Frightening Scenario With Nissen Wrap Take-down

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Paddy82
Regular Member


Date Joined Nov 2011
Total Posts : 43
   Posted 11/20/2011 1:58 AM (GMT -6)   
Guys, I really appreciate everyone on this website who contributes to giving advice to people having problems with this. My story is a long but please listen, I may not have been as detailed in my last one. I had all sorts of symptoms starting at age 18, mostly bad bloating, belching, heartburn and such. I was told to have the wrap done after numerous medications, so I did, this was back in '06. Felt fine afterward, but not long after that, maybe five or six months, I was at work and did some heavy lifting and something felt very not right. All of a sudden my belly swelled up to a balloon and the pain was EXCRUCIATING. No belching, couldn't expel air out, it was HORRIBLE. I lost 15 pounds and I am not a big person at all. My surgeon did all these x-rays and kept saying they couldn't see anything so they'd do a revision surgery. When I woke up he said something about a kink or something in it, so he fixed that I guess and gave me a toupet, he brought the wrap halfway down. I felt great for a couple months afterward and then after a while felt some problems but NOTHING like before, I was managing and things weren't too bad. I continued on like this until about last winter and again, was doing pushups and felt like something had screwed it up. So I said, that's it, I'm getting this taken down, I can't live like this. Wasn't as bad though as the last time because I could still expel air out and could still go to work. Well, I had the wrap taken down last week and I am so depressed and anxiety-ridden over what I'm going through now, but my belly, EVERY TIME I eat is swelling up SUPER painful like a few years ago and it HURTS so bad I actually have to sit down or lie down because of the pain. I'm a grown man, 29 and I was brought to tears. Everyone keeps telling me, "you just had this done" but I don't understand how after I week I should be feeling this bad. I don't have any more pain from the incision areas and I don't feel sore. If the wrap was taken down again, WHY am I still not able to expel air out so easily?? It still feels like there's a wrap there! Please help! Could it be that he took it down and it went right back to where it was? Is that possible? This is a nightmare, you guys don't understand, I am now having thoughts about wanting to be dead and I don't need this, I just recently got engaged and would never think of doing anything to harm myself but I can't live like this! Even as I sit here right now typing this my stomach is so distended and it is not easy to expel air. Even if I drink a glass of water it fills me up! Please, someone tell me that I'm not having the same thing that happened to me last time. He's already operated on me three times, I can't imagine I'd have to have it again. And why would he? The wrap was taken down! And he's one of the best surgeons in the country!

Paddy82
Regular Member


Date Joined Nov 2011
Total Posts : 43
   Posted 11/20/2011 1:59 AM (GMT -6)   
I'm crying right now, this is so embarrassing but its so painful. The bloating is so bad that it makes my back hurt and I am not comfortable being in any position. What is going on? I don't have anything like a bowel obstruction or anything, its not that. I mean, after my other two operations I felt fine after about a week until the bad stuff started happening. But now its been exactly a week and I feel HORRIBLE! I don't want to live!

Paddy82
Regular Member


Date Joined Nov 2011
Total Posts : 43
   Posted 11/20/2011 2:00 AM (GMT -6)   
And it feels like even when I do get to expel air out, twenty minutes later it goes right back to doing what it did before, it just fills up with gas. I don't understand how this could be possible if the wrap was taken down! I should have never had this done, why am I so stupid?!

mock turtle
Regular Member


Date Joined Mar 2011
Total Posts : 467
   Posted 11/20/2011 12:55 PM (GMT -6)   
paddy82

im very sorry you are suffering so much. i can identify with your pain. im hurting real bad myself right now and ask my self the same quesion...how can i go on.

but for the sake of loved ones around you , please hang in there...there is hope

first let me say that you indicated the same surgeon operated on you three times

with all this ongoing pain id have to say, hey it time to see someone else and get an unbiased, completely separate second opinion

have you gotten any imagery done? ... barium swallow, ct, mri etc?

what causes the pain to change? can you assume any position, sitting, leaning, standing, lying down etc where the pain changes for better or worse?

hang in there...you dont suffer alone...most days since my tinnitus (ear ringing) ramped , way way up, two weeks ago, on top of all my digestive problems...i feel like im dangling over the edge of a cliff by my fingers

dont give up
mock turtle

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 11/20/2011 1:06 PM (GMT -6)   
paddy-

I agree with mt about getting a barium swallow and see what is going on.

