Nissen fundoplication so many questions

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Aug25myturn
Regular Member


Date Joined Aug 2011
Total Posts : 30
   Posted 8/12/2011 10:30 PM (GMT -6)   
I have had been dealing with stuff for years. My doctors
said it's time for surgery. I have been in chronic pain
for a long time: chest pain, mouth sores, spasms, throat
is so dry nothing helps, medication changed FIVE times,
stomach issues, burning in chest, feeling like something
is stuck in my throat, feeling sick to my stomach, and I
think I probably forgot some things....It's been horrible
for almost two years, but the last year has been horrific.
 
Esophagitis, gastristis, mucosa is being eaten away,
inflammed esophagus lining, shortness of breath a lot,
and tummy trouble always. Thankfully to God there is
no cancer cells, or abnormal cells.
Just lots of pain and suffering daily and nothing seems to
help. I can hardly eat and when I do...soft or liquids.
I can't do this anymore.
 
I have had all the tests to prepare: throat scope, upper
GI, and that test they could replace water boarding with
where they stick that prickly thing to measure pressure of
the esphogaus when you drink something. They said part
of my problem with the test was from:Hyper-reflex gag
syndrome. I gagged, and gagged, and gagged,
and gagged.... it was horrible.  I hurt for several days.
So now, about ten days from now...I go in.
I have NO idea what to expect.
 
Doctor told me I have every symptom and was amazed
I lasted as long as I did.  I lost weight to see if it would
help. I changed my diet to see if it would help. I adjusted
my life to see if it would help. Guess what?
Nothing helped.  I am now almost 60 pounds less, and I
am still dropping. The last 20 are because I can't hardly
eat, and I am living on smoothies (bananas, strawberries,
ice) Sometimes I splurge and eat real food, but only rare
times. Applesauce, soft foods rule.
 
I am concerned about the surgery, afterwards, the pain,
the inability to eat, gas, etc.
 
What is day one like? Day two? Day three? How weak will
I be? Will I sleep a lot the first few days? How long in the
Hospital?
Thanks for helping me...
 
I can't take many pain medications because of my senstive
tummy.
 
How bad is it going to be? How starved do we feel?
Because lately, I am always starving, and unable to eat.
 

kyheart
Veteran Member


Date Joined Apr 2011
Total Posts : 515
   Posted 8/13/2011 8:44 AM (GMT -6)   
Please look on page 2 or 3 of this forum and find this post by Dencha....My Recovery Journal from 2/09 Nissen.. she gives and accurate and detailed account of her recovery from right before surgery and on.

if you are having the lap Nissen done you will be in the hospital from 1-3 days. a few days longer if it is the open one. cool

I can tell you that before the surgery I was miserable and after the surgery I have been better than I have ever been.. there are restrictions, but none that would deter me from having this done again if it was necessary...... as far as starving, the first several days you will not feel like eating very much and you will not be able to eat an amount equal to what you had been eating.. they use part of your stomach for the wrap. I was frightened too.. I am 62 and I had never had a major surgery of any kind.. and the things I had read were less than encouraging.. but I came here and I began to lurk around and read the post and I found out that ... yes there is some pain.. it's surgery for goodness sake.. but, the benefits out weigh the issues.. I haven't taken a Nexium since the morning of my surgery.. I can sleep on my back and most importantly.. NO REFLUX!!! I had asthma for years that turned out to be reflux induced.. there are so many things that I felt that had other explanations that are now gone.. they were caused by the reflux and Hiatal Hernia I had.. I have been fortunate.. some say that for a day or so after surgery they still have a hint of reflux but then it goes away...
the most important part of the Nissen is the surgeon.. a well qualified surgeon makes all the difference in the world.. my surgeon had performed a thousand or more of these in his 36 year career as a surgeon.. and the next most important part is your diet... full liquids for the 1st 2 weeks.. that is the time in which your wrap is swelling and sometimes it is difficult to swallow anything except liquid.. it can be things like.. cream of wheat, yogurt (as you tolerate it) broth, consomme (my staple in the 1st 2 weeks because it is so rich) I also put beef vegetable soup in the blender and drank it.. it was very good.. you can put most anything you want in the blender.. as long as it is pureed you can have it if your stomach tolerates it.. usually if you ate it before you can eat it then.. once the 3 week mark is reached, you can begin to introduce soft foods like baked or broiled fish and well cooked pasta.. I liked the Alfredo sauces on the pasta instead of spaghetti sauce because the Alfredo doesn't have as much tomato acid.. easier on the tummy... from the beginning you must learn to LET YOUR BODY TELL YOU WHEN TO DO IT AND WHAT TO EAT OR NOT EAT...believe me it will let you know if what you are eating or doing is acceptable..
these are not difficult things to do in recovery, you will feel fairly good by the end of the 2nd week and you will lose some weight simply because you cannot eat as much in the beginning...

