In a lot of pain and really scared...

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New Member

Date Joined Oct 2011
Total Posts : 3
   Posted 10/17/2011 10:45 AM (GMT -6)   
Hello, wanted to share my story as I'm a little bit scared. Firstly I would like to say I never knew what acid reflux was, I knew what heartburn was but I have never suffered that really, or noticeably suffered it. I have a very bad case of acid reflux, been getting problems since the birth of my child just over a year ago. I suffered a tiny bit of heartburn at the end of my pregnancy but that was it. After I had my son I was diagnosed with postnatal depression and told I had anxiety because i kept getting headaches and breathing problems (heart racing) etc so I was given cognitive behavioural therapy. I was highly anxious mainly because I knew something was wrong and I didn't know what. But because I was told anxiety can cause a whole range of symptoms (even looked them up online) I saw what I was experiencing could be put down to anxiety. My whole family told me it was all in my head whenever something went wrong, the doctors said I had it all in my head so when I started to have certain things happen I ignored it thinking that pain is in my head or that breathing problem is anxiety.
I remember I occasionally had this funny taste in my mouth a year ago, like when I drank out of bottles it smelt a bit funny on the bit my mouth was on, I thought oh no I must have bad breath and brushed my teeth more. In December last year my throat and mouth kept tensing up, I told the cognitive behavioural therapist about that, could have been anxiety so didn't go to doctors (felt like a mental patient there) in january february time I noticed the left side of my tongue ached a bit, couldn't see anything apart from a lump on the side of the tongue, didn't look scary so left it ignored the pains everyone told me it was in my head! started to get neck pain and ear pain occasionally, once again didn't see the point in saying about it as it could have been in my head, I had an abortion around March and that didn't help coz people thought I was depressed around then or after. Started to get tummy aches after alcohol which i thought was just bad bad hangovers, started to get nausea after abortion and abdominal pains diarrhoea got referred to GI clinic at hospital as I lost lots of weight. amongst all the other pain I totally forgot about the sore bit in my mouth. Kept telling my family i was in pain i got told it was all in my head. Started to notice a slight sore throat around the end of june beginning of july but I ended up with sinusitis so the doctor told me the sore throat was related to that (I wasn't convinced) started to get really bad breath and went to a dentist who examined my mouth and said it was fine, just thought i might suffer bad breath. Never felt right after the sinusitis started to get bad headaches my neck felt like it was tensing up a lot the breathing problems persisted, felt like i wasn't getting enough air. Went to Italy in august got tummy aches again out there drank lots of alcohol, when i got back i noticed the back of my tongue sides of tongue and throat started to feel really sore and when i looked in my mouth there was thrush and red lumps at the back of my tongue. Realising I shouldn't have ignored those slight pains months ago thinking it was all in my head. Was told the sore throat was thrush, thrush meds didn't make it go. about 5 weeks ago I noticed i kept swallowing liquid and had horrible acidic taste in my mouth so bad that I called out of hours doctors who told me I had acid reflux gave me omeprazole which worked a little bit after about 5 days, had my app with the GI clinic told them about my bowel issues (as I got referred for that) and told them I had acid reflux i never knew I had. Told them I had sores in my mouth and a sore throat on and off. They told me to carry on with my meds and sent me on my way. After that visit things started getting so so bad, pains in my neck got so bad ear pain neck spasms. Sore throat started persistantly last week it's only now I realise I have actually had what feels like sores in my throat for a long time, I dread to think what that acid has been doing. I have spent the past year eating spicy food even late meals before bed laying down flat whilst sleeping lots of alcohol. It was never obvious I had acid reflux but now it is obvious. It feels like I have tonsilitus im in so much pain I can't swollow as it hurts my throat and the sores, I'm crying every 10 mins because the pain is so intense the headaches dont stop my voice is really starting to go and last night i woke up and my throat had closed up on me because it was so sore. I have had food stuck in my throat in the last year (thinking it was due to anxiety) the omeprazole isnt stopping the acid from coming up, it hurts to talk and my throat is aching 24/7. I cant describe the amount of pain and cocodamol isnt getting rid of it. Im so scared that I have had this a very long time that I may have cancer, im finding it hard to breathe my throat feels so narrow. My nodes in my neck are up slightly. Its been weeks and weeks im in pain. I have to wait 3-4 weeks for an endoscopy and the pain is too intense. Afraid to go to hospital they will prob send me home. So scared I have cancer!

Veteran Member

Date Joined Jul 2011
Total Posts : 656
   Posted 10/17/2011 10:58 AM (GMT -6)   
Hey there,

Welcome to! I'm so sorry to hear you've been having such a tough time.

A lot of what you're describing does sound like acid reflux. I feel so terribly that you've had such bad anxiety, as it can sometimes make acid reflux worse. What it also does is make you think that you're just "blowing things out of proportion" and possibility not telling your doctor how bad things are going - I've done that before because I didn't want to bother my doctor or sound like a whiner. Well, we are our best advocates.

I would definitely let my doctor know that the medication is NOT working for you. I found it really helpful to make an outline of what's been happening - I laid out what I've done to change things, how much weight I'd lost, etc, etc, and then BAM! My symptoms have gotten worse. That way, your doctor knows that you're doing all you can but you need some extra help.

In the meantime, there are somethings you can do. Have you started writing a food journal? That helped me identify some of my triggers. Write down everything you eat, and when, and how you feel after. Also write down when you go to bed and when you wake up and how you feel then.

Some common triggers are tomatoes, chocolate, caffeinated drinks (coffee, tea, soda), citrus fruits, spicy and/or fatty foods.

Also some general rules:
-Don't lay down for at least 3 hours after eating
-Try to raise the head of your bed by about 6" (helps keep acid in the tummy)
-Eat smaller portions of food (overeating gets me every single time!)

These are just starter things that you can try. Hopefully some will be helpful to you.

Hang in there, honey! It's definitely not a picnic, but you have tons of support here and I hope you're starting a road to recovery.

Best of luck,

New Member

Date Joined Oct 2011
Total Posts : 3
   Posted 10/17/2011 12:40 PM (GMT -6)   
Thanks for your reply, so nice to have some support. That's the thing the acid comes up no matter what, everytime i swallow it, it comes back up. Nothing is keeping it down, 24/7 this acid is in my throat. My mouth is a state redness and sores everywhere and my throat feels worse than my mouth. I'm in so much pain, talking hurts moving my neck hurts, yawning hurts. And even when im still it hurts. I can barely eat because of the pain. I have anxiety but it was never as bad as they made out because realising now certain things were related to this reflux. Just in so much pain, it's constant and extremely painful. Even breathing hurts. The thing is it's been getting more and more painful, and refuses to get better. The sores in my mouth refuse to heal as well :(

Forum Moderator

Date Joined Dec 2008
Total Posts : 4961
   Posted 10/17/2011 12:49 PM (GMT -6)   
please get into a GI doctor. They will be able to find out what is going on.

Take care,
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

Forum Moderator

Date Joined Apr 2007
Total Posts : 32602
   Posted 10/17/2011 4:35 PM (GMT -6)   
Welcome to HealingWell and I agree with Bill.............get to a GI Doctor ASAP.  If you cannot find one present to the ER and they will find one for you but you need to address your issues now.
Your anxiety will decrease once you have seen a Dr. and something is done for all this acid and pain.

Moderator: GERD/Heartburn and Heart/Cardiovascular Disease.

"only as high as I reach can I grow, only as far as I seek can I go, only as deep as I look can I see, only as much as I dream can I be"
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