Hi I'm new - recent Nissen Fundo Op

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IamDonna
Regular Member


Date Joined Nov 2011
Total Posts : 31
   Posted 11/20/2011 4:41 PM (GMT -6)   
Hi All

I've just joined the forum after searching for post-op advice on the internet and it kept directing me here.

I was first diagnosed with Acid Reflux (minor erosion) and Hiatus Hernia .5cm in March 2009 and was put on Omeprazole - I should have had a gastroscopy a year later to check but the NHS stopped doing yearly reviews so I had it September this year during a medication review.

I was shocked to find that my Hernia was 5.6cm and Acid Reflux was severe as well as having 4cm Barretts. I wasn't even given opportunity to see a dietitian.

I was put forward for the Nissen Fundo op and really didn't want it after reading about all the complications etc. but after doing much research found no other alternative so here I am 4 days after the op still wondering whether I should have had it done or not. I feel really bloated today, no gas coming out at all, feel nauseous and haven't been able to eat anything tonight - shoulders still hurting and I'm told it will get worse... will it ever get better?

Worst of all is that I never had any symptoms at all - no heartburn, no anything so feel as though I've put myself though this for no reason at all.

Glad to 'meet' you all
Donna

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 11/20/2011 7:13 PM (GMT -6)   
Hi Donna,
Glad to meet you!  Welcome to yeah yeah yeah The Wrapped Club! yeah yeah yeah Your situation sounds a bit like another member here, Cindy123, who had her wrap about 10 months ago.  Perhaps she will stop by and chat...letting you know about her experience.  Like you, she didn't have symptoms prior to the surgery, so the recovery is that much more difficult to take.  I totally understand.
 
That said, what you're experiencing is very common in the early stages.  Hang in there...things will improve.  Like you, I had read lots of horror stories on the internet and was very worried about horrible complications.  This forum was a lifesaver for me.  People here were far more realistic and could see past the difficulties to the positive life-enhancing aspects of the surgery.  I waited far too long to have it because of my fears.  I had the surgery in February 2009, and know just what you're experiencing.
 
I found walking really helped the shoulder pain. The more I walked, the less shoulder pain I had.  Just hike around your house...It may also help you pass gas out the other way as well.
 
You didn't say when you had your surgery, or what day you are post op.  In the early stages many stomachs rebel and don't want food.  Newly created wraps get tired and start hurting after much swallowing.  This is very common.  Be sure you're not drinking water/drinks with a straw.  It introduces too much air into your stomach.
 
Have your read my recover journal?  It might set your mind at ease regarding some of the early healing and eating issues:  http://www.healingwell.com/community/default.aspx?f=45&m=2183443  Just a thought.
 
Again, welcome to Healing Well!  Glad you've joined up.
Take care,
Denise

IamDonna
Regular Member


Date Joined Nov 2011
Total Posts : 31
   Posted 11/21/2011 5:57 AM (GMT -6)   
Hi Denise

Thank you for the warm welcome. I had the wrap last Wednesday so today is day 6. I will read your Journal, thank you

Regards
Donna

Cindy123
Regular Member


Date Joined May 2011
Total Posts : 175
   Posted 11/21/2011 10:31 AM (GMT -6)   
Hi Donna, I can relate to your story. I discovered I had acid reflux July of last year and on January 31st I had my full wrap surgery. I think too that I had jumped the gun. I didn't have any symptoms either other than a pain more to my upper chest. I started investigating. I discovered that I had some damage starting to happen to my esophaugus. I did not have Barretts, however I was afraid of getting it and more importantly, getting cancer....so I opted for surgery even without trying to see if acid pills would help. I just wanted to fix it.

I am into my 10th month and I can now tell you that I am happy I did it. I had a rough recovery because I wasn't expecting the recovery to take so long. I didn't start feeling better until after my 7th month. I had a rough time burping but it does get better. I used to cry every morning and say "why did I do this", but Denise and another friend on this forum helped me to understand more about the benefits of having this surgery.

Don't look back, it will only make your recovery that much harder. My surgeon said that the acid pills are not good for you and that you should only be on them for a short period of time.. you take it for a month and come off for a month. I didn't want to be bothered. According to my surgeon, this is a minor surgery....it was like living in hell for the past 7-8 months. I found the surgery that much harder because I didn't appreciate the surgery...I had silent reflux. My surgeon also said that my recovery would be 2 to 4 weeks.

