Hi texas rt,
I continue to be amazed at the lack of information that surgeons provide their patients. If you went into this surgery thinking it would be a quick fix, I can only imagine how shocked you must be with your recovery issues. It is so unfair to not be properly prepared. I hope you will use some of the posts here to educate your family on the difficuties that we all have when recovering from a Nissen surgery.
It is very typical that your stomach is distended now. That will gradually subside. Many of us wear looser, elastic topped pants during the early days/weeks to protect those sensitive incisions and accomodate the bloat.
Thanks for your expression of understanding. It is amazing how GERD to really damage lungs. My asthma doctor expressed real concern over the fact that GI docs only consider the affect acid has on the esophagus and not the lungs. He said that they don't understand that a tiny amount of acid (not enough to be a danger to the esophagus) can be a real danger to lungs.
Before my surgery I was using a nebulizer several times a day, and my husband was doing lung PT to help me cough up mucous so I could breathe. It was such a struggle. I was also on high doses of inhaled steroids, and intermittent oral steroids.
I didn't know if surgery was going to help my lungs. I didn't have a choice, though. I had to try. (My surgeon said that, "If your lung problems are caused by your GERD, the surgery will make them better.") It took two and a half months for them to heal. Thankfully, the surgery did work, and my lungs are much better. I do have severe pollen allergies, and although I get shots, my allergies have been terrible. Still, since the surgery, even with the allergies, my lungs are really doing well.
Just remember that your lungs didn't get bad overnight, and it will take time for them to heal. Also, as far as pain in the shoulder, have you tried walking? If you can figure out a way to either walk around the house, on a treadmill, or outside, it can be helpful with shoulder pain. It surely helped me.
I'm glad you've joined us!