To the LPR peeps, how r u guys doing?

Hi everyone,

Just wondering how all of you who suffer from LPR are doing right now? I just read some encouraging posts from August and wondered how the dietary modifications are working for you? I noticed that there were some posts alluding to the fact that LPR is largely psychological. Do you think that's really true? My symptoms come and go every two to three weeks and when I'm good, I'm really good and don't think about it but when the symptoms are there, they are surely there and I don't "feel" like I'm making them worse but I will say I do stress about them b/c it is stressful to be in discomfort 24/7.  I am just looking for tips and tricks from those of you who've been through it.  I'm still not on a PPI yet b/c I guess I'm still hoping for a miracle. Plus, I do become pain-free for 2 weeks at a time and hate to take a med ALL the time when I don't need it. Also, I'm unsure as to whether or not it will do me any good b/c I've heard negative things regarding LPR sufferers and meds.

TTYL,

Liz

Chuck,

How long were you on Dexilant?

are you symptom free?

I was on dexilant for probably 7 months. It took 5-6 months for the severe throat burning to go away. Im not taking it anymore, so i cant say im symptom free. Even when I was on it, I would occasionally get very mild irritation at night, but it was really nothing bad.

My problem is that I suspect Dexilant as the culprit for a few problems that I developed after starting the medicine. I have got a feeling that in a few years they are going to realize that PPIs are very bad for you. Dexilant (60 mg) is a very high dose of the stuff. Its basically 4 otc prevacids. That being said, it was the only PPI that worked for me. I only plan on going back on it if my throat gets really bad again. Hope that doesnt happen.

I have both LPR and GERD - symptoms started in Feb 2011 and confirmed the diagnosis in May. I dont have any structural problems - hernia or bad motility etc. So, likely the TLESrs are a cause of my symptoms. I can not take any PPIs or H2s. So, I've been managing the symptoms with natural means. My symptoms were quite severe during the March/Apr/May/June timeframe. Since early July I've seen steady improvement in the symptoms and in the last 6 weeks I've seen that I get some decent symptom-free periods during the day.

In September now, my throat symptoms have gone down considerably (they are not completely gone though). My GERD symptoms are slightly more pronounced in the last 2 weeks or so (inside chest achiness around the LES area) so I am trying to manage these at this time.

Hi efit,
Someone posted the research article here. I've posted some links at the beginning of the thread, but there is a lot more on her section of the Voice Institute of New York web site. I was astonished that our MD's tell us to avoid citrus fruit and tomatoes due to acid, but they don't give us the information we would need to actually eat a low acid diet. The Internet is dominated by (I think) a naturopathic philosphy that refers to acidifying and alkalinizing foods. They are talking about the foods making your sweat and urine acidic or alkaline, not the pH of foods going into your stomach. So I was eating acidic, "safe for GERD" foods, and not doing well. Now, months later, I'm beginning to feel better. I think our stomach and esophagus takes a long time to heal, but I feel I'm on a better road. I am still taking Nexium, just the single dose instead of the double doce recently prescribed for me, but I would love to get off it and just eat really well.