Are you able to burp???? The gas, the bloatedness and the shoulder pain will go. Your stomach controls you now so listen to it. Don't push the recovery.

Take care.

Cindy

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 11/21/2011 1:51 PM (GMT -6)   
Donna, I'm not wrapped (NHS says I'm not ill enough!!) but I just thought I'd say Hi from a fellow UK citizen. There's lots of folk around on the forum to talk you through your post op recovery - so hang in there and listen to all the good advice. I think "daddypig" is in the UK and was wrapped this year too.

I hope you feel on the mend very soon,

MMM
New stuff: GERD. Interstitial Cystitis
Lifelong stuff: Food allergies, eczema, asthma

kyheart
Veteran Member


Date Joined Apr 2011
Total Posts : 515
   Posted 11/21/2011 9:42 PM (GMT -6)   
Donna
I am almost 8 months post Lap Nissen and I am 62 years old. I would do this all again if my doctors ever told me it was necessary. I had issues with GERD for about 12-13 years. I took a variety of PPI's and each time they changed them, the dosage would get stronger. I finally said.. ENOUGH... I am so sorry that you feel, after only six days, that you may have made a mistake.
My surgeon also told me my recovery would take 4-6 weeks.. what do they know?? They are the surgeon, he knew how to do the procedure. He knows nothing of the recovery except that I was going to have to be on full liquids for 2-3 weeks.. I was blessed to have such a skilled surgeon, but for all of his skill, he did not know so much about recovery... he has never HAD the surgery...
I am still recovering.. as far as recovery goes, I feel blessed that I had this forum and these friends to direct me about what is normal and to encourage me through this recovery. I am blessed!!!!! Please hang in there and if you wish to gripe, we are here to listen to you and stand by you through it all. We have been where you are or we can at least imagine what you are feeling if we have not yet experienced it. Your recovery is difficult, we know that... it will be especially hard because you were not suffering before you had it.. most of us were.. but, you will be thankful that you had it in the long run. I hope some of what I have said to you makes sense, I wanted to try to help you make some sense of it even though you are doubtful right now... Please surrender to your recovery and just let it flow.. you will be a much happier patient.. and it will be so much easier for you than if you fight it.. just remember that your wrap doesn't stop swelling until about the 14th day.. after that it is pretty much downhill.. you can coast.. and flow with your recovery..
Please continue to come here to the forum and ask all the questions you would like and gripe as much as you need.. we will be here to listen and support..
Reach for the Sunshine.. Rainbows will follow..
Sandi turn tongue turn yeah smurf

IamDonna
Regular Member


Date Joined Nov 2011
Total Posts : 31
   Posted 11/22/2011 12:29 PM (GMT -6)   
Thank you so much everyone - you're so friendly and helpful. I feel better for having read your responses and knowing that I'm not alone.

I have started feeling burning at the back of my throat and my voice changing, I only felt this a few times with acid reflux but my surgeon told me to come off the PPI's straight away as I won't have any more reflux - is this normal even though I didn't suffer from this before the op? does it mean that the op was unsuccessful?

Thank you once again, you've all been a great help - glad to have found you all
Regards
Donna

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 11/22/2011 1:48 PM (GMT -6)   
Hi Donna,
Many surgeons have their patients remain on PPIs during their recovery, both to protect the healing wrap and ward off the possibility that the swelling wrap allows some reflux through.  We all worry that our surgeries were a failure when we feel what seems to be reflux. You're not alone, but relax...it doesn't mean that your surgery was a failure!   
 
Sometimes it actually is reflux--my surgeon said that "anything is possible in the early healing days and weeks".  That's because the swollen wrap can be misshapen, and it's very possible that a bit of acid could escape.  Another cause of "reflux" feelings post-op is that the esophagus is a "dumb organ" and it interprets all pain as reflux.
 
