Hi Guys--Help to stay positive..what to do??

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j300
New Member


Date Joined Aug 2011
Total Posts : 7
   Posted 9/13/2011 6:04 PM (GMT -6)   
I have been at this PPI marygoround for 6 months now and am totally losing hope since nothing is working. Doc now has me on sleeping as well as anti-anxiety meds.  Any advice out there would be great. Still severe throat pain and gastric buring. But, what to do if meds are unsuccessful and currently rebounding from the ones I had to quickly get off of due to sever allergy! (protonix and raniditine) any help would be soooo appreciated! This pain has been debilitating. Living with my parents who are so tired of me now. I am only 30yrs old and want hope of having some kind of life!!!Thank you

j300
New Member


Date Joined Aug 2011
Total Posts : 7
   Posted 9/13/2011 6:06 PM (GMT -6)   
Also, how can you all possibly have a normal daily life. All I have been able to do is lay in bed writing in pain.????

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7180
   Posted 9/13/2011 6:47 PM (GMT -6)   
Hi j300,
 
Welcome to Healing Well!  I'm sorry to hear you're suffering so much with GERD. You're definitely in the right place.  I am sure that you're following GERD lifestyle suggestions: http://www.mayoclinic.com/health/gerd/DS00967/DSECTION=lifestyle-and-home-remedies
 
Since you're finding that medication is not controlling your symptoms, and if they are severe, it sounds like you might want to consider a surgical solution. 
 
Many here have had Nissen fundoplication surgery with very good success.  I was one of them...my reflux wasn't horrible, but it was bad enough to make my lungs very unhealthy.  I had surgery in February 2009, and it gave me healthy lungs again.
 
I'm sure others will be by to say hi and share their own experience and support.
Best wishes!
Denise

j300
New Member


Date Joined Aug 2011
Total Posts : 7
   Posted 9/13/2011 7:40 PM (GMT -6)   
THanks, Denise. I have been soooooooo worried and just feeling like giving up. I could really use some encouragement right now:) thanks

4hn
Regular Member


Date Joined Jul 2011
Total Posts : 77
   Posted 9/13/2011 9:49 PM (GMT -6)   
j300

your story just like me..
everyday i got chest pain, and sometimes it worst. I cannot do anything all day.
and seem medication not work with my chest pain.
Right now i am considering for surgery, but in my case is it different, coz i live in Indonesia.
It is hard to find a good surgeon in fundoplication here.. even here PH test & manometry is not available.
I am only 28, and i had to work everyday to get some money for my self(my parent not working anymore)

IHMO if medicine not working, maybe you could considering for surgery

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 9/14/2011 2:24 AM (GMT -6)   
j300
Hi there and welcome,

I had a lot of trouble with the medications in the beginning and kept stopping and starting them due to side effects. I seemed to get an allergic rash (or a severe exacerbation of my eczema) every time I took Omeprazole - I changed ppi and they all seemed to do the same. I kept going through acid rebound from stopping the drugs too. Eventually I found tackling my skin as a separate problem did the trick - I now take something for my skin (natural remedy) and Lansoprazole for my stomach. I don't have 100% symptom relief but things are much better than six months ago. I think with all the stopping and starting I never got chance to let things settle and heal. Obviously surgery is a route you can go down, but it I wouldn't give up on medication until you've tried different brands.

Some of the Omeprazole capsules I first tried were brightly multicoloured and I did wonder if I was reacting to the colouring. One option you could ask them to do, to rule out allergy to the actual drug (rather than what it's wrapped in) is to ask them to inject you with a ppi (proton pump inhibitor like Omeprazole) in hospital, where they can give you cortisone and antihistamine if you do have a bad reaction. It's very worth pinpointing the exact nature of the allergy - is it to the drug itself or the excipients (i.e. binders, colourings, capsule material etc). I would try to find someone to work with you on that; even if you go for surgery at some point you would still benefit from a ppi that you can tolerate in the meantime!

Good luck - GERD management involves a lot of experiment and self diagnosis - hang in there!

MMM
New stuff: GERD. Interstitial Cystitis
Lifelong stuff: Food allergies, eczema, asthma

sk55
Regular Member


Date Joined Jun 2011
Total Posts : 225
   Posted 9/14/2011 5:07 AM (GMT -6)   
sounds like you have LPR "throat pain"

you should goto to ENT to have this treated.

Usual treatment is much stronger PPI 2x a day. 1 day wont cut it.

Search this forum for LPR and you will find a lot of good tips regarding PPI and DIET.

Diet is very important with LPR.


