To the LPR peeps, how r u guys doing?

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efit
Regular Member


Date Joined May 2011
Total Posts : 127
 		   Posted 9/19/2011 12:40 PM (GMT -6)   
Hi everyone,
 
Just wondering how all of you who suffer from LPR are doing right now? I just read some encouraging posts from August and wondered how the dietary modifications are working for you? I noticed that there were some posts alluding to the fact that LPR is largely psychological. Do you think that's really true? My symptoms come and go every two to three weeks and when I'm good, I'm really good and don't think about it but when the symptoms are there, they are surely there and I don't "feel" like I'm making them worse but I will say I do stress about them b/c it is stressful to be in discomfort 24/7.  I am just looking for tips and tricks from those of you who've been through it.  I'm still not on a PPI yet b/c I guess I'm still hoping for a miracle. Plus, I do become pain-free for 2 weeks at a time and hate to take a med ALL the time when I don't need it. Also, I'm unsure as to whether or not it will do me any good b/c I've heard negative things regarding LPR sufferers and meds.
 
TTYL,
Liz
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Chuck T
Regular Member


Date Joined May 2011
Total Posts : 143
 		   Posted 9/19/2011 1:35 PM (GMT -6)   
I am doing well. After being on Dexilant for a long time, my throat symptoms all but disapeared. But I started getting lower abdominal pain, and have since quit all PPIs. Ive been off them for 3 weeks, and surprisingly its not terrible. I get a little acid (mostly at night), but its managable. The worst that I ever felt throught his whole thing was when I was taking 1 ppi/day (including when I wasnt taking any PPIs).
 
I dont think LPR is mental. Hoarsness, and swollen vocal cords arent mental. I def think we have something going on. Having my stomach issues has made me realize how many people with reflux also have stomach issues. Im starting to think that we may have some sort of bacteria in our gut that is causing all of these symproms, but who knows. It could just as easily be related to some sort of nerve damage.
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sk55
Regular Member


Date Joined Jun 2011
Total Posts : 225
 		   Posted 9/19/2011 1:55 PM (GMT -6)   
Chuck,

How long were you on Dexilant?

are you symptom free?
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sunbeam48
Veteran Member


Date Joined Jun 2011
Total Posts : 795
 		   Posted 9/19/2011 2:02 PM (GMT -6)   
I'm having some success with the Koufman Low Acid diet. My coughing is way less, and my throat is improved. I've been on the diet less than a week.
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Chuck T
Regular Member


Date Joined May 2011
Total Posts : 143
 		   Posted 9/19/2011 2:09 PM (GMT -6)   
I was on dexilant for probably 7 months. It took 5-6 months for the severe throat burning to go away. Im not taking it anymore, so i cant say im symptom free. Even when I was on it, I would occasionally get very mild irritation at night, but it was really nothing bad.
 
My problem is that I suspect Dexilant as the culprit for a few problems that I developed after starting the medicine. I have got a feeling that in a few years they are going to realize that PPIs are very bad for you. Dexilant (60 mg) is a very high dose of the stuff. Its basically 4 otc prevacids. That being said, it was the only PPI that worked for me. I only plan on going back on it if my throat gets really bad again. Hope that doesnt happen.
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couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
 		   Posted 9/19/2011 3:24 PM (GMT -6)   
The problem with LPR is it is silent GERD. Your symptoms are very mild and sometimes almost nonexistent, but the acid is still there and causing problems.
I had the 270 degree wrap almost 20 months ago and I don't regret having the surgery.
Before the surgery I was:
*coughing non-stop
*having almost blackout spells
*feeling of food stopping in my chest
*hoarse voice (sometimes losing my voice for days)
*bronchitis and sinus infections galour
 
 
Joy
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aciphexo
Regular Member


Date Joined Apr 2011
Total Posts : 377
 		   Posted 9/19/2011 3:26 PM (GMT -6)   
I have both LPR and GERD - symptoms started in Feb 2011 and confirmed the diagnosis in May. I dont have any structural problems - hernia or bad motility etc. So, likely the TLESrs are a cause of my symptoms. I can not take any PPIs or H2s. So, I've been managing the symptoms with natural means. My symptoms were quite severe during the March/Apr/May/June timeframe. Since early July I've seen steady improvement in the symptoms and in the last 6 weeks I've seen that I get some decent symptom-free periods during the day.

In September now, my throat symptoms have gone down considerably (they are not completely gone though). My GERD symptoms are slightly more pronounced in the last 2 weeks or so (inside chest achiness around the LES area) so I am trying to manage these at this time.
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efit
Regular Member


Date Joined May 2011
Total Posts : 127
 		   Posted 9/19/2011 3:50 PM (GMT -6)   
Sunbeam,
 
Where did you find out about the Koufman low acid diet?
 
Chuck T,
 
I'm glad you are doing well off of meds. I've read before that the PPI's can sometimes INCREASE the symptoms. That scares me as well. I was on Prilosec for 7 weeks. I had terrible rebound when I got off of it and I feel like each reflux exacerbation I've had has lessened in severity since June so I'm leary of getting back on the PPI's but I don't want to end up with Barrett's so it's dicey.
 
Joy,
May I ask why you had a 270 degree Nissen as opposed to a 360 degree one? Why does the acid stay down if there are still 90 degrees of open espophagus?
 
Liz
 
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sunbeam48
Veteran Member


Date Joined Jun 2011
Total Posts : 795
 		   Posted 9/19/2011 5:57 PM (GMT -6)   
Hi efit,
Someone posted the research article here. I've posted some links at the beginning of the thread, but there is a lot more on her section of the Voice Institute of New York web site. I was astonished that our MD's tell us to avoid citrus fruit and tomatoes due to acid, but they don't give us the information we would need to actually eat a low acid diet. The Internet is dominated by (I think) a naturopathic philosphy that refers to acidifying and alkalinizing foods. They are talking about the foods making your sweat and urine acidic or alkaline, not the pH of foods going into your stomach. So I was eating acidic, "safe for GERD" foods, and not doing well. Now, months later, I'm beginning to feel better. I think our stomach and esophagus takes a long time to heal, but I feel I'm on a better road. I am still taking Nexium, just the single dose instead of the double doce recently prescribed for me, but I would love to get off it and just eat really well.
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