Neebie with LERD GORD soon surgery

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6jammer9
New Member


Date Joined Sep 2011
Total Posts : 6
   Posted 9/10/2011 9:15 PM (GMT -6)   
Hi there
 
I have had GORD and LERD since July 2009.  I have been on 3 different PPI's since then and they do not solve all my symptoms especially my cough, regurgatation, sore throat, and lump in throat feeling.  I have been sleeping propped up with pillows since July 2009.  I have recently had my Ph testing and manometry testing and now this week I get to meet with the surgeon for a nissen fundoplication. 
 
I have started making soups for the freezer.
 
In addition to the GERD and LERD I have crohns, PCOS, asthma, diabetes, allergies and endometriosis.  I am good at managing my health issues and I am looking forward to getting better management of the GERD and LERD.  The crohns is managed with a weekly injection of methotrexate. 
 
It's good to join here and I look forward to learning more about the nissen fundoplication and recovery.    I am really tired of constant regurgation - I drive with a cup in the car and a bowl to catch it all, white froth and then bile.  Post nasal drip is a pain. It's frustrations when I go to speak and can't because of the lump feeling in my throat.  I choke and start coughing instead.  I am so hoping that I will get relief from these symptoms.
 
Thanks for reading :-)

aeshleyrose
Veteran Member


Date Joined Jul 2011
Total Posts : 656
   Posted 9/11/2011 1:53 AM (GMT -6)   
Hey!

I'm so glad to hear you're going to get some relief soon. Be sure to post about your procedure and recovery, us hoping for Nissens love to hear them :)

Take care, and best of luck to you!
Ashley

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 9/11/2011 7:35 AM (GMT -6)   
Hi Jammer,
 
Welcome to Healing Well!  It sounds like you're in exactly the right place.  I found this forum when I was trying to get the courage to go forward with GERD surgery, and it was a tremendous help to me.  I learned about the experiences of others, I learned that they were very glad they'd had the surgery, and I was provided with lots of help and advice that made my surgery and recovery much easier.
 
I'm sure you will learn from what others before you have posted here.  I kept a journal of my first 19 days of post-op experience, which might help you get an idea of what to expect.
 
 
I also have asthma, and my GERD created very sick lungs for me.  I didn't have the typical severe regurge you have, but the reflux I did have created terrible asthma.  It was my asthma that led me to surgery.
 
You obviously have many health challenges, but is good to hear that you manage them well.  I suspect that your courage dealing with those issues will be a big asset as you work through the healing challenges you will experience post Nissen surgery.  I have no doubt that you will be very glad you went forward with the surgery.
 
It took my lungs two and a half months to heal after I had my surgery, but heal they did.  Although I still have asthma caused by allergies, it is so much better.  Before surgery I was taking nebulizer treatments several times a day.  I have left those treatments behind (of course if I get a virus or something I may need them), and I also have been able to cut my steroid intake astronomically.  My lungs continued to improve throughout the first year and a half.  Hopefully you will also find improvement in your asthma after surgery.
 
Again, I'm glad you've joined us.
I wish you all the best.  As Ashley suggested, I hope you write about your pre and post op experiences, so others can learn from you. 
Best wishes!
Denise

Post Edited (dencha) : 9/11/2011 7:38:17 AM (GMT-6)


6jammer9
New Member


Date Joined Sep 2011
Total Posts : 6
   Posted 9/12/2011 12:14 AM (GMT -6)   
Hi Denise and Ashley, thank you so much for your support, and the time taken to write them :-) I will keep you posted on how everything goes. So far I am very thankful that the GERD and LERD has not triggered a crohns flare in my esophagus. That's another good reason to want the surgery.

Once again thanks for your support.

Kirstin

aeshleyrose
Veteran Member


Date Joined Jul 2011
Total Posts : 656
   Posted 9/12/2011 3:00 AM (GMT -6)   
Hey Kristin,

No problem, doll :) I haven't had the Nissen yet but loads of other people on here have so if you have any questions, don't hesitate to ask!