Try to relax, focus on things you can control like Diet. If the current treatment doesn't work look for another doctor.



good luck

Jesse.

aeshleyrose
Veteran Member


Date Joined Jul 2011
Total Posts : 656
   Posted 9/14/2011 8:01 AM (GMT -6)   
Hey j300,

I'm sorry to hear that you've been suffering. Here are a positive girl's tips on staying positive (presented positively!):

-Listen to happy music
Everyone is different, but this is my must-have. I listen to music every single day and if it wasn't happy, upbeat stuff, my mood would go south very quickly.

-Watch funny movies
Trust me, this is the last thing I feel like doing when I feel bad. Usually I want to wrap myself in a blanket and watch Law & Order til my eyeballs fall out. So one night I watched "City Slickers 2" and giggled and realized by the end of the movie that I had just had 2 hours of pain-free me. Laughing = endorphins = less pain.

-Have/discover hobbies that aren't too terrible to do while sitting on your couch at 2am with chest pain (case in point: me)
I took up knitting and Sudoku and it's been so helpful for me to have something else to do. I also study language while I am refluxing - anything that you enjoy to take your mind off of things.

-Surround yourself with good, caring people
It could be friends, it could be family, but supportive people in your life are essential. I have a few friends as well as my husband who are endlessly patient and supportive. However...

-Try not to let it take over your life
When I need to vent/ask questions, I usually come here. People who don't have GERD/chronic illness can only sympathize so much (and will invariably ask you if you've tried Tums/Maalox). So when I go to the doctor or have a particularly horrible night, these people who care about me will ask me what's wrong, and I will tell them, but only in a few sentences or so. If you talk about it all the time, it takes over your life and that's exactly what you don't want to happen.

Also, the biggest helpful hint to stay positive (as Denise posted above) is to keep coming back and reading about others' experiences. Some people have things that work for them that you can try and see if it works for you also.

There is also a fantastic book called "How Can You NOT Laugh at a Time Like This?: Reclaim Your Health with Humor, Creativity, and Grit" by Carla Ulbrich. It was recommended by the founder of this site and helped me be more positive in the face of GERD.

I'm just a few years younger than you and I know how frustrating it can be to have a limited life while others our age are out partying and eating pizza. Be strong!

I wish you all the best. You can stay positive if you put your mind to it! Don't be discouraged if you can only be positive for a few moments at a time at first - anything is better than nothing.

I hope you get some relief soon! Keep us posted.

Healing thoughts your way,
Ashley

j300
New Member


Date Joined Aug 2011
Total Posts : 7
   Posted 9/14/2011 8:32 AM (GMT -6)   
Hey guys,
 
another night without sleep. Doc has me on trazadone and some sleep med. both of which are making me so sick! Any tips fordocs? went to healing rooms last night. please pray for me...great idea on music

j300
New Member


Date Joined Aug 2011
Total Posts : 7
   Posted 9/14/2011 8:36 AM (GMT -6)   
Anyone know about pain mgmt options..

aeshleyrose
Veteran Member


Date Joined Jul 2011
Total Posts : 656
   Posted 9/14/2011 8:54 AM (GMT -6)   
It depends on what works for you. When I'm on Nexium, Tums and Gaviscon can sometimes take the edge off of the pain. I've also read from others that aloe vera juice can help with the pain.

Has it been determined that you are allergic to all PPI meds?

kyheart
Veteran Member


Date Joined Apr 2011
Total Posts : 513
   Posted 9/15/2011 7:37 PM (GMT -6)   
j300

I have to agree with Denise.. when all else fails.. you should at least look into the surgical solution. Pain meds and the like are only a band aid to the cause.. they are not a cure. You need healing not cover ups...

I will pray for you to find the right solution for your problems.. I have been there.. surgery was my solution.. over 5 months ago.. no more reflux, no more pain no more throwing up acid, no more coughing and coughing and coughing..

In the end you have to do what is right for you, be it herbal, meds or surgery.. I hope you find the solution..

Reach for the Sunshine... Rainbows will follow
Sandi

LocalGuy23
Veteran Member


Date Joined Sep 2011
Total Posts : 620
   Posted 9/15/2011 8:33 PM (GMT -6)   
J300, omg your situation is exactly the same as mine. Probably same degree of pain too. After two months of no relief from meds, doc put me on prevacid 4x a day 30mg since I couldn't do ph cause pain was too unbearable. I was losing my sleep and currently taking sleep meds to help me and anti depressants to relax me. I made a trip back home to be with my family and it is helping me deal with this for now. I too am looking toward surgery as meds don't work well with me. Just remember you are not alone ok. We will all get through this some way....
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