I'm a Scaredy Cat

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Ryobe
Regular Member


Date Joined Aug 2011
Total Posts : 36
   Posted 10/12/2011 11:29 AM (GMT -6)   
Hey all!  I will be 2 months out on October 16th.  Just had another check up with the surgeon and all is well except my weight.  I have a lung disease that is advanced and is causing the weight loss.  I am only at 79.2 pounds and been trying to gain for a while. (Yes, this was not the surgery to have when trying to gain weight!)  I do have a feeding tube that supplements me at night for more calories.  I eat things with ground beef in them really well.  I just get scared trying other things like chicken, toast, veggies, etc.  When we grab fast food, I get fries and a shake.  I'm to scared to try a hamburger or nuggets.  Any advice on things I can try that I wouldt run from?  I guess part of it is I don't want to get anything stuck.  Also, what about shrimp (like I'd have the courage to try that)?  Thanks in advance for any advice!!
 
Ryobe

daddypig
Regular Member


Date Joined Aug 2011
Total Posts : 90
   Posted 10/12/2011 12:31 PM (GMT -6)   
Hiya. Those shakes are my favourite!

I have managed fine on nuggets, just chew chew chew. You could also try mash potato and gravy, or by Joe any saucy pasta should be ok. If you struggle cut it up maybe? Just leave bread for now. Also could you eat chocolate mousse? Trifle? ice cream? Depends how you are with sweet stuff I guess. I lived on pasta the first six weeks, still have it lots. Good luck!

Kevin

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 10/12/2011 3:07 PM (GMT -6)   
Hi Ryobe,
I agree...you need to get some meat on those bones!  I am wondering why you're not trying some of the things that are suggested in the post-Nissen diet...http://slhhn.org/docs/pdf/keystonesurgical-fundoplication%20diet.pdf
If you try any one of the suggested items, take tiny bites, and chew to a liquid, you won't have any trouble.  Have you tried them without success.  Keep in mind that I started on solid foods at Day 5 or 6, and following those rules, had no trouble.  Just listen to your body.  Try not to let the thought of getting something stuck frighten you away from eating.  You can do it!  If you take tiny bites and chew, chew, chew, anything you eat will be smaller and finer than hamburger.  Just remember...if anything doesn't go down immediately, have some water or tea, and patiently drink until it does.  You shouldn't have any trouble at all. 
 
The funny thing is that I find hamburgers can irritate my wrap.  Not hamburger itself...but if I eat a hamburger, I'm likely to have an uncomfortable wrap...large salads do that to me as well...I guess all those raw veggies scrape as they go through.
 
Good luck to you!  Go for it!  You can do it!
Denise

Ryobe
Regular Member


Date Joined Aug 2011
Total Posts : 36
   Posted 10/12/2011 3:26 PM (GMT -6)   
Thank you for your replies!! I have eaten many things from the list but I don't feel like I am eating normal. I guess it is the portions that bug me. I can still only eat about 1/2 cup of food and I am done. Meats scare me the most. I will keep trying and I know I just need to buck up and do it. I just need to push myself to do it. I know my hubby would love for me to try everything again. I do still have gas/bloat so I am careful.

Ryobe

theacidrefluxman
Veteran Member


Date Joined Oct 2009
Total Posts : 739
   Posted 10/12/2011 4:10 PM (GMT -6)   
Not sure if it'd be recommended for you (or anyone really), but what about making shakes with calorie dense food? I enjoy shakes with oatmeal, milk, and banana. If you are allowed GERD unfriendly foods (?) put in peanut butter or almond butter. That is maybe the most calorie dense food out there?

If you really wanted to take whey protein or maybe that weight gainer powder. U can make shakes out of that...not sure how healthy the latter is, but I know it exists...

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 10/12/2011 4:31 PM (GMT -6)   
Ryobe-
Only being able to eat about a 1/3 cup is very normal. I had my redo on 8/24, so I am about the same in recovery as you. I am eating just about anything I want. I have had a couple things get stuck, but that was from me pushing it a bit. This is my 3rd time though with this recovery, so I already know what to expect.
You have been given some great advice already, but I want to emphasize a few. The biggest hurdle is to always remember to chew, chew, chew. I an eating solid meats such as pork and chicken. Have also had venison, but am waiting a bit longer for steak. Hamburgers go down well for me as long as I take small bites and chew real well.

Have you tried toast yet? I would stay away from Soft bread until you have tried a couple bites and see how it goes down. Toast usually will go down way before soft bread will.

Shakes with supplements are a great idea to get extra calories. I hope I'm not asking too much, but your lung disease wouldn't happen to be CF is it? Just asking because I had a very close friend who had CF and was always struggling to keep her weight up.

If something ever does get stuck besides drinking something also try to relax as best you can so it will go down easier. It is very hard to relax the first couple times it happens, but it is very important to do.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

Ryobe
Regular Member


Date Joined Aug 2011
Total Posts : 36
   Posted 10/12/2011 5:28 PM (GMT -6)   
I have not tried toast yet but I have eaten the toasted part off biscuits and breadsticks. I had broccoli with cheese tonight and I tried the Salisbury steak and gravy but it had to much grissle (sp) in it. I do put a **** supplement in my grits, oatmeal, shakes, etc. I can do milk but since the surgery I can only do so much at a time. Do you even eat the bun on the hamburger? I am just at a loss because I know it has to go down small.