I'm excited to hear your date so that we can all join you in a countdown :)
Ashley

6jammer9
New Member


Date Joined Sep 2011
Total Posts : 6
   Posted 9/14/2011 6:37 PM (GMT -6)   
Hi there, I saw the surgeon today and I am now booked in for a nissen fundolication, repair oesphageal hiatus and possible insertion of sofradim mesh to hold me together.
 
This is going to happen next wednesday!!  smilewinkgrin So much for a countdown - I have taken someone elses place that they can not operate on due to complications. 
 
I have been busy getting approvals, telling work, and getting blood tests done.  I've told my folks and they are going to come and stay for a a couple of weeks as well.  
 
I was so happy I had tears in my eyes, the thought of reducing and or eliminating my symptoms is so good.

aeshleyrose
Veteran Member


Date Joined Jul 2011
Total Posts : 656
   Posted 9/15/2011 12:32 AM (GMT -6)   
Congratulations, Kristin! That's wonderful news.

Couldn't be happier for you :D
Ashley

6jammer9
New Member


Date Joined Sep 2011
Total Posts : 6
   Posted 9/19/2011 2:34 AM (GMT -6)   
I'm getting a little anxious every now and then about the surgery. I have to take all my medications with me to the hospital and they all fill a small suitcase. I take quite a bit of medication, gosh knows how I will take them after the surgery. The metformin is quite a large tablet, same with the iron one. Oh well I will be in before too long, 8.30 am Wednesday morning I go in so just have tomorrow to finish off everything at work. My manager was not happy about approving my leave to start with, by the end of the day I got approval and a supportive email. But she sure sounded mad when she talked to me over the phone. I needed to make sure that every piece of my work was covered by someone else in my absence. Now that's done I can focus on the surgery and getting better.

aeshleyrose
Veteran Member


Date Joined Jul 2011
Total Posts : 656
   Posted 9/19/2011 4:38 AM (GMT -6)   
Hey Kristin,

Don't worry at all about people who are less than completely understanding when it comes to illness and surgery. You are on the road to wellness and that's all that matters.

Just a few days now! Don't worry about the anxiety (sort of a conundrum there, sorry). I think everyone gets a little nervous about surgery, no matter how routine it may be. Just imagine being able to enjoy life again without tiptoeing around GERD landmines.

Good luck!
Ashley

6jammer9
New Member


Date Joined Sep 2011
Total Posts : 6
   Posted 9/23/2011 3:27 PM (GMT -6)   
HI ya

I am back home after a couple of eventful days. Overall the surgery went well. My reflux is fixed, along with hiatus hernia and its all wrapped in mesh. I had big gaps between my stomach and espohagus that meds would never have sorted. I had a bad reaction from the anesthetic and I got hypoxia and then tachacardyia. I came right about 12 hours after the operation but I was worring the anethestist and the doc. In the end they removed my feeding tube and I started to feel better. I was on quite high oxygen therapy with stuff all results for hours - but I bounced back in the end which is good.

I am now managing my pain, eating small portions of sloppy food and sleeping alot. So far no coughing and gagging like I used to VIEW IMAGE - this will make me a new woman!!!

6jammer9
New Member


Date Joined Sep 2011
Total Posts : 6
   Posted 9/25/2011 2:31 PM (GMT -6)   
HI ya, its now day 5 post surgery
 
I am feeling real good most of the time.  Of course the shoulder tip pain hurts, but I use a heat pack and take liquid pandadol and walk around the house often.  I eat sitting at the table and have a poached egg on white toast for breakfast with a cup of tea or coffee.  I had mashed sweet potato for lunch and steamed fish for tea.  I have yoghurt for morning and afternoon tea and drink a range of juices and cordial as needed.  I make sure I chew my food to a paste before I swallow and this takes time but its worth it.  I have found that sometimes I put too much food in, swallow, and I hiccough  about 30 secs later and that hurts.  I know I need to slow it down.  It hurts to cough but I brace myself.  I fart heaps but I can also burp naturally.  It's all going good, just wish the post nasal drip would go so I did not cough.
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