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Susanjane
New Member


Date Joined Aug 2011
Total Posts : 4
   Posted 8/13/2011 8:41 AM (GMT -6)   
Hello everyone!  I have been lurking here for a few weeks and am so glad to be able to find out that there are options for me!!  I have been able to get a ton of information from here! 
 
I had my endoscope a few weeks ago.  There was some damage from the acid, but nothing serious yet.  I was very relieved to hear this!  Doc said I have a small hiatal hernia, but didn't indicate if it was bigger than 2 cm.  I am assuming it was not.  I am scheduled for my 24 hour ph monitor in a few weeks, then the next day I will have the Upper GI.  I am a little nervous about the ph monitor insertion but I know that they will know how to deal with a "gagger", so I am just going to deal with!!  Yesterday I read a post on what will happen when they insert it, so that was VERY helpful!! 
 
My main question right now is, how do I live for 7 days with no acid controller and no tums?????  I can't even imagine this!!!  Any suggestions on how any of you survived this would be GREATLY appreciated!  Perhaps if you changed any eating habits? 
 
THANKS!!!!  

kyheart
Veteran Member


Date Joined Apr 2011
Total Posts : 515
   Posted 8/13/2011 9:08 AM (GMT -6)   
Not to be a smart alec.. but... very carefully... I had a 48 hour Bravo before my surgery and in the 10 days I was off my meds , I slept in the recliner, couldn't lay down due to the reflux.. and I lost some weight, I had no appetite and didn't feel like eating.. but, I made it and it was ok... i guess it must have been about day 5 after the insertion when the capsule let loose and was gone from my esophagus.. I didn't realize it until I didn't feel the very slight raspy feeling when I swallowed. it was hardly more annoying than a very mild sore throat.. just an annoyance that I didn't pay any attention to.
when they inserted the capsule, I didn't know a thing.. no gagging etc.. they put me "to sleep" like they do for an endoscopy it knocks me completely out.

I do not know if this has enlightened you at all, but I hope so.. and you will be fine..
just remember to REACH FOR THE SUNSHINE.....the rainbows follow :-)
SANDI

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 8/13/2011 9:52 PM (GMT -6)   
Hi Susanjane,

We all dread having to stop our PPI's to have those tests. It's just something that has to happen. You're off the PPI's the whole time, but you can take Zantac-type acid reducers for quite a while after that, and Maalox for a while, too. It's just the last couple of days that you are off everything. I know every doc has his/her own protocol, but you will be able to take something other than PPI's for some of the time.

It's just one of those things you'll need to suffer through. It's worth it, though, as you'll get some important information as a result.

As you said, I'm sure they're used to many people with strong gagging reflexes, so don't worry. The wire is a bit noticeable when you swallow, but it's just for 24 hours, and you can handle anything for 24 hours. I've had the test done 3 times, and I'm still here! You will be happy to go the office the next day to get it pulled out, though! It's really not all that bad. Just suck it up and get through it. You can do it!

Good luck! If you have any other questions, just ask away!
Denise

somedaysarediamonds
Regular Member


Date Joined Jul 2011
Total Posts : 363
   Posted 8/14/2011 3:40 PM (GMT -6)   
The 24 hour test with the small tube was a piece of cake. The hour-long one done in hospital with the much larger tube was much more difficult for me since my throat and esophagus were fried and had been for so long.

The testing is so beneficial for so many things as Denise says and it will help your surgeon be able to do the best job possible for you.

I worried about how I would make it to the surgery at all (not just without medication) but when I stopped and thought back to the last three years filled with pain and nausea and sleepless nights I knew I had no choice because just a chance at anything being any better was a positive move for me.

Read a lot. Start a journal. Listen to uplifting/fun music that made you happy before you got sick. Think about or do something for someone who is in worse shape than you might be now and be grateful that you have hope.

I sometimes doesn't seem like it at the time but it really is darkest before the dawn.
I'm very glad I made the decision to have the surgery and I bet you will too.

Best of luck!
Rita
Don't let the sound of your own wheels drive you crazy. - The Eagles

Lap Nissen Fundoplication August 1, 2011

Susanjane
New Member


Date Joined Aug 2011
Total Posts : 4
   Posted 8/14/2011 9:16 PM (GMT -6)   
You guys have helped tremendously!  Although I don't want to have this done, I know it has to be done to see if I need surgery.  I will just deal with it and try to not freak myself out.  LOL!!!  I don't know which one will be worse, being off my medicine for a week or having the wire done???  And you are soooo correct Rita.  I have a friend at work that just found out she has stage 3 breast cancer.  This is a total piece of chocolate cake with chocolate frosting compared to what she is facing.   I will keep that mantra going if I start to feel bad for myself!!  I am just glad that I found this site so that I can have a much better idea of what my options are.  Three months ago I didn't realize I had ANY options!!

kyheart
Veteran Member


Date Joined Apr 2011
Total Posts : 515
   Posted 8/14/2011 9:53 PM (GMT -6)   
Susanjane
I went for 12 years without being told I had any options.. it was like.. deal with it... Boy was I glad I found out differently.. I waited (I was scared)1 1/2 yrs before I decided I wanted my life back... then I researched it and found a great surgeon and found this group and the rest is History...
If you need questions answered please come here and ask.. if you just need to shout or cry or whine about how you feel.. come here.. everyone understands and will support you in any way they can...You aren't being a baby, you are going through something that is altering your way of life... we know....

Reach for the Sunshine.. Rainbows will follow..
Sandi
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