Posted 8/29/2011 9:58 PM (GMT -7)
It has been a while, and I'm still on the GERD wagon (since 2009). Basically, I was on PPIs for the last two years and was having progressively worse eye pain, back pain and hip pain. I just recently went off them and my pain has nearly vanished for the most part, which made be very happy. I didn't realize that PPIs could cause these symptoms. Further, I read up on how hyperplasia of the cells in the stomach occurs with PPIs, so maybe it is better that I am not on them. I tried Apple cider vinegar, and it kind of helps from what I can tell, but not much.
I am trying Zantac again to help me get off the PPIs, even though I had adverse symptoms from it before. My GERD is the worst ever - I have been having strange contractions of the stomach with temporary reflux that usually lead to a run to the bathroom for a movement. My bowels seem very acidic and uncomfortable, so I suspect this is the 'rebound' that everyone talks about. But my back feels great, and the rest of my physical ailments are nearly gone.
I met with new GI doc who basically told me that PPIs cause no adverse problems except headaches and nausea, and that my issues are clearly not from the medication. Why do GI doctors spew this line to people over and over? I can correlate the symptoms nearly 100% with the med. But the doctor refused and gave me a look like I was crazy, so I am off to a new GI next time.
The medications are ruining my life, and the GERD is ruining my life. But it isn't nearly as bad as some of the folks on here, and I respect that. But I can see how in a year or two, it will be that bad. So I am beginning to think about surgery to get off this rollercoaster, but I realize the surgery could make things far worse.
I have no idea how to think about the Nissen or Hill procedures, or whether I should take a shot at the Linx because it is reversible. It seems to me that the Nissen and Hill are not always that successful. The Linx is interesting, but Shooz says he's still on PPIs; I don't have that option, as I am not sure that I could take PPIs long term ever again.
So my plan is to find a GI I am comfortable with, and then consult with a surgeon, but I am fairly lost and nervous about it. Sigh. Where do I go from here? My family is tired of my problems, and I am tired of them too. Thanks for reading this.