For a more detailed account please find the thread I mentioned at the beginning.. Dencha is a veteran member and a great person... she is one of the many wonderful people here who will help support you through your surgery, recovery and beyond if you wish to stay with us as a part of our wrapped club.. you achieve that status after the surgery....
If you have more questions please let us know and someone will come in and help you.. or at time several of us will come reply to give you several view points.. welcome to the forum.. please stay with us...
SANDI turn

Post Edited (kyheart) : 8/13/2011 7:49:40 AM (GMT-6)


opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 8/13/2011 12:18 PM (GMT -6)   
Aug25myturn-
Welcome to Healingwell. Sandi has given a great account and I too recomend reading Denise's postings. She did a great job.My personal experience has been 3 days at hospital both times. Usually an upper GI to check for leaks and function of the wrap. some doctors will put in an NG for the first day/night. I had it with my first, but not the second one. My next one will be open, so I expect to stay 5 to 7 days this time.
You will be quite worn out for few days. I really didn't have an ure to eat after mine, but my wife made me.I was told to eat soft foods and after my follow up I could start adding in regular food as my body would tolerate. Don't eat solid meat or soft breads for a couple months at least. They will give you trouble, getting stuck at the wrap. Toast is alt easier to get down though.

Take care,

Bill devil
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 soon I hope

Aug25myturn
Regular Member


Date Joined Aug 2011
Total Posts : 30
   Posted 8/13/2011 8:28 PM (GMT -6)   
I am trying to find the Journal to see what she says. My Hiatal Hernia has caused so many problems for me. It's been very difficult this past year.
I'd like to see her journals before, during and after. I got my letter from the doctor for the pre-surgery things, and my list of after surgery.
It just doesn't feel real yet. August 25th is the day. I am weak, and tired. I hardly eat anything because everything causes problems for me.
Can you link that thread for her Journal to me?

kyheart
Veteran Member


Date Joined Apr 2011
Total Posts : 515
   Posted 8/13/2011 8:41 PM (GMT -6)   
I hope this works... will try something else if you cannot find it from this.. let us know..

http://www.healingwell.com/community/default.aspx?f=45&m=2183443

copy and paste this and you should be able to see it

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 8/13/2011 9:01 PM (GMT -6)   
Hi Aug25myturn,

Welcome to Healing Well! You are DEFINITELY in the right place. The feelings you're having right now are the same feelings we all had facing surgery. I was fortunate enough to have found this forum before my surgery (February 2009), and the good people here helped me so much that I decided to stick around and help others the way I was helped.

The link to the re-posting of my first days after my surgery is here:
www.healingwell.com/community/default.aspx?f=45&m=2183443

Like you, (although I came with different symptoms) I waited far too long, and only decided to have the surgery when I got to the end of my rope. My doctor told me that my condition was life-threatening, and that I needed to try the surgery. My issue was lung related, as you will see if you read my thread.

I hope that you'll get a good idea of what to expect when you read it. There are many here who can share their experiences and provide you with lots of support and information. You're in a good place!

Hey, you're getting wrapped on my anniversary! Good luck to you. Hope you stick around and ask whatever questions you have. There are a lot of very caring members here.

Take care,
Denise

Aug25myturn
Regular Member


Date Joined Aug 2011
Total Posts : 30
   Posted 8/13/2011 9:17 PM (GMT -6)   
Thank you everyone. I was able to copy and paste the link. I just finished reading, and responded to Denise. I must say, I am surprised at many things I read. I guess I didn't realize things would be different for a long time after the surgery.
I know for many years now, they've been different anyway because of what I am enduring each day.
I did wait way too long. I just have many things going on, and the cost of medical care was a big aspect of my delay. I cannot delay anymore.
I don't think my husband realizes what changes I am about to go through again.
I think the swallowing part scares me most. What if I can't? What if I puke because after surgery, I usually do.
I am 51, and normally active and busy. I don't sit well. I don't rest well. Choleric temperament is a good way to define me.
And pain? you can call me a B A B Y. Most Pain medications also make me puke.
Thank GOD I sleep on my right side...so that was a relief to know. I haven't been able to sleep on my left side in a long time. Always made things worse.
I really appreciate everyone taking time to talk to me. I'll try to not be a pest before hand.
This is going to sound dumb....but can you drink Soda now? When I get migraines I drink a can of coke with my Imitrex pill, which I am guessing I won't be able to take after this right? Oh man...that will be bad...
That just hit me. Any suggestions? Migraines are foul in every way.
Blessings,
Gina

