I am new to this website and after reading through many posts, decided to start my own. It's encouraging to know that others are going through what I'm going through. I understand they fear, depression, desperation and loneliness. Mine started when I was pregnant with my son. That was around March 2006. It's been 5 years now that I've been dealing with them. From the very first spasm, they always came at night while I was sound asleep. A sever upper abdominal pain that would radiate through to my back. It would feel like my chest was having a charlie horse. Untreated, they would last anywhere between 2-6 hours. I would be hunched over and groaning or writhing around in pain on the floor crying and begging to die. When I was going to the ER more times than I can count, they would do all the blood and urine tests and everything would come out normal. They tried giving me Darvocet, Morphine and a myriad of other pain killers, but nothing worked except 2-3 syringes of Dilaudid. Eventually, they thought it MIGHT be my gallbladder so they took it out. The next day after surgery, I had another attack. After that I was in and out of the ER several times. At one particular bad attack, they decided to stick a camera down my throat (sorry, I can't remember what the medical term for this procedure is) and it ended up causing me to get pancreatitis. I was in the hospital for 4 days with the worst pain ever. After that horrendous experience, they just kept loading me up on more and more meds until I didn't know where I was half the time. I lost a week of my life that I just don't remember at all. I decided to stop taking all of them and started researching more seriously. I found a girl who's doctor prescribed to her nitroglycerin. I suggested this to my primary doctor and she thought it was worth a shot. The first time I had to take it, it worked like a charm. The spasms stopped relatively quickly. I have medication to help once this starts, but I'm looking for something that will keep them from happening. I have not slept through the night in over 5 years. Every single morning between 3-5am, I am awakened by that old familiar pain and I have to admit that no matter how many times I go through it, it still scares me to death. I'm a single mother of a 5-year-old and I want to be around for him. Sometimes I can stop the attack if I quickly get up and chug water as fast as possible. I believe it's the actual swallowing quickly that helps. Maybe it regulates the spasm?
Here's what I want to know:
Is there anything out there besides nitroglycerin that I should be trying? There are no foods that trigger this. I have noticed they aren't so frequent if I stay away from carbonated beverages, so I have taken them out of my diet for about
2 years now.
I've heard about
peppermint oil. Can someone provide any experience they've had with using this? Good or bad.
I've also heard about
that licorice stuff (sorry I can't remember what it's actually called....something like DLR?)
Botox Injections into the esophagus. Has anyone undergone this treatment? Did it help? How often do you have to do it?
I wish there was a miracle doctor out there that could figure this out and help me fix it. I just want to be healthy for my boy. I want simple things like sleeping through the night, not being afraid to go to sleep.
I appreciate anyone and everyone's input on this.
Peace and love to you all. May we all pray for each other