PEH Surgery in December

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imstarryeyed
Regular Member


Date Joined Nov 2011
Total Posts : 95
   Posted 11/15/2011 9:02 PM (GMT -6)   
Hi, All! I've been reading all of your experiences with the nissen wrap and I'm very grateful to have this information. I am having surgery for a giant paraesophageal hernia on December 13th. about 2/3 of my stomach is where it should not be. I didn't think I had any symptoms until I started reading this forum. I have been severely anemic for years but no one told me it was related to the hernia which I've also had for many years. I also have asthma. I was told by the surgeon from my last HMO that he didn't believe in doing surgeries because the hernias just return. The surgeon at my new medical group scared me into believing I might die if I didn't have the surgery. Now that I've read about it myself I've decided it's the right thing to do for me at this time.

I do have a few questions that I haven't read the answers for so I appreciate any words of wisdom about these things.
• I live alone in a 2 story house with bedroom and bath upstairs. Is that going to be a problem- going up and down stairs? I won't have anyone around to help me if something goes wrong.
• How long before I can drive? I will be the one doing grocery shopping, etc, so I need to know just how much soup, juice to have in the freezer.
• My regular doctor (not the surgeon) has said I'll lose a lot of weight. That's not a problem as I NEED to lose a lot. I need a hip replacement and I have difficulty walking. The doctor thinks this surgery will help my hip and may put off the need for surgery. I hope that's true. I have read that most of you have lost weight but have any of you lost a LOT?

By the way, I'm 59, female and just retired from teaching.

Thank you for any advice!

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 11/16/2011 12:28 AM (GMT -6)   
starryeyed-

Welcome To Healing Well. Your issues sounds a lot like a member her named Alcie. She had a huge hernia also and was also told it needs to be fixed due to severe complications if it isn't repaired. I don't want to sound doom and gloom, but she makes a lot of sense that it could become strangulated since it is in the wrong place.

I live in a 2 story hose also and have not had any issues with the stairs. Granted for the first week or so I was slow gong, but no real problems with the stairs.

Each surgeon is different on the post op diet, so I would talk with your surgeon as to what kind of diet you will be on after surgery before deciding what to buy.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5029
   Posted 11/16/2011 9:42 AM (GMT -6)   
Hi starryeyed, hope you are feeling well today.

As Bill said, I had a GPEH too, and I'm older and mostly alone. I could feel the stomach trying to roll/twist when I turned over in bed. Had it done so, the blood supply would have been cut off, and I would have had half an hour to get into surgery or it would have killed me. Believe your new doc!

First, I hope your doc has made you jump through the hoops, get the esophagus measured, check your swallow. I have an extremely weak swallow, so my surgeon did a "Toupet," partial Nissen, so I would be able to swallow past it. (google it) My esophagus was a bit short, so they had to "let down" more of it from the mediastinum.

Since this is a good bit more involved surgery, you'll be in a little worse shape than the usual Nissen patients, but still not intensive care. That just meant 4 days in the hospital for me. I was up, sitting a little, 2nd day, but I didn't have to get meals (broth, juice). I was happy for the vacation from the house. IV pain meds are a lot better than crushed pills too.

You won't be able to drive for at least a week, probably 2, maybe need a driver to get to the post-op appointment. Even then you can't lift anything, so stock up enough clear liquids for 2 weeks, "full" liquids for another 2 weeks (just means added milk which you can get ultra-pasteurized so it will last, may have to look for lactose-free to find ultra pasteurized). Then a month of easy foods you can mash to completely soft - canned soup. Google some online post Nissen diets.

The rest of the crowd gets to eat regular food earlier, but with a GPEH don't push it!

Your doc won't give you the diet info until you go home, won't give you the pain med Rx until then either. (I think it's stupid not to give info way before surgery so the patient can prepare.) You'll need a driver and plan to stop on the way to fill the pain meds. It'll be liquid to start, maybe a liquid to prevent constipation too. Take them on time! Don't let the pain start or it will get out of control. If you have sensitivity to pain meds, vomiting and such, make sure the doc knows it so you don't get something you don't tolerate! Ask for a Rx for Zofran or something for nausea. If you vomit you can wreck the wrap. I did.

Going upstairs shouldn't be a problem unless it's horrible now. Just limit it. There are rental places for patient needs if you think you might need a bedside commode. Try Salvation Army or Goodwill if you can't find a rental.

I didn't lose any weight overall, just a couple of pounds in hospital, probably fluid, which I gained back. I just ate/drank a tiny smidge every hour or two. You can ask for "food" any time you want it in the hospital. You can only tolerate 1/4 cup for first week. Some people do lose weight. Do keep hydrated to stay out of trouble.

I had more trouble because my GPEH was due to a car accident. Seatbelt shoved my stomach into my chest, broke ribs, worsened my back, had other damage. I have fibromyalgia which adds to pain too. You may feel lots better than I did, even with a bad hip.

Do you have Holiday plans, not travelling? It would be a good idea. You'll be on full liquid or pureed food.

Ask if you have more questions. (See old posts - search box at top of page) Let us know how you're doing. Best wishes.
Alcie
 
 

imstarryeyed
Regular Member


Date Joined Nov 2011
Total Posts : 95
   Posted 11/16/2011 11:03 AM (GMT -6)   
Thank you Bill and Alcie! Alcie, I've read your harrowing story! I have had the manometry and 24 hour ph study done. No problems there. I can hear and feel the hernia moving inside of me which is creepy. Others have heard it too. I'll be glad to be rid of it for that reason. The surgeon did tell me it could twist and cut off blood supply to my stomach which is life threatening. I've not suffered from GERD but wonder if my asthma is exacerbated by the hernia, which is against my lungs.

Because I'm alone and will be doing most of this on my own I would like to have meds and diet info before I go for surgery but the surgeon won't do that. I will stock my fridge as much as possible. My 80 year old mom will be my driver when absolutely necessary but I won't be sending her to the pharmacy or grocery store as she has mobility problems of her own. I've looked at several diets online so I feel I'm somewhat prepared for the doctor's instructions.

I have no plans for the holidays, I'll just be at home. As for the stairs, I'll make it my goal to do them only once a day for the first week or so. Thank you, again, for your advice. It is comforting to know there are others out there who have survived and thrived!

Starry

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5029
   Posted 11/16/2011 9:08 PM (GMT -6)   
Good for you doing your homework!  Being prepared makes it lots easier.  I'm glad you are cognizant of the seriousness of this kind of hernia.  I think you have a good doc looking out for you.
 
There are several good stories of easing asthma symptoms on this forum.  Put asthma in the search box.  Since so much of your stomach is in your chest it is probably affecting your lungs and also your heart.
 
I'm glad you have someone who can help at least a little.  You won't need much.  Just don't let them send you home before you're ready.  I stayed 4 days, partly because I told my docs I would be alone at home most of the time. 
 
This isn't a lot of fun, but it's lifesaving in our cases.
 
 
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