Trying to make a long story short without leaving out important details, so thanks if you read this and for any advice. or like experiences.
I've had a bad flare up of acid reflux/GERD these past 3 months. before that I had reflux off and on but was controlled very easily. right before the flare up, I swallowed a pill that seemed to have felt stuck in my throat below my adams apple. It could have been just a sensation or it scratched on the way down but it really did feel like it was stuck there. of course it freaked me out as I was thinking it could move into my wind pipe and compromise my breathing. After about an hour, I continued to have this sensation, didn't even eat lunch. later that night the feeling seemed to let up some. I ate dinner fine. after this pill incident my reflux blew up BAD. Never had reflux that badly. GERD friendly foods weren't even friendly. Over the week I realized my food was moving down slowly after swallowing. its very uncomfortable and I can feel it moving down my esophagus. It alarmed me because I never felt my food moving down so slowly like that and never had an issue swallowing. I chalked this sensation up to the pill incident and reflux. I went on a soft diet as I was scared to eat anything really hard incase it made problems worse or got stuck.
I've been to a GI doc who told me after endoscopy that I had no strictures or narrowing but some esophagitis (at the bottom) and gastritis. told me to stay on the soft diet awhile longer so my esophagitis could let up. after endoscopy I guess from being inside my stomach and messing with my LES, it seemed to blow up my reflux even MORE. Doc changed my PPI to Dexilant. Which I am currently on. I told him my symptoms got worse after endoscopy and I developed a new symptom of the dreaded "lump" feeling in my throat. He told me I may want to consult with a ENT if it didn't let up. which it didn't.
I had to go on a completely blender liquid diet (blended oatmeal or cereal, yogurt smoothies, ensures, blended meats and potatoes into creamed soups) because I am still having problems swallowing and because of this new lump feeling in my throat and the reflux that was bad for a week after the endoscopy, it made the issues swallowing that much more troublesome. Tried to eat the soft food again and it felt the same- going down slow, but I just didnt want to deal with it anymore.
Went to ENT had laryngoscopy which he said was normal. ENT thinks that I could be having a "motility" issue with my esophagus. I did a barium swallow to check for my problems swallowing but nothing was said about the motility or swallowing but my reflux was "moderate to heavy" Which is crazy cause I've been on PPIs over the course of these 3 months, which some didnt work, but I've been on dexilant for a month and a half now.
So I've been so depressed and worried about what is wrong with me because none of the tests are stating anything about my swallowing problems which I still have and also, I'm not having problems really with acid in my throat, but I'm still having reflux (as the swallow test confirmed) of food from time to time but with no acid from the stomach. sometimes it feels almost like the food refluxes within 2-3 minutes of swallowing, which makes me wonder if it really could be a motility problem because the food is taking longer to go down.
I've been on the blender liquid diet for a month now and I'm really depressed and scared. I'm worried if I do have a motility problem that I will have to eat the rest of my life like this! I have an appt with my GI doc and I know the next test he might do is a manometry test for the motility which I've heard is really uncomfortable. I just dont know what to do anymore. this is really putting so much stress on my quality of life. I never knew acid reflux could be so bad! If anyone is going through this or has gone through this please share your story. I need all the help I can get. I feel so helpless. And now I feel I'm going to develop anxiety towards eating. Also, to anyone who has been on a liquid diet for months at a time or is currently doing this, how do you mentally cope with it? I think out of everything this is what is causing me the most grief. I can't even enjoy thanksgiving with my family this year =o(