kyheart
Veteran Member


Date Joined Apr 2011
Total Posts : 515
   Posted 8/13/2011 9:38 PM (GMT -6)   
Gina
First of all.. you can come here as often as you like and ask all of the questions you have.. no matter what.. most of us have been through exactly what you are going through right now.. some easier some worse.. but we all know what you are going through.. as you think of questions write them down and when you come on here just ask..
one or all of us will have and opinion or experience to answer you with.. yeah yeah
if you are concerned about being sick when you come out of the anesthetic, please tell your doctor of your concerns and they can put a patch on you before you come out from under to keep you from throwing up.. also if the imitrex is a tablet, can it be crushed.. you can take it with pudding or something.. if not there is always a way to get around this issue.. don't worry.. it can be dealt with... as for the pain.. I took pain meds for about 2 1/2 weeks after I got home.. they give you pain meds in your IV in the hospital.. if you get nauseous let your doctor know and he will give you an alternative... you should also ask for anti-nausea medication to take home with you. I carry those with me all the time just in case.. there is always a way around what ever obstacle you encounter... turn
The changes you are about to go through, even though you will have some restrictions, are the good kind of changes... I am 62 and I would go through it again in a heartbeat if necessary.. the 1st 2 weeks are the most difficult to deal with.. the liquid diet and all.. but after that it is all down hill..
Please bring your fears to the forum and we will try to support you and help you understand what is coming and after, what is happening and why.. smurf
Remember to REACH for the Sunshine and the Rainbows will follow...
Sandi yeah yeah yeah yeah

Post Edited (kyheart) : 8/13/2011 8:42:52 PM (GMT-6)


opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 8/14/2011 4:09 AM (GMT -6)   
Gina
I maybe having my wrap repaired very close to your surgery date. i will know for sure on the 22nd.
Definitely let the docs know you get sick after surgery and with pain meds. they have lots of stuff to pprevent it but u have to let them know before u go to the or.
Take care
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 soon I hope

somedaysarediamonds
Regular Member


Date Joined Jul 2011
Total Posts : 363
   Posted 8/14/2011 3:32 PM (GMT -6)   
Hi Gina,

I'm two weeks out from my NF tomorrow morning at 9 am. My reflux is gone and the recovery to this point hasn't been too bad. Better in many ways than I expected and worse in others.

I think maybe the further some people get from their actual days of suffering with GERD the easier it might be to remember their recovery through maybe rose "tinted" glasses. I almost died from a gangrenous gall bladder nearly 17 years ago and the surgery for it was major due to the huge size of my gall bladder. I can tell you this much after 17 years, I remember feeling better because the toxic gall bladder was removed but I don't have much recollection at all of the weeks of recovery that followed. Time has a way of doing that for us.

Only being two weeks out from surgery I cannot attest to many of the real benefits from or obstacles after surgery. I only know my reflux is gone at this point. I hope when the swelling at the wrap site settles down that all is still well and I'm counting on it being that way.

I can tell you this much - if you have any other issues affecting your health or how you feel you may or may not notice much change with those issues. I have sleep apnea and the doctor thought since it was positional sleep apnea that it might get better since I can now sleep on my back and not have acid. Even after surgery I still cannot sleep on my back but now I can't wear my sleep apnea breathing machine (CPAP) due to the swelling in my esophagus and the inflammation there as well as in my nose and sinuses.

Everyone is SO different. I have three friends/personal acquaintances who have been through this surgery and each of them is totally different from the others. Reading here is good and it is helpful in that you'll receive all the encouragement you could ever ask for and the moderators/veteran members really do care a great deal.

That being said, it's good to realize that you are an individual and even though your surgery is done right and you recuperate well, your experience will not be exactly like anyone else's.

Come back and keep the forum posted. And I do wish you the best.
The last little bit before the surgery is the roughest time or at least it was for me.

Take care,
Rita
Don't let the sound of your own wheels drive you crazy. - The Eagles

Lap Nissen Fundoplication August 1, 2011
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