Hello, wanted to share my story as I'm a little bit scared. Firstly I would like to say I never knew what acid reflux was, I knew what heartburn was but I have never suffered that really, or noticeably suffered it. I have a very bad case of acid reflux, been getting problems since the birth of my child just over a year ago. I suffered a tiny bit of heartburn at the end of my pregnancy but that was it. After I had my son I was diagnosed with postnatal depression and told I had anxiety because i kept getting headaches and breathing problems (heart racing) etc so I was given cognitive behavioural therapy. I was highly anxious mainly because I knew something was wrong and I didn't know what. But because I was told anxiety can cause a whole range of symptoms (even looked them up online) I saw what I was experiencing could be put down to anxiety. My whole family told me it was all in my head whenever something went wrong, the doctors said I had it all in my head so when I started to have certain things happen I ignored it thinking that pain is in my head or that breathing problem is anxiety.
I remember I occasionally had this funny taste in my mouth a year ago, like when I drank out of bottles it smelt a bit funny on the bit my mouth was on, I thought oh no I must have bad breath and brushed my teeth more. In December last year my throat and mouth kept tensing up, I told the cognitive behavioural therapist about that, could have been anxiety so didn't go to doctors (felt like a mental patient there) in january february time I noticed the left side of my tongue ached a bit, couldn't see anything apart from a lump on the side of the tongue, didn't look scary so left it ignored the pains everyone told me it was in my head! started to get neck pain and ear pain occasionally, once again didn't see the point in saying about it as it could have been in my head, I had an abortion around March and that didn't help coz people thought I was depressed around then or after. Started to get tummy aches after alcohol which i thought was just bad bad hangovers, started to get nausea after abortion and abdominal pains diarrhoea got referred to GI clinic at hospital as I lost lots of weight. amongst all the other pain I totally forgot about the sore bit in my mouth. Kept telling my family i was in pain i got told it was all in my head. Started to notice a slight sore throat around the end of june beginning of july but I ended up with sinusitis so the doctor told me the sore throat was related to that (I wasn't convinced) started to get really bad breath and went to a dentist who examined my mouth and said it was fine, just thought i might suffer bad breath. Never felt right after the sinusitis started to get bad headaches my neck felt like it was tensing up a lot the breathing problems persisted, felt like i wasn't getting enough air. Went to Italy in august got tummy aches again out there drank lots of alcohol, when i got back i noticed the back of my tongue sides of tongue and throat started to feel really sore and when i looked in my mouth there was thrush and red lumps at the back of my tongue. Realising I shouldn't have ignored those slight pains months ago thinking it was all in my head. Was told the sore throat was thrush, thrush meds didn't make it go. about 5 weeks ago I noticed i kept swallowing liquid and had horrible acidic taste in my mouth so bad that I called out of hours doctors who told me I had acid reflux gave me omeprazole which worked a little bit after about 5 days, had my app with the GI clinic told them about my bowel issues (as I got referred for that) and told them I had acid reflux i never knew I had. Told them I had sores in my mouth and a sore throat on and off. They told me to carry on with my meds and sent me on my way. After that visit things started getting so so bad, pains in my neck got so bad ear pain neck spasms. Sore throat started persistantly last week it's only now I realise I have actually had what feels like sores in my throat for a long time, I dread to think what that acid has been doing. I have spent the past year eating spicy food even late meals before bed laying down flat whilst sleeping lots of alcohol. It was never obvious I had acid reflux but now it is obvious. It feels like I have tonsilitus im in so much pain I can't swollow as it hurts my throat and the sores, I'm crying every 10 mins because the pain is so intense the headaches dont stop my voice is really starting to go and last night i woke up and my throat had closed up on me because it was so sore. I have had food stuck in my throat in the last year (thinking it was due to anxiety) the omeprazole isnt stopping the acid from coming up, it hurts to talk and my throat is aching 24/7. I cant describe the amount of pain and cocodamol isnt getting rid of it. Im so scared that I have had this a very long time that I may have cancer, im finding it hard to breathe my throat feels so narrow. My nodes in my neck are up slightly. Its been weeks and weeks im in pain. I have to wait 3-4 weeks for an endoscopy and the pain is too intense. Afraid to go to hospital they will prob send me home. So scared I have cancer!