekend!

-Jesse

Post Edited (sk55) : 8/12/2011 9:05:57 AM (GMT-6)


Chuck T
Regular Member


Date Joined May 2011
Total Posts : 143
   Posted 8/12/2011 6:25 PM (GMT -6)   
Good positive post. i know many LPR sufferers are looking for posts like this. My throat issues have calmed down 95% as well when im on meds. Only problem is ive been getting some lower abdominal pain lately. Trying to cut out gluten to see if it helps, even though I didnt test positive for celiac.

sk55
Regular Member


Date Joined Jun 2011
Total Posts : 225
   Posted 8/12/2011 7:28 PM (GMT -6)   
Chuck T,

Thats great news about your throat.

what do you typically eat now-a-days?


I had to cut back on bread lately too, i feel a little strange eating it lately. I been eating soo much bread these days maybe my body developed sensitivity too it..

Its still way better than having throat pain.


-Jesse

KatherineG
Regular Member


Date Joined Jun 2011
Total Posts : 96
   Posted 8/13/2011 10:47 AM (GMT -6)   
Nice post Jesse. I've been on PPIs since June but was only put on the extra high dose in early August (80 mg PPI/day plus Zantac at night). I've been incorporating lots of lifestyle changes too, we are doing many similar things. It's all hard but definitely seems to help. I was sick for a long time before being diagnosed. I think I'm having the hardest time right now staying positive. I agree with your point that state of mind is important for this chronic condition (and others too). It's good to see a positive post about LPR. I'm happy to hear that you are improving.

I'm improving too but it is slow, as you know.

ChuckT,

I'm glad to hear your throat has improved.

KatherineG

sk55
Regular Member


Date Joined Jun 2011
Total Posts : 225
   Posted 8/14/2011 11:18 AM (GMT -6)   
Hi Katherine,

It’s always motivating to hear someone else who is following similar treatments is doing well. It helps me stay the course on my own actions.

Reading Miketx positive post in the past about curing his LPR, was really inspiring. He was essentially doing the same thing as us.

It seems logical if we do the same thing,we follow the same treatment and get better month to month then we shall be cured as well.

I think the absolutely wrong thing to do is think/talk negative thoughts about the problem; it will give the problem more power over your life. It prevents you from moving forward.

In the earlier days I kept falling off my diet many times and the setbacks were really depressing. Once I got the hang on things like months later, these setbacks have been less and less disastrous.

Stay positive, that’s 3 of us LPR suffers (4 if count miketx who is cured) who seem to be making progress toward full recovery. I believe it’s just a matter of time and EFFORT.

-Jesse.

KatherineG
Regular Member


Date Joined Jun 2011
Total Posts : 96
   Posted 8/14/2011 4:46 PM (GMT -6)   
Well, you have a great attitude, Jesse. I'll be sure to think of your post when I'm having a bad day!

KatherineG

lprcanbebeat
New Member


Date Joined Aug 2011
Total Posts : 12
   Posted 8/16/2011 3:04 PM (GMT -6)   
Hey Jesse,

It's very comforting to hear about your progress, so thank you for sharing that with us. You mentioned that LPR has a strong mental component, and I could not agree with you more. I was diagnosed with GERD/LPR in 2008, and after a long run with PPI's, I was able to get it under control and was symptom free for two years because I told myself that I did not have this condition! Unfortunately, I started suffering from constant throat clearing again recently and am on 60 mg of Prevacid a day.

I just quit smoking and was wondering if the stress of the withdrawal could have brought on my reflux again? Also, is it safe to say that I don't have a problem with my UES or LES because I had no symptoms for so long?

Thanks,

Masha

sk55
Regular Member


Date Joined Jun 2011
Total Posts : 225
   Posted 8/16/2011 10:00 PM (GMT -6)   
Hi masha

My gi doc told me once you have reflux your les has a weakness so it can happen again. So say something stressful happens or you eat the wrong foods I believe it can reoccur.

I was very stressed out and eating all the wrong foods when I got lpr.

Regarding question about your les it's hard to tell. What you should do is a therapeutic trial of 2x daily ppi and follow the gerd diet for 3 months. Stay away from acidic foods or drinks.

If all is good with your les you should your symptoms diminishing every month till your finally cured.

If your not then you should do the usual tests.


If you need more specific tips about food or what to do feel free to ask.

I agree with your comments about positive thoughts however I believe we must always be careful of our diet and stress. If lpr happens once. I am sure it can happen again.