Now for some info I received from the surgeon who repaired the tear in my esophagus in March. He told me I may have to habe my esophagus removed and replaced with my stomach, but he wasn't sure my stomach would be viable as I have had 2 previous stomach operations on the fundus part of my stomach from the nissens. Seems the fundus area can get damaged from the surgery if done multiple times and no longer function properly. Fortunately they were able to get the hole to stop leaking and I was able to keep my esophagus.
Now please don't think I am saying this is what is happening, but just what a surgeon told me could possibly be wrong with mine. Getting the barium swallow and/or manometry may show what is happening.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

Paddy82
Regular Member


Date Joined Nov 2011
Total Posts : 43
   Posted 11/20/2011 1:26 PM (GMT -6)   
I have my post-op Tuesday. Its just a nightmare, I don't understand it. I wish someone would tell me this is just still in the process of healing but I can't help but feel that it wouldn't be like this.

outtllaw
Regular Member


Date Joined Aug 2007
Total Posts : 69
   Posted 11/20/2011 9:07 PM (GMT -6)   
You should also get a stomach emptying test done to see if you have delayed emptying. You also were a bit unclear on why they redo your first wrap? I know you are going through a lot right now but just hang in there man, thing will get better.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 11/20/2011 9:26 PM (GMT -6)   
Paddy,
I'm sorry to hear that you're suffering so.  I agree with everyone's advice regarding getting some tests to determine what's going on.  That said, your symptoms make me think back to my early surgical recovery.  Although your wrap was taken down (I'm certain it can't go back on its own), your stomach has still been through major surgery, and there is no doubt that it's swollen and irritated.  I'm wondering if the bloating you're experiencing is related to that swelling.
I hope you get answers to your questions very soon, and feel better.
Very best wishes!
Denise 

Paddy82
Regular Member


Date Joined Nov 2011
Total Posts : 43
   Posted 11/21/2011 3:06 AM (GMT -6)   
Thank you all for your kind words. Today, even weirder. I feel like I still have a wrap. Its so tight and the air has a tough time getting out, I practically have to try and force myself to burp. What's scaring me the most about this is not being able to move forward with my life. I told my surgeon I didn't care if my heartburn came back because I could try to manage that with medication. I just wanted to be able to belch better again and not have this wrap. I wouldn't think my insides would still be swollen after only a week, is that possible?

Paddy82
Regular Member


Date Joined Nov 2011
Total Posts : 43
   Posted 11/21/2011 5:12 AM (GMT -6)   
Did I mention that also the first two or three days after I came home from the hospital I was able to expel air out a lot better than now? How can that be? I could actually feel that something had changed, that it didn't feel like there was a wrap there anymore. Now it feels like there's a SUPER tight wrap!!!!

Paddy82
Regular Member


Date Joined Nov 2011
Total Posts : 43
   Posted 11/21/2011 5:13 AM (GMT -6)   
I'm up, at 4:00 AM and it feels tighter than ever, hard to expel any air, trying to swallow air to make myself burp but to no avail. I am skinny as a rail and I look pregnant! I don't understand this, how the hell would it feel like this if the darn thing was taken down?????!?!???

Paddy, I had to edit your post as we are not allowed to talk about suicide. May I suggest also checking out our depression and anxiety forum?

Post Edited By Moderator (opnwhl4) : 11/21/2011 4:45:51 AM (GMT-7)


opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 11/21/2011 6:47 AM (GMT -6)   
Paddy-

Even though you had the wrap taken down the trauma to yur stomach is going o cause swelling and this does get worse for a couple weeks or so and then subsides. This is most likely why our symptoms are worse than right after surgery. Give your body time to heal.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

Paddy82
Regular Member


Date Joined Nov 2011
Total Posts : 43
   Posted 11/21/2011 6:56 AM (GMT -6)   
I hope that by eating anything I'm not supposed to that I could make it worse. He told me by Tuesday I'd be allowed to have solids, I had it done last Friday. Not that it matters what I eat anyway because it hasn't been much. I feel full enough, like I'm going to explode drinking a sip of water.

WJF
Regular Member


Date Joined Sep 2011
Total Posts : 273
   Posted 11/21/2011 7:20 AM (GMT -6)   
Please don't give up on your life, talk to your surgeon, talk to more docs, one of them might want to take a closer look. Could be a simple explanation behind it? something the doctor has overlooked?

[quote]he's one of the best surgeons in the country

The best does make mistake.

Paddy82
Regular Member


Date Joined Nov 2011
Total Posts : 43
   Posted 11/21/2011 8:01 AM (GMT -6)   
So swelling on the insides causes things like this to happen? If anyone out there has any experience with this, please let me know. I know I had a take down but I thought the bloating others received would have been from the wrap not letting air get up. I didn't think this was possible by getting the wrap taken down, it just seems nonsensical.

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 11/21/2011 8:32 AM (GMT -6)   
paddy-

You must remember the surgery still caused trauma to that area and will swell. The bodies natural reaction.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

Paddy82
Regular Member


Date Joined Nov 2011
Total Posts : 43
   Posted 11/21/2011 8:33 AM (GMT -6)   
Thank you, I hope you're right and that's all it is. If I'm stuck like this I don't know what I'll do. I feel like I never had the thing taken down.

