Starting my adventure to give up Nexium after 10 years..

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Adam77
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Date Joined Nov 2011
Total Posts : 148
   Posted 11/14/2011 10:00 PM (GMT -6)   
I will try to post updates on my progress. I have been on PPIs--Prilosec and Nexium--for more than 10 years. I have decided to come off Nexium and try natural alternatives and life style changes. I have started with giving up on soda, coffee, tomatoes, Onion, and citrius fruits. I am also starting to take probiotics and omega-3. I have not reduced Nexium dose yet, and I have not started any alternative yet. Coming off caffeine is hard :(

sunbeam48
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Date Joined Jun 2011
Total Posts : 795
   Posted 11/15/2011 5:55 AM (GMT -6)   
Have you looked at the Kouffman low acid diet? She allows a cup of coffee daily. I eat some tomato products by including them in dishes with alkaline foods, which help neutralize the acid. I also use calcium carbonate tablets or the product CalciBlend (which contains mostly calcium carbonate) to neutralize acid foods. It is critical that you cut way down on the fats in your diet. Baked goods, for example, have a lot of fat. Fats are hard to digest, so our bodies have to use a lot of acid to digest them. Those lists of triggers really don't give you the big picture of how to eat better.

Adam77
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Date Joined Nov 2011
Total Posts : 148
   Posted 11/17/2011 12:53 AM (GMT -6)   
Sunbeam48, thanks for the advice. I am going to look into the Kouffman diet. I found her book on amazon. Did you come off any PPIs too?

Adam77
Regular Member


Date Joined Nov 2011
Total Posts : 148
   Posted 11/17/2011 12:57 AM (GMT -6)   
I have stopped drinking soda, but I have started taking white+green tea fusion with ginger and honey. I am still taking half coffee in the morning. Eventually, I will stop coffee too.I also started taking Omega-3 from Kirkland today. Next step is to add some probiotics, before I start reducing Nexium dose.

sunbeam48
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Date Joined Jun 2011
Total Posts : 795
   Posted 11/17/2011 6:54 AM (GMT -6)   
I have reduced my dosage of Nexium, but I am not off it yet.  I'm pretty new to this game, my symptoms just started last winter.  I have osteopenia, and can't afford the calcium loss of long-term PPI use.  But I also have Barrett's esophagitis, so I need to be careful.
 
Here's a link to the thread I started here.  It has the information you need to get started on this diet if you like.  http://www.healingwell.com/community/default.aspx?f=45&m=2210975
 

Adam77
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Date Joined Nov 2011
Total Posts : 148
   Posted 11/17/2011 10:24 PM (GMT -6)   
I did not miss soda today. I guess I am getting used to without soda and half coffee.

Adam77
Regular Member


Date Joined Nov 2011
Total Posts : 148
   Posted 11/26/2011 11:40 AM (GMT -6)   
Back from thanksgiving family trip. I guess no progress was made because of all the food. However, I stayed away from soda. My blood tests showed that I have vitamin D deficiency, so I am taking vit D supplements in addition to the multivitamin supplements. I will add probiotics this week. It is good to know that after being on Nexium for 10+ years, I do not have iron/calcium deficiency.

Adam77
Regular Member


Date Joined Nov 2011
Total Posts : 148
   Posted 11/27/2011 1:08 AM (GMT -6)   
I started Align Probiotics today. I feel better in my gut. Since today is the first day, not sure if good feeling is because of probiotic or something else. I guess I will find out.

Adam77
Regular Member


Date Joined Nov 2011
Total Posts : 148
   Posted 11/29/2011 12:26 AM (GMT -6)   
I went to see GI today to discuss my plan of coming off Nexium and to find out why I have been having some pain in my upper abdomen. First he wants to do endoscopy and ultrasound to find out why there is a pain. Well that makes sense. I asked him if there is a way to find out the root cause of my acid reflux and how can I come off Nexium. He said that acid reflux is similar to the diabetes, which does not have a root cause and people just have it. He said once we fix ( if possible ) the pain, I can try to come off Nexium cold turkey. Well that is stupid. I think he felt obligated to his pharmaceutical industry backed job to not let me follow a decent path that can allow me to come off Nexuim.