I have bronchiectasis which is just like cystic fibrosis except you are usually not born with it. I developed it after having my large intestine removed due to ulcerative colitis. It has just been in the last year that it has gotten really bad. I have to use oxygen when I do anything active and when I sleep. It has made this surgery recovery even more difficult. It causes me to cough up a lot of phlegm which is good for this disease but hard on the wrap. I tend to have the worst coughing after I eat. I am currently in a pre- transplant program at Duke. Believe it or not, most lung transplant recipients have the Nissen just a few weeks after transplant!! The ones I have met in pulmo rehab said that this surgery was harder to recover from than transplant. Of course having two major surgeries in a row can't be easy.

I'll keep trying new things, and pushing myself to do it.

Ryobe

kyheart
Veteran Member


Date Joined Apr 2011
Total Posts : 513
   Posted 10/12/2011 6:03 PM (GMT -6)   
Ryobe

I was like you at 2 months.. kind of afraid to take a step forward with food. I go along with everyone else though.. try anything you want but do it a bit at a time. I ate shrimp before I ate almost anything else except ground beef as far as meat or seafood, poultry goes. I did nuggets ok as long as they were followed by lots of liquid.. I made sure it was small bites and chewed completely. It went down better than chicken. I cannot eat beef except for ground beef yet.. just me I guess.. everyone else could at my stage (6 months) I cannot eat bread yet either, just me there again I guess. But I didn't dread losing weight as you do. Bless your heart, I hope you can find it in you somewhere to get your diet "beefed" up so to speak. Just keep adding new things and I need to mention that I loved pasta of all types in Alfredo Sauce.. it is so much better (to me) than the tomato based spaghetti/pasta sauces.. Good Luck..

Reach for the Sunshine .. Rainbows will follow..
Sandi

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 10/12/2011 6:05 PM (GMT -6)   
Ryobe-
I do eat the bun with the hamburger. I just take small bites and wait to make sure it goes through. My toughest food has always been hot dogs and I was able to eat one with the bun this past weekend. Just take small bites and take your time.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

Cindy123
Regular Member


Date Joined May 2011
Total Posts : 175
   Posted 10/13/2011 10:01 AM (GMT -6)   
Ryobe, I found that eating greek yogurt and cottage cheese really helped with getting some protein. I sincerely hope you feel better soon.

Cindy

Ryobe
Regular Member


Date Joined Aug 2011
Total Posts : 36
   Posted 10/14/2011 7:58 PM (GMT -6)   
I tried a couple of new foods today. I had pizza and cinna sticks. They both went down just fine. I am going to keep trying new things. Got lots of calories yesterday and today so did not tube feed which made for a better nights rest:)

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 10/14/2011 8:17 PM (GMT -6)   
Ryobe-
Great to hear you found something that agrees with you and is one of my favorite all time foods!!!

I hope I don't offend you, but I am curious as to which type of feeding tube you have. I had to have my esophagus repaired on March 1st and had a j-peg feeding tube that I had to use the side that was in my small intestine so to keep the food from back flowing into my esophagus and out the chest tube as it did with the ng feeding tube.

I had a rough time with pain even after the tube was removed from my belly. Since my stomach attached to the belly wall it would ride up over my ribs when I laid down and sometimes when sitting. When I had my redo nissen in August he did open so he could take the attachment down and that got rid of a lot of stomach pain I had.

Anyhow... very glad you were able to get better sleep too.

Take care,

Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

Ryobe
Regular Member


Date Joined Aug 2011
Total Posts : 36
   Posted 10/14/2011 10:20 PM (GMT -6)   
Oh Bill, it does not bother me at all for you to ask. I had a gj tube put in in June but quickly realized it was refluxing up to my throat. I kept the tube in, not using it, while the surgeon did all the tests before the surgery. I had to have an abdominal hernia fixed plus my hiatal hernia so we went ahead with the Nissen since I was refluxing so bad. During surgery they put the j tube in. I do not like it at all. It has fallen out once. We had to head to the ER and were blessed that they got a new one in before the hole closed but then the surgeon stitched me up without numbing me. Thank goodness I have a high tolerance of pain. I have not fed for the past two nights because I have some abdominal pain that just does not feel right and it moves to my back when I feed. This just started and I hope it will subside. I have it to help me gain weight since I burn so many trying to just breathe. I could still eat with both tubes. I would love to see 90 pounds really soon!!

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 10/15/2011 6:55 AM (GMT -6)   
Ryobe-
I too had issues with my tube. I had to take a lot of meds while my esophagus healed and the tube got plugged from trying to get Cipro to go through it. Went to the ER and they tried for 6 hours to get it unplugged without an success. That was a Friday night and then went back to my surgeon on Monday and them admitted me again and replaced the tube.

Mine couldn't come out on it's own. It had a button on the in side and a bumper thing on the outside. When they finally removed it they had to just pull the button through that small hole. The button was about the size of a nickel. Thought the nurse was going to pass out. She said it looked like I was giving birth, LOL! It hurt really bad. I too had to deal with stitches twice during the repair process for my esophagus. One was an extra stitch in the skin around one of my chest tubes when they put the one way valve on it and the second time was when they closed the hole after removing the chest tube. I was told the pain yo numb it would be just as bad as the stitches without it.

I hope you are able to get to 90lbs soon also.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11
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