Finally turning the corner with fingers crossed. . .

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somedaysarediamonds
Regular Member


Date Joined Jul 2011
Total Posts : 363
   Posted 9/5/2011 11:56 AM (GMT -6)   
Hi Everyone

I keep saying everyone is different and I continue to believe that very strongly. I am, at 65 a 'slow recoverer' and there has been nothing I could do until my body and evidently my mind at the same time were ready to turn the corner together.

I posted a link written by a man who had had an experience I believe my meds sensitive body had experienced as well during my 11 years on Nexium. I never really thought that my anxiety could be connected to Nexium use beginning 11 years ago but now I know it is possible and that at least one person took the time to document it for others who might have experienced it or who are experiencing it now.

http://www.healthboards.com/boards/showthread.php?t=241937

After surgery my surgeon suggested I remain on Nexium due to excess stomach acid. I did so but never really got to where I felt much better. When I read the link about Nexium that I mentioned above I decided to take it every other day for a while and then drop it.

I am not everyone else and don't want to tell anyone what to do but I am better - my anxiety is better - not taking Nexium. I knew this had happened to me with Dexilant but never thought it might also happen with Nexium.

My experience will always be just that; my experience, but I am better. I went to several events including a dance and BBQ dinner at our town's All-School high school reunion and I danced and had a little bit of all the good things served at the dinner and they did not bother my stomach at all.

As a matter of fact I had my first (sorry to be gross) normal, formed bowel movement in over 5 weeks after my NF surgery. I wanted to jump up and down like a little kid and go get my "mommy" and show her. lol

I, once again, am not like other people. I've been through so many medications for GERD contributing to anxiety and anxiety contributing to GERD that the last 11 years were a literal nightmare. It was hard to know what came first; the chicken or the egg but the pre-op testing proved how bad my GERD was and the surgery was necessary and I'm much better for having had it. I couldn't have gone on like I was.

That being said, it left my nerves in shambles. Just even a little bit of reading in the old threads proves there are quite a few people who come down on the side I found myself up unto about a week or so ago.

When we have something like GERD we go as long as we can before seeking surgical intervention and I don't know if that's good or not. I have no idea. I think sometimes we may do the same thing in other areas of our medical health which may be affected by GERD and/or other things going on in our lives such as my sleep apnea, my sinus/nose surgery and the tonsillectomy.

They were all decisions I had to deal with and hope I was making the right one. I took Nexium and all the other PPIs and H2 receptor medications and all the rest suggested by my GI, had the ENT surgery and found myself left with years of "unrest" which had really assaulted my nervous system because none of those meds or procedures did much to help me until I had NF.

All in all, I have found that I need a very small once daily dose of an anxiety med to keep me evened out and I'm doing very well. Once my anxiety leveled out I am fine with the NF surgery.

Anxiety can really impact your GI tract even after surgery to correct GERD and anxiety can slow your recovery from NF. Maybe not for everyone but for some such as myself.

Again, not making any suggestion whatsoever but just letting everyone know where I stand this Labor Day Monday and that it's a whole heckuva lot better than it was even a week ago.

I'll continue eating right, taking my tiny sliver of anxiety med and get on with my life now. I hope everyone here finds the answers they're searching for. It's not easy but GERD does NOT exist in a vacuum. If it did maybe we could all take a pill or have a surgery and we'd all get well at the same pace.

Wish me well as I wish you well and have a great Labor Day!
Rita
PS - The only medication I have to take now is the minuscule amount of the anxiety med. Hardly enough to shake an acid reflux stick at. :)
Falling down is part of life, getting back up is living. -Unknown

Lap Nissen Fundoplication August 1, 2011

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 9/5/2011 12:08 PM (GMT -6)   
Rita,
 
I'm glad to hear that you had a nice time at your reunion, and that you're beginning to feel better.  You are so right that anxiety can do a number on your GI tract and general well-being.
 
Happy Healing! turn
Denise

somedaysarediamonds
Regular Member


Date Joined Jul 2011
Total Posts : 363
   Posted 9/5/2011 12:13 PM (GMT -6)   
Thanks, Denise!
Falling down is part of life, getting back up is living. -Unknown

Lap Nissen Fundoplication August 1, 2011

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 9/5/2011 4:11 PM (GMT -6)   
Rita,
 
I am so happy to hear you have turned a corner.  I know from 29 years of dealing with many medical and mental health issues the connection between the body and mind. Your body responds to the way you think, feel and act. This is often called the “mind/body connection.” When you are stressed, anxious or upset, your body tries to tell you that something isn’t right. For example, high blood pressure or a stomach ulcer might develop after a particularly stressful event, such as the death of a loved one.
 