Adam77
Regular Member


Date Joined Nov 2011
Total Posts : 148
   Posted 11/29/2011 12:31 AM (GMT -6)   
As far as the progress is concerned, I am fully on omega-3, multivitamin, and probiotics. No more sodas and only 1 cup of coffee. At night I drink one cup of white+green tea with honey and ginger root. I have ordered DGL from amazon, and bought Pure baking soda.

mudmagnetmum
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Date Joined Apr 2011
Total Posts : 1604
   Posted 11/29/2011 7:14 AM (GMT -6)   
You're doing well - it really is a question of trial and error at this stage with alternative treatments. I find DGL very useful and when I had my first attack of GERD 3 years ago I came off Nexium (cold turkey cos I'd never heard of acid rebound!!) due to side effects, I got better on DGL alone (or so it seemed anyway). This time round I'm struggling to be symptom free even on the drugs, but I keep trying natural treatments so that I can at least minimise my drug use. I plan to have a go with probiotics but am wanting to try a drink form so that it targets the stomach rather than the intestines, and that would have to be dairy free for me, so not easy to obtain!

Good luck and do let us know how you get on with your DGL.

MMM
New stuff: GERD. Interstitial Cystitis
Lifelong stuff: Food allergies, eczema, asthma

Adam77
Regular Member


Date Joined Nov 2011
Total Posts : 148
   Posted 12/2/2011 1:40 PM (GMT -6)   
I switched to 20 mg OTC Prilosec from 40 mg Nexium today. So far so good. I will how it goes before I start reducing Prilosec.

Adam77
Regular Member


Date Joined Nov 2011
Total Posts : 148
   Posted 12/4/2011 10:34 PM (GMT -6)   
I have not experienced acid reflux on 20 mg Prilosec and one DGL before meals. I also had ultrasound done for the upper abdominal pain. My GI wants me to stay on Nexium 40 mg till we figure out why I have dull abdominal pain. My endoscopy is in two week.

As far as food is concerned, I have been cooking food without tomato and onion.

Adam77
Regular Member


Date Joined Nov 2011
Total Posts : 148
   Posted 12/16/2011 4:10 PM (GMT -6)   
Ultrasound and Endoscopy is done. Ultrasound of the gall bladder came out fine, and endoscopy was fine except mild gastritis. I will have to stay on Nexium for now till my gastristis gets better. Meanwhile, I have been trying Manuka honey and ginger, and trying to stay away from tomato based, fatty and fried foods.

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 12/16/2011 5:00 PM (GMT -6)   
I have mild gastritis too - well it was there on my scope. It's very hard to separate the symptoms of that from the symptoms of GERD in general I find. Did they say how you would know when the gastritis was cleared up?

MMM
New stuff: GERD. Interstitial Cystitis
Lifelong stuff: Food allergies, eczema, asthma

Adam77
Regular Member


Date Joined Nov 2011
Total Posts : 148
   Posted 12/17/2011 10:08 AM (GMT -6)   
He said to keep taking Nexium and gastritis will clear up on its own. My physician had suspected that I have gastritis, and he had suggested to take Nexium twice a day till the pain went away before I saw my GI.

Adam77
Regular Member


Date Joined Nov 2011
Total Posts : 148
   Posted 12/18/2011 8:16 PM (GMT -6)   
I have been trying manuka honey with ginger, and it seems to help in the gastritis pain. I take manuka honey with ginger and banana in the morning before eating anything else.

Adam77
Regular Member


Date Joined Nov 2011
Total Posts : 148
   Posted 12/23/2011 11:06 PM (GMT -6)   
So all the results came back from the endoscopy. The endoscopy showed mild gastritis. The biopsy did not show H. Pylori. My GI said to stay on Nexium till the symptoms of gastritis go away. Meanwhile, I have been taking DGL, papaya before dinner, and trying Manuka honey with ginger. I have been also journaling about the what foods cause the pain. I have found so far that the fried foods, fried eggs, steak, and tomato based sauces cause pain.