We're glad you've joined us!
Happy Healing,
Denise
 
 

Jesper A
Regular Member


Date Joined Nov 2011
Total Posts : 131
   Posted 11/22/2011 1:48 PM (GMT -6)   
Hi Donna, I am on day 15. I had acid reflux on day 4 after my op.
I called my surgeon who told me to get back on PPI's at same dose as before and only begin lowering the dose after another 14 days. She also said that it could easily take a month or two before the wrap had settled and all was gone.
Some on this forum can also report on "Phantom" reflux during the recovery period

Juliz
Regular Member


Date Joined Oct 2011
Total Posts : 29
   Posted 11/22/2011 4:03 PM (GMT -6)   
 
     Hi Donna
    
   Welcome to the wrapped club, I am a pretty new member, joined in Oct. I can tell you the people on this forum are the best, we can complain and whine and ask questions and be scared and in fear and they stand right next to you and you feel so much better and know you are not alone. I found it so hard to talk to my friends about all this because they truly don't understand it.This surgery is not an everyday thing and the SURGEON is just the person that does the procedure. It does take your body time to adjust and I wish I HAD found this great group to talk much earlier. my wrap done on 12-6-10. I think my stress levels would have been much less, I WORRIED about every gurggle and noise.
   I Love the quote let your recovery flow.
           Take good care Julix
 
      Denise I love your the esophagus is a dumb organ I even told that to my Dr.and he wanted to know where I READ that and I told him on a forum and he wanted to know which one since alot of them do read like a horror story and I told him Healing Well and he said that it was a good one.... I THOUGHT WHO KNEW... maybe he has read some of the posts. Maybe more Drs should read it and learn something about recovery. smilewinkgrin smilewinkgrin smilewinkgrin smilewinkgrin
 
      Thanks Julix
 
 

IamDonna
Regular Member


Date Joined Nov 2011
Total Posts : 31
   Posted 11/22/2011 4:18 PM (GMT -6)   
Thank you all, that's good news - I'm grateful for your support, I'll give the surgeon a ring tomorrow but have been taking Gaviscon as I don't really want to swallow the omeprazole capsule being so big - one of my pain killer capsules got stuck on Saturday (half the size of omeprazole) and it burned really badly

You're all great thank you...BTW - can I eat dunked biscuits (in tea) as part of the soft diet? It'd be nice to have something normal

Thank you once again :-) :-) :-)

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 11/22/2011 4:22 PM (GMT -6)   
Hi Donna,
See if you can get him to prescribe Protonix (it comes in a generic form).  It's tiny!
Good luck!
Denise

elsiem
Regular Member


Date Joined Jul 2011
Total Posts : 131
   Posted 11/22/2011 4:54 PM (GMT -6)   
Hi Donna

I would go for it with the dunked biscuit. A nurse gave my one in hospital on day 4 after my NF & said it was ok to dunk it in my coffee. It was a chocolate biscuit as well & I had no bad effects afterwards. I enjoyed it so much it made my day.

Good luck

Lynda

IamDonna
Regular Member


Date Joined Nov 2011
Total Posts : 31
   Posted 11/23/2011 7:32 AM (GMT -6)   
Thank you Lynda - that's made my day :-)

I got some Aloe Vera juice today so I'm hoping that will help with the healing. Been to the doc Denise - he gave me soluble Omeprazole

Thanks both
Donna

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 11/23/2011 10:31 AM (GMT -6)   
Sounds good, Donna! yeah Have a good day.

IamDonna
Regular Member


Date Joined Nov 2011
Total Posts : 31
   Posted 11/24/2011 4:45 AM (GMT -6)   
Morning all,

It's now day 8 :-) had a good day yesterday but an feeling very nauseous this morning - is this normal?

Thank you
Donna

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 11/24/2011 8:48 AM (GMT -6)   
Donna-

Yes it is normal. Did you get any anti nausea meds from your doctor? I hope you did, but if not please get some asap.

Happy Thanksgiving-

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

bowecho
Regular Member


Date Joined Nov 2011
Total Posts : 146
   Posted 11/24/2011 9:33 AM (GMT -6)   
Hi Donna,

Thank you for sharing your experiences. For someone who is on day 2 post-op today, it helps to hear how others are doing that are a bit further along.

Day 2 so far is not too fun (waiting on that Lortab to kick in this morning!), but I keep reminding myself why I did this. In the end, it will be worth it. 1 year ago today I was feeling absolutely terrible. I was a 31 year old man that had to temporarily live with his parents because my reflux was so bad it caused all day long pain and made it difficult to even take care of myself. I was at my worst low mentally and physically, I was in a really bad place. Today, a year later, after trying every non-surgical treatment possible, I pulled the trigger and had the surgery, knowing it was my best chance at feeling better. I'm sure 1 year from now I will be very glad I had the surgery.

I'm glad you are having better days now and I am looking forward to reading more about your recovery. This forum has really been amazing. The stories here are great. Thank you!