Relaxation methods, such as meditation, are useful ways to bring your emotions into balance. Meditation is a form of guided thought. It can take many forms. For example, you may do it by exercising, stretching or breathing deeply. Ask your family doctor for advice about relaxation methods.

I have also been down the path of the medications causing me more harm then good.  I have experienced nasty allergic reactions to medications that landed me in the ER and in the hospital when I had such great hopes that "this medication" would help me.  I understand what you are feeling and I think you are on track. 
 
Take care of yourself Rita !  You are making awesome progress.
 
Gentle Hugs,
Kitt
~~Kitt~~
Moderator: GERD/Heartburn and Heart/Cardiovascular Disease.
www.healingwell.com

"If you can't change the world, change your world"

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 9/5/2011 5:24 PM (GMT -6)   
I knew that corner was coming Rita! Well done cracking your GERD "code"! So many good things are on your horizon now - well done!

MMM
New stuff: GERD. Interstitial Cystitis
Lifelong stuff: Food allergies, eczema, asthma

somedaysarediamonds
Regular Member


Date Joined Jul 2011
Total Posts : 363
   Posted 9/5/2011 5:29 PM (GMT -6)   
Thanks, Kitt.

My only issues with any mind-body connected health concerns have been this silly GERD/anxiety stuff. Hubby and I together have documented this whole thing as it has played out in the last 11 years. I'd had GERD for over 30 years. It got really bad 11 years ago and it was "treated" with medications which we now know affected my level of anxiety.

It was hard at first because "at first" the things like Nexium etc actually helped me to a degree but their side effects weren't that well known and the longer I took PPIs the more anxiety I experienced even though it helped the acid at first.

I imagine, just as with the bone density problems, that there will be a PPI-Anxiety connection made eventually. Some of us just figure it out for ourselves sometimes as with the man did whose link I posted.

I am now taking only one medication instead of a list of acid meds a mile long and it is the sliver of an anxiety med once a day that takes the edge off that years of GERD have caused me.

I wasn't as stressed as I was sick and run down from before the surgery. It takes time for all-round healing to take place and hopefully I'm on the way.

Not too shabby for an old 65 year old gal.

Nice to hear from you!
Rita
Falling down is part of life, getting back up is living. -Unknown

Lap Nissen Fundoplication August 1, 2011

Post Edited (halloweenbaby) : 9/5/2011 4:33:05 PM (GMT-6)


couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/5/2011 6:36 PM (GMT -6)   
I'm glad you've reached your turning point. You go, girl!
Joy

davinci817
Regular Member


Date Joined Aug 2011
Total Posts : 119
   Posted 9/5/2011 9:19 PM (GMT -6)   
Rita, I am just thrilled to read this. Just knew it would finally happen for you! Glad you got to enjoy your reunion and other events during this holiday weekend. Keep on the road to recovery.

xoxox

Bethanie

somedaysarediamonds
Regular Member


Date Joined Jul 2011
Total Posts : 363
   Posted 9/6/2011 11:42 AM (GMT -6)   
Eating pretty much anything except for chocolate and milk products and of course steak.

Still very low on energy and very tired early in the morning but I perk up after lunch.

We still can't figure out what causes the early morning palpitations but I am scheduled for a repeat sleep study to see why it only happens in the morning and not after I'm up and running during the day.

I've read about other people who do the same thing but they're hyperventilating. Seems if you hyperventilate you'd do it at some point at other times. I only wake up like this in the morning - not even from naps.

Any ideas would be appreciated. My pulmonologist is at a loss. I think I may trade him in pretty soon if he doesn't get something going.

But as far as the surgery goes I'm doing fine.

Thanks, guys!
Rita

Post Edited (halloweenbaby) : 9/6/2011 2:29:19 PM (GMT-6)


elsiem
Regular Member


Date Joined Jul 2011
Total Posts : 131
   Posted 9/6/2011 4:46 PM (GMT -6)   
Hi Rita

So pleased to read that you have turned the corner. Healing is a process that takes a whole lot of time & patience. Hang in there & keep taking things one day at a time now that you are on the right track.

Hopefully the sleep study will unearth some answers to your morning palpitations & you will be able to move forward to a complete recovery.

Take care

Lynda

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 9/7/2011 10:54 AM (GMT -6)   
Rita, could it be blood pressure related or blood glucose related - both those are low on waking. Just a thought.