BurningMan
New Member


Date Joined Apr 2011
Total Posts : 9
   Posted 12/23/2011 11:57 PM (GMT -6)   
I'm following this thread as I'm trying to wean off Nexium after > 6 years of use. My last GERD attack was about 10 months ago and after diet changes (less coffee, no fried foods, etc.) and 10% weight loss, I'm doing much better. about 2 months ago I reduced my dose from 40 mg to 20 mg daily without a problem. But my attempts to skip a dose haven't been successful. I was taking DCL until about six months ago. Maybe I will try it again, but the rebound reflux from missed Nexium doses scares me. My endoscopy showed mild gastritis and my GI said I don't have to take the Nexium, but the raging heartburn scares me into taking it. I am determined to stop my daily use if I can.

Adam77
Regular Member


Date Joined Nov 2011
Total Posts : 148
   Posted 12/24/2011 12:09 AM (GMT -6)   
BurningMan,

Initially my GI told me to stop taking Nexium cold turkey when I told him that I would like stop taking Nexium. However, stopping Nexium cold turkey did not make sense to me, so I switched to 20 mg Prilosec and I was doing fine. I was also having dull pain in my upper abdomen before I switched to prilosec, so my GI did Endoscopy and ultrasound for gallstones. Due to mild gastritis, I had to switch back to Nexium. Eventually, I really want to stop taking Nexuim. I have started to make diet changes and started taking supplements. I hope I will slowly wean off Nexium once I have my gastritis under control. I have noticed that diet makes the biggest difference.

WJF
Regular Member


Date Joined Sep 2011
Total Posts : 273
   Posted 12/24/2011 10:13 PM (GMT -6)   
I'd like to share how I am able to stop taking my PPI. The key is to discover the triggers for GERD and eliminate them one by one. I had tried several times stopping Nexium / Parient without success. The final attempt was a success. I failed the failed attempts because I unknowingly hit my trigger which is stress and it caused the rebound reflux.

Quiting cold turkey after dosage reduction is best if you are able to find your triggers and have taken a proper diet and some supplements for some time.

I did double doses -> single dose -> antacid only.
20mg single dose -> 10mg single dose doesn't work for me. It somehow triggered massive reflux.
So I opted for 20mg single dose -> antacid only.

Some research papers claimed that single dose -> H2 Blocker -> antacid is a good way too.

Post Edited (WJF) : 12/24/2011 8:25:31 PM (GMT-7)


Adam77
Regular Member


Date Joined Nov 2011
Total Posts : 148
   Posted 1/8/2012 11:25 PM (GMT -6)   
My gastritis has subsided after removing bad foods from my diet. I have also found that Metamucil has been giving me upper abdomen cramps. I have added Magnesium and Calcium citrate to my supplements. Hopefully, soon I will be able to switch to 20 mg prilosec.

BurningMan
New Member


Date Joined Apr 2011
Total Posts : 9
   Posted 1/9/2012 11:16 PM (GMT -6)   
Why is Prilosec a good alternative to Nexium?

Adam77
Regular Member


Date Joined Nov 2011
Total Posts : 148
   Posted 1/9/2012 11:39 PM (GMT -6)   
I am on 40 mg Nexium right now. I would like to reduce the dose to 20 mg first before I try to come off it completely. Since I do not have prescription for 20 mg Nexium, I can use 20 mg Prilosec, which is available OTC. Neither Nexium nor Prilosec are good options.

sk55
Regular Member


Date Joined Jun 2011
Total Posts : 225
   Posted 1/10/2012 10:12 PM (GMT -6)   
Hi Adam

Since 20 mg nexium is about equal to 40mg prilosec

You might want to scale down to 2 20 mg prilosec.

Consult with doctor before you try

Nexium is basically a purer version of prilosec.


I did the above then went down to Zantac 300
Then Zantac 150

To no ppi
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