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j-k
New Member


Date Joined Nov 2011
Total Posts : 5
   Posted 11/19/2011 4:38 PM (GMT -6)   
This year I was told I do have Barretts which was a shock as I did not have heart burn just felt like I had a cold, sore throat. As I am unable to take the tablets for GERD without being really sick, they want me to have the Nissen surgery to keep the pre cancer area 'safer' as I am high risk.With the tablets I have a 1 in 30 of it becoming cancer and a 1 in 10 with out the tablets. I did the 24 hour monitoring this week. I feel I am on high speed to rush and from what I read I could stick to being monitored by the endoscopy. It is so hard to find someone to chat to and this seems a site for of good advice. Please help.
My Doctor gave me 10 pages of info to read and I have been on many sites to read more on the Nissen.
I am really slim and can not afford to lose any more weight how do you maintain your weight eatting soups?
What do I need to concider before the op?
I don't feel I have any other options, do I?
Any advice?

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 11/19/2011 6:18 PM (GMT -6)   
j-k-

I also have Barretts and all the info I have seen says it's more like less than 1 percent will advance to cancer. This surgery isn't something to take lightly. Make sure your surgeon has done a whole lot of them successfully if you do go through with it.

Also I wouldn't have this surgery without having a manometry and PH study done to make sure my esophagus is functioning properly and that there is a problem with the LES.

I am wondering if you have classic GERD or LPR, since you said you only noticed something like a cold or sore throat.

I would talk with a couple surgeons and let them review your info and see what they recommend. There is also a procedure to get rid of the barretts. It's called halo ablation. We have a member who had it done and last I heard his was now gone.
I have been through 3 nissens, my latest was 8/24/11 and I still have an EGD once a year to biopsy and check for barretts. Also to make sure it doesn't advance to dysplasia.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

j-k
New Member


Date Joined Nov 2011
Total Posts : 5
   Posted 11/19/2011 8:14 PM (GMT -6)   
I have had my PH test two days ago.
It all started with a Barium swallow that they found several issues thats why they then took biopsy's and found the pre cancer.
I feel underpressure to protect myself as they said if i can not take tablets then I need to have the Nissen, but i agree it does not read like I should jump in to it, I have a young family to think of. I know I have to wait for the results from the PH test.
When they say 'high risk' but you also know that a small percent get full on cancer I want to wait until next November have another biopsy and then make my choice but I am alone on that.
As you say I will go and get another surgeon to review and go from there.
Thanks for that.  

bcfromfl
Regular Member


Date Joined Nov 2011
Total Posts : 417
   Posted 11/19/2011 10:32 PM (GMT -6)   
I'm a little mystified why your doctor would recommend the Nissen first before directly treating the Barrett's with ablation?  I'm assuming by "tablets" you mean PPIs?  If you are intolerant of PPIs, then I can understand the discussion of surgery to protect the esophagus, but it seems like, at the moment, the Barrett's should take precedence.
 
Also, the Nissen isn't the only surgical option available.  Be sure to get a second opinion if your doctor only recommends this option.
 
There is a friend at church who had the ablation, and his Barrett's is gone as well...although he manages the reflux with PPIs.
 
Best of luck to you!
 
-Bruce

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 11/19/2011 11:48 PM (GMT -6)   
j-k

Well actually barretts is pre pre cancerous. The actual pre cancer is dysplasia and there is 2 grades of dysplasia. Low grade and high grade. I didn't have the nissen done to actually stop barretts from advancing, but to control my out of control reflux. My LES pressure was almost non existent. I have had barretts for 7 years now and get it checked once a year as long as it doesn't advance. If it does advance they said I would have it checked every 3 to 6 months.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

j-k
New Member


Date Joined Nov 2011
Total Posts : 5
   Posted 11/20/2011 10:26 AM (GMT -6)   
I am still in a state of shock I guess, yes the PPIs I could not take. He said I would go every six months to be checked with out the Nissen or taking the PPI's and go from there. It was explained to me that the PH test would say if the discomfort was from reflux and having the Nissen would mean less irritaion to the area. Is it normal to have more than one Nissen and is it true you can no longer vomit ever again? And are you saying no need to worry if you have Barretts?
Thanks

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 11/20/2011 12:19 PM (GMT -6)   
I am not saying there is no chance that barretts can turn cancerous, just that it is a very low percentage that does. I did have an EGD done every 6 months for a year and when they determined it hadn't changed I started to get one every year. Seems a lot of people have come here hearing they have barretts and automatically assume this is a fast track to cancer, but it's not. There are people have had barretts their whole life and it never advances any farther. Basically be your own best advocate and get as much info about this as you can from multiple resources.

Have you tried any natural remedies to control the reflux? Some people have had good results with this. I do want to emphasize that this is major surgery and to be sure you are a good candidate to have this surgery if you go that route.
It is not normal to have more than one nissen, well depending on how well the original is done. I had to have a redo because my first was done incorrectly. I had to have my second redo because in order to repair a tear in my esophagus and save it, they had to do some things that destroyed my redo(that was perfect for 2 years).

Besides the PH study do get a manometry before having this surgery to be sure your esophagus is strong enough to still work correctly after the wrap. May also show if there is a mechanical problem with the LES.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

j-k
New Member


Date Joined Nov 2011
Total Posts : 5
   Posted 11/20/2011 12:59 PM (GMT -6)   
Thank you Bill,
I only had the news just over two month ago, the PH test a few days ago and they have me on a fast track that I feel out of control but listening to you I will talk to another surgeon once i get the PH test but I think I will take control now rather than the Doctors and get another EGD and go from there. I have had different opinions if there is a connection, my father died of stomach cancer my doctor said yes the surgeon says no.
I have not looked at natural remedies, though I did for two years when I though it was flu as I had a sore throat and minor odd chest pains, short of breath and nothink would work.
Thank you for all your good advice.

IamDonna
Regular Member


Date Joined Nov 2011
Total Posts : 31
   Posted 11/20/2011 3:19 PM (GMT -6)   
Hi All,

I was diagnosed with Barretts (much the same circumstances as yours) in September and looked into many alternatives to nissen fundoplication because of all the horror stories I read - I really didn't want the surgery. I couldn't find any alternatives and saw no other choice but to have the surgery as the thought of getting cancer scared me more than the op.

The 1 option I had hoped for was not possible because I have Barretts - this was the Linx system - I also tried changing diet, sleeping with my wedge under the bed, stopped smoking and was on PPI's - none of this helped.

I know what they say about the chances but given that my Barretts occurred within two years I didn't want to chance it. Nearly 2 years ago I had minor acid reflux and a .5cm hiaus hernia - at my medication review this year the hernia was at 5.5cm and I have 4cm Barretts.

This is day 4 of my op and I still don't know whether I made the right choice or not - probably because the acid reflux didn't cause me a problem - I never had any symptoms and no heartburn at all so I see the suffering I am currently undergoing as self inflicted....
I'm still tired, today's the worst so far as I feel really bloated, nauseous and my shoulders still hurt - I haven't been able to eat tonight as I still feel full from lunch and have the feeling of food in my throat but I haven't had to take the painkillers today. Problem is I suffer from anxiety and panic attacks so can't take my beta blockers either so keep worrying about food getting stuck and all the horrible things I've read - trying to remain positive

Here's hoping Aloe Vera Juice will reduce the swelling and make me feel better
Regards
Donna
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