MMM x
New stuff: GERD. Interstitial Cystitis
Lifelong stuff: Food allergies, eczema, asthma

somedaysarediamonds
Regular Member


Date Joined Jul 2011
Total Posts : 363
   Posted 9/7/2011 2:48 PM (GMT -6)   
Hi MMM,

I have the BP of a healthy 25 year old. The heart doc was amazed - the new one. The old one was jealous that mine was so much better than his. No heart problems at all.

As far as glucose I guess that would be pretty simple for me to monitor as far as reactive low glucose overnight. My blood sugar levels otherwise are excellent and no signs of diabetes ever.

I do fit the pattern of high morning cortisol and if that's what it is it doesn't go down till about midnight. When the early morning awakening started up over 3 years ago whatever hypes up my system used to slow down around noon and I'd feel fine. Then it went to about 3 pm, then about 7 pm then about 9 and now it's nearer midnight when my body slows down.

I need to go to another part of HW to discuss this however since I'm sure it's inappropriate for the GERD forum.

Thanks for your concern and your ideas.
Rita
Falling down is part of life, getting back up is living. -Unknown

Lap Nissen Fundoplication August 1, 2011

Cindy123
Regular Member


Date Joined May 2011
Total Posts : 175
   Posted 9/7/2011 3:55 PM (GMT -6)   
Hi Rita, have you tried aloe vera gel....it's known as the miracle plant. Here is a link to the benefits of this wonderful plant.

http://www.aloeveraland.ca/about-aloe-vera.html

I have been taking it since my surgery. I take a quarter glass at night, last thing before I go to bed. I can honestly say that it has helped my healing considerably.

Look into it...it's worth a try.

Hang in there, you are going to get better and don't think about your age, age is only a number. Think positive. I used to cry every morning I woke up, thinking I made a mistake and if this is how my life was going to be until I die. Your attitude is what is going to carry you through this healing process. I am rooting for you. Just so you know, I didn't start to see significant changes until my 5th month. Once you get past your 6th month, you'll have a BIG smile on your face.

Take care.

Cindy

davinci817
Regular Member


Date Joined Aug 2011
Total Posts : 119
   Posted 9/7/2011 4:29 PM (GMT -6)   
Rita, funny you mention cortisol. This is what I am now being treated for. My DHEA was elevated on my last test. They have me taking Cortisol Manager by integrative therapeutics. Only been on it since Friday. I do sleep better, still unsure about the palps when napping, going to bed or waking up with them. Time will tell.

somedaysarediamonds
Regular Member


Date Joined Jul 2011
Total Posts : 363
   Posted 9/7/2011 4:31 PM (GMT -6)   
Hi Cindy,

Actually my surgery is doing pretty well. I think I'm at a point now where I can separate apples from oranges.

The consensus my hubby and I have come to at this point is that between my long history of acid reflux and years of undiagnosed gall bladder disease I probably earned a merit badge in Anxiety 101 and how not to manage it.

I'm actually a good patient and have always done everything my GP or specialist has suggested me to do to help me be healthy and I'm not a health nut of any kind. As a matter of fact I'm just not fond of pills unless I have to take them.

I put up with way too many symptoms for way too many years because I am not a complainer and it all seems to have caught up with me.

But, yes, I did try Aloe Vera and it further contributed to my life with diarrhea and it also burned my esophagus. I tend to have opposite reactions to many meds and even foods.

Again, our theory, at this point is that possibly my cortisol levels are not what they should be and we're going to pursue my sleep issues from that current vantage point since CPAP and sleep meds did not work.

Thanks so much for replying.
Rita
Falling down is part of life, getting back up is living. -Unknown

Lap Nissen Fundoplication August 1, 2011

somedaysarediamonds
Regular Member


Date Joined Jul 2011
Total Posts : 363
   Posted 9/7/2011 5:11 PM (GMT -6)   
Bethanie, I just now saw your post. I'll check into the product you mention. Is it by Rx only? Oh, well. I can find out when I read about it online.

It's such a strange phenom to try to explain to people. It got worse after my August surgery in 2010 and then worse again after my August NF this year in 2011.

I've read a little about how general anesthesia can impact older people (I'm 64) and how it can impact people on medication or with certain conditions etc. It's not always the easy breezy thing that we're led to believe it is for everyone. Again, everyone is different and I have no idea if or how anesthesia may have affected my body or how all the steroids I had to have in the two years previous to this year have affected me.

It will be interesting to see how your medication works for you and I'll look forward to hearing a good report.

Thanks for replying,
Rita
Falling down is part of life, getting back up is living. -Unknown

Lap Nissen Fundoplication August 1, 2011
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