Tif procedure in July

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orange17
Regular Member


Date Joined Aug 2011
Total Posts : 28
   Posted 11/15/2011 11:33 AM (GMT -6)   
 Hello to all again,
 I had TIF procedure done on July 18 of this year, while I followed the diet required to the letter, my recovery was very slow. I could not regain my stamina. What started off to be 2 weeks of work has turned into 4 months as of this coming Friday. My medical sympton right now is extreme dizziness, I mean to the point that I have to sit down or even lay down and keep my eyes closed until the dizziness goes away. My question is has anyone on here ever had the TIF done and their body just simply reject it, I was not dizzy before the procedure. The plant nurse where I work asked to to explore this option. Is there anyone out there who has had to reject the TIF or remove it. I cannot return to work until this problem is resolved, I am going nuts sitting at home and would really appreciate some resolve to my issue. We had had head MRI done, hearing test and blood work. Next step is a dizzy test.  Thanks

bcfromfl
Regular Member


Date Joined Nov 2011
Total Posts : 417
   Posted 11/16/2011 2:29 PM (GMT -6)   
Are you taking any medications?  My surgeon prescribed Lortab for post-op pain after my TIF, and I couldn't take it because it made me so dizzy.  Acetaminophen doesn't do anything for me anyway (the analgesic component in Lortab), so I went back to ibuprofen.
 
I Googled "vagus nerve" and "dizzy", and came up with a few references.  It's unlikely, but I suppose it's possible that somehow the procedure could have impacted/stimulated the vagus nerve.  That might be difficult to diagnose, but I believe there is medication to limit nervous system signals.  Perhaps an off-handed method to eliminate possibilities.  Check with your doctor.
 
Hope your troubles pass soon -- I'm sometimes prone to vertigo, and know how miserable that feeling is!
 
-Bruce

orange17
Regular Member


Date Joined Aug 2011
Total Posts : 28
   Posted 11/16/2011 4:22 PM (GMT -6)   
  Thanks,
I will explore some of those options alittle. I did find the material that they use in the TIF is the same material used in vaginal mesh and the like. Of course there has been a lot of media about lawsuits over that stuff, but I can find no significant studies that prove that the human body will reject the material or even absorb it. Who knows, I am rolleyes frustrated and wanting answers because staying home all the time is just not my cup of tea. nono
Sam

bcfromfl
Regular Member


Date Joined Nov 2011
Total Posts : 417
   Posted 11/16/2011 5:48 PM (GMT -6)   
Hi again --
 
I actually just asked that very question of my surgeon on Monday this week.  The fasteners are made out of polypropylene...or the same material used in monofilament fishing line.  Very inert stuff.  Lasts for years when it's discarded or left carelessly around, as you probably know.  I think you can assume that these are permanent, and wouldn't even be safe to remove once the tissues grow around them.  In a normal procedure there are 16 fasteners (four rings of four each), although, as he explained to me, sometimes one or two "misfire" and don't thread properly.  I think I remember him saying I have 17 total.
 
I wouldn't worry about this.
 
-Bruce

orange17
Regular Member


Date Joined Aug 2011
Total Posts : 28
   Posted 11/16/2011 7:13 PM (GMT -6)   
  Oh I am not, the nurse at the plant where I work asked me to research this subject because she is convinced that my body has rejected the TIF procedure and it needs to be reversed. I think that her theory is wrong but I can't prove that. Now the reasoning for this is that I had no issues except for getting pneumonia 3 or 4 times a year before we did the TIF, the pnemonia was being caused by reflux that was spilling over into my lungs, I had a good pulmoary doctor who reached that diagnosis. He did not tell me to have TIF done he just told me it was an option.
 Honestly the TIF procedure itself has done it's job, I have no reflux, I take no Nexium ( I was 2 per day), I have occasional heartburn that a weak antacid takes care of, that is what I call a normal person.
 The bad thing is that after the TIF my life went upside down. I could not regain my stamina, I lost 50 pounds ( not such a bad thing) , then I got depressed because I could not go to work or anywhere else for that matter, they chased possible gall bladder issues, liver issues and pancreatic issues  to no avail, I have been scanned, xrayed, stuck and poked at and found little or no problem, and the dizziness was there all along too. It is the only thing I have going on now my primary care doctor sent me to a ear,nose and throat doc and he could see right away that I had a dizziness issue, he became a little angry that they had let me go so long and not did some testing but so far his tests have revealed nothing. I actually think your trail that you have sent me on about the possible nerve issue may hold water and may be why the diagnosis is so difficult.
 Anyway to answer your question about meds, the doctor put me on some liquid acetominophine right after surgery, it made me sleep a lot but it was not refillable I can understand that, I take little or no pain medication. I was put on Zoloft for the depression but stopped taking it after 4 weeks due to extreme abdominal pain, he put me on Effexor and I came to my senses and quit that too so I am clean for the evil drugs but still so dizzy I can't work or drive.
 Thank you for being a friend and listening I will try to repay

bcfromfl
Regular Member


Date Joined Nov 2011
Total Posts : 417
   Posted 11/17/2011 9:08 AM (GMT -6)   
While I didn't have your dizzy symptoms (my TIF was done on 8/25), I empathize with your difficulties, and your struggle with depression.  My TIF "worked"...just not good enough to alleviate my LPR symptoms.  I was a professional singer, and lost my voice over a year ago.  I have not sought medication for my depression, but I know exactly where you're at.
 