Paddy82
Regular Member


Date Joined Nov 2011
Total Posts : 43
   Posted 11/21/2011 8:34 AM (GMT -6)   
yet, i felt something was taken down when i first came home.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 11/21/2011 10:06 AM (GMT -6)   
Paddy, I'm confident that when the swelling goes down you'll be swallowing easily again.  Hang in there!

Paddy82
Regular Member


Date Joined Nov 2011
Total Posts : 43
   Posted 11/21/2011 10:59 AM (GMT -6)   
How long does that usually take? I had my surgery take down last Friday and he told me I could start eating solids again Tuesday (of last week). But I've been having all these problems.

Juliz
Regular Member


Date Joined Oct 2011
Total Posts : 29
   Posted 11/21/2011 10:11 PM (GMT -6)   
 
 
     Paddy,
   I am so sorry to hear of your problems, I can feel your stress and how hard it is to deal with it everyday as I can tell you from 1st hand knowledge as many of us here can. The stress can cause you so many problems and make things so much worse,maybe you could talk to your Dr. about your anxsiety and fears which can cause alot of issues. For me it caused severe gastritis which is very painful and make you feel terrible I EVEN took to my bed Iwas so depressed.
   I agree that you probably need to get testing done very soon to see whats what. I am always stressing and found if I TRYto curb it and thats not easy when your feeling so awful. When you have any suegery your insides have alot of swelling and unfortunately we can't see that part,it's not like the outside which we can see it heal and know whats going on, but the inside takes alot longer and the stress of the surgery is very hard as well.
  Please take care and I am thinking of you and hpoe things will get better very very soon.
   Kindly Julix

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 11/21/2011 10:16 PM (GMT -6)   
Paddy,
Have you called your surgeon about the concerns you are having?  You're obviously in real distress, and it seems that your surgeon should be notified, and perhaps even see you this week.  None of us can really answer your questions, as we're far away from the problem, and can only guess based on our own experience.  I would urge you to contact your surgeon's office tomorrow.  Even if you've already discussed the situation previously, it is persisting, and you're not making the progress that it seems the surgeon expected (starting solids a week ago).  It's time to discuss this with your doctor.
Good luck!
Denise

Paddy82
Regular Member


Date Joined Nov 2011
Total Posts : 43
   Posted 11/21/2011 11:04 PM (GMT -6)   
Hey guys, thanks for the kind words. Yes, I have my post op tomorrow, I didn't expect to feel great after I had this done. I have a stomach problem, in addition to the GERD that they can't identify and I knew that getting this wrap taken down all my old problems would come back. That's not the problem, the problem is it feels like I still have a wrap. Its very tight and hard to force burps up out of my stomach. Before I ever had any of the surgeries, I was able to belch freely and get air out of my stomach. The entire reason I got this taken down was because the wrap made that harder. It sure did get rid of the GERD, which was nice, but the bloating was even worse. I had bloating before my surgery but again, I was able to expel air out.

Does anyone know how long the swelling usually takes to go down? I am hoping this is all it is. My surgeon is a nice guy but he's very annoyed that I've been seeing him for so many years and not making progress. I don't have insurance, I have medicaid and it could run out soon. I am so deathly afraid that I have made it worse. I can't see how that could happen, I thought I would go back to what my stomach was before surgery. I could go to another doctor or surgeon but its so hard because I don't have a car and getting up there all the time is a huge pain. I know you mentioned anxiety but believe me, its not that. Whatever is causing my stomach to be like this, for years, is something I've accepted but I at least thought I would go back to my old stomach. Could I have made this worse? When does the swelling usually go down?

Paddy82
Regular Member


Date Joined Nov 2011
Total Posts : 43
   Posted 11/21/2011 11:07 PM (GMT -6)   
After my second surgery, they gave me a toupet, and immediately after I was able to belch whereas before when I had my first, I couldn't at all. If its swelling, wouldn't I at least be able to get it out easier than when I had the toupet since I now have the entire thing taken down? I just wish I could talk to someone who had a take down. If anyone can tell me anything about how long the swelling takes to go down, I'd really appreciate it. I don't expect my surgeon to tell me anything good tomorrow. He'll say, "Well, Patrick, I don't know what to tell you. We've tried everything." He even said after this was done that if I continued to have problems that it would be better if I sought help elsewhere.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 11/22/2011 1:43 PM (GMT -6)   
Hey Paddy,
 
If he says that, don't accept it.  You specifically want to know why you feel like you still have resistance between your stomach and your esophagus.  You want to know why, if the wrap is taken down completely, you're still not able to burp properly.
 
Don't leave until you're satisfied.  You want answers, your surgeon needs to at least attempt to educate you on the subject.  Camp out in that office if you have to! yeah
Good luck!
Denise
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