IamDonna
Regular Member


Date Joined Nov 2011
Total Posts : 31
   Posted 11/24/2011 11:25 AM (GMT -6)   
Hi all,

I got some anti-nausea pills from the doc today, ones that I have to put under my gum to dissolve so hope the nausea doesn't last too long - not a nice feeling... I'm glad to hear that it's normal though as I thought it may be the Aloe Vera or that I'd over done the walking yesterday.

Hi bowecho! you're experience sounds awful - I'm sure you will be very pleased you had the op in a few months. I also find this forum very helpful and wish I'd found it earlier but better late than never. I find it very comforting sharing the experience and hearing from others in the same position - like a whole new family :-)

It keeps me going, knowing that it will get better as the days go by

Regards
Donna

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 11/24/2011 12:26 PM (GMT -6)   
Donna-
Glad you got the anti nausea pills. It's a good idea to keep a script of these because the odds are you won't be able to vomit and dry heaves are horrible. They can also damage the wrap.

bowecho-
Early on it is a good idea to take the pain meds at somewhat regular intervals. If you wait until it is hurting it will take longer to get it under control.


Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

Need help bad
New Member


Date Joined Nov 2011
Total Posts : 2
   Posted 11/24/2011 1:12 PM (GMT -6)   
My husband has been suffering horribly with reflux. It is all the way up in his throat 100% of the time now. He has a scheduled 24 hour ph test on Tuesday to see if he should have surgery.
His tongue and lips are burning now it has gotten that bad. He has had a sore throat for several years, and now has a hard time breathing. He has been wheezing and can't get a deep breath. He just wants to live. He has lost 30 pounds and is having a hard time putting any weight back on. He has had an upper endoscapy which showed some abnormal tissue in the esophugus, but luckily was benign. I am so afraid for him. He hasn't had a life for so long. He is just existing and it is a painful and sad exidstance. I am glad we don't own a gun because I am afraid he would use it in his darkest hour. He is unable to smile or laugh anymore and is having a hard time seeing a future without this horror that has become his life. we will find out if he is a candidate for the surgery after tests, but if he is not, what then? And if the surgery isn't successful? It is so hard to know what to do. Helpless and hopeless

IamDonna
Regular Member


Date Joined Nov 2011
Total Posts : 31
   Posted 11/24/2011 1:14 PM (GMT -6)   
Hi Bill

Thank you - I've been given Prochlorperazine, not very quick acting... is this one OK or is there a better one I should ask for. I did ask for a perscription to keep just in case but they won't give me one, they said I have to make an appointment but that may be too late .... I may have to go for over the counter options if I'm in urgent need at a later date

Regards
Donna

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 11/24/2011 1:40 PM (GMT -6)   
Donna-

I use Phenegren, it's works well for me. I am not familiar with what you have. Maybe Kitt, Denise, or someone else who may know more about this med will stop by. I do know that Zofran can be taken by placing it under your tongue. Maybe this is similar?

Was this your surgeon who said you need an appointment to get a script for it? If so, that's not very nice. My surgeon refills mine when ever I need it over the phone. Sorry they don't want to cooperate very well.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

IamDonna
Regular Member


Date Joined Nov 2011
Total Posts : 31
   Posted 11/24/2011 4:35 PM (GMT -6)   
Thank you Bill,

My surgeon told me to go to my GP for any meds I feel I need or to ring the hospital for any concerns. My GP's the one who said to make an appointment. I have a check-up with my surgeon on the 13th December as part of the 'closure' then that's it. They seem to be a lot better in the States with this kind of thing - you seem to have regular contact with your surgeons, we don't have that luxury over here - they do the op then a follow-up and that's it.

The pills he gave me are and anti psychotic which was a bit worrying :-)

Regards
Donna

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 11/27/2011 10:43 PM (GMT -6)   
Hi Donna,
If you're talking about Compazine (Prochlorperazine) (it's used for nausea, and treating scizophrenia...hmmmm).  I can tell you this; I've used it during two stomach virus episodes, and it worked better that Zofran both times. 
 
Now, I used a suppository version, which I recommend, because it doesn't have to go throught the upper GI tract at all.  It's a very common and old drug, so it has a long track record.  Just stick with the every  12 hour dosing, which, my PCP says will keep away neurological reactions.  I haven't had any problems while taking it, if that helps at all.  I only took it a couple days both times, but it did keep vomiting at bay, which was my goal.   Hope your nausea is better today.
Best wishes!
Denise
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