This disease has ruined my life, and a lack of support can make this road intolerable.  This community is invaluable in this respect...make sure you keep checking in!
 
-Bruce

orange17
Regular Member


Date Joined Aug 2011
Total Posts : 28
   Posted 11/17/2011 9:42 AM (GMT -6)   
 
  I told my surgeon about this site, the lab nurse at my primary care doctor was having the same procedure she was asking me all kinds of questions and I directed her to this site for help and support, by the way she came through easily and is 100% now yet her surgery was in late August too. turn
 So I can certainly agree with you about the road to recovery, I got NO smhair that's right NO support from my surgeon, all of the tips on how to cope with the procedure came from healingwell.com, when I told him about the website he said he wqould need to check it out because he was telling me things that contradicted what people say on here nono . Anyway the people who have responded to my concerns have been invaluable. I have learned this probably you have too, never underestimate the value of responding to someones questions and concerns, they are on the other end of this, needing a friend and some help, just because I feel that my answer may not help is not a reason to ignore these folks.
 Have a great day tongue
Sam

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 11/17/2011 10:18 AM (GMT -6)   
I am happy to read you have found the peer support here in HealingWell to be supportive and caring.
 
Please remember HealingWell is neither intended nor implied to be a substitute for professional medical advice. I do believe strongly that each person needs to become their own best advocate when it comes to dealing with your health and I am glad to know you are doing just that.
 
Kindly,
Kitt
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.

www.healingwell.com

"only as high as I reach can I grow, only as far as I seek can I go, only as deep as I look can I see, only as much as I dream can I be"

Post Edited (stkitt) : 11/17/2011 8:21:19 AM (GMT-7)


Tandem Rider
Regular Member


Date Joined Jun 2011
Total Posts : 122
   Posted 11/17/2011 4:12 PM (GMT -6)   
I had the TIF in April of this year. My reflux seemed better but I was still having some pain and waking up at night, which has been my major compliant for 10 years. My doctor put me on carafate and much of my pain disappeared but I still was not sleeping and having problems. A pH test 4 months after my TIF showed much reduced reflux and an endoscope showed that my TIF was in good shape but I had two mostly healed ulcers, could they have been my pain?

Last week I was reading about IBS and lactose intolerance was mentioned. I realized that on the TIF diet I started consuming more dairy products and I have continued consuming more dairy since the TIF diet. Since reading this I have stayed from dairy products and I seem to be better (fingers crossed.)

One thing I have learned about health in the last 10 years is that problems may be caused by several factors. Before my TIF I had been diagnosed with gastritis, gall bladder stones (removed), and hereditary hemochromatosis (high iron) treated by 10 units of blood drawn over 1.5 years.

Reflux is a health problem that is often discounted and lowers a persons' quality of life. As difficult as it is, continue to be your own advocate and seek answers.

Good luck,
Sheldon

orange17
Regular Member


Date Joined Aug 2011
Total Posts : 28
   Posted 11/26/2011 12:16 PM (GMT -6)   
Well hello all:

I had my TIF procedure done on July 18,2011. I followed my diet even more so than most, even the doctor said most people cheat but I didn't. The rocovery process was horrible though, after 2 weeks of pure liquids I could not get my stamina back, dranke ensure, ate yogurt and cottage cheese and the like and slowly got to where I felt pretty good but a nagging lump in my throat forced me back to the surgeon, he sent me for a barium swallow and they saw a esophagial web, I told him that I would rather not be sedated to look at it after some investigation but my primary care doctor wents nuts and said we have to go in and look so I scheduled an EGD. It was done on a Monday morning and it took me until Friday of that week to get back outside the door of my house. Since that time I have been hit with awful dizziness, it comes in attacks and is keeping me from working or having my life back. The primary sent me to an ENT who did some tests for vertigo and minears then a head MRI, nothing showed up so he wants to do a VNG but can't get in until Jan 13,2012, Can't wait that long so I visited another ENT in a bigger city nearby and he did a very thorough check on me. He looked down my nasal passages to my esphagus and said "I don't know whp told you you were cured of reflux because you have it all the way up to your larynx. We are going to do some more tests but the bad thing is I was put back on Nexium, am still dizzy and according to him have some serious silent reflux. I am dissapointed, I wish I had may done some more research on my surgeon, perhaps he was too inexperienced I don't know but I am very unhappy with the results.