Jesse

sk55
Regular Member


Date Joined Jun 2011
Total Posts : 225
   Posted 8/16/2011 10:06 PM (GMT -6)   
Oh I forgot to ask how long have you had the symptoms? A little more detail on how it started would be helpful.

lprcanbebeat
New Member


Date Joined Aug 2011
Total Posts : 12
   Posted 8/17/2011 4:06 PM (GMT -6)   
Hey Jesse,

Thanks so much for your reply. My symptoms first started in late 2008, with the first of them presenting as if I had a long strand of hair in my throat. The next thing I knew, I had swallowing difficulty. To make a long story short, I took prilosec for 14 days and all my symptoms went away. However, about a week later, I was hit with the same symptoms and then switched to prevacid for roughly three months. This proved to be successful, as I did not have another LPR symptom for two years, until about a month ago.

lpr2012
New Member


Date Joined Dec 2012
Total Posts : 1
   Posted 12/11/2012 12:21 AM (GMT -6)   
Hi guys,

looking for some new info on progress people are making with this condition. I developed this condition earlier in the year even though diagnosis was made months later. It really was a silent reflux, as I had no symptoms of the normal reflux burning, but noticed my throat becoming red gradually and it used to feel uncomfortable esp. after eating dark choc., following that even coffee made me feel sick etc, but it all got worse with stress and I watched myself gradually developing this... had to see a throat specialist who then diagnosed LPR and said that it is becoming very common nowadays. Anyways, I am looking into alternative ways of treatment, as I am very aware of the side effects esp long term. Adjusting my diet too, I am only hoping that I will be able to stay positive and hope for future recovery, which brings me to my question to you out there "Have any of you been able to bring this under complete control, cure it etc? The posts on these forums seem to start on a problem and then don't really continue to see how it ended." Would like to hear from you. Thanks

vikasrim
Regular Member


Date Joined Jun 2013
Total Posts : 21
   Posted 7/12/2013 11:56 PM (GMT -6)   
hi sk55 hw r u nw r u lpr free no voice problem

sk55
Regular Member


Date Joined Jun 2011
Total Posts : 225
   Posted 11/8/2013 6:06 PM (GMT -6)   
Hi everyone.

Finally going to update this thread, so it can help anyone that reads it.

went to ENT a few days ago and finally my throat looks normal!
I still have neurogenic symptoms, hopefully they will go away too in time.

i finally figure out what was the main cause of LPR, drinking too much water gave me symptoms.. after i controlled how much water i was drinking, how much food i was eating trying to stay 50-75% full. seemed to heal my throat.

i scaled down all my PPI just taking 20 pecid in am, 10 mg pepcid in pm.

In addition to meds, diet really (prob more then the meds) is important when healing LPR. i started skipping lunch and that seemed to help alot.

the diets i used were the SCD Diet, Paleo and Low acid per jamie koufman dropping acid book. Each of these diets are covered by books on amazon. so its better if one just reads them to get an idea of how it cures gut problems.

LPR can be cured, i know people who have done it and you can too.

i will update this thread as i make more progress.

here are the meds i took for the neuropathic pain which seemed to help.
Talk to a doctor before trying any meds, i am not a doctor so consult one before trying any listed meds. Definitely can help people with Tough LPR Issues when taken correctly.

elavil 20-50mg
lyrica 150mg or (gabapentin)
xanax .5 mg -- there was evidence that on the internet that it helps with certain types of reflux.

You need to goto a neurogolist or psychaitrist to get the meds listed above if your ENT wont prescribe it.

How does one know if they're making progress? month to month your symptomps should be slowly improving, if they're not your prob doing something wrong. like eating wrong foods or eating too late.

I hope this post is helpful for all those who suffer from LPR.

Jesse

corgislover
Regular Member


Date Joined Oct 2013
Total Posts : 22
   Posted 11/12/2013 9:37 AM (GMT -6)   
What's the SCD diet? Did you ever try the Fast Track diet? Your post is very interesting and gives hope. I believe diet is the answer. PPIs do nothing for me. Drinking less water is interesting too. I'll give that a try. And skipping lunch. I was thinking about 16 hour fast (eating meals during other 8 hours). So seem to be on a similar track. Thanks Jesse.

sk55
Regular Member


Date Joined Jun 2011
Total Posts : 225
   Posted 11/14/2013 1:53 PM (GMT -6)   
the fast track diet is based on the SCD, although norm doesn't give it the credit it deserves. goto amazon search for breaking the vicious cycle. its better to read the whole book to understand.

i read the fast track,scd, fodmap, jamie k book and kind of customized my own diet too it.

just be careful about overeating after fasting. you should always try to keep the stomach like 50% full i believe it gives the LES chance to tighten up and heal.

the trick to beating LPR, is try a diet for 2 to 3 months, if there no change try another diet.
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