--------------------------------------------------------------------------------
Sam
Sam

bcfromfl
Regular Member


Date Joined Nov 2011
Total Posts : 417
   Posted 11/26/2011 2:48 PM (GMT -6)   
Like you, I thought my TIF procedure had failed.  My situation and symptoms aren't the same as yours, of course.  For three to four weeks following the surgery, I was reflux-free, and went back to sleeping prone.  Then, I started noticing the burning, sour taste in my mouth in the morning, and knew that the reflux was back.  I'm guessing that the swelling of the surgical site during the recovery period was enough to stop 100% of the reflux, for those first few weeks.
 
I scheduled another EGD, and another 48-hour pH study.  My DeMeester score has been dramatically reduced into the "normal" range, but that doesn't mean that the reflux is totally eliminated.  Did you have another pH study to confirm the reflux?
 
LPR is a special case.  Most patients only have LES issues leading to GERD, and for those who elect to have the TIF, can probably experience good results.  My expectations were probably too high, and am also disappointed with the results.  I am back to sleeping on a wedge, and take Gaviscon tablets before bed...although the effect of these doesn't last throughout the night.
 
I have been referred to the Mayo Clinic in Jacksonville by both my GI and the surgeon, but have to wait until January for my appointment.  Have to go through the whole deal with initial office visit, etc., all over again.
 
Hang in there, Sam!
 
-Bruce

orange17
Regular Member


Date Joined Aug 2011
Total Posts : 28
   Posted 12/8/2011 10:33 AM (GMT -6)   
 Hello to all:
 I felt I should post an update to my situation as it seems to be somewhat unique. My ENT has diagnosed me with LPR and placed me back on Nexium 40 mg. per day. This is a heartbreaker in that I had hoped my dependency on the drug would go away. There has not been another study as yet but we will do one. For we first have to get me over the dizziness that has been with me ever since the surgery. The only reason the dizziness did not rise to the top was it was not my only issue, strength, stamina, rapid weight loss, depression and such were first, I got over all of those things, became 50 pounds lighter and lost 6 inches on my waist line, not a bad thing.
 A few weeks ago my primary care doctor referred me to a ENT in a larger city near here. The old gentlemen seemed experienced enough and even had come recommended by a few of my friends. He did a visual halls pike test for vertigo and meneires disease and declared that I had neither. He ordered an head MRI and found nothing ( I love the way that sounds) so next step is VNG, unfortunately can't get one until January 13,2012 confused , unacceptable. I contacted my primary and he then sent me to another ENT in a larger city near here and the guy has been great. He made an immediate diagnosis of menieres disease but wanted to do the test to make sure, an ECOG and halls pike with proper equipment were ordered for the next week, guess what, I have menieres disease. Now as to how it ties to my procedure he has a theory, but theory only, menieres has no known cause or cure. He beieves that that my blood preassure dropped during the procedure and a peice of plaque from an artery moved to my ear, ( sorry, best he can do) at any rate I am now in the process of getting a decadron injection 1 per week and doing some in home rehabilitation and getting a little better. tongue   Will post more as I go. If anyone has any experince with this I would appreciate chiming in. yeah
 

LocalGuy23
Veteran Member


Date Joined Sep 2011
Total Posts : 620
   Posted 12/8/2011 3:23 PM (GMT -6)   
Orange,

Oh my, you've been through a lot. Was the loss of weight due to the surgery? Did you consider Nissen before TIF? Do you think the TIF contributed to the meneires?

orange17
Regular Member


Date Joined Aug 2011
Total Posts : 28
   Posted 12/8/2011 4:16 PM (GMT -6)   
  The loss of weight was due to complications from the surgery, I could not eat anything solid for a longer period of time than normal. Ensure, yogurt, cottage cheese and liquids that had no sweeteners were my best friends.
I did consider Nisssen, and sometimes wish I had taken that route but we never know. A lot of thought went onto the decision to do TIF, recovery time was one of the major weighting factors unfortunately that backfired. The lab nurse at my primary care doctors office had TIF 1 month after me and has had no complications, so who knows.
I cannot say for sure that TIF contributed to meneires disease, neither can my ENT. All we are theorizing is that since we know I have cholesterol and triglyceride issues theorectically it is possible that my blood pressure dropped during the procedure and released the plaque.
Sam

Tandem Rider
Regular Member


Date Joined Jun 2011
Total Posts : 122
   Posted 12/8/2011 10:09 PM (GMT -6)   
Orange 17 - Sorry to hear of your menieres disease but glad to hear that you have a diagnosis and getting some help to regain your health.

Sheldon
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